{"id":20524,"date":"2015-03-23T13:18:00","date_gmt":"2015-03-23T12:18:00","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=20524"},"modified":"2015-03-23T13:18:00","modified_gmt":"2015-03-23T12:18:00","slug":"meni-se-v-lidskou-sochu-s-osudem-bojuje-i-diky-kapele-the-tap-tap","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=20524","title":{"rendered":"M\u011bn\u00ed se v lidskou sochu, s osudem bojuje i d\u00edky kapele The Tap Tap"},"content":{"rendered":"<p><strong>Petru Burdovi z Loun l\u00e9ka\u0159i d\u00e1vali jen malou nad\u011bji, \u017ee oslav\u00ed dvac\u00e1t\u00e9 narozeniny. Trp\u00ed toti\u017e vz\u00e1cn\u00fdm genetick\u00fdm onemocn\u011bn\u00edm s t\u011b\u017eko vysloviteln\u00fdm n\u00e1zvem Fibrodysplasia ossificans progressiva.<\/strong> <!--more--><\/p>\n<p>LOUNY V\u00e1pn\u00edk z kost\u00ed se mu usazuje ve svalech a postupn\u011b se tak m\u011bn\u00ed v lidskou sochu. Dnes \u010dty\u0159iadvacetilet\u00fd mu\u017e navzdory sv\u00e9mu posti\u017een\u00ed cestuje a hraje po sv\u011bt\u011b se zn\u00e1mou kapelou The Tap Tap. &#8222;V dubnu oslav\u00edm 25. narozeniny, l\u00e9ka\u0159i mi p\u0159itom d\u00e1vali \u0161anci do devaten\u00e1cti let. S\u00e1m jsem zv\u011bdav\u00fd, jak dlouho budu \u017e\u00edt,&#8220; \u0159\u00edk\u00e1. \u010clov\u011bku p\u0159i jeho slovech a\u017e mraz\u00ed, on je ale se sv\u00fdm osudem sm\u00ed\u0159en\u00fd a ka\u017ed\u00fd den se sna\u017e\u00ed \u017e\u00edt naplno.<\/p>\n<p>Bari\u00e9ry a hranice p\u0159ekon\u00e1v\u00e1 i navzdory tomu, \u017ee je upoutan\u00fd na voz\u00edk a bez pomoci se s\u00e1m o sebe nepostar\u00e1. &#8222;Pot\u00e9, co mi l\u00e9ka\u0159i vy\u0159kli diagn\u00f3zu, jsem byl na\u0161tvan\u00fd na cel\u00fd sv\u011bt a necht\u011bl jsem pochopit, \u017ee ostatn\u00ed d\u011bti mohou venku b\u011bhat, l\u00e9zt po prol\u00e9za\u010dk\u00e1ch a j\u00e1 ne. Postupem \u010dasu jsem se spokojil s t\u00edm, co je, a beru \u017eivot takov\u00fd, jak\u00fd je. Vyrovnat se s touhle situac\u00ed mi pomohla hlavn\u011b rodina,&#8220; pokra\u010duje.<\/p>\n<p>Narodil se jako zdrav\u00e9 d\u00edt\u011b, v prvn\u00edch letech \u017eivota nic nenasv\u011bd\u010dovalo v\u00e1\u017en\u00e9mu onemocn\u011bn\u00ed. Zdravotn\u00ed komplikace s vybo\u010den\u00fdmi a sr\u016fstaj\u00edc\u00edmi palci u nohou nebyl l\u00e9ka\u0159sky ne\u0159e\u0161iteln\u00fd probl\u00e9m. Nemoc se u n\u011bho projevila a\u017e v sedmi letech.<\/p>\n<p>&#8222;R\u00e1no jsem se probudil a byl jsem p\u0159ihrben\u00fd, nemohl jsem se narovnat. Zpo\u010d\u00e1tku si s t\u00edm l\u00e9ka\u0159i nev\u011bd\u011bli rady, domn\u00edvali se, \u017ee jde o n\u011bjak\u00fd druh rakoviny. A\u017e po \u010dase, od zahrani\u010dn\u00edch l\u00e9ka\u0159\u016f, zjistili, o co se jedn\u00e1. Nemoc nem\u00e1 ani \u010desk\u00fd n\u00e1zev, postihuje asi jednoho ze dvou milion\u016f na cel\u00e9m sv\u011bt\u011b. Postupn\u011b se mi odv\u00e1p\u0148uj\u00ed kosti a v\u00e1pn\u00edk se usazuje ve svalech, kde tvrdne,&#8220; popisuje Petr.<\/p>\n<p>Na nemoc zat\u00edm neexistuje l\u00e9k, postup ani nelze zastavit. &#8222;Od patn\u00e1cti let jsem upoutan\u00fd na voz\u00edk, bez kter\u00e9ho se dnes neobejdu. Dok\u00e1\u017eu uj\u00edt jen velmi kr\u00e1tkou vzd\u00e1lenost, doma se sna\u017e\u00edm chodit, ale ven u\u017e bez voz\u00edku nemohu. Neobejdu se bez pomoci okol\u00ed. S\u00e1m se naj\u00edm, pracuji s po\u010d\u00edta\u010dem, ale u\u017e se s\u00e1m neobl\u00e9knu. Postupn\u011b se to bude zhor\u0161ovat a budu \u010d\u00edm d\u00e1l t\u00edm v\u00edc odk\u00e1zan\u00fd na pomoc okol\u00ed,&#8220; pokra\u010duje Petr.