{"id":16110,"date":"2014-05-15T11:30:21","date_gmt":"2014-05-15T09:30:21","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=16110"},"modified":"2014-10-14T16:52:35","modified_gmt":"2014-10-14T14:52:35","slug":"lupus","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=16110","title":{"rendered":"P\u0159e\u0159adili m\u011b z III. stupn\u011b invalidity na prvn\u00ed. Jak je to mo\u017en\u00e9?"},"content":{"rendered":"

Po\u0159ad \u010cesk\u00e9 televize \u010cern\u00e9 ovce se zab\u00fdval p\u0159\u00edb\u011bhem \u017eeny, j\u00ed\u017e sn\u00ed\u017eili ze dne na den stupe\u0148 invalidity ze t\u0159et\u00edho nejt\u011b\u017e\u0161\u00edho na stupe\u0148 jedna. Co na to \u0159ekli odborn\u00edci, pr\u00e1vn\u00edci, l\u00e9ka\u0159i, ministerstvo…?<\/strong> <\/p>\n

report\u00e1\u017e \u010cT<\/em><\/strong><\/p>\n

Linda NGUYEN, :
\nProst\u011b zni\u010dehonic mi v listopadu 2012 z nezn\u00e1m\u00fdch p\u0159\u00ed\u010din p\u0159i\u0161lo, \u017ee mi sni\u017euj\u00ed t\u0159et\u00ed stupe\u0148 na druh\u00fd stupe\u0148. Tak\u017ee jsem vyu\u017eila mo\u017enost podat n\u00e1mitku, tud\u00ed\u017e jsem se odvolala. A tam mi bylo sn\u00ed\u017eeno je\u0161t\u011b na prvn\u00ed stupe\u0148.<\/p>\n

Pan\u00ed Linda Nguyen z Prost\u011bjovska mluv\u00ed o invalidn\u00edm d\u016fchodu a posti\u017een\u00ed. Ze dne na den se z t\u0159et\u00edho, nejt\u011b\u017e\u0161\u00edho stupn\u011b dostala na stupe\u0148 jedna. Ten je nejni\u017e\u0161\u00ed. Tak rozhodl posudkov\u00fd l\u00e9ka\u0159<\/span>. A p\u0159itom trp\u00ed vz\u00e1cnou formou nevyl\u00e9\u010diteln\u00e9 nemoci, syst\u00e9mov\u00fdm lupusem.<\/p>\n

NGUYEN:
\nTo je onemocn\u011bn\u00ed pohybov\u00fdch tk\u00e1n\u00ed, kter\u00e9 postupn\u011b ni\u010d\u00ed v\u0161echny \u017eivotn\u011b d\u016fle\u017eit\u00e9 org\u00e1ny v t\u011ble.<\/p>\n

Pan\u00ed Linda \u0161patn\u011b chod\u00ed, m\u00e1 nemocn\u00e9 klouby, ledviny a ned\u00e1vno byla na operaci mozku. Ne\u017e l\u00e9ka\u0159i<\/span> ur\u010dili diagn\u00f3zu, trvalo to t\u0159i roky. L\u00e9\u010dba za\u010d\u00edn\u00e1 u revmatolog\u016f, proto jsme v Revmatologick\u00e9m \u00fastavu zji\u0161\u0165ovali, co syst\u00e9mov\u00fd lupus znamen\u00e1 a jak m\u016f\u017ee b\u00fdt tato nemoc z\u00e1ke\u0159n\u00e1.<\/p>\n

Ladislav \u0160ENOLT, vedouc\u00ed Odd\u011blen\u00ed experiment\u00e1ln\u00ed revmatologie, Revmatologick\u00fd \u00fastav:
\nNaprost\u00e1 v\u011bt\u0161ina pacient\u016f m\u00edv\u00e1 bolesti kloub\u016f, nad\u00e1le mohou b\u00fdt posti\u017eeny n\u011bkter\u00e9 vnit\u0159n\u00ed org\u00e1ny. Nej\u010dast\u011bji b\u00fdvaj\u00ed posti\u017eeny ledviny, m\u016f\u017ee b\u00fdt ale posti\u017een i kardiovaskul\u00e1rn\u00ed apar\u00e1t, to znamen\u00e1 srdce, pl\u00edce. Relativn\u011b \u010dasto b\u00fdv\u00e1 posti\u017een i mozek. Ta nemoc je potenci\u00e1ln\u011b nebezpe\u010dn\u00e1 a z velk\u00e9 \u010d\u00e1sti i smrteln\u00e1.<\/p>\n

