{"id":14760,"date":"2014-02-09T19:06:46","date_gmt":"2014-02-09T18:06:46","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=14760"},"modified":"2014-02-09T19:09:58","modified_gmt":"2014-02-09T18:09:58","slug":"roztousena-skleroza-se-jiz-leci-vcas","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=14760","title":{"rendered":"Roztrou\u0161en\u00e1 skler\u00f3za se ji\u017e l\u00e9\u010d\u00ed v\u010das"},"content":{"rendered":"

Mo\u017enosti modern\u00ed l\u00e9\u010dby roztrou\u0161en\u00e9 skler\u00f3zy se pro \u010desk\u00e9 pacienty zlep\u0161ily. Nemocnice ji\u017e dodr\u017euj\u00ed vl\u00e1dn\u00ed na\u0159\u00edzen\u00ed, \u017ee do 1 m\u011bs\u00edce od zji\u0161t\u011bn\u00ed nemoci se mus\u00ed s l\u00e9\u010dbou za\u010d\u00edt.<\/strong><\/p>\n

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Indika\u010dn\u00ed krit\u00e9ria v \u010cR jsou ale p\u0159\u00edsn\u011bj\u0161\u00ed ne\u017e ta mezin\u00e1rodn\u00ed a l\u00e9\u010dba se tak neza\u010d\u00edn\u00e1 hned po prvn\u00edm z\u00e1chvatu jako v jin\u00fdch zem\u00edch. „Vyhl\u00eddky pro pacienta jsou t\u00edm p\u00e1dem hor\u0161\u00ed,“ m\u00edn\u00ed vedouc\u00ed centra pro l\u00e9\u010dbu RS V\u0161eobecn\u00e9 fakultn\u00ed nemocnice profesorka Jana Havrdov\u00e1.<\/p>\n

„Nov\u011b diagnostikovan\u00ed jsou na tom relativn\u011b dob\u0159e, hor\u0161\u00ed je to s t\u011bmi, kter\u00fdm byla nemoc zji\u0161t\u011bna u\u017e d\u0159\u00edv,“ podotkla.<\/p>\n

Probl\u00e9m je podle n\u00ed i v tom, \u017ee center je st\u00e1le stejn\u011b, tedy 15, a se stejn\u00fdm po\u010dtem person\u00e1lu, i kdy\u017e pacient\u016f p\u0159ib\u00fdv\u00e1.<\/p>\n

Jej\u00ed centrum pe\u010duje a\u017e o 4000 pacient\u016f s osmi l\u00e9ka\u0159i na necel\u00e9 \u00favazky, p\u00e9\u010di hrad\u00ed poji\u0161\u0165ovny.<\/p>\n

Fyzioterapeuty a psychology plat\u00ed centrum z nada\u010dn\u00edho fondu. Potvrdila, \u017ee d\u0159\u00edv\u011bj\u0161\u00ed v\u00fdpadky ve financov\u00e1n\u00ed se neopakuj\u00ed, v tom vl\u00e1dn\u00ed na\u0159\u00edzen\u00ed pomohlo.<\/p>\n

Centra ale p\u0159edem nev\u011bd\u00ed, kolik pen\u011bz dostanou. Managementy je tla\u010d\u00ed k \u00faspor\u00e1m, ke konci roku u\u017e pr\u00fd nemaj\u00ed za\u0159azovat nov\u00e9 pacienty do biologick\u00e9 l\u00e9\u010dby. „Ve skute\u010dnosti poji\u0161\u0165ovny na konci ka\u017ed\u00e9ho roku \u0159eknou, \u017ee jsme pen\u00edze nedo\u010derpali,“ \u0159ekla profesorka.<\/p>\n

Ocenila, \u017ee loni se poda\u0159ilo d\u00edky nada\u010dn\u00edm pen\u011bz\u016fm za\u010d\u00edt budovat celost\u00e1tn\u00ed registr pacient\u016f s RS. Zat\u00edm se zapojilo osm center, dal\u0161\u00edch sedm \u010dek\u00e1, a\u017e managementy nemocnic uzav\u0159ou smlouvy.<\/p>\n

