Kdy\u017e se choroba p\u0159ihl\u00e1s\u00ed poprv\u00e9 o slovo, b\u00fdv\u00e1 jim kolem t\u0159ic\u00edtky. Nemohou udr\u017eet rovnov\u00e1hu, brn\u00ed je ruce, podlamuj\u00ed se jim kolena, zhor\u0161uje se zrak. \u0160eptanda nav\u00edc \u0159\u00edk\u00e1, \u017ee doty\u010dn\u00fd p\u0159ijde brzy o rozum a skon\u010d\u00ed na voz\u00edku. Proto je lep\u0161\u00ed o sv\u00e9 diagn\u00f3ze ne\u0159\u00edkat ka\u017ed\u00e9mu na potk\u00e1n\u00ed. Nemocn\u00ed s roztrou\u0161enou skler\u00f3zou b\u00fdvaj\u00ed p\u0159i ze\u0161t\u00edhlov\u00e1n\u00ed firmy prvn\u00ed na \u0159ad\u011b.<\/p>\n
Po\u010det pacient\u016f s roztrou\u0161enou skler\u00f3zou v posledn\u00edch letech stoup\u00e1, nej\u010dast\u011bji jde o v\u011bkovou skupinu 20\u201340 let. \u010c\u00edm je n\u00e1r\u016fst zp\u016fsoben? „To bychom tak\u00e9 r\u00e1di v\u011bd\u011bli. Z velk\u00e9 \u010d\u00e1sti za t\u00edm stoj\u00ed lep\u0161\u00ed diagnostika, ne\u017e byla k dispozici p\u0159ed dvaceti lety. Nemocn\u00ed jsou nav\u00edc l\u00e9pe informovan\u00ed, mnohdy p\u0159ich\u00e1zej\u00ed k l\u00e9ka\u0159i na z\u00e1klad\u011b informac\u00ed, kter\u00e9 si o nemoci sami zjistili d\u00edky internetu,“ \u0159\u00edk\u00e1 Eva Medov\u00e1, specialistka na l\u00e9\u010dbu roztrou\u0161en\u00e9 skler\u00f3zy z pra\u017esk\u00e9 Fakultn\u00ed nemocnice Kr\u00e1lovsk\u00e9 Vinohrady.
\nP\u0159esnou p\u0159\u00ed\u010dinu vzniku obt\u00ed\u017e\u00ed zat\u00edm nikdo neodhalil, podle odborn\u00edk\u016f v\u0161ak m\u016f\u017ee k propuknut\u00ed nemoci p\u0159isp\u00edvat mimo jin\u00e9 siln\u00fd stres. „Lidsk\u00fd organismus nebyl nastaven\u00fd tak, abychom byli dvan\u00e1ct hodin denn\u011b v nap\u011bt\u00ed, nav\u00edc v\u011bt\u0161inou bez adekv\u00e1tn\u00ed fyzick\u00e9 aktivity a dostate\u010dn\u00e9ho odpo\u010dinku. To se mus\u00ed n\u011bkde odrazit. K tomu d\u00fdch\u00e1me \u0161patn\u00e9 ovzdu\u0161\u00ed, j\u00edme nekvalitn\u00ed potraviny, neum\u00edme aktivn\u011b relaxovat \u2013 i kdy\u017e v tomto ohledu se situace u n\u00e1s u\u017e dost zlep\u0161uje,“ p\u0159ibli\u017euje Eva Medov\u00e1.<\/p>\n
P\u0159\u00edb\u011bh jedn\u00e9 m\u00e1my<\/p>\n
Nemoc \u010dasto m\u011bn\u00ed \u017eivot posti\u017een\u00fdch<\/span> zcela od z\u00e1kladu. Osmat\u0159icetilet\u00e1 Daniela P\u00e1lkov\u00e1 je srde\u010dn\u00e1, neust\u00e1le se usm\u00edv\u00e1 a vtipkuje. Nad trablemi, kter\u00e9 j\u00ed roztrou\u0161en\u00e1 skler\u00f3za zp\u016fsobuje, m\u00e1v\u00e1 rukou. „U\u017e jsem ji vzala na milost. V\u00edc m\u011b tr\u00e1p\u00ed, \u017ee nem\u016f\u017eu sv\u00e9mu synovi d\u00e1t, co by si zaslou\u017eil,“ \u0159\u00edk\u00e1 ve sv\u00e9 \u00fatuln\u00e9 kuchyni v pra\u017esk\u00e9m, bezbari\u00e9rov\u00e9m byt\u011b, z n\u00ed\u017e je v\u00fdhled na ope\u010dov\u00e1vanou p\u0159edzahr\u00e1dku plnou truhl\u00edk\u016f a kv\u011btin\u00e1\u010d\u016f. Povolte tu tr\u00e1vu!