{"id":19958,"date":"2015-02-17T09:24:32","date_gmt":"2015-02-17T08:24:32","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=19958"},"modified":"2015-02-17T11:25:16","modified_gmt":"2015-02-17T10:25:16","slug":"roztrousena-skleroza-prichazi-uz-v-mladi","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=19958","title":{"rendered":"Roztrou\u0161en\u00e1 skler\u00f3za. P\u0159ich\u00e1z\u00ed u\u017e v ml\u00e1d\u00ed"},"content":{"rendered":"

Dnes 61let\u00fd Bohuslav Ve\u010de\u0159a b\u00fdval aktivn\u00ed sportovec. Kr\u00e1tce po sv\u00e9 t\u0159ic\u00edtce ale za\u010dal m\u00edt drobn\u00e9 pohybov\u00e9 probl\u00e9my. „Na rovin\u011b jsem za\u010dal zakop\u00e1vat, p\u0159i sportovn\u00edm utk\u00e1n\u00ed jsem najednou zavadil nohama o parkety,“ popisuje sv\u016fj \u017eivotn\u00ed \u00fad\u011bl.<\/strong><\/p>\n

Praha \u2013 L\u00e9ka\u0159i se o n\u011bj za\u010dali starat, svou diagn\u00f3zu se ale nedozv\u011bd\u011bl. „Mluvili na m\u011b latinsk\u00fdmi v\u011btami, jedl jsem pr\u00e1\u0161ky, co mi dali, prost\u011b, byl jsem hodn\u00fd pacient,“ pokra\u010doval v l\u00ed\u010den\u00ed pro region\u00e1ln\u00ed Den\u00edk.<\/p>\n

A\u017e kdy\u017e v roce 1996 zm\u011bnil zam\u011bstn\u00e1n\u00ed, prozradil mu doktor p\u0159i n\u00e1stupn\u00ed prohl\u00eddce, \u017ee trp\u00ed roztrou\u0161enou skler\u00f3zou. Ale ani pot\u00e9 mu nikdo neporadil, co je to vlastn\u011b za nemoc a jak proti n\u00ed bojovat. „Chodil jsem norm\u00e1ln\u011b do pr\u00e1ce, jenom mi bylo divn\u00e9, \u017ee jsem ve\u010der b\u00fdval hrozn\u011b unaven\u00fd. Nic m\u011b nebavilo, ztratil jsem radost ze \u017eivota,“ \u0159\u00edk\u00e1 pan Ve\u010de\u0159a. Kdy\u017e firma, ve kter\u00e9 pracoval, p\u0159ech\u00e1zela na t\u0159\u00edsm\u011bnn\u00fd provoz, odm\u00edtl na n\u011bj nastoupit. Zam\u011bstnavatel, aby mu dok\u00e1zal, \u017ee pr\u00e1ci je\u0161t\u011b zvl\u00e1dne, ho poslal na dal\u0161\u00ed l\u00e9ka\u0159skou prohl\u00eddku. Z t\u00e9 ode\u0161el rovnou do pln\u00e9ho invalidn\u00edho d\u016fchodu. Jak je na tom dnes?<\/p>\n

„\u00danava p\u0159etrv\u00e1v\u00e1, kdy\u017e vyjdu do t\u0159et\u00edho poschod\u00ed, mus\u00edm si sednout a zbytek dne str\u00e1v\u00edm v polosp\u00e1nku,“ popisuje sv\u016fj nejv\u011bt\u0161\u00ed handicap pan Ve\u010de\u0159a. Neztr\u00e1c\u00ed ale p\u0159i boji s nemoc\u00ed dobrou n\u00e1ladu, v sou\u010dasnosti se znovu i se svoj\u00ed man\u017eelkou d\u00edky elektrick\u00e9 t\u0159\u00edkolce sna\u017e\u00ed aktivn\u011b jezdit na v\u00fdlety a sb\u00edrat sv\u00e9 obl\u00edben\u00e9 turistick\u00e9 zn\u00e1mky.<\/p>\n

Kolik pacient\u016f v \u010cR trp\u00ed touto nemoc\u00ed a jak\u00e9 pou\u017e\u00edvaj\u00ed l\u00e9ky, se p\u0159esn\u011b nev\u00ed. A\u017e v posledn\u00edch letech se za\u010dal vytv\u00e1\u0159et registr pacient\u016f. „Registr se v pilotn\u00ed period\u011b zam\u011b\u0159il na data od pacient\u016f l\u00e9\u010den\u00fdch v centrech n\u00e1kladn\u00fdmi prepar\u00e1ty, tedy modern\u00ed biologickou l\u00e9\u010dbou. Zat\u00edm posledn\u00ed data, kter\u00e1 m\u00e1me k dispozici, jsou z lo\u0148sk\u00e9ho \u010dervna od 4715 pacient\u016f z 12 center. Aktu\u00e1ln\u00ed data budou zn\u00e1ma v kv\u011btnu 2015,“ \u0159ekla Aurin Nedbalov\u00e1, \u0159editelka Nada\u010dn\u00edho fondu Impuls, kter\u00fd pacientsk\u00fd registr spravuje a financuje.<\/p>\n

