{"id":21463,"date":"2015-05-25T18:01:43","date_gmt":"2015-05-25T16:01:43","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=21463"},"modified":"2015-05-25T18:20:48","modified_gmt":"2015-05-25T16:20:48","slug":"cenu-olgy-havlove-dostala-nemocna-olga-joklova-za-pomoc-druhym","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=21463","title":{"rendered":"Cenu Olgy Havlov\u00e9 dostala nemocn\u00e1 Olga Joklov\u00e1 za pomoc druh\u00fdm"},"content":{"rendered":"

Cenu Olgy Havlov\u00e9 za rok 2015 dnes dostala Olga Joklov\u00e1 mlad\u0161\u00ed (foto) z Jihlavy, kter\u00e1 z\u00e1pas\u00ed s nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel. Ocen\u011bn\u00ed z\u00edskala za osv\u011btovou \u010dinnost o tomto m\u00e1lo zn\u00e1m\u00e9m onemocn\u011bn\u00ed, na n\u00ed\u017e se pod\u00edl\u00ed spolu s neziskovou organizac\u00ed Debra \u010cR.<\/strong> <\/p>\n

foto: http:\/\/www.moje-pravdy.cz<\/p>\n

Dne\u0161n\u00ed vyhl\u00e1\u0161en\u00ed Ceny Olgy Havlov\u00e9 se konalo v prostor\u00e1ch \u010cesk\u00e9 n\u00e1rodn\u00ed banky a p\u0159ipom\u00ednalo se i 25. v\u00fdro\u010d\u00ed zalo\u017een\u00ed V\u00fdboru dobr\u00e9 v\u016fle – Nadace Olgy Havlov\u00e9 (VDV), je\u017e cenu ud\u00edl\u00ed osobnostem, kter\u00e9 navzdory zdravotn\u00edmu handicapu pom\u00e1haj\u00ed ostatn\u00edm.<\/p>\n

Porota leto\u0161n\u00ed laure\u00e1tku volila z \u0161esti nominac\u00ed, kter\u00e9 postoupily do druh\u00e9ho kola. „Handicap je hr\u016fza a nen\u00ed to trest. \u010c\u00edm v\u00edc v\u00e1m nalo\u017e\u00ed, t\u00edm v\u00edc unesete, a m\u016f\u017eete se mu vysm\u00e1t,“ vzkazuje lidem s handicapem Olga Joklov\u00e1 ml. „Jej\u00ed v\u016fle k \u017eivotu je nesm\u00edrn\u00e1 a jej\u00ed optimismus naka\u017eliv\u00fd,“ \u0159\u00edk\u00e1 \u0159editelka VDV Milena \u010cern\u00e1.<\/p>\n

Olga Joklov\u00e1 ml. trp\u00ed vrozen\u00fdm genetick\u00fdm onemocn\u011bn\u00edm epidermolysis bullosa congenita (EB) v \u010desku naz\u00fdvan\u00e9m nemoc mot\u00fdl\u00edch k\u0159\u00eddel. Narodila se v roce 1985, kdy je\u0161t\u011b neexistovala v \u010cR diagnostika t\u00e9to nemoci ani klinick\u00e9 centrum. Navzdory t\u011b\u017ek\u00e9 form\u011b t\u00e9to nemoci, kter\u00e1 zp\u016fsobuje Olze ka\u017edodenn\u00ed bolest a dal\u0161\u00ed velk\u00e9 komplikace se z\u00e1kladn\u00edmi \u017eivotn\u00edmi \u00fakony, jako jsou polyk\u00e1n\u00ed, pohyb \u010di sp\u00e1nek, je Olga spole\u010dn\u011b se svou matkou ji\u017e n\u011bkolik let aktivn\u00ed spolupracovnic\u00ed organizace Debra \u010cR. Pacient\u016f s nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel je v \u010cR kolem 300.<\/p>\n

„\u0160\u00ed\u0159en\u00ed osv\u011bty, d\u00edky kter\u00e9 zkvalit\u0148ujeme \u017eivoty pacient\u016f s nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel, se stalo pro Olgu smyslem \u017eivota. Krom\u011b velmi profesion\u00e1ln\u00edho vyjad\u0159ov\u00e1n\u00ed se o nemoci EB se zapojuje i po um\u011bleck\u00e9 str\u00e1nce – sv\u00fdm zp\u011bvem,“ \u0159\u00edk\u00e1 Alice Brychtov\u00e1, \u0159editelka spole\u010dnosti Debra \u010cR. „Cenu si zaslou\u017e\u00ed za to, \u017ee je pro n\u00e1s velmi inspiruj\u00edc\u00edm \u010dlov\u011bkem\u2026 za jej\u00ed odhodl\u00e1n\u00ed zm\u011bnit \u017eivoty v\u0161ech pacient\u016f s nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel k lep\u0161\u00edmu\u2026 za to, \u017ee d\u00edky tomu, jak\u00e1 je, pom\u00e1h\u00e1 i n\u00e1m zdrav\u00fdm lidem d\u011blat sv\u011bt lep\u0161\u00edm,“ dod\u00e1v\u00e1.
\nCenu, kterou dnes z\u00edskala Olga Joklov\u00e1 mlad\u0161\u00ed, poprv\u00e9 vyhl\u00e1sila Olga Havlov\u00e1 v roce 1995 s c\u00edlem upozornit na \u017eivot lid\u00ed se zdravotn\u00edm posti\u017een\u00edm. Za 20 let byla cena ud\u011blena \u0159ad\u011b osob, kter\u00e9 s odhodl\u00e1n\u00edm a p\u0159es p\u0159ek\u00e1\u017eky ve vlastn\u00edm \u017eivot\u011b slou\u017e\u00ed jin\u00fdm.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Cenu Olgy Havlov\u00e9 za rok 2015 dnes dostala Olga Joklov\u00e1 mlad\u0161\u00ed (foto) z Jihlavy, kter\u00e1 z\u00e1pas\u00ed s nemoc\u00ed mot\u00fdl\u00edch k\u0159\u00eddel. Ocen\u011bn\u00ed z\u00edskala za osv\u011btovou \u010dinnost […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":21467,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-21463","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/21463","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=21463"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/21463\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21467"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=21463"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=21463"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=21463"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}