{"id":20500,"date":"2015-03-23T11:47:01","date_gmt":"2015-03-23T10:47:01","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=20500"},"modified":"2015-03-23T11:47:01","modified_gmt":"2015-03-23T10:47:01","slug":"ziji-s-chromozomem-navic","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=20500","title":{"rendered":"\u017dij\u00ed s chromozomem nav\u00edc"},"content":{"rendered":"

V sobotu byl Sv\u011btov\u00fd den Downova syndromu a maminka z Tachova hled\u00e1 matky d\u011bt\u00ed se stejn\u00fdm posti\u017een\u00edm.<\/strong><\/p>\n

Tachov \u2013 Ned\u00e1vno byla Iveta Jon\u00e1\u0161ov\u00e1 z Tachova se svoj\u00ed dcerou Nelinkou v psychologick\u00e9 poradn\u011b. Naproti nim sed\u011bla v \u010dek\u00e1rn\u011b mlad\u00e1 pan\u00ed s p\u0159\u00edtelem. Nelinka \u0161la p\u0159es \u010dek\u00e1rnu, za\u010dala j\u00ed pod\u00e1vat kn\u00ed\u017eku a pov\u00eddat si s n\u00ed. Pan\u00ed se hned rozbre\u010dela a byla \u00fapln\u011b rozhozena, \u017ee musela na chv\u00edli odej\u00edt pry\u010d. Co se j\u00ed stalo, to maminka Nelinky nev\u00ed, ale t\u0159eba se j\u00ed tak\u00e9 m\u011blo narodit d\u00edtko s handicapem jako m\u00e1 Nelinka \u2013 ta m\u00e1 toti\u017e Down\u016fv syndrom. T\u0159eba je v Tachov\u011b n\u011bkdo, komu by se to mohlo st\u00e1t. V sobotu byl Sv\u011btov\u00fd den Downova syndromu a Iveta Jon\u00e1\u0161ov\u00e1 hled\u00e1 jin\u00e9 maminky, kter\u00e9 maj\u00ed d\u011bti se stejn\u00fdm posti\u017een\u00edm, aby si mohly vym\u011bnit zku\u0161enosti a p\u0159\u00edpadn\u011b si pom\u00e1hat.<\/p>\n

„Tento sv\u011btov\u00fd den se t\u00fdk\u00e1 i Nelinky, kter\u00e1 se n\u00e1m p\u0159ed sedmi lety narodila. DS nen\u00ed nemoc v klasick\u00e9m slova smyslu, je to genetick\u00e1 anom\u00e1lie. Lid\u00e9 s DS dostali od p\u0159\u00edrody zvl\u00e1\u0161tn\u00ed nad\u00edlku. Ka\u017ed\u00e1 bu\u0148ka jejich t\u011bla obsahuje chromoz\u00f3m nav\u00edc,“ uvedla maminka Nelinky.<\/p>\n

Datum symbolicky odkazuje na podstatu posti\u017een\u00ed \u2013 trizomie 21 chromoz\u00f3mu, proto 21. den t\u0159et\u00edho m\u011bs\u00edce. „Tento rok je to ji\u017e des\u00e1t\u00e9 v\u00fdro\u010d\u00ed sv\u011btov\u00e9ho dne. Je to p\u0159\u00edle\u017eitost pro lidi s DS po cel\u00e9m sv\u011bt\u011b uk\u00e1zat na pozitivn\u00ed i problematick\u00e9 aspekty, kter\u00e9 \u017eivot s chromozomem nav\u00edc p\u0159in\u00e1\u0161\u00ed. Po cel\u00e9m sv\u011bt\u011b se kon\u00e1 spousta akc\u00ed. Nap\u0159\u00edklad v Praze na Pet\u0159\u00edn\u011b se vypou\u0161t\u011bty balonky s p\u0159\u00e1n\u00edm pro d\u011bti s DS,“ poznamenala.<\/p>\n

Nelinka nav\u0161t\u011bvuje speci\u00e1ln\u00ed mate\u0159skou \u0161kolu a po ro\u010dn\u00edm odkladu nastoup\u00ed do b\u011b\u017en\u00e9 z\u00e1kladn\u00ed \u0161koly v Tachov\u011b, konkr\u00e9tn\u011b na Z\u00e1re\u010dnou, a to spolu s asistentkou. „\u0160kola n\u00e1s p\u0159ijala s otev\u0159enou n\u00e1ru\u010d\u00ed a t\u00edmto moc d\u011bkujeme za vst\u0159\u00edcn\u00e9 jedn\u00e1n\u00ed,“ doplnila.<\/p>\n

