{"id":18275,"date":"2014-11-07T10:25:56","date_gmt":"2014-11-07T09:25:56","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=18275"},"modified":"2014-11-07T10:25:56","modified_gmt":"2014-11-07T09:25:56","slug":"trinact-let-trpi-parkinsonem-ted-ji-ale-lekar-odebral-prukaz-ztp","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=18275","title":{"rendered":"T\u0159in\u00e1ct let trp\u00ed parkinsonem. Te\u010f j\u00ed ale l\u00e9ka\u0159 odebral pr\u016fkaz ZTP"},"content":{"rendered":"

Pan\u00ed Romana trp\u00ed u\u017e 13 let Parkinsonovou chorobou. Zalo\u017eila sdru\u017een\u00ed, kter\u00e9 ostatn\u00edm parkinsonik\u016fm pom\u00e1h\u00e1. O to v\u011bt\u0161\u00ed \u0161ok byl, kdy\u017e j\u00ed posudkov\u00fd l\u00e9ka\u0159 odebral pr\u016fkaz ZTP s t\u00edm, \u017ee na n\u00ed nemoc nen\u00ed vid\u011bt. P\u0159i\u0161la tak o n\u00e1rok na parkov\u00e1n\u00ed nebo p\u0159\u00edsp\u011bvek na benzin. Jak se \u017eije pacient\u016fm s Parkinsonovou chorobou.<\/strong><\/p>\n

\u010dt24<\/strong><\/p>\n

Pan\u00ed Romana musela kv\u016fli nemoci opustit pr\u00e1ci a p\u00e9\u010di o mal\u00e9 syny zvl\u00e1dala jen t\u011b\u017ece. Jej\u00ed stav se zhor\u0161oval a jedinou \u0161anc\u00ed se pro ni stala riskantn\u00ed operace mozku. Poda\u0159ila se a\u017e napodruh\u00e9. Nemoc se v\u0161ak bude navzdory l\u00e9\u010db\u011b zhor\u0161ovat a omezovat ji. Sou\u010dasn\u00e1 medic\u00edna toti\u017e nedok\u00e1\u017ee Parkinsonovu chorobu vyl\u00e9\u010dit, jen odd\u00e1lit smutn\u00fd konec. „Ta pozdn\u00ed stadia, po 10-20 letech, se vyzna\u010duj\u00ed p\u0159evahou nemotorick\u00fdch p\u0159\u00edznak\u016f. To znamen\u00e1 psychick\u00fdch poruch, poruch \u0159e\u010di, polyk\u00e1n\u00ed, t\u011b\u017ek\u00fdch poruch stability s p\u00e1dy, kter\u00e9 u\u017e nedok\u00e1\u017eeme ovlivnit dostupn\u00fdmi metodami l\u00e9\u010dby,“ up\u0159es\u0148uje neurolog Ev\u017een R\u016f\u017ei\u010dka z Neurologick\u00e9 kliniky1. LF UK a VFN v Praze.<\/p>\n

Pan\u00ed Romana ale nepodl\u00e9h\u00e1 depres\u00edm, kter\u00e9 k nemoci pat\u0159\u00ed. Pustila se do osv\u011bty o Parkinsonov\u011b chorob\u011b. Zalo\u017eila ob\u010dansk\u00e9 sdru\u017een\u00ed Parkinson \u2013 help a s n\u00edm vyd\u00e1v\u00e1 publikace, po\u0159\u00e1d\u00e1 v\u00fdstavy a organizuje p\u0159edn\u00e1\u0161ky. „C\u00edlem byli norm\u00e1ln\u00ed lid\u00e9, kte\u0159\u00ed kolem n\u00e1s ka\u017ed\u00fd den chod\u00ed, potk\u00e1vaj\u00ed n\u00e1s,“ dod\u00e1v\u00e1 pan\u00ed Romana d\u016fvod, pro\u010d se do osv\u011bty o nemoci pustila. Parkinsoniky toti\u017e netr\u00e1p\u00ed jen jejich nemoc, ale i to, jak je vn\u00edm\u00e1 jejich okol\u00ed. Sv\u00e9 t\u011blo neovl\u00e1daj\u00ed. Jsou bu\u010f ztuhl\u00ed, nebo se r\u016fzn\u011b k\u00fdvou \u010di t\u0159esou. C\u00edt\u00ed se proto vysm\u00edv\u00e1ni a poni\u017eov\u00e1ni.<\/p>\n

