{"id":24359,"date":"2016-02-01T06:33:33","date_gmt":"2016-02-01T05:33:33","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=24359"},"modified":"2016-02-01T06:33:33","modified_gmt":"2016-02-01T05:33:33","slug":"fond-lide-nepriznaji-roztrousenou-sklerozu-aby-neprisli-o-praci","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=24359","title":{"rendered":"Fond: Lid\u00e9 nep\u0159iznaj\u00ed roztrou\u0161enou skler\u00f3zu, aby nep\u0159i\u0161li o pr\u00e1ci"},"content":{"rendered":"<p><strong>Lid\u00e9 s roztrou\u0161enou skler\u00f3zou (RS) se setk\u00e1vaj\u00ed v zam\u011bstn\u00e1n\u00ed s p\u0159edsudky, v\u011bt\u0161ina rad\u011bji svoji nemoc nep\u0159izn\u00e1, zjistil nada\u010dn\u00ed fond IMPULS, kter\u00fd pacient\u016fm pom\u00e1h\u00e1. <\/strong><!--more--><\/p>\n<p>ilustra\u010dn\u00ed foto: PhotoRack.net<\/p>\n<p>Zap\u00edr\u00e1n\u00ed za\u010d\u00edn\u00e1 p\u0159i \u017e\u00e1dosti o m\u00edsto, pacienti se ob\u00e1vaj\u00ed p\u0159edpojatosti budouc\u00edch zam\u011bstnavatel\u016f i odm\u00edtnut\u00ed koleg\u016f. Nemoc se t\u00fdk\u00e1 v\u011bt\u0161inou mlad\u00fdch lid\u00ed v produktivn\u00edm v\u011bku, mezi 30 a\u017e 40 lety. Roztrou\u0161enou skler\u00f3zou, kter\u00e1 m\u016f\u017ee pacienta dov\u00e9st a\u017e na invalidn\u00ed voz\u00edk, trp\u00ed v \u010cR 17.000 lid\u00ed.<\/p>\n<p>Pacienti s RS v po\u010d\u00e1tc\u00edch nemoci a mimo obdob\u00ed z\u00e1chvat\u016f vypadaj\u00ed zdrav\u011b, proto nen\u00ed pro n\u011b t\u011b\u017ek\u00e9 nemoc p\u0159ed zam\u011bstnavatelem tajit. O pr\u00e1ci po p\u0159izn\u00e1n\u00ed diagn\u00f3zy p\u0159i\u0161la i Hana Navr\u00e1tilov\u00e1, zakladatelka nada\u010dn\u00edho fondu IMPULS. M\u011bla ale \u0161t\u011bst\u00ed, dal\u0161\u00edmu zam\u011bstnavateli jej\u00ed nemoc nevadila.<\/p>\n<p>&#8222;Pro tuto nemoc je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Lid\u00e9 trp\u00ed zv\u00fd\u0161enou \u00fanavou,&#8220; popsala l\u00e9ka\u0159ka Dana Hor\u00e1kov\u00e1 z centra pro l\u00e9\u010dbu pacient\u016f s RS 1. l\u00e9ka\u0159sk\u00e9 fakulty UK a V\u0161eobecn\u00e9 fakultn\u00ed nemocnice (VFN). V centru se l\u00e9\u010d\u00ed tis\u00edcovka pacient\u016f, v\u011bt\u0161ina svoji nemoc v pr\u00e1ci nep\u0159iznala.<\/p>\n<p>Podle Navr\u00e1tilov\u00e9 p\u0159itom pln\u00ed pacienti sv\u00e9 pracovn\u00ed povinnosti velmi pe\u010dliv\u011b, aby zam\u011bstnavateli dok\u00e1zali, \u017ee v\u0161e zvl\u00e1dnou. Potvrzuj\u00ed to podle n\u00ed i data Registru pacient\u016f s RS, kter\u00fd zalo\u017eil a provozuje nada\u010dn\u00ed fond.<\/p>\n<p>Data 7099 pacient\u016f z 13 specializovan\u00fdch RS center ukazuj\u00ed, \u017ee v\u00edce ne\u017e polovina pacient\u016f, 54,8 procenta, pracuje na pln\u00fd \u00favazek, dal\u0161\u00edch 13 procent na \u010d\u00e1ste\u010dn\u00fd \u00favazek, tedy \u017ee t\u00e9m\u011b\u0159 68 procent je pr\u00e1ceschopn\u00fdch a odv\u00e1d\u00ed st\u00e1tu dan\u011b. V\u011bt\u0161ina sledovan\u00fdch, 53,8 procenta, nepob\u00edr\u00e1 \u017e\u00e1dn\u00e9 soci\u00e1ln\u00ed d\u00e1vky.<\/p>\n<p>V mal\u00fdch firm\u00e1ch v\u011bt\u0161inou probl\u00e9m s p\u0159izn\u00e1n\u00edm nemoci nen\u00ed, naproti tomu na \u00fa\u0159adech to probl\u00e9m je, uvedla \u0159editelka Nada\u010dn\u00edho fondu pro podporu zam\u011bstn\u00e1v\u00e1n\u00ed osob se zdravotn\u00edm posti\u017een\u00edm Hana Potm\u011b\u0161ilov\u00e1. Zam\u011bstnanci st\u00e1tn\u00edch \u00fa\u0159ad\u016f se podle n\u00ed st\u00e1vaj\u00ed ter\u010dem \u0161ikany a pot\u00ed\u017ee rad\u011bji vysv\u011btluj\u00ed &#8222;spole\u010densky p\u0159ijateln\u011bj\u0161\u00ed&#8220; boreli\u00f3zou \u010di chronick\u00fdmi bolestmi zad.<\/p>\n<p>Podle vedouc\u00ed RS centra ve V\u0161eobecn\u00e9 fakultn\u00ed nemocnici v Praze profesorky Evy Havrdov\u00e9 ukazuj\u00ed data ze zahrani\u010dn\u00edch registr\u016f i klinick\u00fdch studi\u00ed, \u017ee modern\u00ed biologick\u00e1 l\u00e9\u010dba um\u00ed nemoc u velk\u00e9 \u010d\u00e1sti nemocn\u00fdch stabilizovat, odd\u00e1lit invaliditu a p\u0159i v\u010dasn\u00e9m nasazen\u00ed odd\u00e1lit obdob\u00ed pr\u00e1ceneschopnosti. &#8222;Efekt l\u00e9\u010dby hodnot\u00edme pr\u00e1v\u011b podle schopnosti \u010dlov\u011bka pracovat &#8211; je to jeden ze z\u00e1kladn\u00edch parametr\u016f, kter\u00fd sledujeme,&#8220; shrnula.<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Lid\u00e9 s roztrou\u0161enou skler\u00f3zou (RS) se setk\u00e1vaj\u00ed v zam\u011bstn\u00e1n\u00ed s p\u0159edsudky, v\u011bt\u0161ina rad\u011bji svoji nemoc nep\u0159izn\u00e1, zjistil nada\u010dn\u00ed fond IMPULS, kter\u00fd pacient\u016fm pom\u00e1h\u00e1.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":17229,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-24359","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24359","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=24359"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24359\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/17229"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=24359"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=24359"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=24359"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}