{"id":23055,"date":"2015-10-13T08:47:51","date_gmt":"2015-10-13T06:47:51","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=23055"},"modified":"2015-10-13T08:48:18","modified_gmt":"2015-10-13T06:48:18","slug":"expedice-nasla-stovky-pacientu-s-roztrousenou-sklerozou","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=23055","title":{"rendered":"Expedice na\u0161la stovky pacient\u016f s roztrou\u0161enou skler\u00f3zou"},"content":{"rendered":"

P\u0159esn\u011b 16 dn\u00ed, 16 set kilometr\u016f, 16 tis\u00edc krok\u016f \u2013 toto m\u00e1 za sebou expedice Hled\u00e1 se 16 tis\u00edc, kter\u00fd za\u010d\u00ednala svoji pou\u0165 28. z\u00e1\u0159\u00ed. Expedi\u010dn\u00ed auto s pos\u00e1dkou v\u00a0podob\u011b fyzioterapeut\u016f, dobrovoln\u00edk\u016f z\u00a0Nada\u010dn\u00edho fondu IMPULS, pacienta Ale\u0161e Zaj\u00ed\u010dka a propag\u00e1tora cvi\u010den\u00ed a pohybu u lid\u00ed s\u00a0roztrou\u0161enou skler\u00f3zou (RS) Romana Kvapila doraz\u00ed v \u00fater\u00fd 13. \u0159\u00edjna v\u00a013.30 hodin na n\u00e1m\u011bst\u00ed M\u00edru v\u00a0Praze a slavnostn\u011b expedici ukon\u010d\u00ed.<\/b><\/span><\/p>\n

\u201ePotkali jsme se se stovkami lid\u00ed, a spole\u010dn\u011b nachodili ka\u017ed\u00fd den pr\u016fm\u011brn\u011b 130 tis\u00edc krok\u016f, co\u017e je odhadem p\u0159ibli\u017en\u011b 90 kilometr\u016f v\u00a0ka\u017ed\u00e9m m\u011bst\u011b. S\u00a0vydatnou podporou ve\u0159ejnosti jsme m\u00edstn\u00edm pacient\u016fm uk\u00e1zali, \u017ee se pohybu nemus\u00ed b\u00e1t,\u201c<\/i><\/span><\/span> \u0159\u00edk\u00e1 autor n\u00e1padu na expedici <\/span><\/span>Roman Kvapil, kter\u00fd se s\u00a0nemoc\u00ed pot\u00fdk\u00e1 u\u017e 13 let.<\/span><\/span><\/p>\n

Expedice m\u011bla za \u00fakol pozvat pacienty s\u00a0RS, jejich zn\u00e1m\u00e9, p\u0159\u00edbuzn\u00e9 i \u0161irokou ve\u0159ejnost na 24 hodinov\u00fd Maraton s\u00a0roztrou\u0161enou skler\u00f3zou (MaRS), kter\u00fd se bude konat 4. a 5. b\u0159ezna 2016. <\/span><\/span>\u201eLetos v\u00a0b\u0159eznu si p\u0159i\u0161lo zacvi\u010dit tis\u00edc lid\u00ed. Pevn\u011b v\u011b\u0159\u00edme, \u017ee po na\u0161\u00ed spanil\u00e9 j\u00edzd\u011b jich p\u0159\u00ed\u0161t\u00ed rok p\u0159ijde je\u0161t\u011b v\u00edc, ide\u00e1ln\u011b v\u0161ech 17 tis\u00edc,\u201c<\/i><\/span><\/span> doplnil Kvapil. <\/span><\/span>V\u00a0ka\u017ed\u00e9m m\u011bst\u011b, kudy expedi\u010dn\u00ed v\u016fz projel, si lid\u00e9 poslechli cestovatelsk\u00fd p\u0159\u00edb\u011bh Ale\u0161e Zaj\u00ed\u010dka, vyslechli p\u0159edn\u00e1\u0161ky, jak nejl\u00e9pe tr\u00e9novat nejenom t\u011blo, ale i mozek. <\/span><\/span>\u201eRekord jsme zaznamenali <\/i><\/span><\/span>v\u00a0\u00dast\u00ed nad Orlic\u00ed, kde lid\u00e9 za pomoci student\u016f zdravotnick\u00e9 \u0161koly u\u0161li 783 301 krok\u016f,\u201c <\/i><\/span><\/span>uvedla Stanislava Beyerov\u00e1, mluv\u010d\u00ed Nada\u010dn\u00edho fondu IMPULS.<\/span><\/span><\/p>\n

