{"id":18231,"date":"2014-11-04T19:11:37","date_gmt":"2014-11-04T18:11:37","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=18231"},"modified":"2014-11-04T19:11:37","modified_gmt":"2014-11-04T18:11:37","slug":"sefce-sdruzeni-parkinson-help-sebrali-prukaz-ztp","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=18231","title":{"rendered":"\u0160\u00e9fce sdru\u017een\u00ed Parkinson-Help sebrali pr\u016fkaz ZTP"},"content":{"rendered":"

Pan\u00ed Roman\u011b, je\u017e trp\u00ed Parkinsonovou nemoc\u00ed, se te\u010f u\u017e tak t\u011b\u017ek\u00fd \u017eivot je\u0161t\u011b v\u00edce zkomplikoval. Posudkov\u00fd l\u00e9ka\u0159<\/span> j\u00ed toti\u017e odebral pr\u016fkaz ZTP. Ing. Romana Sk\u00e1la – Rosenbaum je p\u0159edstavitelkou sdru\u017een\u00ed Parkinson-Help, jeho\u017e posl\u00e1n\u00edm je bo\u0159it stigmata o Parkinsonov\u011b nemoci.<\/strong><\/p>\n

\u010cesk\u00e1 televize – report\u00e1\u017e (redak\u010dn\u011b kr\u00e1ceno)\u00a0<\/strong><\/em><\/p>\n

Romana SK\u00c1LA-ROSENBAUM:\u00a0 D\u00e1 se \u0159\u00edci, \u017ee m\u011b soci\u00e1ln\u011b vylou\u010dili ze \u017eivota, proto\u017ee nem\u00e1m n\u00e1rok na parkov\u00e1n\u00ed, nem\u00e1m n\u00e1rok na dopravu zadarmo, co\u017e je pro n\u00e1s pom\u011brn\u011b dost d\u016fle\u017eit\u00fd, proto\u017ee z invalidn\u00edch d\u016fchod\u016f si nem\u016f\u017eeme dovolit cestovat. Tak\u017ee se domn\u00edv\u00e1m, \u017ee to je sv\u00fdm zp\u016fsobem vy\u0159azen\u00ed m\u011b a na\u0161\u00ed organizace z \u010dinnosti, kterou d\u011bl\u00e1me.<\/p>\n

Pan\u00ed Romana m\u00e1 Parkinsonovu chorobu u\u017e 13 let. Musela opustit pr\u00e1ci a p\u00e9\u010di o mal\u00e9 syny zvl\u00e1dala jen t\u011b\u017ece. Nemoc se zhor\u0161ovala a jedinou \u0161anc\u00ed se pro ni stala riskantn\u00ed operace mozku. Poda\u0159ila se a\u017e napodruh\u00e9. Dv\u011b elektrody zaveden\u00e9 hluboko v mozku \u0159\u00edd\u00ed stimul\u00e1tor voperovan\u00fd pod k\u016f\u017ei. Z\u0159ejm\u011b d\u00edky nim se dosud nestala tzv. „le\u017e\u00e1kem.“<\/p>\n

Pan\u00ed Romana v\u00ed, \u017ee trval\u00e9 v\u00edt\u011bzstv\u00ed to nen\u00ed. Nemoc se bude navzdory l\u00e9\u010db\u011b zhor\u0161ovat a omezovat ji. Sou\u010dasn\u00e1 medic\u00edna toti\u017e nedok\u00e1\u017ee Parkinsonovu chorobu vyl\u00e9\u010dit. Jen odd\u00e1lit smutn\u00fd konec.<\/p>\n

Pan\u00ed Romana je ale energick\u00e1 \u017eena. M\u00edsto, aby podlehla depres\u00edm, kter\u00e9 k nemoci pat\u0159\u00ed, pustila se do osv\u011bty o Parkinsonov\u011b chorob\u011b. Zalo\u017eila ob\u010dansk\u00e9 sdru\u017een\u00ed Parkinson-Help a s n\u00edm vyd\u00e1v\u00e1 publikace, po\u0159\u00e1d\u00e1 v\u00fdstavy a organizuje p\u0159edn\u00e1\u0161ky.<\/p>\n