NGUYEN,
\nZkraje si m\u011b ani nezvali ke komisi, proto\u017ee vzk\u00e1zali po mamince, \u017ee tato nemoc m\u00e1 progn\u00f3zu, \u017ee se bude jenom nad\u00e1le zhor\u0161ovat.<\/p>\n

Pro pan\u00ed Lindu nic p\u0159\u00edjemn\u00e9ho, okam\u017eit\u011b ji p\u0159iznali pln\u00fd invalidn\u00ed d\u016fchod t\u0159et\u00edho stupn\u011b. To bylo v roce 2005. U\u010dila se s touto nemoc\u00ed \u017e\u00edt, p\u0159esto\u017ee m\u011bla ka\u017edou chv\u00edli komplikace. P\u0159ed dv\u011bma lety ale p\u0159i\u0161el \u0161ok. Bez prohl\u00eddky, jen tak. Podle \u00fa\u0159ad\u016f se uzdravuje a t\u0159et\u00ed stupe\u0148 posti\u017een\u00ed ji zru\u0161ili, p\u0159e\u0159adili na prvn\u00ed a pan\u00ed Linda by m\u011bla j\u00edt do pr\u00e1ce.<\/p>\n

To znamen\u00e1, \u017ee se ten v\u00e1\u0161 zdravotn\u00ed<\/span> stav n\u011bjak\u00fdm z\u00e1zra\u010dn\u00fdm zp\u016fsobem s\u00e1m zlep\u0161il?<\/strong><\/p>\n

NGUYEN,
\nBohu\u017eel nezlep\u0161il, od roku 2005, kdy jsem za\u010d\u00ednala medikace, byly dva z\u00e1kladn\u00ed l\u00e9ky<\/span>, tak jich m\u00e1m v sou\u010dasn\u00e9 dob\u011b sedm plus spoustu dopl\u0148uj\u00edc\u00edch l\u00e9k\u016f<\/span>, na ochranu \u017ealudku t\u0159eba, d\u00e1le um\u011bl\u00e9 slzy, d\u00e1le c\u00e9vn\u00ed probl\u00e9my.<\/p>\n

V\u00e1clav KR\u00c1SA, p\u0159edseda N\u00e1rodn\u00ed rady osob se zdravotn\u00edm<\/span> posti\u017een\u00edm \u010cR:
\nP\u0159edev\u0161\u00edm je tam z\u00e1kladn\u00ed chyba v tom, \u017ee posudkov\u00fd l\u00e9ka\u0159<\/span> rozhodl, ani\u017e by tu pan\u00ed vy\u0161et\u0159il. Bohu\u017eel t\u011bch posudkov\u00fdch l\u00e9ka\u0159\u016f<\/span> je velmi m\u00e1lo. Jsou dneska v\u00edce m\u00e9n\u011b p\u0159est\u00e1rl\u00ed, kdy\u017e to takto \u0159eknu. Pr\u016fm\u011brn\u00fd v\u011bk posudkov\u00fdch l\u00e9ka\u0159\u016f<\/span> je t\u00e9m\u011b\u0159 60 let. A oni tu agendu nezvl\u00e1daj\u00ed.<\/p>\n

Tak\u017ee pan\u00ed Linda ani nev\u00ed, kdo o n\u00ed jen tak, podle pap\u00edr\u016f rozhodl, nev\u00ed, komu m\u00e1 dok\u00e1zat, \u017ee zdrav\u00e1 nen\u00ed. Sv\u00e9ho posudkov\u00e9ho l\u00e9ka\u0159e<\/span> nezn\u00e1.<\/p>\n

