{"id":22885,"date":"2015-09-29T20:02:00","date_gmt":"2015-09-29T18:02:00","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=22885"},"modified":"2015-09-29T20:02:09","modified_gmt":"2015-09-29T18:02:09","slug":"rada-lidi-s-vaznym-onemocnenim-stale-nemuze-ziskat-odpovidajici-invalidni-duchod","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=22885","title":{"rendered":"\u0158ada lid\u00ed s v\u00e1\u017en\u00fdm onemocn\u011bn\u00edm st\u00e1le nem\u016f\u017ee z\u00edskat odpov\u00eddaj\u00edc\u00ed invalidn\u00ed d\u016fchod"},"content":{"rendered":"

\u0158ada lid\u00ed s v\u00e1\u017en\u00fdm onemocn\u011bn\u00edm st\u00e1le nem\u016f\u017ee z\u00edskat odpov\u00eddaj\u00edc\u00ed invalidn\u00ed<\/span> d\u016fchod a dal\u0161\u00ed d\u00e1vky. Tito lid\u00e9 se velmi \u010dasto pot\u00fdkaj\u00ed se nepochopen\u00edm l\u00e9ka\u0159\u016f. Ty je mnohdy pova\u017euj\u00ed za hypochondry. Samo ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed p\u0159ipou\u0161t\u00ed, \u017ee se uva\u017euje o zm\u011bn\u011b syst\u00e9mu.<\/strong><\/p>\n

ilustra\u010dn\u00ed foto: Flickr.com<\/p>\n

Strumpell – Lorain\u016fv syndrom, genetick\u00e9 neurologick\u00e9 onemocn\u011bn\u00ed, kter\u00fdm trp\u00ed pouze asi 5 lid\u00ed v cel\u00e9 \u010cesk\u00e9 republice. Jedn\u00edm z nich je i pan\u00ed Helena.<\/p>\n

Helena BLA\u017dKOV\u00c1, pacientka se vz\u00e1cn\u00fdm onemocn\u011bn\u00edm:
\nJsem musela po\u017e\u00e1dat vlastn\u011b i dceru, aby se starala o m\u00fdho syna, proto\u017ee kv\u016fli bolestem nem\u016f\u017eete s n\u00edm d\u011blat \u00fakoly, nem\u016f\u017eete nic.<\/p>\n

Jarom\u00edr HOUSER, neurolog:
\nV t\u00e9to f\u00e1zi je u pan\u00ed rozvinuto ochrnut\u00ed, \u010d\u00e1ste\u010dn\u00e9 ochrnut\u00ed doln\u00edch kon\u010detin, jinak vedle t\u00e9 pohybov\u00e9 str\u00e1nky je tam tro\u0161ku i probl\u00e9m ve sf\u00e9\u0159e psychick\u00e9, pan\u00ed m\u00e1 tro\u0161ku probl\u00e9m s po\u010d\u00edt\u00e1n\u00edm.<\/p>\n

redaktorka:
\nPan\u00ed Helena m\u00e1 \u010d\u00e1ste\u010dn\u011b ochrnutou i levou ruku. Kv\u016fli ochrnut\u00ed o\u010dn\u00edho nervu velmi \u0161patn\u011b vid\u00ed, mus\u00ed se c\u00e9vkovat a trp\u00ed velk\u00fdmi bolestmi, na kter\u00e9 bere siln\u00e9 opi\u00e1ty. U\u017e m\u011bs\u00edce je na neschopence, proto\u017ee nen\u00ed schopn\u00e1 d\u011blat jakoukoliv pr\u00e1ci.<\/p>\n

Helena BLA\u017dKOV\u00c1,
\nNejhor\u0161\u00ed je, \u017ee \u010dlov\u011bk nikdy nev\u00ed, co, kdy to vybouchne, co to vyvede, kdy bolesti p\u0159ijdou.<\/p>\n

redaktorka:
\nO invalidn\u00edm<\/span> d\u016fchodu rozhoduje \u010cesk\u00e1 spr\u00e1va soci\u00e1ln\u00edho zabezpe\u010den\u00ed na z\u00e1klad\u011b vyj\u00e1d\u0159en\u00ed posudkov\u00fdch l\u00e9ka\u0159\u016f. Ti pan\u00ed Helen\u011b opakovan\u011b n\u011bkolik let p\u0159izn\u00e1vaj\u00ed jen prvn\u00ed stupe\u0148 invalidn\u00edho<\/span> d\u016fchodu. M\u011bla by tedy b\u00fdt schopn\u00e1 pracovat na zkr\u00e1cen\u00fd \u00favazek, tedy 6 hodin denn\u011b.<\/p>\n