<\/p>\n<p>Po absolvov\u00e1n\u00ed Z\u0160 v Lounech za\u010dal studovat st\u0159edn\u00ed \u0161kolu v Jedli\u010dkov\u011b \u00fastavu v Praze, obor soci\u00e1ln\u011b spr\u00e1vn\u00ed \u010dinnost. &#8222;Nejd\u0159\u00edv jsem o Jedli\u010dk\u00e1rn\u011b necht\u011bl v\u016fbec sly\u0161et. A\u017e pak jsem zjistil, \u017ee p\u0159edstava, \u017ee je to \u00fastav pro ment\u00e1ln\u011b posti\u017een\u00e9, je m\u00fdtus,&#8220; vzpom\u00edn\u00e1. A pr\u00e1v\u011b tady ho oslovil \u0160imon Ornest, kapeln\u00edk skupiny The Tap Tap. &#8222;Vyzval m\u011b, abych se p\u0159i\u0161el pod\u00edvat na zkou\u0161ku, j\u00e1 p\u0159itom nehr\u00e1l na \u017e\u00e1dn\u00fd hudebn\u00ed n\u00e1stroj. P\u0159esto jsem to zkusil a u\u017e jsem tam z\u016fstal, deset let hraji na perkuse a elektrick\u00e9 bic\u00ed. Hudba a hran\u00ed se stalo m\u00fdm velk\u00fdm kon\u00ed\u010dkem,&#8220; usm\u00edv\u00e1 se.<\/p>\n<p>Kapela The Tap Tap je slo\u017eena ze student\u016f a absolvent\u016f \u0161koly Jedli\u010dkova \u00fastavu. Na hudebn\u00ed sc\u00e9n\u011b se pohybuje od roku 1998 a za tu dobu si vybudovala zvu\u010dn\u00e9 jm\u00e9no. Vystoupili s n\u00ed t\u0159eba Dan B\u00e1rta \u010di Xindl X, koncertuje u n\u00e1s a v zahrani\u010d\u00ed, hudebn\u00edci se setkali i s Dalajl\u00e1mou. &#8222;D\u00edky kapele jsem se dostal na m\u00edsta, kam bych se jinak nepod\u00edval. Vystupovali jsme na velk\u00fdch letn\u00edch festivalech jako Colors of Ostrava, Rock for People. Hr\u00e1li jsme v Moskv\u011b, Lond\u00fdn\u011b, loni v Izraeli,&#8220; vypr\u00e1v\u00ed Burda.<\/p>\n<p>O budoucnosti m\u00e1 Petr jasno. &#8222;L\u00e9k na moji nemoc nen\u00ed a st\u00e1le postupuje. I kdyby v\u011bdci objevili l\u00e9\u010dbu, pochybuji, \u017ee bych se vyl\u00e9\u010dil. Asi by n\u011bjak\u00fd p\u0159\u00edpravek postup nemoci zastavil, t\u011b\u017eko by ale kalcifikovanou tk\u00e1\u0148 rozlo\u017eil a vr\u00e1til do norm\u00e1ln\u00edho stavu. J\u00e1 zdrav\u00fd nebudu, o to v\u00edc si p\u0159eji, aby byla zdrav\u00e1 moje rodina. Pl\u00e1nuji dostudovat vysokou \u0161kolu, naj\u00edt si pr\u00e1ci a sle\u010dnu. R\u00e1d bych, aby tu po mn\u011b n\u011bco z\u016fstalo. Sny si pln\u00edm v pr\u016fb\u011bhu \u017eivota,&#8220; dod\u00e1v\u00e1.<\/p>\n<p>Miroslava Strnadov\u00e1, redaktorka MF DNES<\/p>\n<p>Mlad\u00e1 fronta DNES<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Petru Burdovi z Loun l\u00e9ka\u0159i d\u00e1vali jen malou nad\u011bji, \u017ee oslav\u00ed dvac\u00e1t\u00e9 narozeniny. Trp\u00ed toti\u017e vz\u00e1cn\u00fdm genetick\u00fdm onemocn\u011bn\u00edm s t\u011b\u017eko vysloviteln\u00fdm n\u00e1zvem Fibrodysplasia ossificans progressiva.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":3071,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-20524","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20524","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20524"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20524\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/3071"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20524"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20524"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20524"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}