Dev\u00edtilet\u00fd Jakub Ba\u010dkovsk\u00fd trp\u00ed tzv. svalovou dystrofi\u00ed Duchennova typu. Jedn\u00e1 se o nevyl\u00e9\u010diteln\u00e9 onemocn\u011bn\u00ed, kter\u00e9 vede k ochabov\u00e1n\u00ed sval\u016f a pozd\u011bji dokonce a\u017e k invalidit\u011b.<\/p>\n
B\u011bhem p\u00e1tku 22. ledna prob\u011bhl v kulturn\u00edm dom\u011b v Budi\u0161ov\u011b nad Budi\u0161ovkou v po\u0159ad\u00ed u\u017e osm\u00fd Charitativn\u00ed ples pro Jakuba a sdru\u017een\u00ed Parent Project.
\nJeho v\u00fdt\u011b\u017eek ov\u0161em nepoputuje pouze na pomoc mal\u00e9ho Kuby, \u010d\u00e1st bude v\u011bnov\u00e1na tzv. Parent Projectu, kter\u00fd sdru\u017euje rodi\u010de, jejich\u017e d\u011bt\u00ed trp\u00ed touto nemoc\u00ed. Maminka Jakuba s n\u00edm mus\u00ed doma t\u0159ikr\u00e1t t\u00fddn\u011b rehabilitovat, jezd\u00ed tak\u00e9 do rehabilita\u010dn\u00edho centra v Opav\u011b. D\u00edky pravideln\u00e9mu cvi\u010den\u00ed se toti\u017e zpomaluje postup tohoto z\u00e1va\u017en\u00e9ho onemocn\u011bn\u00ed. „\u010c\u00e1st v\u00fdt\u011b\u017eku bude vynalo\u017eena na po\u0159\u00edzen\u00ed speci\u00e1ln\u00edho vitam\u00ednu, kter\u00fd posiluje kosti. Hodl\u00e1me upravit i jeho pokoj\u00ed\u010dek, ud\u011blat bezbari\u00e9rov\u00fd p\u0159\u00edstup a podobn\u011b. Kubovi se zat\u00edm da\u0159\u00ed dob\u0159e, \u010dasem ale pro n\u011bj bude \u010d\u00edm d\u00e1l n\u00e1ro\u010dn\u011bj\u0161\u00ed norm\u00e1ln\u011b chodit a bude se muset pohybovat na voz\u00ed\u010dku. Chceme b\u00fdt na toto obdob\u00ed p\u0159ipraveni,“ popisoval Kub\u016fv tat\u00ednek Pavel a dodal, \u017ee p\u0159ed ned\u00e1vnem zdravotn\u00ed stav jeho syna trochu zkomplikovala zlomenina nohy. Tradi\u010dn\u00ed ples za\u010d\u00edn\u00e1 ve 20 hodin. N\u00e1v\u0161t\u011bvn\u00edci se mohou t\u011b\u0161it na hudbu BTJ Nova Krnov, vystoupen\u00ed v\u00edt\u011bzky Mini Miss Alexandry Volkmerov\u00e9, na sout\u011b\u017ee o ceny a v neposledn\u00ed \u0159ad\u011b tak\u00e9 bohat\u00e9 ob\u010derstven\u00ed. Na str\u00e1nk\u00e1ch www.sportovniaukce.cz se ve\u0159ejnost m\u016f\u017ee zapojit do dra\u017eby o dresy sportovc\u016f. Vybran\u00e9 pen\u00edze pomohou Kubovi a \u010dlen\u016fm Parent Projectu. Dra\u017eil se nap\u0159\u00edklad dres Leo\u0161e \u010cerm\u00e1ka z Komety Brno, brank\u00e1\u0159e Jarom\u00edra Bla\u017eka, kdy\u017e chytal za Jihlavu, dres BK Opava s podpisy v\u0161ech hr\u00e1\u010d\u016f a dal\u0161\u00ed. <\/p>\n
„Loni sen\u00e1m z toho poda\u0159ilo vyt\u011b\u017eit 12 tis\u00edc korun, v r\u00e1mci vstupn\u00e9ho a p\u0159\u00edsp\u011bvk\u016f na plesu se vybralo dal\u0161\u00edch t\u0159icet. V\u011b\u0159\u00edm, \u017ee k podobn\u00fdm \u010d\u00edsl\u016fm se dostaneme i letos,“ poznamenal Pavel Ba\u010dkovsk\u00fd. <\/p>\n
Region Opavsk\u00fd a Hlu\u010d\u00ednsk\u00fd<\/p>\n","protected":false},"excerpt":{"rendered":"
Dev\u00edtilet\u00fd Jakub Ba\u010dkovsk\u00fd trp\u00ed tzv. svalovou dystrofi\u00ed Duchennova typu. Jedn\u00e1 se o nevyl\u00e9\u010diteln\u00e9 onemocn\u011bn\u00ed, kter\u00e9 vede k ochabov\u00e1n\u00ed sval\u016f a pozd\u011bji dokonce a\u017e k invalidit\u011b.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-24230","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24230","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=24230"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24230\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=24230"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=24230"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=24230"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}