Zat\u00edm projekt st\u00e1l dev\u011bt milion\u016f korun, pokud se roz\u0161\u00ed\u0159\u00ed i na dal\u0161\u00ed pacienty, po\u010d\u00edt\u00e1 fond s obdobnou \u010d\u00e1stkou. Podle registru skoro polovina (46,1 procenta) pacient\u016f nepob\u00edr\u00e1 \u017e\u00e1dn\u00e9 soci\u00e1ln\u00ed d\u00e1vky. Nemoc p\u0159itom hroz\u00ed trvalou invaliditou. „D\u0159\u00edve se l\u00e9ky nasazovaly a\u017e po letech nemoci, kdy u\u017e byla rozvinuta,“ upozornila Dana Hor\u00e1kov\u00e1 z centra p\u0159i neurologick\u00e9 klinice 1. l\u00e9ka\u0159sk\u00e9 fakulty Univerzity Karlovy. Budoucnost vid\u00ed pr\u00e1v\u011b v biologick\u00e9 l\u00e9\u010db\u011b. Ta dnes nemoc dok\u00e1\u017ee zpomalit, v n\u011bkter\u00fdch p\u0159\u00edpadech i zastavit.<\/p>\n

T\u011bhotenstv\u00ed se u\u017e nezakazuje<\/p>\n

Proto\u017ee nemoc \u010dast\u011bji napad\u00e1 \u017eeny a nej\u010dast\u011bji propuk\u00e1 kolem 30. roku \u017eivota, \u0159e\u0161\u00ed v\u011bt\u0161ina \u017een, kter\u00fdm se nemoc diagnostikuje, velk\u00e9 dilema. M\u00edt, \u010di nem\u00edt d\u00edt\u011b. Je\u0161t\u011b p\u0159ed desetilet\u00edm l\u00e9ka\u0159i graviditu u pacientek neschvalovali, kv\u016fli genetick\u00e9mu riziku propuknut\u00ed nemoci u plodu, ale tak\u00e9 kv\u016fli rozvoji nemoci u pacientky.<\/p>\n

Nyn\u00ed odborn\u00edci obr\u00e1tili, t\u011bhotenstv\u00ed by ale m\u011blo b\u00fdt pl\u00e1novan\u00e9. „Pro nemocnou \u017eenu, kter\u00e1 nem\u00e1 dobr\u00e9 z\u00e1zem\u00ed a je na v\u0161echno sama, je vy\u010derpan\u00e1 a nevyspan\u00e1, je p\u00e9\u010de o d\u00edt\u011b velk\u00fdm stresem, kter\u00fd m\u016f\u017ee zp\u016fsobit destabilizaci choroby. \u017divot se sice ne\u0159\u00edd\u00ed na\u0161imi doporu\u010den\u00edmi, ale pokud to je jen trochu mo\u017en\u00e9, pak rad\u00edme, aby t\u011bhotenstv\u00ed bylo pl\u00e1novan\u00e9 a aby \u017eena na d\u00edt\u011b nez\u016fstala sama,“ dodala Hor\u00e1kov\u00e1. St\u00e1le by se ale pacientky i jejich d\u011bti m\u011bly vyvarovat \u0161kodliv\u00fdch faktor\u016f, kter\u00e9 riziko zvy\u0161uj\u00ed. „V p\u0159\u00edpad\u011b roztrou\u0161en\u00e9 skler\u00f3zy ji\u017e jednozna\u010dn\u011b v\u00edme, \u017ee pacienti a jejich d\u011bti by nem\u011bly kou\u0159it a m\u011bly by od d\u011btstv\u00ed dost\u00e1vat zv\u00fd\u0161en\u00fd p\u0159\u00edsun vitaminu D,“ \u0159ekla l\u00e9ka\u0159ka z Fakultn\u00ed nemocnice Ostrava Olga Zapletalov\u00e1.<\/p>\n

JAN DRAHOR\u00c1D
\nPra\u017esk\u00fd den\u00edk
\nhttp:\/\/www.prazsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Dnes 61let\u00fd Bohuslav Ve\u010de\u0159a b\u00fdval aktivn\u00ed sportovec. Kr\u00e1tce po sv\u00e9 t\u0159ic\u00edtce ale za\u010dal m\u00edt drobn\u00e9 pohybov\u00e9 probl\u00e9my. „Na rovin\u011b jsem za\u010dal zakop\u00e1vat, p\u0159i sportovn\u00edm utk\u00e1n\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":13669,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-19958","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/19958","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=19958"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/19958\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/13669"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=19958"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=19958"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=19958"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}