{"id":20212,"date":"2015-03-03T10:34:00","date_gmt":"2015-03-03T09:34:00","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=20212"},"modified":"2015-03-03T10:34:00","modified_gmt":"2015-03-03T09:34:00","slug":"startuje-maraton-pro-pacienty-s-roztrousenou-sklerozou","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=20212","title":{"rendered":"Startuje maraton pro pacienty s roztrou\u0161enou skler\u00f3zou"},"content":{"rendered":"

Cel\u00fd den a noc nep\u0159etr\u017eit\u00e9ho cvi\u010den\u00ed \u2013 tento v\u00fdkon p\u0159edvedou o v\u00edkendu pacienti s\u00a0diagn\u00f3zou roztrou\u0161en\u00e1 skler\u00f3za (RS). Startuje 24hodinov\u00fd Maraton s\u00a0roztrou\u0161enou skler\u00f3zou \u2013 MaRS 2015. <\/strong><\/p>\n

K\u00a0Pr\u016fhonic\u00edm u Prahy se postupn\u011b p\u0159ipoj\u00ed dal\u0161\u00edch jeden\u00e1ct m\u011bst, nov\u011b i t\u00fdmy ze Slovenska a \u0160v\u00fdcarska. Pacienti, jejich p\u0159\u00edbuzn\u00ed a l\u00e9ka\u0159i budou cvi\u010dit v\u00a0kruhov\u00e9m tr\u00e9ninku za asistence fyzioterapeut\u016f.
\nLetos p\u0159edb\u011b\u017en\u011b p\u0159isl\u00edbilo \u00fa\u010dast p\u0159es 700 lid\u00ed. Sportovn\u011b dobro\u010dinn\u00e1 akce se kon\u00e1 ji\u017e po \u010dtvrt\u00e9 a hlavn\u00edm organiz\u00e1torem je Nada\u010dn\u00ed fond IMPULS. \u201eMaraton MaRS je organizov\u00e1n jako skl\u00e1da\u010dka, slo\u017een\u00e1 ze vz\u00e1jemn\u011b propojen\u00fdch sportovi\u0161\u0165 po cel\u00e9 republice, m\u011bsta spolu komunikuj\u00ed pomoc\u00ed telemost\u016f,\u201c uvedla Ing. Aurin Nedbalov\u00e1, \u0159editelka Nada\u010dn\u00edho fondu IMPULS, kter\u00fd spravuje celost\u00e1tn\u00ed Registr pacient\u016f s\u00a0roztrou\u0161enou skler\u00f3zou – ReMuS.<\/p>\n

\u201eD\u0159\u00edve l\u00e9ka\u0159i pohybovou aktivitu pacient\u016fm zakazovali, aby se jim je\u0161t\u011b v\u00edce nezhor\u0161ila \u00fanava – jeden z nej\u010dast\u011bj\u0161\u00edch a nejv\u00edce limituj\u00edc\u00edch p\u0159\u00edznak\u016f. Dnes u\u017e v\u00edme, \u017ee pravideln\u00e1 p\u00e9\u010de o fyzickou i psychickou kondici je naprosto z\u00e1sadn\u00ed a \u017ee p\u0159i dlouhodob\u00e9 zm\u011bn\u011b \u017eivotn\u00edho stylu lze tyto p\u0159\u00edznaky zm\u00edrnit. D\u016fle\u017eit\u00e9 je u\u0161\u00edt pacient\u016fm program na m\u00edru a motivovat, aby je cvi\u010den\u00ed bavilo,\u201c uvedla fyzioterapeutka Lucie Such\u00e1, kter\u00e1 iniciovala vznik MaRSu.<\/p>\n

