{"id":20770,"date":"2015-04-08T17:43:20","date_gmt":"2015-04-08T15:43:20","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=20770"},"modified":"2015-04-08T17:43:27","modified_gmt":"2015-04-08T15:43:27","slug":"marne-usiluje-o-prispevek","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=20770","title":{"rendered":"Marn\u011b usiluje o p\u0159\u00edsp\u011bvek"},"content":{"rendered":"<p><strong>Komunikace s posudkov\u00fdmi l\u00e9ka\u0159i a \u00fa\u0159ady b\u00fdv\u00e1 mnohdy boj a b\u00fdv\u00e1 to boj dlouh\u00fd, nez\u0159\u00eddkakdy zd\u00e1nliv\u011b nekone\u010dn\u00fd.<\/strong><!--more--><\/p>\n<p> Tv Barrandov<\/p>\n<p>moder\u00e1tor:<br \/>\nBlanka Krouzov\u00e1 z Liberce, matka t\u0159\u00ed autistick\u00fdch d\u011bt\u00ed, o tom v\u00ed sv\u00e9. U jednoho z jej\u00edch dvoj\u010dat, kter\u00e9 trp\u00ed v\u00e1\u017enou formou svalov\u00e9 dystrofie, j\u00ed \u00fa\u0159ady sn\u00ed\u017eily p\u0159\u00edsp\u011bvek na p\u00e9\u010di a dokonce mu odebraly pr\u016fkaz ZTPP.<\/p>\n<p>A to v\u0161echno i p\u0159esto, \u017ee ve spr\u00e1vn\u00edch \u017ealob\u00e1ch u\u017e t\u0159ikr\u00e1t vyhr\u00e1la.<\/p>\n<p>Loni v listopadu byla pan\u00ed Blanka skoro na konci sv\u00fdch sil, ale i tak v\u011b\u0159ila, \u017ee v\u0161echno dob\u0159e dopadne. Jen\u017ee nedopadlo, t\u011b\u017ece nemocn\u00fd syn Johan se tak z druh\u00e9ho stupn\u011b ocitl na prvn\u00edm a jeho p\u0159\u00edsp\u011bvek na p\u00e9\u010di \u010din\u00ed t\u0159i tis\u00edce korun m\u011bs\u00ed\u010dn\u011b, tedy polovinu, ne\u017e p\u0159ed sn\u00ed\u017een\u00edm.<\/p>\n<p>Krouzov\u00e1 Blanka, :<br \/>\nMinistersk\u00e1 komise m\u011bla opravit stupe\u0148 z\u00e1vislosti Joh\u00e1nka, nestalo se tak, nejenom \u017ee neopravila, naopak n\u00e1m je\u0161t\u011b stupe\u0148 z\u00e1vislosti sn\u00ed\u017eila a z\u00e1rove\u0148 n\u00e1m vlastn\u011b odebrali i pr\u016fkazku, pr\u016fkazku ZTPP na Joh\u00e1nka. Od\u016fvodnili to, \u017ee posudkov\u00fd stav byl nadhodnocen.<\/p>\n<p>:K tomu Ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed poskytlo p\u0159ekvapivou odpov\u011b\u010f.<\/p>\n<p>Petr SULEK, mluv\u010d\u00ed Ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed:<br \/>\nNen\u00ed n\u00e1m zcela jasn\u00e9, na z\u00e1klad\u011b jak\u00e9 skute\u010dnosti m\u011blo doj\u00edt k odebr\u00e1n\u00ed takov\u00e9ho pr\u016fkazu. Ze zji\u0161t\u011bn\u00fdch \u00fadaj\u016f nic takov\u00e9ho nevypl\u00fdv\u00e1.<\/p>\n<p>:Jen pro ilustraci &#8211; Joh\u00e1nek je to zdrav\u011bj\u0161\u00ed z dvoj\u010dat, trp\u00ed podv\u00e1hou a jeho sn\u00eddani, ob\u011bd a ve\u010de\u0159i p\u0159edstavuj\u00ed t\u0159i lahvi\u010dky nutridrink\u016f denn\u011b, jinak nic nesn\u00ed a rozmazlenost\u00ed to nen\u00ed.