{"id":22913,"date":"2015-10-01T13:40:44","date_gmt":"2015-10-01T11:40:44","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=22913"},"modified":"2015-10-01T13:40:44","modified_gmt":"2015-10-01T11:40:44","slug":"v-karlovych-varech-hledali-pacienty-s-roztrousenou-sklerozou","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=22913","title":{"rendered":"V Karlov\u00fdch Varech hledali pacienty s roztrou\u0161enou skler\u00f3zou"},"content":{"rendered":"

Ud\u011blat 16 tis\u00edc krok\u016f v Karlov\u00fdch Varech bylo c\u00edlem dobrovoln\u00edk\u016f, pacient\u016f s roztrou\u0161enou skler\u00f3zou a jejich terapeut\u016f. V pond\u011bl\u00ed 28. z\u00e1\u0159\u00ed toti\u017e v l\u00e1ze\u0148sk\u00e9m m\u011bst\u011b odstartovala putovn\u00ed expedice Nada\u010dn\u00edho fondu IMPULS.<\/strong> <\/p>\n

Karlovy Vary \u2013 Ta v r\u00e1mci celorepublikov\u00e9 akce Hled\u00e1 se 16 tis\u00edc povzbuzuje pacienty s roztrou\u0161enou skler\u00f3zou k pohybu a \u00fa\u010dasti na 5. ro\u010dn\u00edku Maratonu s roztrou\u0161enou skler\u00f3zou 2016.<\/p>\n

Krok\u016f bylo nakonec p\u0159es 55 tis\u00edc a spole\u010dn\u00fdmi silami je zvl\u00e1dly od hotelu Thermal k Ml\u00fdnsk\u00e9 kolon\u00e1d\u011b na t\u0159i des\u00edtky p\u0159\u00edznivc\u016f a lid\u00ed nemocn\u00fdch roztrou\u0161enou skler\u00f3zou. Ta postihuje nej\u010dast\u011bji mlad\u00e9 lidi kolem 30 let a v nel\u00e9\u010den\u00e9 form\u011b se projevuje r\u016fzn\u00fdm stupn\u011bm t\u011blesn\u00e9ho posti\u017een\u00ed.<\/p>\n

„Pacienti s roztrou\u0161enou skler\u00f3zou se pot\u00fdkaj\u00ed s \u00fanavou, depresemi, bolestiv\u00fdmi spasmy a \u0159adou dal\u0161\u00edch pot\u00ed\u017e\u00ed, kde pravideln\u00e9 cvi\u010den\u00ed pom\u00e1h\u00e1. Putovn\u00ed expedice na podporu maratonu by je mohla povzbudit v tom, aby nemoci vzdorovali a p\u0159i\u0161li si kn\u00e1m zacvi\u010dit. Cvi\u010d\u00edme ka\u017ed\u00fd p\u00e1tek od \u0161esti ve\u010der,“ uvedla fyzioterapeutka Lenka Geierov\u00e1 ze studia Carpe diem, kter\u00e1 zde speci\u00e1ln\u00ed skupinov\u00e9 cvi\u010den\u00ed pro tyto pacienty vede.<\/p>\n

Krokov\u00e1n\u00ed nebylo jedinou aktivitou, kter\u00e1 se ve Varech odehr\u00e1la. Pohyb vyst\u0159\u00eddalo posezen\u00ed v salonku karlovarsk\u00e9 restaurace Jednota, kde se lid\u00e9 dozv\u011bd\u011bli o cvi\u010debn\u00edm maratonu s roztrou\u0161enou skler\u00f3zou, rehabilita\u010dn\u00edch programech, pr\u00e1ci nada\u010dn\u00edho fondu IMPULS a Sdru\u017een\u00ed mlad\u00fdch sklerotik\u016f. Toto pacientsk\u00e9 sdru\u017een\u00ed mlad\u00fdch lid\u00ed v\u011bnovalo centru Carpe diem z dobro\u010dinn\u00e9 sb\u00edrky 10 650 korun, kter\u00e9 poputuj\u00ed na n\u00e1kup sportovn\u00edch pom\u016fcek pro cvi\u010den\u00ed pr\u00e1v\u011b pacient\u016f s roztrou\u0161enou skler\u00f3zou.<\/p>\n

„Takov\u00e1 podpora tu nen\u00ed p\u0159\u00edli\u0161 obvykl\u00e1, o to v\u00edce si j\u00ed v\u00e1\u017e\u00edme. Ale je to pro n\u00e1s i z\u00e1vazek,“ uvedla Lenka Geierov\u00e1.<\/p>\n

„V\u011b\u0159\u00edme, \u017ee mise bude \u00fasp\u011b\u0161n\u00e1 a p\u0159\u00ed\u0161t\u00ed rok v b\u0159eznu se n\u00e1m poda\u0159\u00ed vytvo\u0159it t\u00fdm a zapojit se i do cvi\u010debn\u00edho maratonu,“ doplnila.<\/p>\n

