{"id":19067,"date":"2014-12-23T17:58:34","date_gmt":"2014-12-23T16:58:34","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=19067"},"modified":"2014-12-23T17:58:34","modified_gmt":"2014-12-23T16:58:34","slug":"deti-ktere-spojil-boj-se-zakernou-leukemii-v-nemocnici-vzniklo-jejich-velke-pratelstvi","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=19067","title":{"rendered":"D\u011bti, kter\u00e9 spojil boj se z\u00e1ke\u0159nou leukemi\u00ed. V nemocnici vzniklo jejich velk\u00e9 p\u0159\u00e1telstv\u00ed"},"content":{"rendered":"

T\u0159\u00edlet\u00fd Marek letos str\u00e1vil dev\u011bt m\u011bs\u00edc\u016f v nemocnici<\/span>. Dokon\u010dil toti\u017e jednu f\u00e1zi l\u00e9\u010dby akutn\u00ed leukemie. I kdy\u017e st\u00e1le je\u0161t\u011b bere l\u00e9ky<\/span>, m\u00e1 dobr\u00e9 vyhl\u00eddky na \u00fapln\u00e9 uzdraven\u00ed. Z nemocnice<\/span> si nav\u00edc p\u0159ivezl i jednu novou kamar\u00e1dku.<\/strong> <\/p>\n

ilustra\u010dn\u00ed foto Jomphong FreeDigitalPhotos<\/em><\/p>\n

V ruce dr\u017e\u00ed figurku dinosaura a d\u00edv\u00e1 se trochu ostra\u017eit\u011b. Velk\u00e9 hn\u011bd\u00e9 o\u010di varuj\u00ed, \u017ee na ciz\u00ed lidi v dom\u011b nen\u00ed zrovna zv\u011bdav\u00fd. Ale je tady i m\u00e1ma a hlavn\u011b Eli\u0161ka, tak\u017ee nakonec t\u0159\u00edlet\u00fd Marek usoud\u00ed, \u017ee je v\u0161echno v po\u0159\u00e1dku.<\/p>\n

„N\u00e1v\u0161t\u011bvy k n\u00e1m chod\u00ed jen m\u00e1lokdy. Pot\u0159ebujeme, aby Marek nebyl nemocn\u00fd. Jenom\u017ee te\u010f chytne ka\u017ed\u00e9ho bacila,“ \u0159\u00edk\u00e1 jeho maminka, kdy\u017e si sed\u00e1me ke kuchy\u0148sk\u00e9mu stolu v dom\u011b v Neda\u0161ov\u011b, mal\u00e9 obci kousek od hranic se Slovenskem. Z okna je vid\u011bt kopec a les na kraji vesnice. Ten m\u00e1 Marek r\u00e1d.
\nListuje v encyklopedii zv\u00ed\u0159at a pokukuje po Eli\u0161ce. Je o p\u016fl roku star\u0161\u00ed ne\u017e on a je to jeho kamar\u00e1dka. R\u010den\u00ed na \u017eivot a na smrt tady dost\u00e1v\u00e1 mnohem re\u00e1ln\u011bj\u0161\u00ed v\u00fdznam.<\/p>\n

Ob\u011b d\u011bti ned\u00e1vno absolvovaly l\u00e9\u010dbu akutn\u00ed leukemie a jejich p\u0159\u00e1telstv\u00ed vzniklo ve fakultn\u00ed nemocnici<\/span> v Olomouci.
\nStr\u00e1vily tam spolu dev\u011bt m\u011bs\u00edc\u016f. Jejich maminky pro\u017e\u00edvaly stejn\u00fd strach, beznad\u011bj, ale i \u0161t\u011bst\u00ed. To kdy\u017e l\u00e9\u010dba zab\u00edrala tak, jak m\u011bla, a kdy\u017e nakonec mohly z nemocnice<\/span> odej\u00edt. Pro tuto chv\u00edli maj\u00ed d\u011bti vyhr\u00e1no, jist\u00e9 to ale bude a\u017e za p\u011bt let. Zabavit dvoulet\u00e9 d\u00edt\u011b v nemocni\u010dn\u00edm pokoji je peklo Eli\u0161ka poch\u00e1z\u00ed z Vra\u017en\u00e9ho, p\u00e1r kilometr\u016f od Nov\u00e9ho Ji\u010d\u00edna. I ji mus\u00ed rodi\u010de bedliv\u011b hl\u00eddat, aby nenastydla. D\u011bti toti\u017e st\u00e1le berou l\u00e9ky<\/span>, maj\u00ed jen slabou imunitu a ka\u017ed\u00e9 nechlazen\u00ed znamen\u00e1 p\u0159eru\u0161en\u00ed l\u00e9\u010dby. A t\u00edm p\u00e1dem i jej\u00ed prodlou\u017een\u00ed.
\nUdr\u017eet Eli\u0161ku doma je ov\u0161em probl\u00e9m. Mo\u017en\u00e1 proto se s Markem tolik dopl\u0148uj\u00ed. „Ona je \u017eivel, Mare\u010dek je klidn\u00fd,“ potvrzuje maminka hol\u010di\u010dky, kter\u00e1 pr\u00e1v\u011b m\u00e1v\u00e1 kouzelnickou h\u016flkou a \u010daruje.<\/p>\n