<\/p>\n<p>Krouzov\u00e1 Blanka, : Jedl m\u00ed\u0148 a m\u00ed\u0148 a sice rostl, ale nep\u0159ib\u00edral na v\u00e1ze, vlastn\u011b on netoleruje v\u011bt\u0161\u00ed porci j\u00eddla, \u017ee b\u011b\u017enou porci d\u011btsk\u00fdho j\u00eddla sn\u00ed dvacet a\u017e pades\u00e1t procent, kdy\u017e m\u00e1 dobr\u00fd den, kdy\u017e je to hor\u0161\u00ed, tak m\u00e1 t\u0159eba dny &#8211; dva, t\u0159i, \u010dty\u0159i, co nej\u00ed v\u016fbec nic.<\/p>\n<p>:Za v\u0161e m\u016f\u017ee vedle autismu svalov\u00e1 dystrofie, kterou dvoj\u010data Florimon a Johan trp\u00ed odmala. Postupn\u011b jim ochabuje cel\u00e9 t\u011blo.<\/p>\n<p>Krouzov\u00e1 :Udr\u017euje se to, svaly se udr\u017eujou rehabilitac\u00ed, ale jinak se s t\u00edm ned\u00e1 d\u011blat v\u016fbec nic, tam ta progrese vlastn\u011b postupn\u011b se zhor\u0161uje, a\u0165 to jsou vlastn\u011b k\u0159e\u010de do rukou, nebo schopnost pohybu, srdce \u0161patn\u00fd, pl\u00edce.<\/p>\n<p>:Na doporu\u010den\u00ed l\u00e9ka\u0159\u016f pos\u00edl\u00e1 Blanka Johana i jeho dvoj\u010de na odleh\u010dovac\u00ed v\u00edkendy a APLY do Bohnic. Kupuje mu speci\u00e1ln\u00ed v\u00fd\u017eivu, d\u00e1le plat\u00ed logopedii, osobn\u00ed asistenci a dal\u0161\u00ed. Celkem ji p\u00e9\u010de o n\u011bj vyjde na t\u0159in\u00e1ct tis\u00edc korun m\u011bs\u00ed\u010dn\u011b, zb\u00fdv\u00e1 j\u00ed proto jedin\u00e9, znovu se obr\u00e1tit na soud.<\/p>\n<p>Krouzov\u00e1 Blanka, :<br \/>\nJe\u0161t\u011b to zv\u00e1\u017e\u00edm, proto\u017ee vlastn\u011b tam se to m\u016f\u017ee po\u0159\u00e1d takhle opakovat, tak\u017ee vlastn\u011b spr\u00e1vn\u00ed \u017ealoba bude \u00fasp\u011b\u0161n\u00e1 a ministersk\u00e1 komise to neoprav\u00ed, tak\u017ee vlastn\u011b takhle m\u016f\u017ee b\u00fdt t\u0159eba spr\u00e1vn\u00edch \u017ealob deset a bude to na deset let.<\/p>\n<p>V n\u00e1sleduj\u00edc\u00edch m\u011bs\u00edc\u00edch by se pan\u00ed Krouzov\u00e1 r\u00e1da se\u0161la s ministryn\u00ed Marksovou a pouk\u00e1zala tak na situaci, v kter\u00e9 se u n\u00e1s ocitaj\u00ed stovky rodi\u010d\u016f podobn\u011b posti\u017een\u00fdch d\u011bt\u00ed. <\/p>\n<p> Tv Barrandov<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Komunikace s posudkov\u00fdmi l\u00e9ka\u0159i a \u00fa\u0159ady b\u00fdv\u00e1 mnohdy boj a b\u00fdv\u00e1 to boj dlouh\u00fd, nez\u0159\u00eddkakdy zd\u00e1nliv\u011b nekone\u010dn\u00fd.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":20771,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-20770","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20770","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=20770"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/20770\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/20771"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=20770"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=20770"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=20770"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}