Maraton odstartuje v Sokolovn\u011b v Pr\u016fhonic\u00edch v\u00a0p\u00e1tek 6. b\u0159ezna v\u00a017 hodin a skon\u010d\u00ed v\u00a0sobotu odpoledne. \u00da\u010dastn\u00edci se tak b\u011bhem 24 hodin st\u0159\u00eddaj\u00ed na r\u016fzn\u00fdch stanovi\u0161t\u00edch \u2013 posilovac\u00edch stroj\u00edch, rotopedu, vesla\u0159sk\u00e9m trena\u017e\u00e9ru, chod\u00edc\u00edch p\u00e1sech, balan\u010dn\u00ed pom\u016fcce bosu, nebo m\u00ed\u010d\u00edch. Letos poprv\u00e9 si budou moci maratonci vyzkou\u0161et v\u00a0r\u00e1mci doprovodn\u00e9ho programu i\u00a0kognitivn\u00ed rehabilitaci pomoc\u00ed softwaru HAPPYneuron BrainJogging. Cvi\u010den\u00ed pomoc\u00ed po\u010d\u00edta\u010de tr\u00e9nuje pam\u011b\u0165, logick\u00e9 my\u0161len\u00ed, koncentraci a mnoh\u00e9 dal\u0161\u00ed a ka\u017ed\u00fd t\u00fdm i jednotlivec se bude moci zapojit do utk\u00e1n\u00ed o nejaktivn\u011bj\u0161\u00edho hr\u00e1\u010de. K\u00a0pra\u017esk\u00fdm Pr\u016fhonic\u00edm se postupn\u011b, v\u017edy na n\u011bkolik hodin, p\u0159ipoj\u00ed lid\u00e9 z Brna, \u010cesk\u00fdch Bud\u011bjovic, Hradce Kr\u00e1lov\u00e9, Jihlavy, Kyjova, Liberce, Ostravy, Pod\u011bbrad a z \u00dast\u00ed nad Orlic\u00ed, ze zahrani\u010d\u00ed budou cvi\u010dit t\u00fdmy ze slovensk\u00fdch Pie\u0161\u0165an a \u0161v\u00fdcarsk\u00e9ho Valens. <\/p>\n

Vznik maratonu se datuje do roku 2012, autorem n\u00e1padu jsou sami pacienti. \u201eJednou takhle \u0161lapu na rotopedu a mysl\u00edm na ned\u00e1vn\u00e9 v\u00edt\u011bzstv\u00ed \u017eokeje V\u00e1ni ve Velk\u00e9 pardubick\u00e9. Hlavou mi bleskne, \u017ee bychom s pacienty mohli tak\u00e9 uspo\u0159\u00e1dat n\u011bjak\u00fd \u201ez\u00e1vod\u201c. P\u0159i spole\u010dn\u00e9m cvi\u010den\u00ed jsme si v\u0161ichni pov\u00eddali o tom, jak V\u00e1\u0148u obdivujeme, \u017ee ve sv\u00fdch letech je\u0161t\u011b tohle dok\u00e1\u017ee. Tak jsem navrhl, abychom uspo\u0159\u00e1dali maraton,\u201c vzpom\u00edn\u00e1 autor prvn\u00ed my\u0161lenky na uspo\u0159\u00e1d\u00e1n\u00ed MaRSu – MVDr. Roman Kvapil.
\nZat\u00edmco prvn\u00edho ro\u010dn\u00edku se z\u00fa\u010dastnilo 84 lid\u00ed, loni jich u\u017e cvi\u010dilo 630. \u201ePrvn\u00ed rok byl z m\u00e9ho pohledu trochu \u017eiveln\u00fd, ale z\u00e1bavn\u00fd. Cvi\u010dili jsme, \u017eeny napekly ob\u010derstven\u00ed a moc jsme si to u\u017eili. T\u0159et\u00ed ro\u010dn\u00edk byl u\u017e celorepublikov\u00fd a leto\u0161n\u00ed \u010dtvrt\u00fd je dokonce mezin\u00e1rodn\u00ed,\u201c popsal Roman Kvapil, kter\u00fd s\u00a0diagn\u00f3zou roztrou\u0161en\u00e9 skler\u00f3zy \u017eije u\u017e 13 let. \u00da\u010dastn\u00edky p\u0159ijedou podpo\u0159it i zn\u00e1m\u00e9 osobnosti \u2013 v\u00a0Praze zav\u00edt\u00e1 do Pr\u016fhonic nap\u0159\u00edklad t\u00fdm basketbalistek z\u00a0USK Praha, basketbalov\u00fd reprezentant Pavel Milo\u0161, hr\u00e1\u010di americk\u00e9ho fotbalu Prague Black Panthers, herci Tereza Brodsk\u00e1, Jan \u010censk\u00fd, Radim Fiala \u010di Ivana Jire\u0161ov\u00e1.<\/p>\n