„Rozpadla se mi rodina, kamar\u00e1di se odklonili. Kdy\u017e m\u011b potk\u00e1vali, tak se se mnou rad\u0161i nebavili. J\u00e1 jsem mezi lidi tak\u00e9 moc nechodil, sp\u00ed\u0161 jsem se uzav\u00edral doma,“ \u0159\u00edk\u00e1 pacient Karel Kr\u00e1l. Pan\u00ed Romana za\u017e\u00edv\u00e1 tak\u00e9 nep\u0159\u00edjemn\u00e9 situace: „Byla jsem na koncert\u011b a potkal m\u011b kamar\u00e1d. P\u0159i\u0161el ke mn\u011b a \u0159\u00edk\u00e1: „‚Co u\u017e\u00edv\u00e1\u0161?‘ \u0158\u00edk\u00e1m: ‚Nic, co bych u\u017e\u00edvala?‘ A on: ‚Na \u010dem jede\u0161? Jsi sjet\u00e1, ne? V\u017edy\u0165 sebou tak divn\u011b mrsk\u00e1\u0161!'“<\/p>\n

D\u00edky sdru\u017een\u00ed Parkinson \u2013 help maj\u00ed parkinsonici n\u00e1rok na pr\u016fkaz ZTP<\/p>\n

Obrovsk\u00fdm v\u00edt\u011bzstv\u00edm pan\u00ed Romany a jej\u00edho sdru\u017een\u00ed je to, \u017ee prosadili, aby parkinsonici m\u011bli n\u00e1rok na pr\u016fkaz ZTP a s n\u00edm spojen\u00e9 v\u00fdhody jako vyhrazen\u00e9 parkov\u00e1n\u00ed \u010di p\u0159\u00edsp\u011bvek na benzin. Mo\u017enost jezdit autem je toti\u017e pro parkinsoniky kl\u00ed\u010dov\u00e1. Je prok\u00e1z\u00e1no, \u017ee \u0159\u00eddit mohou bez probl\u00e9m\u016f. Vyhnou se tak nejen n\u00e1strah\u00e1m, kter\u00e9 na n\u011b \u010d\u00edhaj\u00ed ve ve\u0159ejn\u00e9 doprav\u011b, ale i konflikt\u016fm s lidmi, kte\u0159\u00ed jejich nemoc nech\u00e1pou. \u00dazk\u00e9 dve\u0159e, \u00fazk\u00e9 vchody, v\u00fdtahy, eskal\u00e1tory a ot\u00e1\u010div\u00e9 dve\u0159e jsou pro n\u011b probl\u00e9m.<\/p>\n

