{"id":23420,"date":"2015-11-09T11:10:11","date_gmt":"2015-11-09T10:10:11","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=23420"},"modified":"2015-11-09T11:10:11","modified_gmt":"2015-11-09T10:10:11","slug":"i-s-vaznou-nemoci-se-da-zit-aktivne-ukazuji-roskari-z-ostravy","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=23420","title":{"rendered":"I s v\u00e1\u017enou nemoc\u00ed se d\u00e1 \u017e\u00edt aktivn\u011b, ukazuj\u00ed „roska\u0159i“ z Ostravy"},"content":{"rendered":"

Roztrou\u0161en\u00e1 skler\u00f3za je z\u00e1va\u017en\u00e9 neurologick\u00e9 onemocn\u011bn\u00ed, p\u0159i kter\u00e9m je posti\u017een nervov\u00fd syst\u00e9m \u010dlov\u011bka. Pacienty, kter\u00e9 tato nemoc postihla, sdru\u017euje v \u010cR organizace Roska.<\/strong> <\/p>\n

Ostrava \u2013 P\u0159edsedkyn\u00ed ostravsk\u00e9 Rosky je u\u017e od roku 2003 Na\u010fa Nov\u00e1kov\u00e1. Ta pat\u0159\u00ed mezi lidi, kte\u0159\u00ed vyza\u0159uj\u00ed „dobrou n\u00e1ladu“ a sna\u017e\u00ed se \u017e\u00edt aktivn\u011b. Ve stejn\u00e9m duchu se sna\u017e\u00ed p\u0159ipravovat i \u010dinnost pro sv\u00e9 \u010dleny.<\/p>\n

„Letos jsme u\u017e zvl\u00e1dli zdolat Lysou horu. Dostali jsme se dokonce i s na\u0161imi \u010dleny voz\u00ed\u010dk\u00e1\u0159i na vyhl\u00eddkovou v\u011b\u017e, kter\u00e1 je vrcholem stezky po korun\u00e1ch strom\u016f na Lipn\u011b. To byl opravdu obrovsk\u00fd z\u00e1\u017eitek. Stejn\u011b tak ale i t\u0159eba n\u00e1v\u0161t\u011bva Helf\u0161t\u00fdna \u010di proj\u00ed\u017e\u010fka historick\u00fdm vlakem \u010ceskou Kanadou,“ \u0159\u00edk\u00e1 Na\u010fa Nov\u00e1kov\u00e1 a s \u00fasm\u011bvem dod\u00e1v\u00e1, \u017ee ikdy\u017e se p\u0159i sv\u00fdch putov\u00e1n\u00edch dostanou „roska\u0159i“ z Ostravy ob\u010das do drobn\u00fdch nesn\u00e1z\u00ed, v\u011bt\u0161inou se najdou ochotn\u00ed lid\u00e9, kte\u0159\u00ed pomohou.<\/p>\n

Nejen v\u00fdlety\u2026<\/p>\n

Ostravsk\u00e1 Roska po\u0159\u00e1d\u00e1 akce pro ty, kte\u0159\u00ed se je\u0161t\u011b mohou h\u00fdbat, stejn\u011b jako pro ty, kter\u00e9 u\u017e nemoc upoutala na voz\u00edk.<\/p>\n

„Chod\u00edme plavat, vyu\u017e\u00edv\u00e1me i mo\u017enosti hipoterapie. Chyst\u00e1me i rekondi\u010dn\u00ed pobyty, po\u0159\u00e1d\u00e1me tak\u00e9 v\u00fdstavy v\u00fdtvarn\u00fdch d\u011bl na\u0161ich \u010dlen\u016f,“ jmenuje jen n\u011bkter\u00e9 z aktivit ostravsk\u00e9 Rosky jej\u00ed p\u0159edsedkyn\u011b. Jak dod\u00e1v\u00e1, Roska m\u00e1 v Ostrav\u011b v sou\u010dasnosti 140 \u010dlen\u016f, z toho je t\u00e9m\u011b\u0159 t\u0159etina voz\u00ed\u010dk\u00e1\u0159\u016f. Roztrou\u0161en\u00e1 skler\u00f3za je z\u00e1ke\u0159n\u00e1 v tom, \u017ee postihuje nej\u010dast\u011bji lidi ve v\u011bku mezi dvac\u00e1t\u00fdm a\u017e \u010dty\u0159ic\u00e1t\u00fdm rokem. A t\u011bch mlad\u0161\u00edch p\u0159ib\u00fdv\u00e1. „S diagn\u00f3zou se \u010dasto smi\u0159uj\u00ed dost t\u011b\u017eko. M\u011bli pl\u00e1ny do budoucna, a nemoc jim ty priority m\u016f\u017ee zm\u011bnit. Nejhor\u0161\u00ed b\u00fdv\u00e1, kdy\u017e se pak uzav\u0159ou do sebe. Sna\u017e\u00edme se je proto povzbudit a p\u0159esv\u011bd\u010dit, \u017ee i s roztrou\u0161enou skler\u00f3zou se d\u00e1 \u017e\u00edt aktivn\u011b,“ vysv\u011btluje Na\u010fa Nov\u00e1kov\u00e1.<\/p>\n

