{"id":24072,"date":"2016-01-08T10:00:14","date_gmt":"2016-01-08T09:00:14","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=24072"},"modified":"2016-01-08T10:00:14","modified_gmt":"2016-01-08T09:00:14","slug":"sousede-se-slozili-na-anicku","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=24072","title":{"rendered":"Soused\u00e9 se slo\u017eili na Ani\u010dku"},"content":{"rendered":"

Rodina ze Strakonicka zaplat\u00ed z dar\u016f l\u00e1ze\u0148sk\u00fd pobyt pro zdravotn\u011b posti\u017eenou dceru<\/strong> <\/p>\n

Ji\u017en\u00ed \u010cechy \u2013 Je fajn m\u00edt kolem sebe lidi, kte\u0159\u00ed v\u00e1m ochotn\u011b pom\u016f\u017eou, kdy\u017e jste v nesn\u00e1z\u00edch. Podobnou zku\u0161enost za\u017eili koncem minul\u00e9ho roku Fiedlerovi z Katovic. Na pomoc jejich zdravotn\u011b posti\u017een\u00e9 dce\u0159i uspo\u0159\u00e1dali kamar\u00e1di a soused\u00e9 v p\u00e1tek 11. prosince v katovick\u00e9m kulturn\u00edm dom\u011b akci Spole\u010dn\u011b pro Ani\u010dku. Odpoledne si zde mohli lid\u00e9 po\u0159\u00eddit d\u00e1rky, kter\u00e9 vyrobily d\u011bti z m\u00edstn\u00ed \u0161koly, ve\u010der pak v s\u00e1le v r\u00e1mci p\u0159edv\u00e1no\u010dn\u00edho po\u0159adu zahr\u00e1ly Mal\u00e1 dud\u00e1ck\u00e1 muzika ZU\u0160 Strakonice a Pr\u00e1che\u0148sk\u00fd soubor p\u00edsn\u00ed a tanc\u016f \u010dili zn\u00e1m\u00fd Pr\u00e1che\u0148\u00e1k.<\/p>\n

Mal\u00ed, ale u\u017eite\u010dn\u00ed<\/p>\n

„B\u011bhem akce jsme z\u00edskali neuv\u011b\u0159iteln\u00fdch 38 057 korun,“ radoval se jeden z organiz\u00e1tor\u016f Michal Novotn\u00fd. „M\u011bs\u00ed\u010dn\u00ed Reha Basic terapie pro Ani\u010dku v l\u00e1zn\u00edch Klimkovice stoj\u00ed 49 000 korun, co\u017e je doplatek k l\u00e1ze\u0148sk\u00e9mu pobytu. Pro Ani\u010dku by bylo optim\u00e1ln\u00ed absolvovat m\u011bs\u00ed\u010dn\u00ed pobyt a n\u00e1sledn\u011b je\u0161t\u011b alespo\u0148 jeden dvout\u00fddenn\u00ed. Mimo v\u00fdnosu benefice se poda\u0159ilo zajistit grant ve v\u00fd\u0161i 20 000 K\u010d z d\u00e1rcovsk\u00e9ho fondu MUDr. Ivana Mach\u00e1\u010dka z Komunitn\u00ed nadace Blanicko \u2013 otavsk\u00e9,“ pokra\u010duje Michal Novotn\u00fd s t\u00edm, \u017ee tahle akce po sousedsku m\u011bla \u00fasp\u011bch nejen kv\u016fli finan\u010dn\u00edmu v\u00fdsledku.<\/p>\n

„Za\u017eili jsme si, \u017ee spole\u010dn\u011b se d\u00e1 ud\u011blat hodn\u011b dobr\u00e9 pr\u00e1ce. D\u011bti zjistily, \u017ee mohou b\u00fdt hodn\u011b u\u017eite\u010dn\u00e9 a b\u00fdt sou\u010d\u00e1st\u00ed n\u011b\u010deho v\u00fdjime\u010dn\u00e9ho. A rodi\u010de mal\u00e9 Ani\u010dky, Lenka a Michal Fiedlerovi, mo\u017en\u00e1 trochu poc\u00edtili, \u017ee na to nejsou \u00fapln\u011b sami, a to v\u0161echno dohromady je mo\u017en\u00e1 d\u016fle\u017eit\u011bj\u0161\u00ed ne\u017e vybran\u00e9 pen\u00edze,“ dod\u00e1v\u00e1 Michal Novotn\u00fd.<\/p>\n

Rodi\u010de dojat\u011b d\u011bkovali hned b\u011bhem ve\u010dera s t\u00edm, \u017ee l\u00e1ze\u0148sk\u00fd pobyt Ani\u010dce pom\u016f\u017ee a d\u00e1v\u00e1 re\u00e1lnou nad\u011bji na zlep\u0161en\u00ed zdravotn\u00edho stavu.<\/p>\n