Za okam\u017eik d\u011bti miz\u00ed v pokoj\u00ed\u010dku, odkud se oz\u00fdv\u00e1 hromov\u00fd \u0159ev. To nejsp\u00ed\u0161 ti dinosau\u0159i.<\/p>\n

„Marek n\u011bkolik t\u00fddn\u016f nemohl d\u011blat nic jin\u00e9ho ne\u017e sledovat poh\u00e1dky nebo prohl\u00ed\u017eet kn\u00ed\u017eky. Z\u016fstalo mu to,“ vykl\u00e1d\u00e1 maminka. „A nejspokojen\u011bj\u0161\u00ed je, kdy\u017e m\u016f\u017ee z\u016fstat v py\u017eamku,“ sm\u011bje se.<\/p>\n

O pobytu v nemocnici<\/span> mluv\u00ed ob\u011b \u017eeny klidn\u011b, p\u0159esto\u017ee vzpom\u00ednaj\u00ed na paralyzuj\u00edc\u00ed strach, v\u00fdkyvy n\u00e1lad, kter\u00e9 u d\u011bt\u00ed prov\u00e1zely chemoterapii, nebo na to, jak t\u011b\u017ek\u00e9 je zabavit dvoulet\u00e9 d\u00edt\u011b v nemocni\u010dn\u00edm pokoji. „To je prost\u011b peklo,“ sm\u011bje se Markova m\u00e1ma.
\nNerozhod\u00ed je ani, kdy\u017e popisuj\u00ed ur\u010den\u00ed diagn\u00f3zy a svoje prvn\u00ed pocity.
\nMarek si namohl kotn\u00edk a dlouho nemohl na nohu do\u0161l\u00e1pnout. Proto jej l\u00e9ka\u0159ka poslala na rozbor krve. Pak u\u017e jen bleskov\u011b zabalit nejnutn\u011bj\u0161\u00ed v\u011bci a hl\u00e1sit se na onkologick\u00e9m odd\u011blen\u00ed.<\/p>\n

„Stra\u0161n\u011b m\u011b to vyd\u011bsilo. Netu\u0161ili jsme, co m\u00e1me \u010dekat, bre\u010dela jsem a po\u0159\u00e1d dokola p\u0159em\u00fd\u0161lela pro\u010d,“ popsala \u017eena.<\/p>\n

Netrvalo to ale dlouho. Ani nemohlo, musela se soust\u0159edit na syna a taky na dev\u00edtiletou dceru. I pro ni byla nemoc sourozence velk\u00fd z\u00e1sah do \u017eivota. P\u0159esto\u017ee m\u011bla doma t\u00e1tu, maminka j\u00ed sch\u00e1zela.<\/p>\n

Poprv\u00e9 byla v nemocnici<\/span> 42 dn\u016f. Markova l\u00e9\u010dba se komplikovala neust\u00e1l\u00fdmi infekcemi<\/span>, \u010d\u00e1st j\u00ed str\u00e1vil v izolaci a z pokoje se dostal jen minim\u00e1ln\u011b. Dal\u0161\u00ed m\u011bs\u00edce se v\u017edy na p\u00e1r dn\u016f vraceli dom\u016f a znovu odj\u00ed\u017ed\u011bli do nemocnice<\/span>.<\/p>\n

Eli\u0161ku zase skolily vysok\u00e9 teploty, kter\u00e9 nep\u0159est\u00e1valy. Na pohotovosti j\u00ed vzali krev a p\u0159\u00edmo odtud ji sanitka odvezla do nemocnice<\/span>.<\/p>\n

„Co se mi honilo hlavou? Ot\u00e1zka, jestli mi dcerka um\u0159e. Vz\u00e1p\u011bt\u00ed jsem si ale odpov\u011bd\u011bla, \u017ee ne. \u017de to vybojujeme,“ vypr\u00e1v\u00ed druh\u00e1 z maminek.
\nV t\u00e9 dob\u011b byla kr\u00e1tce t\u011bhotn\u00e1 a Eli\u0161\u010din br\u00e1\u0161ka se narodil je\u0161t\u011b d\u0159\u00edv, ne\u017e jej\u00ed l\u00e9\u010dba skon\u010dila.<\/p>\n