Z\u00e1rove\u0148 dod\u00e1v\u00e1, \u017ee v\u0161echny u\u017e zm\u00edn\u011bn\u00e9 aktivity by si Roska nemohla dovolit bez d\u00e1rc\u016f, mezi kter\u00fdmi letos nechyb\u00ed nap\u0159\u00edklad Nadace OKD, klimkovick\u00e1 sanatoria, Moravskoslezsk\u00fd kraj, m\u011bsto Ostrava, m\u011bstsk\u00e9 obvody Jih, Poruba \u010di Moravsk\u00e1 Ostrava a P\u0159\u00edvoz. „Hodn\u011b n\u00e1m pom\u00e1haj\u00ed i firmy, nap\u0159\u00edklad Pr\u016fmyslov\u00e9 mont\u00e1\u017ee \u010di Avemar. Na\u0161e aktivity podporuj\u00ed i farmaceutick\u00e9 firmy, drobn\u00ed sponzo\u0159i a na\u0161e velk\u00e9 d\u00edky pat\u0159\u00edi RS Centru Neurologick\u00e9 kliniky Fakultn\u00ed nemocnice Ostrava. Jeho vedouc\u00ed Pavel Hrad\u00edlek a garantka Olga Zapletalov\u00e1 jsou nejen odborn\u00edci na l\u00e9\u010dbu roztrou\u0161en\u00e9 skler\u00f3zy, ale vych\u00e1zej\u00ed n\u00e1m vst\u0159\u00edc i v dal\u0161\u00edch ohledech,“ dod\u00e1v\u00e1 p\u0159edsedkyn\u011b Rosky Ostrava.<\/p>\n

A jak se sama vyrovn\u00e1v\u00e1 s atakami, kdy roztrou\u0161en\u00e1 skler\u00f3za za\u010dne v\u00edce zlobit ji samotnou? „Ta nemoc dok\u00e1\u017ee b\u00fdt ob\u010das prev\u00edt. Kdy\u017e ji \u010dlov\u011bk p\u0159ijme jako realitu, srovn\u00e1 si to v hlav\u011b a je rozumn\u00fd, v\u011bt\u0161inou zm\u016f\u017ee v\u00edce, ne\u017e kdy\u017e urputn\u011b bojuje a sna\u017e\u00ed se ji porazit. Tak\u017ee j\u00e1 s n\u00ed ne nebojuji, ale v\u017edycky \u0159\u00edk\u00e1m, \u017ee to mus\u00edm n\u011bjak rozchodit,“ p\u0159id\u00e1v\u00e1 sv\u016fj recept \u0161\u00e9fka ostravsk\u00e9 Rosky.<\/p>\n

—<\/p>\n

Nep\u0159ehl\u00e9dn\u011bte<\/p>\n

Ostravsk\u00e1 Roska po\u0159\u00e1d\u00e1 z\u00edtra ve sv\u00e9m s\u00eddle v Rusk\u00e9 ulici 44 v Ostrav\u011b-V\u00edtkovic\u00edch den otev\u0159en\u00fdch dve\u0159\u00ed. Otev\u0159eno bude od 9 do 17 hodin.<\/p>\n

K t\u00e9matu<\/p>\n

ROZTROU\u0160EN\u00c1 SKLER\u00d3ZA (RS) je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed dosud zn\u00e1ma. Nemoc propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny.
\nPro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence jsou t\u011b\u017ek\u00e9.
\nNemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch.
\nRizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus, kou\u0159en\u00ed a nedostatek vitaminu D.<\/p>\n

B\u0158ETISLAV LAPISZ
\nMoravskoslezsk\u00fd den\u00edk
\nhttp:\/\/www.moravskoslezsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Roztrou\u0161en\u00e1 skler\u00f3za je z\u00e1va\u017en\u00e9 neurologick\u00e9 onemocn\u011bn\u00ed, p\u0159i kter\u00e9m je posti\u017een nervov\u00fd syst\u00e9m \u010dlov\u011bka. Pacienty, kter\u00e9 tato nemoc postihla, sdru\u017euje v \u010cR organizace Roska.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":14871,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-23420","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/23420","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=23420"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/23420\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14871"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=23420"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=23420"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=23420"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}