„Ani\u010dka se narodila jako zdrav\u00e9 miminko v term\u00ednu bez sebemen\u0161\u00edch komplikac\u00ed,“ sv\u011b\u0159uje se Lenka Fiedlerov\u00e1. „V\u0161e se jevilo bezprobl\u00e9mov\u011b a\u017e do t\u0159\u00ed m\u011bs\u00edc\u016f, kdy necht\u011bla dr\u017eet hlavi\u010dku a tzv. p\u00e1st h\u0159\u00edb\u00e1tka. Hlavi\u010dku za\u010dala i st\u00e1\u010det k jedn\u00e9 stran\u011b, a d\u011btsk\u00e1 l\u00e9ka\u0159ka n\u00e1s poslala na neurologii. Odtud n\u00e1s za\u010dali pos\u00edlat na v\u0161echna mo\u017en\u00e1 vy\u0161et\u0159en\u00ed, kde ale nic nena\u0161li. Posledn\u00ed testy byly genetick\u00e9, kter\u00e9 po \u0161esti t\u00fddnech nekone\u010dn\u00e9ho \u010dek\u00e1n\u00ed uk\u00e1zaly na vrozenou v\u00fdvojovou vadu, tzv. Phelan-McDermid syndrom. Sv\u011bt se n\u00e1m obr\u00e1til vzh\u016fru nohama. N\u011bkolik noc\u00ed jsem probre\u010dela a \u0159\u00edkala si: Pro\u010d zrovna my? Ihned jsme za\u010dali p\u00e1trat po n\u011bkom, kdo by o syndromu n\u011bco v\u011bd\u011bl, a sh\u00e1n\u011bli dostupnou literaturu. Oba s man\u017eelem jsme toti\u017e v po\u0159\u00e1dku a syndrom je n\u00e1hoda. Kdy\u017e jsem se aspo\u0148 stru\u010dn\u011b prokousala studi\u00ed v angli\u010dtin\u011b, zjistila jsem, \u017ee progn\u00f3zy jsou velmi r\u016fznorod\u00e9 a i p\u0159\u00edznaky syndromu jsou velmi individu\u00e1ln\u00ed. Nejv\u011bt\u0161\u00edm probl\u00e9mem je absence \u0159e\u010di a svalov\u00e1 hypotonie. Na druhou stranu jsem se sezn\u00e1mila s n\u011bkolika rodi\u010di, kte\u0159\u00ed maj\u00ed stejn\u011b posti\u017een\u00e9 d\u011bti,“ \u0159\u00edk\u00e1 Lenka Fiedlerov\u00e1. „Na\u0161e Ani\u010dka je st\u00e1le velmi hypotonick\u00e1, ale dok\u00e1\u017ee se u\u017e sama posadit a vydr\u017e\u00ed sed\u011bt. Pohybuje se p\u0159evalov\u00e1n\u00edm, nemluv\u00ed, nos\u00ed plenky, neum\u00ed se sama naj\u00edst a p\u00edt dok\u00e1\u017ee jen v polosed\u011b a z lahvi\u010dek s p\u00edtkem. Miluje d\u011bti a zv\u00ed\u0159ata, um\u00ed si u\u017e sama hr\u00e1t, ale vedle toho vy\u017eaduje i spoustu pozornosti,“ pokra\u010duje matka.<\/p>\n

Cesta za zdrav\u00edm<\/p>\n

„Od lo\u0148sk\u00e9ho ledna chod\u00ed Ani\u010dka do speci\u00e1ln\u00ed \u0161kolky, kde m\u00e1 svou asistentku. My s n\u00ed doma od \u010dty\u0159 m\u011bs\u00edc\u016f cvi\u010d\u00edme Vojtovu metodu a rok Bobath koncept. Jezd\u00edme do l\u00e1zn\u00ed a dvakr\u00e1t jsme byli na pobytu v Arpid\u011b v \u010cesk\u00fdch Bud\u011bjovic\u00edch. Tak\u00e9 jsme klienty ran\u00e9 p\u00e9\u010de I-MY v Sob\u011bslavi,“ vypo\u010d\u00edt\u00e1v\u00e1 Lenka Fiedlerov\u00e1, co Ani\u010dka mus\u00ed kv\u016fli posti\u017een\u00ed absolvovat, a s man\u017eelem Michalem d\u011bkuj\u00ed v\u0161em, kte\u0159\u00ed j\u00ed umo\u017enili pobyt v l\u00e1zn\u00edch.<\/p>\n

RADEK G\u00c1LIS
\n\u010ceskobud\u011bjovick\u00fd den\u00edk
\nhttp:\/\/ceskobudejovicky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Rodina ze Strakonicka zaplat\u00ed z dar\u016f l\u00e1ze\u0148sk\u00fd pobyt pro zdravotn\u011b posti\u017eenou dceru<\/p>\n<\/div>","protected":false},"author":1,"featured_media":19893,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-24072","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24072","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=24072"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24072\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/19893"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=24072"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=24072"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=24072"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}