<\/p>\n Dnes m\u00e1 Daniela posti\u017een\u00e9<\/span> hlavn\u011b nohy, ale slu\u017ebu za\u010d\u00ednaj\u00ed vypov\u00eddat i ruce. „Propad\u00e1vaj\u00ed mi sklenky, hrnky, v\u016fbec je mezi prsty nec\u00edt\u00edm,“ p\u0159ibli\u017euje. Denn\u011b polyk\u00e1 asi deset l\u00e9k\u016f, doch\u00e1z\u00ed pravideln\u011b na kapa\u010dky. \u00daprk od nemocn\u00fdch<\/p>\n Kdy\u017e j\u00ed to zdravotn\u00ed stav dovol\u00ed, doch\u00e1z\u00ed do firmy, kterou kdysi s kamar\u00e1dkou zakl\u00e1dala. „To jsou v\u011bci, kter\u00e9 m\u011b dr\u017e\u00ed nad vodou. Dob\u00edj\u00ed m\u011b, kdy\u017e se zastav\u00edm v b\u00fdval\u00e9 pr\u00e1ci a t\u0159eba jen chv\u00edli zved\u00e1m telefony a mluv\u00edm s lidmi, kte\u0159\u00ed m\u011b znali je\u0161t\u011b jako zdravou,“ pochvaluje si Daniela, kter\u00e1 se l\u00e9pe c\u00edt\u00ed mezi zdrav\u00fdmi lidmi a nem\u00e1 pot\u0159ebu se kontaktovat s podobn\u011b nemocn\u00fdmi. V pr\u00e1ci poml\u010det<\/p>\n Jestli\u017ee to nemoc umo\u017e\u0148uje, je dobr\u00e9 pokra\u010dovat ve v\u00fdkonu profese a nechat si zdravotn\u00ed probl\u00e9my pro sebe. „Za\u017eila jsem p\u0159\u00edpad u\u010ditelky, jej\u00ed\u017e nad\u0159\u00edzen\u00e1 se obratem dotazovala, jestli se doty\u010dn\u00e1 v\u016fbec m\u016f\u017ee starat o d\u011bti, kdy\u017e m\u00e1 tak stra\u0161livou nemoc. P\u0159itom na n\u00ed nebylo v\u016fbec nic zn\u00e1t,“ \u0159\u00edk\u00e1 doktorka Medov\u00e1. D\u011bti ano<\/p>\n A\u017e t\u0159ikr\u00e1t \u010dast\u011bji jsou roztrou\u0161enou skler\u00f3zou posti\u017eeny \u017eeny, mohou za to nejsp\u00ed\u0161 hormony. „Testosteron m\u00e1 ochrann\u00fd \u00fa\u010dinek, z\u0159ejm\u011b i proto se choroba tolik net\u00fdk\u00e1 mu\u017e\u016f. Podobn\u00e9 projevy m\u00e1 i progestogen, kter\u00fd p\u0159ed t\u00edmto onemocn\u011bn\u00edm ochra\u0148uje \u017eeny v t\u011bhotenstv\u00ed,“ vysv\u011btluje l\u00e9ka\u0159ka Medov\u00e1. Kdy\u017e se choroba p\u0159ihl\u00e1s\u00ed poprv\u00e9 o slovo, b\u00fdv\u00e1 jim kolem t\u0159ic\u00edtky. Nemohou udr\u017eet rovnov\u00e1hu, brn\u00ed je ruce, podlamuj\u00ed se jim kolena, zhor\u0161uje se zrak. \u0160eptanda […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":20285,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-16136","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16136","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=16136"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16136\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/20285"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=16136"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=16136"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=16136"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\nDaniela v\u00ed, \u017ee m\u00e1 vzhledem k omezen\u00e9 hybnosti, n\u00e1sledn\u00e9 ztr\u00e1t\u011b pr\u00e1ce, a t\u00edm p\u00e1dem \u017ealostn\u00fdm financ\u00edm n\u00e1rok na to, aby \u017eehrala na osud, ale f\u0148uk\u00e1n\u00ed j\u00ed nen\u00ed vlastn\u00ed. M\u00e1 pe\u010dliv\u011b nal\u00ed\u010denou tv\u00e1\u0159 p\u0159i p\u00f3zov\u00e1n\u00ed fotografovi si nezapomn\u011bla v zrc\u00e1tku p\u0159ekontrolovat rt\u011bnku. Mezit\u00edm serv\u00edrovala vodu a k\u00e1vu, by\u0165 j\u00ed neposlouchaj\u00ed kolena a mus\u00ed se neust\u00e1le p\u0159idr\u017eovat st\u011bn, \u017eidl\u00ed, nebo kuchy\u0148sk\u00e9 linky.