Martin DOLE\u017dAL, advok\u00e1t:
\nTen posudkov\u00fd l\u00e9ka\u0159<\/span> p\u0159ed\u00e1 zpr\u00e1vu spr\u00e1v\u011b soci\u00e1ln\u00edho zabezpe\u010den\u00ed. Tahle spr\u00e1va vyd\u00e1v\u00e1 rozhodnut\u00ed, kter\u00fdm p\u0159izn\u00e1 nebo nep\u0159izn\u00e1 invalidn\u00ed d\u016fchod.<\/p>\n

Jen podle zdravotnick\u00e9 dokumentace bez podrobn\u00e9ho vy\u0161et\u0159en\u00ed rozhodli l\u00e9ka\u0159i<\/span> na severu Moravy o tom, \u017ee pan\u00ed Linda je t\u00e9m\u011b\u0159 zdrav\u00e1. A tak jsme po\u017e\u00e1dali odborn\u00edka, aby pacientku osobn\u011b vy\u0161et\u0159il.<\/p>\n

NGUYEN,
\nO to hor\u0161\u00ed je to, \u017ee ta nemoc nen\u00ed vid\u011bt zvenku. A vlastn\u011b nikdo nevid\u00ed, \u017ee to ni\u010d\u00ed \u010dlov\u011bka zevnit\u0159, \u017ee v\u00e1m to \u017eere ledviny, pl\u00edce, klouby.<\/p>\n

Dalo by se \u0159\u00edct, \u017ee se n\u011bkdy d\u00e1 ta nemoc \u00fapln\u011b vyl\u00e9\u010dit, \u017ee by byla zdrav\u00e1?<\/p>\n

Petr ARENBERGER, p\u0159ednosta Dermatoverenrologick\u00e9 kliniky, Fakultn\u00ed nemocnice<\/span> Kr\u00e1lovsk\u00e9 Vinohrady, Praha:
\nTento typ syst\u00e9mov\u00e9ho onemocn\u011bn\u00ed je mo\u017eno dr\u017eet, \u010dili my \u0159\u00edk\u00e1me, \u017ee je to onemocn\u011bn\u00ed l\u00e9\u010diteln\u00e9, ale vyl\u00e9\u010diteln\u00e9 je obt\u00ed\u017en\u00e9.<\/p>\n

Ladislav \u0160ENOLT, Revmatologick\u00fd \u00fastav:
\n\u010casto dok\u00e1\u017eeme navodit i takzvanou remisi, co\u017e je bezp\u0159\u00edznakov\u00e9 obdob\u00ed, kdy ti pacienti se relativn\u011b mohou c\u00edtit dob\u0159e. Ale ne ve v\u0161ech p\u0159\u00edpadech se toto da\u0159\u00ed a l\u00e9\u010dba leckdy mus\u00ed b\u00fdt vylo\u017een\u011b agresivn\u00ed.<\/p>\n

NGUYEN:
\nJ\u00e1 jsem zmaten\u00e1, j\u00e1 si p\u0159ipad\u00e1m jak parazit, jako n\u011bkdo, kdo tady se chce v\u00e1let doma. P\u0159itom ten d\u016fchod nen\u00ed nijak vysok\u00fd, vlastn\u011b to sta\u010d\u00ed akor\u00e1t na doplatky l\u00e9k\u016f<\/span>.<\/p>\n

Probl\u00e9m \u0159e\u0161\u00ed pan\u00ed Linda bezv\u00fdsledn\u011b u\u017e v\u00edce ne\u017e dva roky. Ale ur\u010dit\u00e9 \u0161ance je\u0161t\u011b m\u00e1. V podobn\u00fdch p\u0159\u00edpadech se obra\u0165te na Ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed. Zasedne nez\u00e1visl\u00e1 posudkov\u00e1 komise a v\u0161e p\u0159ezkoum\u00e1. Ale co kdy\u017e rozhodne ve v\u00e1\u0161 neprosp\u011bch?<\/strong><\/p>\n