Vkl\u00e1d\u00e1n\u00ed dat hrad\u00ed nada\u010dn\u00ed fond. Podle Havrdov\u00e9 by tento registr m\u011bl budovat a financovat st\u00e1t, jako je to ve Francii \u010di Skandin\u00e1vii.<\/p>\n

V \u010cR trp\u00ed v\u00e1\u017en\u00fdm neurologick\u00fdm onemocn\u011bn\u00edm mozku \u010di m\u00edchy 17.000 a\u017e 20.000 lid\u00ed, po\u010dty rostou. Modern\u00ed biologickou l\u00e9\u010dbu dost\u00e1v\u00e1 zhruba 6000 nemocn\u00fdch. RS se v\u011bt\u0161inou objev\u00ed mezi 20. a\u017e 40. rokem v\u011bku, \u010dast\u011bji postihuje \u017eeny. Bez \u00fa\u010dinn\u00e9 l\u00e9\u010dby kon\u010d\u00ed pacienti na voz\u00edku.<\/p>\n

Je\u0161t\u011b loni museli pacienti o l\u00e9\u010dbu bojovat. Biologickou l\u00e9\u010dbu roztrou\u0161en\u00e9 skler\u00f3zy toti\u017e p\u0159estala VZP hradit v\u00edce ne\u017e dv\u011bma stovk\u00e1m pacient\u016f. Ti\u00a0 se bou\u0159ili a vinili poji\u0161\u0165ovnu ze zhor\u0161en\u00ed jejich zdravotn\u00edho stavu.<\/p>\n

Poji\u0161\u0165ovna kontroly se h\u00e1jila t\u00edm, \u017ee na l\u00e9\u010dbu jdou nemal\u00e9 prost\u0159edky. Za roke kolem miliardy korun. M\u011bs\u00ed\u010dn\u00ed l\u00e9\u010den\u00ed biologickou l\u00e9\u010dbou stoj\u00ed od 20 do 40 tis\u00edc korun. Bez biologick\u00e9 l\u00e9\u010dby jsou n\u00e1klady ni\u017e\u0161\u00ed. Pohybuj\u00ed se mezi 5 a\u017e 18 tis\u00edci korunami m\u011bs\u00ed\u010dn\u011b.<\/p>\n

Ministerstvo zdravotnictv\u00ed na situaci kolem \u00fahradov\u00fdch tahanic, je\u017e jsou dlouhodob\u00e9, zareagovalo t\u00edm, \u017ee do na\u0159\u00edzen\u00ed vl\u00e1dy dalo lh\u016ftu. Ta \u0159\u00edk\u00e1, \u017ee pacienti s roztrou\u0161enou skler\u00f3zou se mus\u00ed k biologick\u00e9 l\u00e9\u010db\u011b dostat nejpozd\u011bji \u010dty\u0159 t\u00fddn\u016f od diagn\u00f3zy.<\/p>\n

Dev\u011bt pacient\u016f ze severu \u010cech p\u0159edloni v lednu ozn\u00e1milo, \u017ee se \u00fahrad budou dom\u00e1hat soudn\u011b. Na \u017ealoby ale nedo\u0161lo, proto\u017ee provozovatel tam\u011bj\u0161\u00edho zdravotnick\u00e9ho za\u0159\u00edzen\u00ed rychle couvl a pen\u00edze na l\u00e9\u010dbu na\u0161el.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Mo\u017enosti modern\u00ed l\u00e9\u010dby roztrou\u0161en\u00e9 skler\u00f3zy se pro \u010desk\u00e9 pacienty zlep\u0161ily. Nemocnice ji\u017e dodr\u017euj\u00ed vl\u00e1dn\u00ed na\u0159\u00edzen\u00ed, \u017ee do 1 m\u011bs\u00edce od zji\u0161t\u011bn\u00ed nemoci se mus\u00ed s […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10011,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-14760","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/14760","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=14760"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/14760\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10011"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=14760"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=14760"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=14760"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}