\nPrvn\u00ed p\u0159\u00edznaky nevyl\u00e9\u010diteln\u00e9 choroby Daniela poc\u00edtila p\u0159ed \u010dtrn\u00e1cti lety, kdy \u010dekala syna. „\u010casto se mi podlamovaly kotn\u00edky, nemohla jsem v\u016fbec nosit boty na podpatku. Zpo\u010d\u00e1tku m\u011b l\u00e9\u010dili s nemocnou p\u00e1te\u0159\u00ed. A\u017e kdy\u017e jsem za\u010dala \u0161patn\u011b chodit a jednou s Danem v n\u00e1ru\u010d\u00ed upadla, p\u0159i\u0161lo se kone\u010dn\u011b na to, co mi vlastn\u011b je,“ vypr\u00e1v\u00ed. Nemoc j\u00ed byla l\u00e9ka\u0159i stoprocentn\u011b potvrzena p\u016fl roku po narozen\u00ed potomka.
\nV t\u011b\u017ek\u00e9 chv\u00edli j\u00ed partner bohu\u017eel nebyl oporou. Za\u010dal p\u00edt a z\u00e1hy rodinu opustil. Se synem se nest\u00fdk\u00e1 dodnes a kontakt se z\u00fa\u017eil jen na pos\u00edl\u00e1n\u00ed aliment\u016f. Daniele nyn\u00ed hodn\u011b pom\u00e1haj\u00ed kamar\u00e1dky, n\u011bkdy i rodi\u010de, kte\u0159\u00ed jsou v d\u016fchodu. „Syn je na\u0161t\u011bst\u00ed skv\u011bl\u00fd. Nos\u00ed mi berle, nakupuje, ukl\u00edz\u00ed, trp\u011bliv\u011b p\u0159idr\u017euje dve\u0159e. A d\u011bl\u00e1 to v\u0161echno bez \u0159e\u010d\u00ed. V\u00edm, jak ho moje nemoc tr\u00e1p\u00ed, \u017ee m\u00e1 o m\u011b strach,“ \u0159\u00edk\u00e1.
\nB\u011bhem na\u0161eho setk\u00e1n\u00ed se j\u00ed p\u0159esto o\u010di dvakr\u00e1t zalij\u00ed slzami. Nejd\u0159\u00edve kdy\u017e p\u0159izn\u00e1v\u00e1, \u017ee nem\u00e1 pen\u00edze, aby mohla synovi kupovat hezk\u00e9 oble\u010den\u00ed, po\u0159\u00eddit mu po\u010d\u00edta\u010d, internet. A potom kdy\u017e vypr\u00e1v\u00ed, jak se j\u00ed st\u00fdsk\u00e1 po pr\u00e1ci profesion\u00e1ln\u00ed \u0159idi\u010dky. „Tu diagn\u00f3zu jsem se dozv\u011bd\u011bla ve chv\u00edli, kdy jsem se chystala nastoupit do auto\u0161koly a roz\u0161\u00ed\u0159it si \u0159idi\u010dsk\u00e9 opr\u00e1vn\u011bn\u00ed. U\u017e k tomu nedo\u0161lo,“ povzdechne si.<\/p>\n
\nV\u00edce ne\u017e samotn\u00e1 l\u00e9\u010dba, kter\u00e1 p\u0159ipom\u00edn\u00e1 chemoterapii, j\u00ed \u017eivot komplikuj\u00ed jej\u00ed vedlej\u0161\u00ed \u00fa\u010dinky. Vysok\u00e9 d\u00e1vky kortikoid\u016f j\u00ed roze\u017eraly zubn\u00ed sklovinu. Je\u0161t\u011b potupn\u011bj\u0161\u00ed je inkontinence. „Je to hrozn\u00e1 bezmoc se po\u010durat, zvl\u00e1\u0161\u0165 kdy\u017e se to stane v p\u0159\u00edtomnosti n\u011bkoho dal\u0161\u00edho,“ sv\u011b\u0159uje se. \u0158e\u0161en\u00ed existuje, ale je drah\u00e9: opakovan\u00e9 injekce, kter\u00e9 se p\u00edchaj\u00ed do mo\u010dov\u00e9ho m\u011bch\u00fd\u0159e, vyjdou na des\u00edtky tis\u00edc.
