{"id":15734,"date":"2014-04-17T07:01:27","date_gmt":"2014-04-17T05:01:27","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=15734"},"modified":"2014-04-17T13:11:37","modified_gmt":"2014-04-17T11:11:37","slug":"prahou-dnes-projde-pruvod-na-podporu-hemofiliku-pripojte-se","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=15734","title":{"rendered":"Prahou dnes projde pr\u016fvod na podporu hemofilik\u016f. P\u0159ipojte se…"},"content":{"rendered":"

Prahou dnes projde historicky prvn\u00ed charitativn\u00ed pochod na podporu hemofilik\u016f. Startuje v 16:00 na Palack\u00e9ho n\u00e1m\u011bst\u00ed a po vltavsk\u00e9m n\u00e1b\u0159e\u017e\u00ed a p\u0159es most Legi\u00ed dojde a\u017e na N\u00e1m\u011bst\u00ed Kinsk\u00fdch na Sm\u00edchov\u011b. Vystoup\u00ed 5Angeles a ochutn\u00e1 se japonsk\u00fd bio \u010daj \/ilustra\u010dn\u00ed foto\/.<\/strong><\/p>\n

 <\/p>\n

Pochod je vyvrcholen\u00edm dlouhodob\u00e9 akce, kdy si lid\u00e9 kupovali p\u0159es internet tri\u010dka, \u0161\u00e1ly a placky v symbolick\u00e9 \u010derven\u00e9 barv\u011b s logem „Podporuji l\u00e9\u010dbu hemofilie“. Mohou si je dnes vz\u00edt do pr\u016fvodu na sebe.<\/p>\n

Pro \u00fa\u010dastn\u00edky pr\u016fvodu, kter\u00fd se kon\u00e1 p\u0159i p\u0159\u00edle\u017eitosti dne\u0161n\u00edho Sv\u011btov\u00e9ho dne hemofilie, je p\u0159ipraveno hudebn\u00ed vystoupen\u00ed d\u00edv\u010d\u00ed kapely 5Angeles a ochutn\u00e1vka zelen\u00e9ho japonsk\u00e9ho bio \u010daje. V\u00fdnos z prodeje p\u0159edm\u011bt\u016f p\u016fjde na \u010dinnost \u010cesk\u00e9ho svazu hemofilik\u016f a sdru\u017een\u00ed Hemojunior.<\/p>\n

V \u010cR \u017eije zhruba 1000 hemofilik\u016f. Maj\u00ed geneticku poruchu, kter\u00e1 zp\u016fsobuje nedostatek faktoru pro sr\u00e1\u017een\u00ed krve. Vadn\u00fd gen p\u0159en\u00e1\u0161ej\u00ed \u017eeny, kter\u00e9 ale a\u017e na v\u00fdjimky hemofili\u00ed neonemocn\u00ed, postihne a\u017e jejich syny.<\/p>\n

Pacienti nekrv\u00e1cej\u00ed siln\u011bji, ale d\u00e9le. Krv\u00e1cen\u00ed je i vnit\u0159n\u00ed, do sval\u016f a kloub\u016f velmi bol\u00ed, omezuje v pohybu, bez l\u00e9\u010dby kon\u010d\u00ed pacient se zni\u010den\u00fdmi klouby na voz\u00ed\u010dku. Krv\u00e1cen\u00ed do mozku m\u016f\u017ee b\u00fdt smrt\u00edc\u00ed.<\/p>\n

V \u010cesku je preventivn\u00ed l\u00e9\u010dba hemofilie dostupn\u00e1 od roku 2006 v\u0161em d\u011btem, kter\u00e9 ji pot\u0159ebuj\u00ed. Dost\u00e1vaj\u00ed ji tak\u00e9 dosp\u011bl\u00ed, i kdy\u017e v men\u0161\u00ed m\u00ed\u0159e, ne\u017e by bylo pro zlep\u0161en\u00ed kvality jejich \u017eivota pot\u0159eba.<\/p>\n

Leto\u0161n\u00ed sv\u011btov\u00fd den vyz\u00fdv\u00e1 ke spole\u010dn\u00e9 diskusi a zm\u011bn\u011b. A\u017e do konce roku se tak\u00e9 mohou lid\u00e9 v p\u011bti m\u011bstech sezn\u00e1mit s problematikou \u017eivota s hemofili\u00ed prost\u0159ednictv\u00edm 11 p\u0159\u00edb\u011bh\u016f d\u011btsk\u00fdch hemofilik\u016f na putovn\u00ed fotografick\u00e9 v\u00fdstav\u011b Spole\u010dn\u011b proti hemofilii.<\/p>\n

