{"id":16324,"date":"2014-06-01T11:24:09","date_gmt":"2014-06-01T09:24:09","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=16324"},"modified":"2014-06-01T11:24:19","modified_gmt":"2014-06-01T09:24:19","slug":"nemoc-dcery-zvladam-ale-sily-mi-ubyvaji","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=16324","title":{"rendered":"Nemoc dcery zvl\u00e1d\u00e1m, ale s\u00edly mi ub\u00fdvaj\u00ed"},"content":{"rendered":"

U\u017e si sama neuva\u0159\u00ed, nedojde nakoupit, nep\u0159ejde p\u0159es ulici. Neudr\u017e\u00ed ani tu\u017eku. Moje osmadvacetilet\u00e1 dcera Monika m\u00e1 roztrou\u0161enou skler\u00f3zu. Eresku, jak \u0159\u00edk\u00e1. \/ilustra\u010dn\u00ed foto\/<\/strong><\/p>\n

Je\u0161t\u011b p\u0159ed t\u0159emi lety netu\u0161ila, co tato nemoc vlastn\u011b je. Byla zdrav\u00e1, sportovala, ostatn\u011b vystudovala Fakultu t\u011blesn\u00e9 v\u00fdchovy a sportu a po \u0161kole pracovala ve sportovn\u00edm marketingu.
\nNemoc se poprv\u00e9 ohl\u00e1sila v dubnu 2010.<\/p>\n

Najednou za\u010dala \u0161patn\u011b vid\u011bt a st\u011b\u017eovala si na tlak za lev\u00fdm okem, kter\u00fd se p\u0159i pohybu zhor\u0161oval. Jeli jsme na v\u00edkend a Monika je\u0161t\u011b \u0159\u00eddila, v pond\u011bl\u00ed \u0161la na o\u010dn\u00ed a pan\u00ed doktorka j\u00ed napsala doporu\u010den\u00ed na dal\u0161\u00ed vy\u0161et\u0159en\u00ed.<\/p>\n

Poslali ji na CT a l\u00e9ka\u0159ka j\u00ed bez mrknut\u00ed oka ozn\u00e1mila: „Nech\u00e1me si v\u00e1s tady, m\u00e1te n\u00e1dor na mozku, ale nebojte se, za t\u00fdden neum\u0159ete. A n\u011bkomu si zavolejte!“<\/p>\n

Jen d\u00edky tomu, \u017ee je Monika siln\u00e1 osobnost, se po takov\u00e9 zpr\u00e1v\u011b a „citliv\u00e9m“ p\u0159\u00edstupu l\u00e9ka\u0159ky na m\u00edst\u011b nesesypala. Zavolala mi do pr\u00e1ce, hned jsem p\u0159ijela, jely jsme spolu dom\u016f pro v\u011bci a zase zp\u00e1tky do nemocnice.<\/p>\n

Je\u0161t\u011b t\u00fd\u017e ve\u010der \u0161la na magnetickou rezonanci. Nikdo ji neinformoval, co ji \u010dek\u00e1, tak\u017ee byla p\u0159i vy\u0161et\u0159en\u00ed po\u0159\u00e1dn\u011b vyd\u011b\u0161en\u00e1.<\/p>\n

A n\u00e1sleduj\u00edc\u00ed den se dozv\u011bd\u011bla pravdu.<\/p>\n

P\u0159i\u0161la za n\u00ed l\u00e9ka\u0159ka a pov\u00edd\u00e1: „V\u00edte, co to je roztrou\u0161en\u00e1 skler\u00f3za? Tak tuhle nemoc m\u00e1te.“
\nV prvn\u00ed chv\u00edli to byla pro Moniku i pro m\u011b \u00fat\u011bcha, pozitivn\u00ed zpr\u00e1va. Nem\u00e1 n\u00e1dor na mozku, to je p\u0159ece skv\u011bl\u00e9!<\/p>\n