\u201ePodat vrcholov\u00fd v\u00fdkon v\u0161ak nen\u00ed to hlavn\u00ed, o co p\u0159i t\u00e9to akci jde. C\u00edlem maratonu je nejenom motivovat pacienty k\u00a0tomu, aby se nau\u010dili pravideln\u011b cvi\u010dit, a nav\u00edc n\u00e1m MaRS tak\u00e9 pom\u016f\u017ee vybrat pen\u00edze na rehabilita\u010dn\u00ed pom\u016fcky, kter\u00e9 zdravotn\u00ed poji\u0161\u0165ovna nehrad\u00ed. Nap\u0159\u00edklad v\u00a0Praze se ji\u017e poda\u0159ilo z\u00edskat v\u00edce ne\u017e 144 tis\u00edc korun, kter\u00e9 spolu s\u00a0v\u00fdt\u011b\u017ekem z\u00a0leto\u0161n\u00edho cvi\u010den\u00ed p\u0159isp\u011bj\u00ed k\u00a0po\u0159\u00edzen\u00ed z\u00e1v\u011bsn\u00e9ho syst\u00e9mu k\u00a0n\u00e1cviku ch\u016fze a na \u00fahradu rehabilitace pacient\u016f MS centra ve V\u0161eobecn\u00e9 fakultn\u00ed nemocnici,\u201c podotkla Aurin Nedbalov\u00e1. <\/p>\n

MaRS ve\u0159ejnosti tak\u00e9 ukazuje, \u017ee pokud se lid\u00e9 s\u00a0diagn\u00f3zou RS za\u010dnou v\u010das a spr\u00e1vn\u011b l\u00e9\u010dit, udr\u017e\u00ed se d\u00e9le aktivn\u00ed. Z posledn\u00edch dat z celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou \u2013 ReMuS jasn\u011b vypl\u00fdv\u00e1, \u017ee v\u00edce ne\u017e 60 % pacient\u016f, dlouhodob\u011b l\u00e9\u010den\u00fdch pomoc\u00ed biologick\u00e9 l\u00e9\u010dby, m\u016f\u017ee st\u00e1le pracovat. \u201ePotvrzuje tak na\u0161i argumentaci v\u016f\u010di poji\u0161\u0165ovn\u00e1m, \u017ee v\u010dasn\u00e9 zaveden\u00ed biologick\u00e9 l\u00e9\u010dby spolu s\u00a0intenzivn\u00ed rehabilitac\u00ed a pravideln\u00fdm pohybem pacient\u016fm s\u00a0roztrou\u0161enou skler\u00f3zou z\u00e1sadn\u011b odd\u00e1l\u00ed vzplanut\u00ed nemoci. Z\u00e1rove\u0148 prodlou\u017e\u00ed dobu, po kterou mohou pacienti bez probl\u00e9m\u016f \u017e\u00edt a pracovat o n\u011bkolik let d\u00e9le,\u201c \u0159ekla prof. MUDr. Eva Havrdov\u00e1, CSc., vedouc\u00ed MS Centra Neurologick\u00e9 kliniky 1. LF UK a VFN v Praze. V\u00a0sou\u010dasnosti m\u00e1 biologickou l\u00e9\u010dbu nasazenou p\u0159ibli\u017en\u011b osm tis\u00edc pacient\u016f, podle prof. Havrdov\u00e9 by ji mohli podstoupit dal\u0161\u00ed dva tis\u00edce lid\u00ed s\u00a0RS. Celkem v\u00a0\u010cR trp\u00ed roztrou\u0161enou skler\u00f3zou p\u0159ibli\u017en\u011b 17 tis\u00edc lid\u00ed. <\/p>\n