Petr SULEK, mluv\u010d\u00ed, Ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed \u010cR:
\nTak pak samoz\u0159ejm\u011b posuzovan\u00e1 osoba m\u00e1 ze z\u00e1kona n\u00e1rok vyu\u017e\u00edt takzvan\u00e9 mimo\u0159\u00e1dn\u00e9 opravn\u00e9 prost\u0159edky. A t\u011bmi mimo\u0159\u00e1dn\u00fdmi opravn\u00fdmi prost\u0159edky se m\u00e1 na mysli nap\u0159\u00edklad n\u00e1vrh na pod\u00e1n\u00ed p\u0159ezkumn\u00e9ho \u0159\u00edzen\u00ed. Tento n\u00e1vrh na pod\u00e1n\u00ed p\u0159ezkumn\u00e9ho \u0159\u00edzen\u00ed pod\u00e1v\u00e1 doty\u010dn\u00e1 osoba takt\u00e9\u017e na Ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed.<\/p>\n

Kdy\u017e se na v\u00e1s n\u011bkdo konkr\u00e9tn\u011b obr\u00e1t\u00ed, tak ministerstvo se tomu v\u011bnuje individu\u00e1ln\u011b, p\u0159\u00edpad od p\u0159\u00edpadu?<\/strong><\/p>\n

Petr SULEK,
\nP\u0159\u00edpad od p\u0159\u00edpadu, rozhoduje posudkov\u00e1 komise ministerstva.<\/p>\n

Pokud ani tentokr\u00e1t neusp\u011bjete, je tady je\u0161t\u011b dal\u0161\u00ed mo\u017enost, podat spr\u00e1vn\u00ed \u017ealobu.<\/p>\n

V\u00e1clav KR\u00c1SA, p\u0159edseda N\u00e1rodn\u00ed rady osob se zdravotn\u00edm<\/span> posti\u017een\u00edm \u010cR:
\nU spr\u00e1vn\u00ed \u017ealoby v soci\u00e1ln\u00edm zabezpe\u010den\u00ed neplat\u00ed ten, kdo \u017ealuje, \u017e\u00e1dn\u00e9 poplatky u soudu. Ta \u017ealoba se pod\u00e1v\u00e1 ke krajsk\u00e9mu soudu. A dokonce nemus\u00ed ob\u010dana zastupovat ani advok\u00e1t, proto\u017ee spr\u00e1vn\u00ed soud vlastn\u011b rozhoduje o tom, zda st\u00e1tn\u00ed \u00fa\u0159edn\u00edk nebo \u00fa\u0159ad postupoval v souladu se z\u00e1konem.<\/p>\n

I v tomto p\u0159\u00edpad\u011b plat\u00ed, pokud sel\u017eou v\u0161echna odvol\u00e1n\u00ed, zb\u00fdv\u00e1 soud civiln\u00ed.<\/p>\n

Martin DOLE\u017dAL, advok\u00e1t:
\nU toho soudu, aspo\u0148 takov\u00e1 je dosavadn\u00ed zku\u0161enost, \u017ee ti pacienti \u010dasto usp\u011bj\u00ed, proto\u017ee ten soud vid\u00ed ty nedostatky v\u011bt\u0161inou v pr\u00e1ci toho spr\u00e1vn\u00edho org\u00e1nu, vid\u00ed, \u017ee t\u0159eba ten spr\u00e1vn\u00ed org\u00e1n se nezab\u00fdval t\u011bmi podrobnostmi.<\/p>\n

NGUYEN,
\nJe to prost\u011b divn\u00fd, kdy\u017e z t\u0159et\u00edho stupn\u011b invalidity v\u00e1m takhle \u00fapln\u011b p\u0159es noc vlastn\u011b jedn\u00edm tahem vezmou na prvn\u00ed stupe\u0148, a nev\u00edte pro\u010d.<\/p>\n

p\u0159epis invArena<\/p>\n

ilustra\u010dn\u00ed foto: stockvault.net<\/p>\n","protected":false},"excerpt":{"rendered":"

Po\u0159ad \u010cesk\u00e9 televize \u010cern\u00e9 ovce se zab\u00fdval p\u0159\u00edb\u011bhem \u017eeny, j\u00ed\u017e sn\u00ed\u017eili ze dne na den stupe\u0148 invalidity ze t\u0159et\u00edho nejt\u011b\u017e\u0161\u00edho na stupe\u0148 jedna. Co na […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14138,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-16110","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16110","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=16110"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16110\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14138"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=16110"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=16110"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=16110"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}