Jen\u017ee pak jsme si p\u0159e\u010detly, \u017ee roztrou\u0161en\u00e1 skler\u00f3za je neurologick\u00e9 onemocn\u011bn\u00ed zasahuj\u00edc\u00ed takzvanou b\u00edlou hmotu mozku, kudy vedou povely ke sval\u016fm a nervov\u00e9 vzruchy ze smyslov\u00fdch org\u00e1n\u016f. Nervov\u00e1 vl\u00e1kna jsou obalena myelinov\u00fdmi pochvami, kter\u00e9 je izoluj\u00ed a chr\u00e1n\u00ed. P\u0159i t\u00e9to nemoci doch\u00e1z\u00ed k jejich z\u00e1n\u011btu a rozpadu a n\u011bkdy i k po\u0161kozen\u00ed samotn\u00fdch nerv\u016f. Postupn\u011b se mohou objevovat st\u00e1le nov\u00e1 posti\u017een\u00e1<\/span> m\u00edsta.<\/p>\n

U Moniky choroba postupovala s d\u011bsivou rychlost\u00ed. P\u0159ich\u00e1zely dal\u0161\u00ed z\u00e1chvaty, ataky. P\u0159i j\u00eddle j\u00ed vypadl p\u0159\u00edbor z ruky, nemohla si zav\u00e1zat tkani\u010dky od bot\u2026<\/p>\n

Za\u010d\u00e1tky byly hrozn\u00e9, objevila se i do\u010dasn\u00e1 inkontinence. Dcera je\u0161t\u011b chodila do pr\u00e1ce a j\u00e1 ji doprov\u00e1zela. Koupila si i h\u016fl, aby lidi pochopili, \u017ee nen\u00ed v po\u0159\u00e1dku, \u017ee se nemot\u00e1 z opilosti nebo po po\u017eit\u00ed n\u011bjak\u00e9 drogy.
\nB\u011bhem p\u016fl roku pro\u017eila \u010dty\u0159i ataky \u2013 ta posledn\u00ed ji zastihla p\u0159i ch\u016fzi. Na\u0161t\u011bst\u00ed jsme \u0161ly spolu. Zastavila se a najednou nemohla ud\u011blat ani krok! Ostatn\u011b bez pomoci u\u017e cestovat v\u016fbec nem\u016f\u017ee a i p\u0159i ch\u016fzi po byt\u011b se mus\u00ed p\u0159idr\u017eovat n\u00e1bytku.<\/p>\n

Je to hrozn\u011b state\u010dn\u00e1 holka, absolvovala u\u017e v\u0161echny mo\u017en\u00e9 l\u00e9\u010dby, dokonce slo\u017eit\u00e9 \u010di\u0161t\u011bn\u00ed krve, kter\u00e9 v\u0161ak nep\u0159ineslo \u017e\u00e1dn\u00e9 v\u00fdsledky. I o pr\u016fkazku ZTP<\/span> musela bojovat! Zat\u00edmco j\u00e1 potaj\u00ed pl\u00e1\u010du, Monika se usm\u00edv\u00e1 a v\u011b\u0159\u00ed, \u017ee se nemoc poda\u0159\u00ed alespo\u0148 zastavit. K\u00e9\u017e by to tak bylo!<\/p>\n

Pro matku je hrozn\u00e9 sledovat, jak j\u00ed d\u00edt\u011b sch\u00e1z\u00ed p\u0159ed o\u010dima, jak se z kr\u00e1sn\u00e9 zdrav\u00e9 d\u00edvky st\u00e1v\u00e1 nemocn\u00fd \u010dlov\u011bk z\u00e1visl\u00fd na pomoci druh\u00fdch.<\/p>\n

Dcera chod\u00ed na skupinovou terapii a vypr\u00e1v\u00ed mi o lidech, kte\u0159\u00ed jsou na tom l\u00e9pe ne\u017e ona, ale pl\u00e1\u010dou, proto\u017ee se boj\u00ed v zam\u011bstn\u00e1n\u00ed p\u0159iznat sv\u00e9 onemocn\u011bn\u00ed, aby o pr\u00e1ci nep\u0159i\u0161li. Monika nebre\u010d\u00ed, jen\u017ee mn\u011b u\u017e doch\u00e1zej\u00ed s\u00edly, abych mohla p\u0159edst\u00edrat nad\u011bji. M\u00e1m strach, \u017ee p\u0159e\u017eiju sv\u00e9 d\u00edt\u011b.
\nA p\u0159itom bych m\u011bla b\u00fdt state\u010dn\u011bj\u0161\u00ed ne\u017e ona, b\u00fdt pro ni oporou. Zat\u00edm je to sp\u00ed\u0161 obr\u00e1cen\u011b. Al\u017eb\u011bta *<\/p>\n