O maratonu MaRS <\/strong>
\nMaRS – 24hodinov\u00fd Maraton s\u00a0roztrou\u0161enou skler\u00f3zou, vznikl v\u00a0roce 2012 z\u00a0podn\u011btu pacient\u016f a odborn\u00edk\u016f pra\u017esk\u00e9ho MS centra V\u0161eobecn\u00e9 fakultn\u00ed nemocnice Praha pod patronac\u00ed Nada\u010dn\u00edho fondu IMPULS. D\u00edky zapojen\u00ed pacientsk\u00fdch organizac\u00ed Unie Roska, Ob\u010dansk\u00e9ho sdru\u017een\u00ed SMS a MS center pro l\u00e9\u010dbu RS se z\u00a0p\u016fvodn\u011b lok\u00e1ln\u00ed sportovn\u011b dobro\u010dinn\u00e9 akce stala ud\u00e1lost p\u0159esahuj\u00edc\u00ed hranice republiky. V\u00edce na www.nfimpuls.cz.<\/p>\n

O roztrou\u0161en\u00e9 skler\u00f3ze<\/strong><\/p>\n

Roztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1m\u00e1. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v\u00a0mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. V\u00a0sou\u010dasn\u00e9 dob\u011b v\u00a0tuzemsku podstupuje biologickou l\u00e9\u010dbu p\u0159ibli\u017en\u011b 8 000 nemocn\u00fdch s RS.
\nNa cel\u00e9m sv\u011bt\u011b RS trp\u00ed 2,5 mili\u00f3n\u016f nemocn\u00fdch. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus, kou\u0159en\u00ed a nedostatek vitaminu D. Podle epidemiologick\u00fdch pr\u016fzkum\u016f se v \u010cR nejv\u00edce vyskytuje RS na severu \u010cech. L\u00e9ka\u0159i to p\u0159isuzuj\u00ed zhor\u0161en\u00e9mu \u017eivotn\u00edmu prost\u0159ed\u00edm v t\u00e9to oblasti. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt na port\u00e1le www.rskompas.cz.<\/p>\n

O Nada\u010dn\u00edm fondu IMPULS <\/strong>
\nNada\u010dn\u00ed fond IMPULS vznikl roku 2000. Jeho c\u00edlem je podporovat projekty v\u00a0oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 i na fyzioterapii a\u00a0psychoterapii, kter\u00e9 nejsou hrazeny z\u00a0ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a\u00a0osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s\u00a0roztrou\u0161enou skler\u00f3zou (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z\u00a0vlastn\u00edch zdroj\u016f. Letos slav\u00ed v\u00fdro\u010d\u00ed 15 let od sv\u00e9ho vzniku. V\u00edce informac\u00ed na www.nfimpuls.cz.<\/p>\n

O BrainJogging<\/strong>
\nBrainJogging je tr\u00e9nink mozku\u00a0pomoc\u00ed po\u010d\u00edta\u010de, jen\u017e je dostupn\u00fd na\u00a0CD \u010di p\u0159es\u00a0online\u00a0tr\u00e9ninkov\u00fd port\u00e1l.\u00a0Byl\u00a0vyvinut t\u00fdmem francouzsk\u00fdch neurolog\u016f a psycholog\u016f. Vyu\u017e\u00edt se m\u016f\u017ee individu\u00e1ln\u011b nebo ve skupin\u011b. Nem\u00e1 v\u011bkov\u00e9 omezen\u00ed – mohou ho pou\u017e\u00edvat v\u0161ichni od d\u011bt\u00ed a\u017e po seniory. Vych\u00e1z\u00ed z nejnov\u011bj\u0161\u00edch trend\u016f spojen\u00ed neuropsychologie a informa\u010dn\u00edch technologi\u00ed.\u00a0Umo\u017e\u0148uje udr\u017eovat mozek \u010dlov\u011bka ve form\u011b odpov\u00eddaj\u00edc\u00ed podstatn\u011b ni\u017e\u0161\u00edmu v\u011bku.\u00a0V\u00edce informac\u00ed na www.brainjogging.cz.<\/p>\n","protected":false},"excerpt":{"rendered":"

Cel\u00fd den a noc nep\u0159etr\u017eit\u00e9ho cvi\u010den\u00ed \u2013 tento v\u00fdkon p\u0159edvedou o v\u00edkendu pacienti s\u00a0diagn\u00f3zou roztrou\u0161en\u00e1 skler\u00f3za (RS). Startuje 24hodinov\u00fd Maraton s\u00a0roztrou\u0161enou skler\u00f3zou \u2013 MaRS 2015.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":15261,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-20212","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20212","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20212"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20212\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/15261"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20212"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20212"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20212"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}