Expedice odstartovala 28. \u0159\u00edjna z\u00a0pra\u017esk\u00e9ho Karlova n\u00e1m\u011bst\u00ed, projela Karlovy Vary, Plze\u0148, \u010cesk\u00e9 Bud\u011bjovice, Jihlavu, \u017d\u010f\u00e1r nad S\u00e1zavou, Brno, Uhersk\u00e9 Hradi\u0161t\u011b, Vset\u00edn, Olomouc, Ostravu, \u00dast\u00ed nad Orlic\u00ed, Hradec Kr\u00e1lov\u00e9, Pod\u011bbrady, Liberec, Teplice a z\u00edtra cestu ukon\u010d\u00ed op\u011bt v\u00a0Praze. Cestovatele p\u0159iv\u00edtaj\u00ed l\u00e9ka\u0159i, pacienti a lid\u00e9, kte\u0159\u00ed cht\u011bj\u00ed expedici podpo\u0159it. P\u0159\u00edmo na n\u00e1m\u011bst\u00ed ve venkovn\u00edm stanu u kostela sv. Ludmily bude krokovac\u00ed p\u00e1s a lid\u00e9 mohou urazit 16 tis\u00edc krok\u016f p\u0159\u00edmo tam.<\/span><\/span><\/p>\n

<\/a> Autorem my\u0161lenky na akci Hled\u00e1 se 16 tis\u00edc, stejn\u011b jako Maratonu s\u00a0roztrou\u0161enou skler\u00f3zou je veterin\u00e1\u0159, Roman Kvapil. <\/span><\/span>\u201eCvi\u010d\u00edm, proto\u017ee mi cvi\u010den\u00ed pom\u00e1h\u00e1 zlep\u0161it kondici, ale i stav mysli ovlivn\u011bn\u00fd nemoc\u00ed. Proto jsem p\u0159i rehabilitaci v\u00a0roce 2011 vymyslel 24hodinov\u00fd maraton cvi\u010den\u00ed n\u00e1s pacient\u016f s\u00a0RS (MaRS). Kdy\u017e si na posledn\u00ed ro\u010dn\u00edk p\u0159i\u0161lo zacvi\u010dit tis\u00edc lid\u00ed, \u0159\u00edkal jsem si, kde je t\u011bch zb\u00fdvaj\u00edc\u00edch 16\u00a0tis\u00edc? Tak m\u011b napadlo, \u017ee je pojedeme hledat, pod\u011bl\u00edme se o zku\u0161enosti a z\u00edsk\u00e1me je pro my\u0161lenku pohybu a\u00a0rehabilitace,\u201c<\/i><\/span><\/span> vysv\u011btluje l\u00e9ka\u0159. <\/span><\/span><\/p>\n

Stav pacient\u016f podle l\u00e9ka\u0159\u016f pozitivn\u011b ovliv\u0148uje v\u010dasn\u00e9 zaveden\u00ed biologick\u00e9 l\u00e9\u010dby, dodr\u017eov\u00e1n\u00ed l\u00e9\u010debn\u00e9ho re\u017eimu, intenzivn\u00ed rehabilitace a pravideln\u00fd pohyb.<\/span><\/span><\/p>\n

O NF IMPULS<\/b><\/span><\/span><\/span><\/span><\/span><\/p>\n

Nada\u010dn\u00ed fond IMPULS vznikl roku 2000 s c\u00edlem podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s\u00a0roztrou\u0161enou skler\u00f3zou mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 i na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z\u00a0ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je provozovatelem celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. Letos slav\u00ed v\u00fdro\u010d\u00ed 15 let od sv\u00e9ho vzniku. V\u00edce informac\u00ed na <\/span><\/span><\/span>www.nfimpuls.cz<\/span><\/span><\/a><\/span><\/span><\/p>\n

O roztrou\u0161en\u00e9 skler\u00f3ze<\/b><\/span><\/span><\/p>\n

Roztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v\u00a0mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. V\u00a0sou\u010dasn\u00e9 dob\u011b v\u00a0tuzemsku podstupuje biologickou l\u00e9\u010dbu p\u0159ibli\u017en\u011b 9 000 nemocn\u00fdch s RS. <\/span><\/span><\/p>\n

Na cel\u00e9m sv\u011bt\u011b RS trp\u00ed 2,5 mili\u00f3n\u016f nemocn\u00fdch. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus, kou\u0159en\u00ed a nedostatek vitaminu D. Podle epidemiologick\u00fdch pr\u016fzkum\u016f se v \u010cR nejv\u00edce vyskytuje RS na severu \u010cech. L\u00e9ka\u0159i to p\u0159isuzuj\u00ed zhor\u0161en\u00e9mu \u017eivotn\u00edmu prost\u0159ed\u00edm v t\u00e9to oblasti. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz<\/a>. Na nej\u010dast\u011bj\u0161\u00ed m\u00fdty o nemoci upozor\u0148uje port\u00e1l www.bezmytu.cz.<\/span><\/span><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

P\u0159esn\u011b 16 dn\u00ed, 16 set kilometr\u016f, 16 tis\u00edc krok\u016f \u2013 toto m\u00e1 za sebou expedice Hled\u00e1 se 16 tis\u00edc, kter\u00fd za\u010d\u00ednala svoji pou\u0165 28. z\u00e1\u0159\u00ed. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":23056,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-23055","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/23055","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=23055"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/23055\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/23056"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=23055"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=23055"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=23055"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}