{"id":16303,"date":"2014-05-28T17:51:00","date_gmt":"2014-05-28T15:51:00","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=16303"},"modified":"2014-05-29T09:26:08","modified_gmt":"2014-05-29T07:26:08","slug":"belobradek-chce-podporit-pacienty-s-roztrousenou-sklerozou","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=16303","title":{"rendered":"B\u011blobr\u00e1dek chce podpo\u0159it lidi s roztrou\u0161enou skler\u00f3zou"},"content":{"rendered":"

Medi\u00e1ln\u011b asi nejzn\u00e1m\u011bj\u0161\u00ed \u010desk\u00fd pacient s roztrou\u0161enou skler\u00f3zou Pavel B\u011blobr\u00e1dek chce jako vicepremi\u00e9r a p\u0159edseda KDU-\u010cSL p\u0159isp\u011bt k osv\u011bt\u011b o nemoci, kterou v \u010cesku m\u00e1 19 tis\u00edc lid\u00ed. V dne\u0161n\u00edm Sv\u011btov\u00e9m dni roztrou\u0161en\u00e9 skler\u00f3zy p\u0159evzal z\u00e1\u0161titu nad nada\u010dn\u00edm fondem Impuls, jen\u017e podporuje v\u00fdzkum, l\u00e9\u010dbu i osv\u011btu.<\/strong> <\/p>\n

„Jsem tady dnes proto, abych povzbudil mnoh\u00e9 lidi, kte\u0159\u00ed obzvl\u00e1\u0161t\u011b ze za\u010d\u00e1tku se musej\u00ed vyrovnat s diagn\u00f3zou, o n\u00ed\u017e velmi \u010dasto panuj\u00ed zkreslen\u00e9 p\u0159edstavy a m\u00fdty. Ty jsou pro mnoh\u00e9 z nich velkou psychickou z\u00e1t\u011b\u017e\u00ed, kter\u00e1 je \u010dasto daleko hor\u0161\u00ed ne\u017e pak deficit neurologick\u00fd,“ \u0159ekl. B\u011blobr\u00e1dek m\u011bl dnes zelenou kravatu a na klop\u011b zelenou stu\u017eku. Volbou zelen\u00e9 jako barvy nad\u011bje vyjad\u0159uj\u00ed dnes lid\u00e9 pacient\u016fm podporu.<\/p>\n

B\u011blobr\u00e1dek p\u0159iznal, \u017ee a\u017e na sob\u011b zjistil, jak \u010dlov\u011bku zm\u011bn\u00ed \u017eivot to, kdy\u017e p\u0159izn\u00e1 svoji nemoc. Zam\u011bstnavatel po\u010d\u00edtal s t\u00edm, \u017ee p\u016fjde do invalidn\u00edho d\u016fchodu, co\u017e odm\u00edtl. „Paradoxn\u011b roztrou\u0161en\u00e1 skler\u00f3za a t\u011b\u017ek\u00e9 nepochopen\u00ed zam\u011bstnavatele u m\u011b vedlo k tomu, \u017ee jsem m\u00edstop\u0159edsedou vl\u00e1dy,“ nazna\u010dil, jak se m\u016f\u017ee v\u0161e vyv\u00edjet, kdy\u017e se \u010dlov\u011bk nemoci nepodd\u00e1.<\/p>\n

Roztrou\u0161en\u00e1 skler\u00f3za je nevyl\u00e9\u010diteln\u00e1, biologickou l\u00e9\u010dbou lze pacienta udr\u017eet v dobr\u00e9m stavu. Bez n\u00ed 80 procent kon\u010d\u00ed do deseti let v invalidn\u00edm d\u016fchodu. Podle dat z roku 2012 pln\u011b pracovalo 53 procent pacient\u016f na biologick\u00e9 l\u00e9\u010db\u011b, loni 67 procent, zbytek alespo\u0148 z\u010d\u00e1sti. Nemocn\u00ed by proto podle B\u011blobr\u00e1dka nem\u011bli propadat beznad\u011bji a l\u00edtosti. „Je pot\u0159eba b\u00fdt aktivn\u00ed tak, jak to ka\u017ed\u00e9mu individu\u00e1ln\u011b je umo\u017en\u011bno,“ shrnul.<\/p>\n

Pacienti se l\u00e9\u010d\u00ed v 15 centrech, biologickou l\u00e9\u010dbu m\u00e1 6000 pacient\u016f, podle profesorky Evy Havrdov\u00e9 z pra\u017esk\u00e9ho centra ve V\u0161eobecn\u00e9 fakultn\u00ed nemocnici by ji pot\u0159ebovaly dal\u0161\u00ed a\u017e 2000. Krit\u00e9ria pro nasazen\u00ed biologick\u00fdch l\u00e9k\u016f se pod tlakem neurolog\u016f srovnala s t\u00edm, co je b\u011b\u017en\u00e9 ve vysp\u011bl\u00e9m sv\u011bt\u011b, ale pacienti, u nich\u017e byla nemoc zji\u0161t\u011bna d\u0159\u00edv, dost\u00e1vaj\u00ed l\u00e9\u010dbu podle p\u016fvodn\u00edch krit\u00e9ri\u00ed. Probl\u00e9m vid\u00ed profesorka i v tom, \u017ee centra maj\u00ed od zdravotn\u00edch poji\u0161\u0165oven pen\u00edze jen na centrov\u00e9 l\u00e9ky, ne u\u017e na souvisej\u00edc\u00ed p\u00e9\u010di rehabilita\u010dn\u00ed \u010di psychologickou.<\/p>\n

Tu plat\u00ed nada\u010dn\u00ed fond Impuls, stejn\u011b jako budov\u00e1n\u00ed celost\u00e1tn\u00edho registru pacient\u016f. Podle \u0159editelky fondu Aurin Nedbalov\u00e9 by registr m\u011bl platit st\u00e1t, proto\u017ee data daj\u00ed obraz o efektivnosti biologick\u00e9 l\u00e9\u010dby, p\u0159isp\u011bj\u00ed k rozpozn\u00e1v\u00e1n\u00ed rizikov\u00fdch faktor\u016f a poslou\u017e\u00ed i v\u00fdzkumu a v\u00fdvoji nov\u00fdch l\u00e9k\u016f.<\/p>\n","protected":false},"excerpt":{"rendered":"

Medi\u00e1ln\u011b asi nejzn\u00e1m\u011bj\u0161\u00ed \u010desk\u00fd pacient s roztrou\u0161enou skler\u00f3zou Pavel B\u011blobr\u00e1dek chce jako vicepremi\u00e9r a p\u0159edseda KDU-\u010cSL p\u0159isp\u011bt k osv\u011bt\u011b o nemoci, kterou v \u010cesku m\u00e1 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":16304,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-16303","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16303","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=16303"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16303\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/16304"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=16303"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=16303"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=16303"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}