{"id":20062,"date":"2015-02-23T05:50:12","date_gmt":"2015-02-23T04:50:12","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=20062"},"modified":"2015-02-23T05:50:12","modified_gmt":"2015-02-23T04:50:12","slug":"zavislost-na-nitrozilni-vyzive","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=20062","title":{"rendered":"Z\u00e1vislost na nitro\u017eiln\u00ed v\u00fd\u017eiv\u011b"},"content":{"rendered":"

Umo\u017e\u0148uje p\u0159e\u017e\u00edt, ale bere svobodu. I tak se d\u00e1 popsat z\u00e1vislost na nitro\u017eiln\u00ed v\u00fd\u017eiv\u011b. Lid\u00e9, kte\u0159\u00ed p\u0159i\u0161li o tenk\u00e9 st\u0159evo, mus\u00ed b\u00fdt dlouh\u00e9 hodiny p\u0159ipojeni k inf\u00fazn\u00ed pump\u011b. Od za\u010d\u00e1tku roku v\u0161ak maj\u00ed \u0161anci z\u00edskat novinku – pumpu, kter\u00e1 je p\u0159enosn\u00e1.<\/strong><\/p>\n

\u010cesk\u00e1 televize<\/strong><\/em><\/p>\n

Jako prvn\u00ed ji v Moravskoslezsk\u00e9m kraji u\u017e\u00edv\u00e1 mal\u00e1 Emma z Novoji\u010d\u00ednska.<\/p>\n

M\u00e1 cystickou fibr\u00f3zu. Vz\u00e1cn\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje d\u00fdchac\u00ed a tr\u00e1v\u00edc\u00ed \u00fastroj\u00ed. Nemoc takzvan\u00fdch slan\u00fdch d\u011bt\u00ed m\u00e1 na sv\u011bdom\u00ed genov\u00e1 mutace, kter\u00e1 se vyskytne u obou rodi\u010d\u016f.<\/p>\n

Vzali j\u00ed velk\u00fd kus st\u0159eva, tak\u017ee z tenk\u00e9ho st\u0159eva zbylo jenom 20 centimetr\u016f.<\/p>\n

Astrid \u0160UL\u00c1KOV\u00c1, d\u011btsk\u00e1 gastroenterolo\u017eka, FN Ostrava: Tato kombinace diagn\u00f3z nen\u00ed obvykl\u00e1. Byla to souhra, sp\u00ed\u0161e souhra takov\u00fdch okolnost\u00ed, \u017ee st\u0159evn\u00ed pot\u00ed\u017ee vy\u00fastily v syndrom kr\u00e1tk\u00e9ho st\u0159eva.<\/p>\n

Zat\u00edmco cystick\u00e1 fibr\u00f3za, kter\u00e1 se d\u00e1 l\u00e9\u010dit, ale ne vyl\u00e9\u010dit, postihne ro\u010dn\u011b v \u010cesku asi \u010dty\u0159i des\u00edtky d\u011bt\u00ed, syndromu kr\u00e1tk\u00e9ho st\u0159eva je je\u0161t\u011b m\u00e9n\u011b. Necel\u00e9 t\u0159i des\u00edtky d\u011bt\u00ed a asi 250 dosp\u011bl\u00fdch. Kdy\u017e chyb\u00ed tenk\u00e9 st\u0159evo, kde jsou tr\u00e1v\u00edc\u00ed bu\u0148ky, t\u011blo nedok\u00e1\u017ee zpracovat \u017eiviny, mus\u00ed dost\u00e1vat nitro\u017eiln\u00ed v\u00fd\u017eivu, um\u011ble p\u0159ipraven\u00e9 tuky, cukry, b\u00edlkoviny, vitam\u00edny i miner\u00e1ly pomoc\u00ed voperovan\u00e9ho katetru a inf\u00fazn\u00ed pumpy.<\/p>\n