Helena BLA\u017dKOV\u00c1,
\nNa plnej invalidn\u00ed<\/span> d\u016fchod nem\u00e1m n\u00e1rok, na pr\u016fkazku ZTP<\/span> nem\u00e1m n\u00e1rok, na p\u00e9\u010di o osobu bl\u00edzkou, proto\u017ee se to asi za rok, za dva vyl\u00e9\u010d\u00ed degenerativn\u00ed onemocn\u011bn\u00ed.<\/p>\n

Anna ARELLANESOV\u00c1, \u010cesk\u00e1 asociace pro vz\u00e1cn\u00e1 onemocn\u011bn\u00ed:
\nJe \u010d\u00edm d\u00e1l t\u00edm v\u00edce t\u011bchto pacient\u016f, kte\u0159\u00ed nejsou pochopeni, jejich diagn\u00f3zy nejsou pochopeny, neznaj\u00ed je, a mnohdy si o nich mysl\u00ed, \u017ee si vym\u00fd\u0161lej\u00ed nebo \u017ee l\u017eou.<\/p>\n

redaktorka:
\nVz\u00e1cn\u00fdch onemocn\u011bn\u00ed, a\u010dkoliv se jim \u0159\u00edk\u00e1 vz\u00e1cn\u00e1, je podle sou\u010dasn\u00fdch informac\u00ed a\u017e 8 tis\u00edc. Sami l\u00e9ka\u0159i p\u0159izn\u00e1vaj\u00ed, \u017ee ka\u017ed\u00fd posudkov\u00fd l\u00e9ka\u0159 nem\u016f\u017ee zn\u00e1t ka\u017ed\u00e9 vz\u00e1cn\u00e9 onemocn\u011bn\u00ed. Existuje sice speci\u00e1ln\u00ed tabulka diagn\u00f3z, podle kter\u00e9 se posudky \u0159\u00edd\u00ed. Vz\u00e1cn\u00e1 onemocn\u011bn\u00ed v n\u00ed ale ve v\u011bt\u0161in\u011b p\u0159\u00edpad\u016f nejsou. Ministerstvo pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed p\u0159izn\u00e1v\u00e1, \u017ee seznam nen\u00ed dokonal\u00fd.<\/p>\n

Petr HAB\u00c1\u0147, mluv\u010d\u00ed Ministerstva pr\u00e1ce a soci\u00e1ln\u00edch v\u011bc\u00ed:
\nPr\u00e1v\u011b i na z\u00e1klad\u011b t\u011bchto zku\u0161enost\u00ed se st\u00e1le \u010dast\u011bji objevuje ot\u00e1zka, zda nep\u0159ehodnotit ten syst\u00e9m a d\u00e1t v\u011bt\u0161\u00ed d\u016fraz na praktick\u00e9ho l\u00e9ka\u0159e toho kter\u00e9ho pacienta tak, aby to posouzen\u00ed mohlo b\u00fdt, pokud mo\u017eno, co nejp\u0159esn\u011bj\u0161\u00ed.<\/p>\n

redaktorka:
\nPokud se pot\u00fdk\u00e1te s podobn\u00fdm probl\u00e9mem, m\u016f\u017eete se obr\u00e1tit na N\u00e1rodn\u00ed koordina\u010dn\u00ed centrum pro vz\u00e1cn\u00e1 onemocn\u011bn\u00ed p\u0159i Fakultn\u00ed nemocnici Motol, anebo m\u016f\u017eete napsat na tento e-mail.<\/p>\n

Prima FTV<\/p>\n","protected":false},"excerpt":{"rendered":"

\u0158ada lid\u00ed s v\u00e1\u017en\u00fdm onemocn\u011bn\u00edm st\u00e1le nem\u016f\u017ee z\u00edskat odpov\u00eddaj\u00edc\u00ed invalidn\u00ed d\u016fchod a dal\u0161\u00ed d\u00e1vky. Tito lid\u00e9 se velmi \u010dasto pot\u00fdkaj\u00ed se nepochopen\u00edm l\u00e9ka\u0159\u016f. Ty je […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":10615,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-22885","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/22885","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=22885"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/22885\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/10615"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=22885"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=22885"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=22885"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}