CELEBRITY<\/p>\n

– Se stejnou diagn\u00f3zou bojuje JANA BREJCHOV\u00c1. V roce 2009 to sama p\u0159iznala m\u00e9di\u00edm. Zdravotn\u00ed stav se j\u00ed rapidn\u011b zhor\u0161il po smrti partnera Ji\u0159\u00edho Zahajsk\u00e9ho. Here\u010dce p\u0159estala slou\u017eit pam\u011b\u0165, a proto se musela postupn\u011b vzd\u00e1t kari\u00e9ry. „Odm\u00edtla jsem seri\u00e1l, proto\u017ee bych se to nestihla nau\u010dit, dali mi moc obraz\u016f,“ vysv\u011btlovala. „Film u\u017e to\u010dit tak\u00e9 nebudu. Je to smutn\u00e9,
\nale u\u017e jsem se s t\u00edm sm\u00ed\u0159ila,“ dodala.<\/p>\n

– Herec, komik a dab\u00e9r VLASTIMIL BEDRNA byl div\u00e1ky milov\u00e1n p\u0159edev\u0161\u00edm jako hlas Homera Simpsona ze seri\u00e1lu Simpsonovi.
\nKdy\u017e najednou do\u0161lo na k v\u00fdm\u011bn\u011b dab\u00e9ra, byla to v\u00fdm\u011bn mal\u00e1 televizn\u00ed revoluce. tele Fanou\u0161ci nemohli pochopit, Fanou\u0161 pro\u010d “ svou“ postavu opustil. On ale nemohl opusti jinak. Za jeho rozhodnut\u00edm st\u00e1la roztrou\u0161en\u00e1 skler\u00f3za, kter\u00e1 ho v roce 2006 upoutala na invalidn\u00ed<\/span> voz\u00edk. „U\u017e si moc v\u011bc\u00ed v nepamatuju, nemohl n bych v dabov\u00e1n\u00ed b pokra\u010dovat,“ sv\u011b\u0159il se tehdy smutn\u011b m\u00e9di\u00edm.<\/p>\n

– „Nemoc se projevila ve vazb\u011b,“ \u0159\u00edk\u00e1 osudem zkou\u0161en\u00e1 here\u010dka REGINA R\u00c1ZLOV\u00c1, kter\u00e1 trp\u00ed „ereskou“.
\n„Necht\u011bli mi d\u00e1vat p\u0159edepsan\u00e9 l\u00e9ky, nemohla jsem se k nim dostat,“ dod\u00e1vala ke sv\u00e9mu rapidn\u011b zhor\u0161en\u00e9mu stavu po propu\u0161t\u011bn\u00ed z v\u011bzen\u00ed. Dnes je jej\u00ed zdrav\u00ed stabilizov\u00e1no a znovu se pustila do nat\u00e1\u010den\u00ed (mj. film Modelky s.r.o. a seri\u00e1l P\u0159\u00edpady 1. odd\u011blen\u00ed).<\/p>\n

http:\/\/www.kvety.cz\/ <\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

U\u017e si sama neuva\u0159\u00ed, nedojde nakoupit, nep\u0159ejde p\u0159es ulici. Neudr\u017e\u00ed ani tu\u017eku. Moje osmadvacetilet\u00e1 dcera Monika m\u00e1 roztrou\u0161enou skler\u00f3zu. Eresku, jak \u0159\u00edk\u00e1. \/ilustra\u010dn\u00ed foto\/<\/p>\n<\/div>","protected":false},"author":1,"featured_media":904,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-16324","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16324","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=16324"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/16324\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/904"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=16324"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=16324"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=16324"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}