Ka\u017ed\u00fd den v dev\u011bt ve\u010der p\u0159ipoj\u00ed rodi\u010de malou Emu na um\u011blou v\u00fd\u017eivu. Ta j\u00ed pak mus\u00ed kapat pln\u00fdch 18 hodin p\u0159\u00edmo do \u017eil. Odpojit ji m\u016f\u017eou a\u017e dal\u0161\u00ed den ve t\u0159i odpoledne.<\/p>\n

Monika Mal\u00ed\u010dkov\u00e1, \u017eena, kter\u00e1 ne\u010dekan\u011b z\u016fstala odk\u00e1z\u00e1na na um\u011blou v\u00fd\u017eivu, se odm\u00edtla sm\u00ed\u0159it s t\u00edm, \u017ee bude v\u011bt\u0161inu dne upoutan\u00e1 doma u p\u0159\u00edstroje.<\/p>\n

Monika MAL\u00cd\u010cKOV\u00c1, p\u0159edsedkyn\u011b ob\u010dansk\u00e9ho sdru\u017een\u00ed \u017divot bez st\u0159ev:\u00a0 Na internetu jsem na\u0161la spoustu odkaz\u016f na to, \u017ee existuj\u00ed mal\u00e9 p\u0159enosn\u00e9 pumpy. S panem doktorem jsem o tom za\u010dala mluvit, aby tuhle pumpi\u010dku m\u011bli mo\u017enost dostat v\u0161ichni pacienti, kte\u0159\u00ed ji pot\u0159ebuj\u00ed, kte\u0159\u00ed cht\u011bj\u00ed b\u00fdt mobiln\u00ed.<\/p>\n

V\u00fdsledkem jejich \u00fasil\u00ed zachycen\u00e9ho i v dokumentu Pumpa pro \u017eivot, kter\u00fd v cyklu Moje soukrom\u00e1 v\u00e1lka vys\u00edlala \u010cesk\u00e1 televize, byl nov\u00fd p\u0159\u00edstup k dom\u00e1c\u00ed nitro\u017eiln\u00ed v\u00fd\u017eiv\u011b. Zm\u011bnily se \u00fahrady zdravotn\u00edch poji\u0161\u0165oven a \u0159ada nemocnic koupila p\u0159enosn\u00e9 pumpy. I v Ostrav\u011b, kde l\u00e9\u010d\u00ed Emmu.<\/p>\n

Andrea GROSMANOV\u00c1, matka Emmy: Byla jsem hrozn\u011b r\u00e1da, kdy\u017e jsme dostali tu malou p\u0159enosnou, to je super. My jsme se d\u00edvali na ten po\u0159ad a bylo to \u00fapln\u011b \u00fa\u017easn\u00e9. Ta pan\u00ed vlastn\u011b byla stra\u0161n\u011b \u0161ikovn\u00e1 a n\u00e1m to pomohlo i s tou pumpou, \u017ee vlastn\u011b ona to tak vybojovala.<\/p>\n

D\u00edvce by mohla pomoci dal\u0161\u00ed operace, kter\u00e1 ji zbav\u00ed v\u00fdvodu, a do budoucna m\u016f\u017ee b\u00fdt nad\u011bj\u00ed i transplantace org\u00e1n\u016f.<\/p>\n

\u010cesk\u00e1 televize<\/p>\n","protected":false},"excerpt":{"rendered":"

Umo\u017e\u0148uje p\u0159e\u017e\u00edt, ale bere svobodu. I tak se d\u00e1 popsat z\u00e1vislost na nitro\u017eiln\u00ed v\u00fd\u017eiv\u011b. Lid\u00e9, kte\u0159\u00ed p\u0159i\u0161li o tenk\u00e9 st\u0159evo, mus\u00ed b\u00fdt dlouh\u00e9 hodiny p\u0159ipojeni […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14257,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11,9],"tags":[],"class_list":["post-20062","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20062","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20062"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20062\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14257"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20062"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20062"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20062"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}