\n\u010castou \u00fanavu zah\u00e1n\u00ed i konop\u00edm. „A\u0165 si ka\u017ed\u00fd mysl\u00ed, co chce, mn\u011b to pom\u00e1h\u00e1. Pod vlivem l\u00e9k\u016f jsem v \u00fatlumu a jedna konopn\u00e1 cigareta denn\u011b mi dod\u00e1 tolik energie, \u017ee m\u011b v\u0161echno p\u0159estane bolet a jsem spokojen\u00e1.“
\nM\u011bs\u00ed\u010dn\u011b hospoda\u0159\u00ed s \u010d\u00e1stkou kolem patn\u00e1cti tis\u00edc korun. „Jednou n\u00e1m skoro nezbylo na j\u00eddlo, to u\u017e nikdy nechci za\u017e\u00edt,“ \u0159\u00edk\u00e1. O alimenty bojovala dlouho, otec d\u00edt\u011bte si za neplacen\u00ed pobyl n\u011bjak\u00fd \u010das ve v\u011bzen\u00ed.
\nDnes dost\u00e1v\u00e1 na syna v\u00fd\u017eivn\u00e9 necel\u00e9 t\u0159i tis\u00edce korun m\u011bs\u00ed\u010dn\u011b. „Pot\u0159ebovala bych v\u00edc, ale ob\u00edh\u00e1n\u00ed \u00fa\u0159ad\u016f a soud\u016f je tak potupn\u00e9, \u017ee na to te\u010f nem\u00e1m s\u00edlu.“<\/p>\n
\nDo spolku lid\u00ed se stejnou diagn\u00f3zou zav\u00edtala jedinkr\u00e1t a po p\u00e1r minut\u00e1ch pr\u00fd prchala pry\u010d. „Po\u0159\u00e1d se tam jen rozeb\u00edrala nemoc. To nen\u00ed nic pro m\u011b, jen m\u011b to h\u00e1zelo do deprese,“ vysv\u011btluje. „Pr\u016fb\u011bh nemoci se ned\u00e1 dop\u0159edu odhadnout. Ka\u017ed\u00fd m\u00e1 svoji formu, u ka\u017ed\u00e9ho to m\u016f\u017ee prob\u00edhat trochu jinak,“ vysv\u011btluje doktorka Medov\u00e1 z FN Kr\u00e1lovsk\u00e9 Vinohrady a zd\u016fraz\u0148uje, \u017ee \u0161ance ovliv\u0148ovat nemoc nen\u00ed mal\u00e1. Roztrou\u0161en\u00e1 skler\u00f3za se toti\u017e \u0159ad\u00ed mezi autoimunitn\u00ed onemocn\u011bn\u00ed, na kter\u00e9 m\u00e1 zna\u010dn\u00fd dopad psychika. Nemoc se mnohdy zhor\u0161uje, nebo dokonce vznik\u00e1 v p\u0159\u00edm\u00e9 souvislosti s ud\u00e1lostmi, jako je nemoc \u010di \u00famrt\u00ed v rodin\u011b, rozvod \u010di v\u00fdpov\u011b\u010f. Zm\u00edrnit jej\u00ed projevy je mo\u017en\u00e9 cvi\u010den\u00edm, zdravou stravou, pravideln\u00fdm re\u017eimem.