Romana SK\u00c1LA-ROSENBAUM:\u00a0 norm\u00e1ln\u00ed lidi, kter\u00fd chod\u011bj kolem n\u00e1s ka\u017ed\u00fd den a potk\u00e1vaj n\u00e1s, a t\u0159eba nev\u011bd\u00ed, \u017ee kdy\u017e n\u00e1s potkaj jednu hodinu, tak \u017ee m\u016f\u017eeme j\u00edt \u00fapln\u011b norm\u00e1ln\u011b, a druhou hodinu se t\u0159eba kl\u00e1t\u00edme a t\u0159et\u00ed hodinu sotva lezem.<\/p>\n

A to je velk\u00fd probl\u00e9m Parkinsonik\u016f. Nemaj\u00ed toti\u017e tr\u00e1pen\u00ed jen se svoj\u00ed nemoc\u00ed, ale i s t\u00edm, jak je vn\u00edm\u00e1 okol\u00ed. Sv\u00e9 t\u011blo toti\u017e neovl\u00e1daj\u00ed. Jsou bu\u010f ztuhl\u00ed nebo se r\u016fzn\u011b k\u00fdvou \u010di t\u0159esou. C\u00edt\u00ed se vysm\u00edv\u00e1ni a poni\u017eov\u00e1ni proto, jak jejich probl\u00e9my s pohybem \u010di \u0159e\u010d\u00ed navenek p\u016fsob\u00ed.<\/p>\n

Romana SK\u00c1LA-ROSENBAUM:\u00a0 Jsem byla na koncert\u011b a tam byl kamar\u00e1d a p\u0159i\u0161el ke mn\u011b a \u0159\u00edk\u00e1 , co u\u017e\u00edv\u00e1\u0161? J\u00e1 \u0159\u00edk\u00e1m, nic, co bych u\u017e\u00edvala? A on \u0159\u00edk\u00e1, na \u010dem jede\u0161? Se\u0161 sjet\u00e1, ne? A j\u00e1 \u0159\u00edk\u00e1m, ne, nejsem. Pro\u010d? Se furt tak mrsk\u00e1\u0161 divn\u011b.<\/p>\n

Obrovsk\u00fdm v\u00edt\u011bzstv\u00edm pan\u00ed Romany a jej\u00edho sdru\u017een\u00ed je to, \u017ee prosadili, aby parkinsonici m\u011bli n\u00e1rok na pr\u016fkaz ZTP a s n\u00edm spojen\u00e9 v\u00fdhody jako vyhrazen\u00e9 parkov\u00e1n\u00ed \u010di p\u0159\u00edsp\u011bvek na benz\u00edn.<\/p>\n

Romana SK\u00c1LA-ROSENBAUM:\u00a0 N\u00e1m se poda\u0159ilo poprv\u00e9 v historii dostat neurodegenerativn\u00ed onemocn\u011bn\u00ed jako klasifika\u010dn\u00ed krit\u00e9rium k dost\u00e1n\u00ed ZTP pr\u016fkazu. Tak\u017ee mnoho nemocn\u00fdch, kter\u00fd maj\u00ed tuto nemoc nebo jin\u00fd neurodegenerativn\u00ed posti\u017een\u00ed, dostali pr\u016fkazky d\u00edky t\u00fdto vyhl\u00e1\u0161ce, d\u00e1 se \u0159\u00edci pota\u017emo d\u00edky n\u00e1m.<\/p>\n