Ob\u011b maminky n\u011bkolikr\u00e1t bezd\u011bky pod\u011bkuj\u00ed a pochv\u00e1l\u00ed v\u0161echny, kter\u00e9 v nemocnici<\/span> potk\u00e1valy. Nikdo je nikdy neodbyl, na v\u0161echny ot\u00e1zky dostaly odpov\u011bdi.<\/p>\n

V\u00fdstava fotek ukazuje boj s leukemi\u00ed V podstatn\u00fdch okam\u017eic\u00edch s nimi byla v nemocnici<\/span> je\u0161t\u011b jedna \u017eena.<\/p>\n

Fotografka Alena Sk\u0159ipsk\u00e1 dokumentovala nejd\u016fle\u017eit\u011bj\u0161\u00ed okam\u017eiky l\u00e9\u010dby. Prov\u00e1zela je celou dobu, kdy\u017e le\u017eely v postel\u00edch, hr\u00e1ly si nebo kdy\u017e jim za\u010daly vypad\u00e1vat vlasy a maminky jim je st\u0159\u00edhaly na kr\u00e1tko. „P\u0159\u00e1telstv\u00ed t\u011bch d\u011bt\u00ed je skute\u010dn\u011b v\u00fdjime\u010dn\u00e9. I kdy\u017e jsou tak mal\u00e9, dok\u00e1zaly se podporovat, kdy\u017e jednomu bylo zle. Ur\u010dit\u011b jim to pomohlo,“ tvrd\u00ed Sk\u0159ipsk\u00e1.<\/p>\n

Z fotografi\u00ed pak vznikla v\u00fdstava, kter\u00e1 je v t\u011bchto dnech k vid\u011bn\u00ed v s\u00eddle Zl\u00ednsk\u00e9ho kraje. Rodi\u010de souhlasili, sami na sob\u011b si toti\u017e ov\u011b\u0159ili, jak m\u00e1lo se o l\u00e9\u010db\u011b leukemie v\u00ed.<\/p>\n

A i kdy\u017e jejich d\u011bti transplantaci kostn\u00ed d\u0159en\u011b nepot\u0159ebovaly, r\u00e1di pomohou p\u0159esv\u011bd\u010dit lidi, aby se p\u0159ihl\u00e1sili do registru d\u00e1rc\u016f.<\/p>\n

Ten zat\u00edm \u010d\u00edt\u00e1 zhruba pades\u00e1t tis\u00edc lid\u00ed z \u010cesk\u00e9 republiky, z nich 5 120 poch\u00e1z\u00ed ze Zl\u00ednsk\u00e9ho kraje. D\u00e1rcem se ale nakonec stane jen jeden \u010dlov\u011bk ze sta.<\/p>\n

Ob\u011b d\u011bti m\u011bly od za\u010d\u00e1tku dobr\u00e9 vyhl\u00eddky, hned prvn\u00ed testy uk\u00e1zaly, \u017ee maj\u00ed lehkou formu leukemie. I lehk\u00e1 forma t\u011b\u017ek\u00e9 nemoci ale po\u0159\u00e1d vyvol\u00e1v\u00e1 hlavn\u011b strach. A na odd\u011blen\u00ed byly i d\u011bti, kter\u00e9 nem\u011bly \u0161t\u011bst\u00ed jako Marek s Eli\u0161kou…
\nKdy\u017e na tohle p\u0159ijde \u0159e\u010d, snad poprv\u00e9 b\u011bhem hovoru ob\u011b \u017eeny zv\u00e1\u017en\u00ed. Na okam\u017eik se rozhost\u00ed ticho.<\/p>\n

Pak se ale d\u011bti za\u010dnou hlasit\u011b do\u017eadovat sl\u00edben\u00fdch pala\u010dinek a kuchyn\u011b se d\u00e1v\u00e1 do pohybu.<\/p>\n

Petra Proch\u00e1zkov\u00e1, redaktorka MF DNES<\/p>\n

Mlad\u00e1 fronta DNES<\/p>\n","protected":false},"excerpt":{"rendered":"

T\u0159\u00edlet\u00fd Marek letos str\u00e1vil dev\u011bt m\u011bs\u00edc\u016f v nemocnici. Dokon\u010dil toti\u017e jednu f\u00e1zi l\u00e9\u010dby akutn\u00ed leukemie. I kdy\u017e st\u00e1le je\u0161t\u011b bere l\u00e9ky, m\u00e1 dobr\u00e9 vyhl\u00eddky na […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14373,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-19067","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/19067","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=19067"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/19067\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14373"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=19067"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=19067"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=19067"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}