\nA snahou nepropadat \u010dern\u00fdm my\u0161lenk\u00e1m.<\/p>\n
\nA co kdy\u017e nemoc vytas\u00ed zbran\u011b a p\u0159ihl\u00e1s\u00ed se o slovo t\u0159eba formou zapom\u00edn\u00e1n\u00ed, nemo\u017enosti koncentrace \u010di komplikovanou ch\u016fz\u00ed? „S omezen\u00edm nebo ukon\u010den\u00edm zam\u011bstn\u00e1n\u00ed je t\u0159eba po\u010d\u00edtat. M\u011bla jsem v p\u00e9\u010di mu\u017ee, kter\u00fd pracoval na vysok\u00e9m postu v bance. Nem\u011bl \u017e\u00e1dnou poruchu my\u0161len\u00ed, ale kdy\u017e za\u010dal \u0161patn\u011b chodit, veden\u00ed ho p\u0159e\u0159adilo na jinou pr\u00e1ci, proto\u017ee jeho viditeln\u00fd handicap<\/span> pr\u00fd na klienty nep\u016fsobil dob\u0159e,“ p\u0159ibli\u017euje doktorka Medov\u00e1.
\nRoztrou\u0161en\u00e1 skler\u00f3za je nevypo\u010ditateln\u00e9 onemocn\u011bn\u00ed. Postihuje nejen mozek, ale i m\u00edchu. M\u016f\u017ee to p\u0159in\u00e1\u0161et i zrakov\u00e9 probl\u00e9my nebo trable s citlivost\u00ed kdekoli na t\u011ble.
\n\u010cast\u00e1 je ohromn\u00e1 \u00fanava i t\u0159eba n\u00e1hl\u00e1 obrna kon\u010detiny. Pravidla pro schvalov\u00e1n\u00ed invalidn\u00edch<\/span> d\u016fchod\u016f jsou p\u0159itom nastaven\u00e1 p\u0159\u00edsn\u011b. P\u0159\u00edklad: pokud je pacient schopen uj\u00edt berlemi d\u00e1l ne\u017e dvacet metr\u016f, dostane jen \u010d\u00e1ste\u010dnou penzi.<\/p>\n
\nTo, \u017ee by \u017eena s diagn\u00f3zou roztrou\u0161en\u00e9 skler\u00f3zy nem\u011bla m\u00edt d\u011bti, je dnes u\u017e vyvr\u00e1cen\u00fd m\u00fdtus. Neprok\u00e1zalo se toti\u017e, \u017ee by se t\u011bhotenstv\u00edm \u010di po\u010dtem d\u011bt\u00ed nemoc zhor\u0161ovala. Na druhou stranu je nutn\u00e9 po\u010d\u00edtat s t\u00edm, \u017ee po porodu a v n\u00e1sleduj\u00edc\u00edch \u0161esti m\u011bs\u00edc\u00edch m\u016f\u017ee k do\u010dasn\u00e9mu zhor\u0161en\u00ed choroby doj\u00edt. Ale to je dan\u00e9 obecn\u011b sp\u00ed\u0161e stresem a zv\u00fd\u0161enou z\u00e1t\u011b\u017e\u00ed, kter\u00e1 dok\u00e1\u017ee vykolejit i \u017eenu zdravou.
\nOt\u011bhotn\u011bt v p\u0159\u00edpad\u011b pom\u011brn\u011b t\u011b\u017ek\u00fdch p\u0159\u00edznak\u016f choroby se nedoporu\u010duje, takov\u00fdch p\u0159\u00edpad\u016f v\u0161ak l\u00e9ka\u0159i \u0159e\u0161\u00ed minimum. Sp\u00ed\u0161e si pochvaluj\u00ed pacientky, kter\u00e9 se pro d\u011bti v dob\u011b, kdy je\u0161t\u011b nebojovaly se z\u00e1sadn\u00edmi p\u0159\u00edznaky, nakonec rozhodly. Nemoc toti\u017e sn\u00e1\u0161ej\u00ed state\u010dn\u011bji, maj\u00ed pro koho \u017e\u00edt.<\/p>\n","protected":false},"excerpt":{"rendered":"