Mo\u017enost jezdit autem je toti\u017e pro parkinsoniky kl\u00ed\u010dov\u00e1. Je prok\u00e1z\u00e1no, \u017ee \u0159\u00eddit mohou bez probl\u00e9m\u016f. Vyhnou se tak nejen n\u00e1strah\u00e1m, kter\u00e9 na n\u011b \u010d\u00edhaj\u00ed ve ve\u0159ejn\u00e9 doprav\u011b, ale i konflikt\u016fm s lidmi, kte\u0159\u00ed jejich nemoc nech\u00e1pou.<\/p>\n

O to v\u011bt\u0161\u00ed \u0161ok to pro pan\u00ed Romanu byl, kdy\u017e pr\u00e1v\u011b na z\u00e1klad\u011b vyhl\u00e1\u0161ky, za kterou tolik bojovala, j\u00ed posudkov\u00fd l\u00e9ka\u0159<\/span> pr\u016fkaz ZTP koncem z\u00e1\u0159\u00ed odebral.<\/p>\n

Romana SK\u00c1LA-ROSENBAUM:\u00a0\u00a0 Vrcholem bylo, kdy\u017e ten p\u00e1n mi nakonec \u0159ekl do telefonu, \u017ee to na mn\u011b v\u016fbec nen\u00ed vid\u011bt. Tak\u017ee se nem\u016f\u017eu divit, \u017ee mi to vlastn\u011b odebrali.<\/p>\n

Co na to ale \u0159ekl klinick\u00fd l\u00e9ka\u0159, kter\u00fd pacientku zn\u00e1?
\nEv\u017een R\u016e\u017dI\u010cKA, neurolog, Neurologick\u00e1 klinika 1. LF UK a VFN v Praze:\u00a0 Ten jej\u00ed stav se ned\u00e1 posuzovat pouze podle toho, jak vypad\u00e1 ve sv\u00e9m nejlep\u0161\u00edm stavu za optim\u00e1ln\u00edho se\u0159\u00edzen\u00ed stimul\u00e1toru a za optim\u00e1ln\u00ed d\u00e1vky l\u00e9k\u016f<\/span>. Ten stav st\u00e1le kol\u00eds\u00e1 v pr\u016fb\u011bhu dne a samoz\u0159ejm\u011b to omezen\u00ed je v n\u011bkter\u00fdch chv\u00edl\u00edch natolik t\u011b\u017ek\u00e9, \u017ee bychom j\u00ed m\u011bli dop\u0159\u00e1t v\u0161echny mo\u017en\u00e9 \u00falevy.<\/p>\n

Jana BURA\u0147OV\u00c1, mluv\u010d\u00ed \u010cesk\u00e9 spr\u00e1vy soci\u00e1ln\u00edho zabezpe\u010den\u00ed:
\nPosouzen\u00ed zdravotn\u00edho<\/span> stavu prob\u00edh\u00e1 na z\u00e1klad\u011b posouzen\u00ed zdravotn\u00ed<\/span> dokumentace, kterou m\u00e1 k dispozici posudkov\u00fd l\u00e9ka\u0159<\/span> od o\u0161et\u0159uj\u00edc\u00edho l\u00e9ka\u0159e<\/span>, p\u0159\u00edpadn\u011b specialisty osoby se zdravotn\u00edm<\/span> posti\u017een\u00edm. V tomhletom p\u0159\u00edpad\u011b posudkov\u00fd l\u00e9ka\u0159<\/span> uvedl z\u00e1v\u011br, jak\u00fd uvedl.<\/p>\n

Pan\u00ed Romana se obr\u00e1tila na ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed, aby rozhodnut\u00ed posudkov\u00e9ho l\u00e9ka\u0159e<\/span> p\u0159e\u0161et\u0159ilo.<\/p>\n

