Karti\u010dku s p\u0159ednostn\u00edm pr\u00e1vem na z\u00e1chod si cht\u011bj\u00ed nechat vyrobit lid\u00e9 nemocn\u00ed Crohnovou chorobou a z\u00e1n\u011btliv\u00fdmi st\u0159evn\u00edmi onemocn\u011bn\u00edmi. Mohli by se tak preferen\u010dn\u011b dostat na ve\u0159ejn\u00e9 toalety, a to i v dob\u011b, kdy jsou uzav\u0159eny. <\/p>\n
„Netu\u0161\u00edte, co to je za probl\u00e9m, kdy\u017e je sedm r\u00e1no, jste v \u00dast\u00ed nad Orlic\u00ed a akutn\u011b pot\u0159ebujete z\u00e1chod, jen\u017ee ve\u0159ejn\u00e9 z\u00e1chodky na n\u00e1dra\u017e\u00ed otev\u00edraj\u00ed a\u017e v osm,“ vypr\u00e1v\u00ed pr\u00e1vn\u00edk Michal T., kter\u00fd m\u00e1 Crohnovu chorobu a z toho plynouc\u00ed akutn\u00ed st\u0159evn\u00ed pot\u00ed\u017ee.<\/p>\n
\u010ce\u0161t\u00ed pacienti se se\u0161li s t\u011bmi zahrani\u010dn\u00edmi minul\u00fd m\u011bs\u00edc na kongresu ve V\u00eddni a po vzoru Nov\u00e9ho Z\u00e9landu nebo t\u0159eba D\u00e1nska cht\u011bj\u00ed tak\u00e9 zav\u00e9st takzvanou IBD kartu.<\/p>\n
Podle p\u0159edsedkyn\u011b Ob\u010dansk\u00e9ho sdru\u017een\u00ed pacient\u016f s idiopatick\u00fdmi st\u0159evn\u00edmi z\u00e1n\u011bty Martiny Pfeiferov\u00e9 nyn\u00ed organizace \u0159e\u0161\u00ed, kolik by vyti\u0161t\u011bn\u00ed takov\u00fdch karti\u010dek st\u00e1lo. Karta by pak fungovala tak, \u017ee ka\u017ed\u00fd z nemocn\u00fdch, kdo by pot\u0159eboval akutn\u011b toaletu, by se karti\u010dkou mohl prok\u00e1zat t\u0159eba v restauraci, aby jej bez zdlouhav\u00e9ho vysv\u011btlov\u00e1n\u00ed pustili na WC.<\/p>\n
„Pacienti n\u011bkdy ani nemaj\u00ed \u010das slo\u017eit\u011b vysv\u011btlovat, \u017ee jsou nemocn\u00ed, a teprve a\u017e po pou\u017eit\u00ed toalety p\u0159ijdou k obsluze a daj\u00ed jim t\u0159eba desetikorunu za pou\u017eit\u00ed z\u00e1chodu,“ popsala Pfeiferov\u00e1, sama pacientka. Podobn\u00e9 pr\u016fkazky u\u017e leckde v zahrani\u010d\u00ed funguj\u00ed a \u010d\u00ed\u0161n\u00edci v restaurac\u00edch nebo t\u0159eba \u00fa\u0159edn\u00edci ve ve\u0159ejn\u00fdch budov\u00e1ch se nediv\u00ed, kdy\u017e se jim \u010dlov\u011bk karti\u010dkou prok\u00e1\u017ee, a ochotn\u011b jej pust\u00ed na WC.<\/p>\n
Jen\u017ee v zahrani\u010d\u00ed je tak\u00e9 v\u011bt\u0161\u00ed pov\u011bdom\u00ed o Crohnov\u011b chorob\u011b. Nap\u0159\u00edklad ned\u00e1vno se jeden norsk\u00fd politik zapojil do projektu, kdy jej televize nat\u00e1\u010dela cel\u00fd den a poka\u017ed\u00e9, kdy\u017e mu p\u00edpl telefon, t\u0159eba uprost\u0159ed d\u016fle\u017eit\u00e9ho jedn\u00e1n\u00ed nebo v m\u011bstsk\u00e9 doprav\u011b, musel do dvou minut naj\u00edt z\u00e1chod. P\u0159i\u010dem\u017e telefon mu p\u00edpal pr\u016fm\u011brn\u011b co dv\u011b hodiny, ale n\u011bkdy i co hodinu. Tak toti\u017e pacienti s Crohnovou chorobou a nemocemi IBD \u017eij\u00ed.<\/p>\n
Nen\u00ed divu, \u017ee evropsk\u00e1 statistika ukazuje, \u017ee pr\u00e1v\u011b kv\u016fli pot\u00ed\u017e\u00edm plynouc\u00edm z nemoci ztratilo pr\u00e1ci nebo ji muselo opustit cel\u00fdch 44 procent pacient\u016f.<\/p>\n
Po\u010det nemocn\u00fdch nav\u00edc st\u00e1le roste. A onemocn\u011bn\u00ed nelze vyl\u00e9\u010dit. \u0158e\u0161en\u00edm jsou operace, u\u017e\u00edv\u00e1n\u00ed n\u00e1kladn\u00fdch l\u00e9k\u016f \u010di injekc\u00ed a do\u017eivotn\u00ed vyh\u00fdb\u00e1n\u00ed se potravin\u00e1m, kter\u00e9 probl\u00e9m se st\u0159evy zhor\u0161uj\u00ed.<\/p>\n
„Nov\u00e1 epidemiologick\u00e1 data nazna\u010duj\u00ed, \u017ee po\u010dty pacient\u016f s IBD se st\u00e1le zvy\u0161uj\u00ed,“ \u0159ekla l\u00e9ka\u0159ka Tine Jess z N\u00e1rodn\u00edho \u00fastavu pro zdravotn\u00ed dohled a v\u00fdzkum v D\u00e1nsku.<\/p>\n
V \u010cesku je posti\u017een\u00fdch zhruba \u010dty\u0159icet tis\u00edc lid\u00ed.<\/p>\n
Mlad\u00e1 fronta Dnes<\/p>\n
Lenka Petr\u00e1\u0161ov\u00e1<\/p>\n","protected":false},"excerpt":{"rendered":"
Karti\u010dku s p\u0159ednostn\u00edm pr\u00e1vem na z\u00e1chod si cht\u011bj\u00ed nechat vyrobit lid\u00e9 nemocn\u00ed Crohnovou chorobou a z\u00e1n\u011btliv\u00fdmi st\u0159evn\u00edmi onemocn\u011bn\u00edmi. Mohli by se tak preferen\u010dn\u011b dostat na […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":1645,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-1644","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/1644","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1644"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/1644\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/1645"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1644"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1644"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1644"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}