„V lo\u0148sk\u00e9m roce se maratonu MaRS z\u00fa\u010dastnilo t\u00e9m\u011b\u0159 tis\u00edc lid\u00ed. Letos bychom r\u00e1di tento po\u010det nav\u00fd\u0161ili nejm\u00e9n\u011b o polovinu, a proto p\u0159iv\u00edt\u00e1me i pacienty a nad\u0161ence z Karlovarska,“ poznamenala Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS.<\/p>\n

Na setk\u00e1n\u00ed p\u0159i\u0161la i \u0159ada zaj\u00edmav\u00fdch osobnost\u00ed. Karlovarsk\u00e9 pacienty p\u0159i\u0161el osobn\u011b podpo\u0159it radn\u00ed m\u011bsta Pavel Andrejkiv. Doslova ze z\u00e1vodi\u0161t\u011b odsko\u010dil \u017eokej Josef V\u00e1\u0148a st., kter\u00fd svou energi\u00ed a entuziasmem povzbudil v\u0161echny p\u0159\u00edtomn\u00e9.<\/p>\n

„Pod\u011bkov\u00e1n\u00ed pat\u0159\u00ed tak\u00e9 prim\u00e1toru m\u011bsta Karlovy Vary Petru Kulh\u00e1nkovi, kter\u00fd nad akc\u00ed p\u0159evzal z\u00e1\u0161titu a vyj\u00e1d\u0159il na\u0161im aktivit\u00e1m svou podporu,“ doplnila Lenka Geierov\u00e1. Stejn\u011b jako v ostatn\u00edch m\u011bstech si i ve Varech \u00fa\u010dastn\u00edci poslechli zaj\u00edmav\u00e9 cestovatelsk\u00e9 p\u0159\u00edb\u011bhy Ale\u0161e Zaj\u00ed\u010dka, pacienta s roztrou\u0161enou skler\u00f3zou, kter\u00e9ho nemoc nezastavila v jeho cestovatelsk\u00fdch pl\u00e1nech. „Rozhodl jsem se podpo\u0159it organiz\u00e1tory t\u00edm, \u017ee s nimi absolvuji celou putovn\u00ed expedici a popov\u00edd\u00e1m, jak aktivn\u011b lze s nemoc\u00ed \u017e\u00edt. Maraton s roztrou\u0161enou skler\u00f3zou je p\u0159edev\u0161\u00edm o pohybu, a moje \u00b4v\u00fdletov\u00e1n\u00ed\u00b4 se bez t\u00e9to aktivity neobejde,“ uvedl cestovatel.<\/p>\n

Z\u00e1v\u011br setk\u00e1n\u00ed pat\u0159il op\u011bt pohybu. V nedalek\u00e9 t\u011blocvi\u010dn\u011b centra Carpe diem prob\u00edhaly praktick\u00e9 uk\u00e1zky cvi\u010den\u00ed. Z\u00e1jemci si mohli vyzkou\u0161et r\u016fzn\u00e1 stanovi\u0161t\u011b v kruhov\u00e9m tr\u00e9ninku, speci\u00e1ln\u011b sestaven\u00e9m pro lidi s roztrou\u0161enou skler\u00f3zou, nebo po\u0159\u00eddit literaturu a DVD pro cvi\u010den\u00ed doma.<\/p>\n

Expedice“Hled\u00e1 se 16 tis\u00edc“ za\u010dala spanilou j\u00edzdu po republice v Karlov\u00fdch Varech a zakon\u010d\u00ed ji 13. \u0159\u00edjna od 14 hodin programem v centru Prahy.<\/p>\n

—<\/p>\n

Nada\u010dn\u00ed fond IMPULS<\/p>\n

Nada\u010dn\u00ed fond IMPULS vznikl roku 2000 s c\u00edlem podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 i na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je provozovatelem celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. Letos slav\u00ed v\u00fdro\u010d\u00ed 15 let od sv\u00e9ho vzniku. V\u00edce informac\u00ed na www.nfimpuls. Cz<\/p>\n

ALENA JE\u0158\u00c1BKOV\u00c1
\nChebsk\u00fd den\u00edk
\nhttp:\/\/chebsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Ud\u011blat 16 tis\u00edc krok\u016f v Karlov\u00fdch Varech bylo c\u00edlem dobrovoln\u00edk\u016f, pacient\u016f s roztrou\u0161enou skler\u00f3zou a jejich terapeut\u016f. V pond\u011bl\u00ed 28. z\u00e1\u0159\u00ed toti\u017e v l\u00e1ze\u0148sk\u00e9m m\u011bst\u011b […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":2052,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-22913","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/22913","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=22913"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/22913\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/2052"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=22913"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=22913"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=22913"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}