Petr HAB\u00c1\u0147, mluv\u010d\u00ed Ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed \u010cR:\u00a0 Bu\u010fto to rozhodnut\u00ed bude p\u0159ehodnoceno, v p\u0159\u00edpad\u011b, \u017ee by z\u016fstalo stejn\u00e9, j\u00e1 p\u0159edpokl\u00e1d\u00e1m, \u017ee pan\u00ed Romana by se s n\u00edm nespokojila, m\u00e1 je\u0161t\u011b mo\u017enost dal\u0161\u00edch instanc\u00ed odvol\u00e1n\u00ed, p\u0159es ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed, ale tomu v tuhle chv\u00edli asi nelze p\u0159edj\u00edmat, jak to dopadne.<\/p>\n

Jana BURA\u0147OV\u00c1, mluv\u010d\u00ed \u010cSSZ:\u00a0 Posudkov\u00fd l\u00e9ka\u0159<\/span>, pokud dojde na odvol\u00e1n\u00ed, m\u00e1 si um\u011bt zd\u016fvodnit, pro\u010d takto postupoval.<\/p>\n

Romana SK\u00c1LA-ROSENBAUM:\u00a0 T\u00edm, \u017ee vlastn\u011b mi sebrali to ZTP\/P, tak mi sebrali i mobilitu, co\u017e je vlastn\u011b p\u0159\u00edsp\u011bvek na dopravu, 400 m\u011bs\u00ed\u010dn\u011b. Jako ono to je sm\u011b\u0161n\u00fd, proto\u017ee za to natankujete tak zhruba t\u0159etinu n\u00e1dr\u017ee. Ale kdy\u017e m\u00e1te d\u016fchod kolem 8 tis\u00edc jako, tak i ty 400 jsou hodn\u011b.<\/p>\n

A to p\u0159edev\u0161\u00edm proto, \u017ee auto pan\u00ed Romana pou\u017e\u00edv\u00e1 ke sv\u00e9 pr\u00e1ci pro parkinsoniky. T\u011bch je nyn\u00ed v na\u0161\u00ed zemi zhruba 20 tis\u00edc a po\u010det nemocn\u00fdch podle l\u00e9ka\u0159\u016f<\/span> roste. Jejich ka\u017edodenn\u00ed trable p\u0159ibli\u017euje v\u00fdstava, se kterou spole\u010dnost Parkinson-Help objela snad v\u0161echna velk\u00e1 m\u011bsta.<\/p>\n

V poslaneck\u00e9 sn\u011bmovn\u011b pan\u00ed Romana uspo\u0159\u00e1dala semin\u00e1\u0159 o Parkinsonov\u011b nemoci ur\u010den\u00fd p\u0159edev\u0161\u00edm pro z\u00e1konod\u00e1rce. P\u0159edn\u00e1\u0161et jim budou l\u00e9ka\u0159sk\u00e9 \u0161pi\u010dky. Jej\u00ed cesta ale m\u00e1lem skon\u010dila u\u017e za dve\u0159mi parlamentu, kdy\u017e ji ostraha odm\u00edtla vpustit bez rentgenov\u00e9 kontroly, kter\u00e9 se kv\u016fli elektrod\u00e1m v mozku nem\u016f\u017ee podrobit.<\/p>\n

SK\u00c1LA-ROSENBAUM:
\nt\u00edm, \u017ee pom\u00e1h\u00e1me druhejm, pom\u00e1h\u00e1me sami sob\u011b. To je pr\u00e1v\u011b na tom to hezk\u00fd.<\/p>\n","protected":false},"excerpt":{"rendered":"

Pan\u00ed Roman\u011b, je\u017e trp\u00ed Parkinsonovou nemoc\u00ed, se te\u010f u\u017e tak t\u011b\u017ek\u00fd \u017eivot je\u0161t\u011b v\u00edce zkomplikoval. Posudkov\u00fd l\u00e9ka\u0159 j\u00ed toti\u017e odebral pr\u016fkaz ZTP. Ing. Romana Sk\u00e1la […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":13142,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-18231","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/18231","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=18231"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/18231\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/13142"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=18231"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=18231"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=18231"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}