„A my se vlastn\u011b do t\u011bch dopravn\u00edch prost\u0159edk\u016f nem\u016f\u017eeme dostat. Kdy\u017e t\u0159eba \u010dlov\u011bk ztuhne, tak ta masa lid\u00ed jde a strhne ho,“ st\u011b\u017euje si pan\u00ed Romana. O to v\u011bt\u0161\u00ed \u0161ok pro pan\u00ed Romanu byl, kdy\u017e pr\u00e1v\u011b na z\u00e1klad\u011b vyhl\u00e1\u0161ky, za kterou tolik bojovala, j\u00ed posudkov\u00fd l\u00e9ka\u0159 pr\u016fkaz ZTP koncem z\u00e1\u0159\u00ed odebral. Jako d\u016fvod uvedl, \u017ee na n\u00ed nemoc nen\u00ed v\u016fbec vid\u011bt. Neurolog Ev\u017een R\u016f\u017ei\u010dka se v\u0161ak pan\u00ed Romany zast\u00e1v\u00e1: „Jej\u00ed celkov\u00fd stav se ned\u00e1 posuzovat podle toho, jak vypad\u00e1 ve sv\u00e9m nejlep\u0161\u00edm stavu, za optim\u00e1ln\u00edho se\u0159\u00edzen\u00ed stimul\u00e1toru a za optim\u00e1ln\u00ed d\u00e1vky l\u00e9k\u016f. Stav parkinsonik\u016f samoz\u0159ejm\u011b st\u00e1le kol\u00eds\u00e1 v pr\u016fb\u011bhu dne a omezen\u00ed je v n\u011bkter\u00fdch chv\u00edl\u00edch natolik t\u011b\u017ek\u00e9, \u017ee bychom jim m\u011bli dop\u0159\u00e1t v\u0161echny mo\u017en\u00e9 \u00falevy.“<\/p>\n

Pan\u00ed Romana se obr\u00e1tila na ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed, aby rozhodnut\u00ed posudkov\u00e9ho l\u00e9ka\u0159e p\u0159e\u0161et\u0159ilo. Ministerstvo rozhodnut\u00ed p\u0159ehodnot\u00ed a v p\u0159\u00edpad\u011b, \u017ee by se s v\u00fdsledkem pan\u00ed Romana nespokojila, m\u00e1 je\u0161t\u011b mo\u017enost dal\u0161\u00edch instanc\u00ed odvol\u00e1n\u00ed pr\u00e1v\u011b p\u0159es ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed.<\/p>\n

Z des\u00edtek pozvan\u00fdch poslanc\u016f a sen\u00e1tor\u016f dorazil na semin\u00e1\u0159 jeden<\/p>\n

Pacient\u016f s Parkinsonovou chorobou je te\u010f v \u010cesku asi 20 tis\u00edc a podle l\u00e9ka\u0159\u016f toto \u010d\u00edslo nad\u00e1le poroste. Jejich ka\u017edodenn\u00ed trable p\u0159ibli\u017euje v\u00fdstava, se kterou spole\u010dnost Parkinson \u2013 Help objela v\u0161echna velk\u00e1 m\u011bsta. Uspo\u0159\u00e1dali i semin\u00e1\u0159 v Poslaneck\u00e9 sn\u011bmovn\u011b. Z n\u011bkolika des\u00edtek pozvan\u00fdch poslanc\u016f a sen\u00e1tor\u016f dorazil jen jeden.<\/p>\n

Pan\u00ed Romana v\u0161ak nad\u011bji neztr\u00e1c\u00ed: „Ur\u010dit\u011b budeme vym\u00fd\u0161let nov\u00e9 v\u011bci a nov\u00e9 projekty. Vlastn\u011b n\u00e1m mo\u017en\u00e1 nezb\u00fdv\u00e1 nic jin\u00e9ho. T\u00edm, \u017ee pom\u00e1h\u00e1me druh\u00fdm, pom\u00e1h\u00e1me sami sob\u011b. A to je pr\u00e1v\u011b na tom to hezk\u00e9.“<\/p>\n","protected":false},"excerpt":{"rendered":"

Pan\u00ed Romana trp\u00ed u\u017e 13 let Parkinsonovou chorobou. Zalo\u017eila sdru\u017een\u00ed, kter\u00e9 ostatn\u00edm parkinsonik\u016fm pom\u00e1h\u00e1. O to v\u011bt\u0161\u00ed \u0161ok byl, kdy\u017e j\u00ed posudkov\u00fd l\u00e9ka\u0159 odebral pr\u016fkaz […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-18275","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/18275","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=18275"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/18275\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=18275"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=18275"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=18275"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}