Charitativn\u00ed happening:<\/strong><\/h2>\n

meeting point:<\/strong> Palack\u00e9ho n\u00e1m\u011bst\u00ed – 16:00-16:30<\/p>\n

V\u00a0centru Palack\u00e9ho n\u00e1m\u011bst\u00ed bude postaven prodejn\u00ed st\u00e1nek s\u00a0tri\u010dky, kter\u00fd bude jasn\u011b \u010derven\u00fd a dob\u0159e viditeln\u00fd. Zde se sejdou \u00fa\u010dastn\u00edc\u00ed pr\u016fvodu – prostor pro zakoupen\u00ed tri\u010dek, patronka, p\u0159\u00edpadn\u011b \u010d\u00e1st m\u00e9dii. Vych\u00e1z\u00ed se v\u00a016:30 sm\u011brem k\u00a0\u0159ece, pochod zah\u00e1j\u00ed patronka svou v\u00fdzvou.<\/p>\n

trasa:<\/strong> Palack\u00e9ho n\u00e1m\u011bst\u00ed \u2013 Ra\u0161\u00ednovo n\u00e1b\u0159e\u017e\u00ed \u2013 Masarykovo n\u00e1b\u0159e\u017e\u00ed\u00a0 – Most legi\u00ed \u2013 V\u00edt\u011bzn\u00e1 \u2013 \u00dajezd \u2013 N\u00e1m\u011bst\u00ed Kinsk\u00fdch<\/p>\n

Pod veden\u00edm patronky \u010di agentury (dle z\u00e1jmu o Janu Dole\u017eelovou ze strany pacient\u016f) se pr\u016fvod za\u010dne p\u0159esouvat. Trasa by m\u011bla trvat cca 50 minut – tempo bude p\u0159izp\u016fsobeno d\u011btem. V\u011bt\u0161ina \u00fa\u010dastn\u00edk\u016f p\u016fjde v\u00a0\u010derven\u00fdch tri\u010dk\u00e1ch, tak\u017ee pr\u016fvod bude rozhodn\u011b nep\u0159ehl\u00e9dnuteln\u00fd. M\u016f\u017eeme za\u0159adit i\u00a0bal\u00f3nky, p\u00ed\u0161\u0165alky a n\u00e1pisy na podporu hemofilik\u016f.<\/p>\n

z\u00e1v\u011br:<\/strong> N\u00e1m\u011bst\u00ed Kinsk\u00fdch – 17:20<\/p>\n

Zde bude p\u0159ipraven 1-2 Matcha Tea bary s\u00a0n\u00e1poji, ka\u0161na a technika k\u00a0jej\u00edmu nasv\u00edcen\u00ed, p\u00f3dium pro vystoupen\u00ed a prodejn\u00ed st\u00e1nek s tri\u010dky. \u00da\u010dastn\u00edci pr\u016fvodu se mohou ob\u010derstvit. A\u017e se shrom\u00e1\u017ed\u00ed v\u0161ichni, cca 17:40, patronka pod\u011bkuje \u00fa\u010dastn\u00edk\u016fm i ve\u0159ejnosti a zah\u00e1j\u00ed koncert skupiny 5Angeles. Ten bude trvat necelou hodinu, cca 40 minut. V\u00a018:20 ukon\u010d\u00ed koncert patronka a ozn\u00e1m\u00ed hlavn\u00ed bod programu, \u010derven\u011b se rozsv\u00edt\u00ed ka\u0161na. Ve stejn\u00fd \u010das se rozsv\u00edt\u00ed ka\u0161na i v\u00a0Brn\u011b na Moravsk\u00e9m n\u00e1m\u011bst\u00ed.<\/p>\n

Ofici\u00e1ln\u00ed konec programu: <\/strong>18:30. N\u00e1sleduje rozchod, p\u0159\u00edpadn\u011b ob\u010derstven\u00ed. V\u00a019:00 za\u010dne skl\u00edzen\u00ed akce a odjezd.<\/p>\n","protected":false},"excerpt":{"rendered":"

Prahou dnes projde historicky prvn\u00ed charitativn\u00ed pochod na podporu hemofilik\u016f. Startuje v 16:00 na Palack\u00e9ho n\u00e1m\u011bst\u00ed a po vltavsk\u00e9m n\u00e1b\u0159e\u017e\u00ed a p\u0159es most Legi\u00ed dojde […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10116,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-15734","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/15734","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=15734"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/15734\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10116"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=15734"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=15734"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=15734"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}