Karol\u00edna Vani\u0161ov\u00e1 nav\u0161t\u011bvuje druhou t\u0159\u00eddu z\u00e1kladn\u00ed \u0161koly. I p\u0159esto, \u017ee j\u00ed rodina pom\u00e1h\u00e1, jak m\u016f\u017ee, kv\u016fli metabolick\u00e9 vad\u011b nevede b\u011b\u017en\u00fd \u017eivot dev\u00edtilet\u00e9 sle\u010dny. Kv\u016fli onemocn\u011bn\u00ed \u0161patn\u011b vid\u00ed, a proto je pro ni nav\u0161t\u011bvov\u00e1n\u00ed b\u011b\u017en\u00e9 z\u00e1kladn\u00ed \u0161koly obt\u00ed\u017en\u00e9. D\u00edky speci\u00e1ln\u00ed lup\u011b, kterou nemocn\u00e9 d\u00edvce darovala pod strome\u010dek spole\u010dnost TaxVision, pro ni bude nejen v\u00fduka o n\u011bco snaz\u0161\u00ed. <\/p>\n
\u201eMnoh\u00e9 z toho, co zvl\u00e1d\u00e1 a um\u00ed, m\u00e1 vyd\u0159en\u00e9. Je bojovn\u00edk, sv\u00fdm odhodl\u00e1n\u00edm b\u00fdt jako ostatn\u00ed, je obdivuhodn\u00e1,\u201c \u0159\u00edk\u00e1 o sv\u00e9 dce\u0159i Lenka Vani\u0161ov\u00e1. D\u00edvka se narodila se vz\u00e1cnou metabolickou vadou postihuj\u00edc\u00ed cel\u00fd organismus. Trp\u00ed t\u011b\u017e\u0161\u00ed formou onemocn\u011bn\u00ed, kter\u00e9 se jmenuje mukopolysacharid\u00f3za (MPS I.). <\/p>\n
Z\u00e1ke\u0159n\u00e1 choroba je diagnostikov\u00e1na zhruba jednomu \u010dlov\u011bku ze 140 tis\u00edc zdrav\u00fdch lid\u00ed. Projevuje se enzymovou poruchou s postupn\u00fdm hromad\u011bn\u00edm cukr\u016f v tk\u00e1n\u00edch a n\u00e1sledn\u00fdm selh\u00e1v\u00e1n\u00edm jejich funk\u010dnosti. Nemoc se objevuje u obou pohlav\u00ed a mezi doprovodn\u00e9 p\u0159\u00edznaky pat\u0159\u00ed z\u00e1kal rohovky a opo\u017ed\u011bn\u00ed psychomotorick\u00e9ho v\u00fdvoje. D\u00e1le tak\u00e9 n\u00edzk\u00fd vzr\u016fst a v\u00a0n\u011bkter\u00fdch p\u0159\u00edpadech posti\u017een\u00ed srdce. <\/p>\n
Aby Karol\u00ednka p\u0159e\u017eila, musela ve sv\u00fdch 17 m\u011bs\u00edc\u00edch podstoupit transplantaci kostn\u00ed d\u0159en\u011b. Po transplantaci m\u00e1 ale naru\u0161en\u00fd imunitn\u00ed syst\u00e9m a b\u00fdv\u00e1 \u010dasto nemocn\u00e1. Kv\u016fli \u0161patn\u00e9mu zraku nem\u016f\u017ee pou\u017e\u00edvat tyt\u00e9\u017e u\u010debnice jako ostatn\u00ed d\u011bti. Rodi\u010de j\u00ed nejd\u016fle\u017eit\u011bj\u0161\u00ed u\u010debn\u00ed materi\u00e1ly zv\u011bt\u0161uj\u00ed a upravuj\u00ed, aby m\u011bla srovnateln\u00e9 studijn\u00ed podm\u00ednky jako spolu\u017e\u00e1ci. Bohu\u017eel je to ale m\u00e1lo. \u201eKarol\u00ednka m\u00e1 r\u00e1da \u010cty\u0159l\u00edstek, chce si \u010d\u00edst knihy a \u010dasopisy. Jen\u017ee v\u0161echno zv\u011bt\u0161ovat nem\u016f\u017eeme,\u201c vysv\u011btlila obt\u00ed\u017enou situaci maminka. <\/p>\n
Doktorka z Centra zrakov\u00fdch vad rodin\u011b doporu\u010dila kapesn\u00ed kamerovou lupu RUBY XL HD, kterou si Karol\u00edna mohla okam\u017eit\u011b vyzkou\u0161et. \u201eByla neuv\u011b\u0159iteln\u011b nad\u0161en\u00e1, najednou vid\u011bla to, co nikdy p\u0159edt\u00edm. P\u0159i odchodu z ordinace mi \u0161eptala: Mami, s tou lupou bych si mohla v\u0161echno p\u0159e\u010d\u00edst a prohl\u00eddnout!\u201c popsala nad\u0161en\u00ed sv\u00e9 dcery pan\u00ed Lenka Vani\u0161ov\u00e1. <\/p>\n
Cena lupy je kolem 25 tis\u00edc a zdravotn\u00ed poji\u0161\u0165ovny ji nehrad\u00ed. Rodina nem\u011bla na po\u0159\u00edzen\u00ed dostatek finan\u010dn\u00edch prost\u0159edk\u016f. O p\u0159\u00edpadu se dozv\u011bd\u011bla d\u00edky sv\u00e9 zn\u00e1m\u00e9 da\u0148ov\u00e1 poradkyn\u011b Blanka \u0160tarmanov\u00e1 ze spole\u010dnosti TaxVision. <\/p>\n
\u201eRozhodli jsme se po\u0159\u00eddit Karol\u00ednce lupu k\u00a0V\u00e1noc\u016fm. Ud\u011blali jsme dobr\u00fd skutek a dali d\u011bv\u010d\u00e1tku druh\u00e9 o\u010di. D\u00edky speci\u00e1ln\u00ed lup\u011b si m\u016f\u017ee \u010d\u00edst kn\u00ed\u017eky jako ka\u017ed\u00e9 zdrav\u00e9 d\u00edt\u011b a otv\u00edrat tak nov\u00e9 obzory,\u201c sd\u011blila Blanka \u0160tarmanov\u00e1. <\/p>\n","protected":false},"excerpt":{"rendered":"
Karol\u00edna Vani\u0161ov\u00e1 nav\u0161t\u011bvuje druhou t\u0159\u00eddu z\u00e1kladn\u00ed \u0161koly. I p\u0159esto, \u017ee j\u00ed rodina pom\u00e1h\u00e1, jak m\u016f\u017ee, kv\u016fli metabolick\u00e9 vad\u011b nevede b\u011b\u017en\u00fd \u017eivot dev\u00edtilet\u00e9 sle\u010dny. Kv\u016fli onemocn\u011bn\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-24035","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24035","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=24035"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24035\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=24035"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=24035"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=24035"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}