N\u011bkolik let jsou \u010dleny klubu Spole\u010dnost rodi\u010d\u016f a p\u0159\u00e1tel s DS, kter\u00e1 s\u00eddl\u00ed v Praze, nebo\u0165 zde v Tachov\u011b nen\u00ed moc p\u0159\u00edle\u017eitost\u00ed pro d\u011bti s posti\u017een\u00edm. „Je zde pom\u011brn\u011b t\u011b\u017ek\u00e9 zapojit d\u00edt\u011b s posti\u017een\u00edm do n\u011bjak\u00e9ho krou\u017eku \u010di aktivit. S t\u00edmto probl\u00e9mem jsme se ji\u017e setkali. Nelinka by r\u00e1da tancovala, jako ka\u017ed\u00e1 jin\u00e1 zdrav\u00e1 hol\u010di\u010dka. R\u00e1da poslouch\u00e1 hudbu a velmi dob\u0159e j\u00ed d\u011blala a bavila hipoterapie, kter\u00e1 zde ani nen\u00ed,“ doplnila.<\/p>\n

„Cht\u011bla bych, aby se maminky s d\u011btmi s posti\u017een\u00edm na tento klub ur\u010dit\u011b obr\u00e1tily, r\u00e1di jim tam porad\u00ed a pom\u016f\u017eou. Zde v Tachov\u011b jist\u011b takov\u00e1 pomoc a podpora i aktivity chyb\u00ed, proto mus\u00edme doj\u00ed\u017ed\u011bt za v\u0161emi aktivitami i odborn\u00fdmi l\u00e9ka\u0159i mimo m\u011bsto,“ dodala Jon\u00e1\u0161ov\u00e1.<\/p>\n

Klub po\u0159\u00e1d\u00e1 v Krkono\u0161\u00edch letn\u00ed i zimn\u00ed rekondi\u010dn\u00ed pobyty pro na\u0161e d\u011bti. Zde v t\u00fddenn\u00edm pobytu d\u011bti absolvuj\u00ed individu\u00e1ln\u00ed lekce na podporu kognitivn\u00edch a ment\u00e1ln\u00edch schopnost\u00ed, individu\u00e1ln\u00ed lekce logopedie, speci\u00e1ln\u00ed rehabilitace, lekce komunikace, v\u00fdtvarnou v\u00fdchovu a hudebn\u011b-pohybovou v\u00fdchovu.<\/p>\n

Rodi\u010de z Tachovska, kte\u0159\u00ed o spole\u010dnosti rodi\u010d\u016f a p\u0159\u00e1tel d\u011bt\u00ed s Downem nev\u00ed, se mohou pod\u00edvat na internetov\u00e9 str\u00e1nky downsyndrom.cz, kter\u00e9 o posti\u017een\u00ed obs\u00e1hle informuj\u00ed. Najdou tam i p\u0159\u00edpadnou poradnu a kontakty.<\/p>\n

V\u00edtan\u00e1 je i charita, uspo\u0159\u00e1dala ji i Iveta Jon\u00e1\u0161ov\u00e1 v Tachov\u011b. „Pen\u00edze se vybraly z prodeje kalend\u00e1\u0159\u016f i d\u00edky sponzor\u016fm, kter\u00fdm je\u0161t\u011b jednou d\u011bkuji,“ ukon\u010dila.<\/p>\n

—<\/p>\n

C\u00edle a posl\u00e1n\u00ed t\u00e9to Spole\u010dnosti rodi\u010d\u016f a p\u0159\u00e1tel s DS jsou:
\n\u2013 podpora osob s DS a jejich rodin
\n– kontakty s odbornou ve\u0159ejnost\u00ed za \u00fa\u010delem pozitivn\u00edho ovliv\u0148ov\u00e1n\u00ed individu\u00e1ln\u00edho v\u00fdvoje d\u00edt\u011bte s DS
\n– zm\u00edr\u0148ov\u00e1n\u00ed n\u00e1sledk\u016f posti\u017een\u00ed, vyhled\u00e1v\u00e1n\u00ed nov\u00fdch efektivn\u00edch metod v\u010dasn\u00e9 a podp\u016frn\u00e9 p\u00e9\u010de
\n– obhajoba pr\u00e1v osob s DS nebo s jin\u00fdm zdravotn\u00edm posti\u017een\u00edm, poradenstv\u00ed
\n– vyhled\u00e1v\u00e1n\u00ed efektivn\u00edch vzd\u011bl\u00e1vac\u00edch metod pro osoby s DS
\n– p\u0159\u00edm\u00e1 pr\u00e1ce s d\u011btmi a ml\u00e1de\u017e\u00ed s DS
\n– po\u0159\u00e1d\u00e1n\u00ed vzd\u011bl\u00e1vac\u00edch akc\u00ed DS
\n– zvy\u0161ov\u00e1n\u00ed informac\u00ed osob s DS, \u0161\u00ed\u0159en\u00ed informac\u00ed a vyd\u00e1v\u00e1n\u00ed odborn\u00fdch a \u00fa\u010delov\u00fdch publikac\u00ed
\nZdroj: Iveta Jon\u00e1\u0161ov\u00e1<\/p>\n

GABRIELA J\u00c4GEROV\u00c1
\nTachovsk\u00fd den\u00edk
\nhttp:\/\/tachovsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

V sobotu byl Sv\u011btov\u00fd den Downova syndromu a maminka z Tachova hled\u00e1 matky d\u011bt\u00ed se stejn\u00fdm posti\u017een\u00edm.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":19903,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-20500","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20500","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20500"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20500\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19903"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20500"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20500"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20500"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}