{"id":24779,"date":"2016-03-03T09:26:53","date_gmt":"2016-03-03T08:26:53","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=24779"},"modified":"2016-03-02T19:32:34","modified_gmt":"2016-03-02T18:32:34","slug":"startuje-maraton-s-roztrousenou-sklerozou","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=24779","title":{"rendered":"Startuje Maraton s roztrou\u0161enou skler\u00f3zou"},"content":{"rendered":"

Letos se ke cvi\u010den\u00ed, p\u0159i n\u011bm\u017e si m\u011bsta z\u00a0cel\u00e9 republiky p\u0159ed\u00e1vaj\u00ed po 24 hodin nep\u0159etr\u017eit\u011b pomysln\u00fd \u0161tafetov\u00fd kol\u00edk, p\u0159ipojuje 23 m\u011bst, z\u00a0toho 3 ze zahrani\u010d\u00ed. Pacienty p\u0159ijdou podpo\u0159it i zn\u00e1m\u00e9 osobnosti, nap\u0159\u00edklad kajak\u00e1\u0159ka \u0160t\u011bp\u00e1nka Hilgertov\u00e1 \u010di herci Jan \u010censk\u00fd a V\u00e1clav Vydra. Zacvi\u010dit si p\u016fjdou t\u00fdm \u017eensk\u00e9ho i mu\u017esk\u00e9ho americk\u00e9ho fotbalu Prague Black Cats a Prague Black Panthers. Ze sportovc\u016f pacienty podpo\u0159\u00ed cyklista Lubo\u0161 Lom, golfistka \u0160ideri V\u00e1\u0148ov\u00e1, basketbalista Pavel Milo\u0161 \u010di \u010desk\u00e9 basketbalov\u00e9 reprezentantky ZVVZ USK.<\/strong><\/p>\n

<\/p>\n

Rekordn\u00edch 23 m\u011bst z cel\u00e9 republiky i zahrani\u010d\u00ed se letos zapojuje do \u010dty\u0159iadvacetihodinov\u00e9ho maratonu, kter\u00fd startuje u\u017e v p\u00e1tek. Lid\u00e9 s roztrou\u0161enou skler\u00f3zou (RS), jejich rodiny, p\u0159\u00e1tel\u00e9, ale i l\u00e9ka\u0159i, terapeuti \u010di zdravotn\u00ed sestry obuj\u00ed tenisky a zapoj\u00ed svaly, aby podpo\u0159ili akci, je\u017e se letos kon\u00e1 u\u017e pop\u00e1t\u00e9. Podle organiz\u00e1tor\u016f zlom\u00ed leto\u0161n\u00ed cvi\u010debn\u00ed Maraton s roztrou\u0161enou skler\u00f3zou (MaRS) rekord v \u00fa\u010dasti, p\u0159edb\u011b\u017en\u011b po\u010d\u00edtaj\u00ed se 2 tis\u00edci \u00fa\u010dastn\u00edky.<\/p>\n

\u201eTradi\u010dn\u011b cvi\u010d\u00ed rodiny, p\u0159\u00e1tel\u00e9 pacient\u016f, terapeuti nebo kolegov\u00e9 z pr\u00e1ce, ale zapojit se m\u016f\u017ee ka\u017ed\u00fd, kdo chce podpo\u0159it dobrou v\u011bc,\u201c up\u0159esnila Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd je hlavn\u00edm po\u0159adatelem akce. MaRS m\u00e1 za \u00fakol upozornit nejenom na samotnou nemoc, ale p\u0159edev\u0161\u00edm na to, \u017ee pohyb pacient\u016fm prosp\u00edv\u00e1. S cvi\u010den\u00edm za\u010dne v p\u00e1tek 4. b\u0159ezna Praha, kde se cvi\u010d\u00ed nonstop 24 hodin. Postupn\u011b se k n\u00ed p\u0159id\u00e1 dal\u0161\u00edch 22 m\u011bst. Ta si budou p\u0159ed\u00e1vat pomysln\u00fd \u0161tafetov\u00fd kol\u00edk a\u017e do soboty 5. b\u0159ezna. Maratonu cvi\u010den\u00ed se letos \u00fa\u010dastn\u00ed lid\u00e9 z Prahy, Brna, \u010cesk\u00fdch Bud\u011bjovic, Hradce Kr\u00e1lov\u00e9, Jihlavy, Karlov\u00fdch Var\u016f, Kyjova, Liberce, Ostravy, Pod\u011bbrad, \u00dast\u00ed nad Orlic\u00ed, poprv\u00e9 budou cvi\u010dit lid\u00e9 z Nov\u00e9ho Boru, Mostu, Olomouce, Plzn\u011b, Teplic, Uhersk\u00e9ho Hradi\u0161t\u011b, Velk\u00fdch Losin, \u017d\u010f\u00e1ru nad S\u00e1zavou, \u017dir\u010de u Dvora Kr\u00e1lov\u00e9 n. L. Ze zahrani\u010d\u00ed bude cvi\u010dit t\u00fdm ve slovensk\u00fdch Pie\u0161\u0165anech, \u0161v\u00fdcarsk\u00e9m Valens a francouzsk\u00e9m Rennes.<\/p>\n

\u201e\u00da\u010dastn\u00edci maratonu si zacvi\u010d\u00ed bu\u010f v kruhov\u00e9m tr\u00e9ninku nebo skupinov\u00fdch lekc\u00edch typu pilates a j\u00f3ga, chyb\u011bt nebudou ani cviky pro pacienty na voz\u00edku. Prostory, kde se bude maraton odehr\u00e1vat, jsou v\u011bt\u0161inou bezbari\u00e9rov\u00e9, p\u0159\u00edstupn\u00e9 i pro hendikepovan\u00e9. Imobiln\u00ed lid\u00e9 si s n\u00e1mi mohou zacvi\u010dit z domova, sta\u010d\u00ed poslat fotku a p\u0159i\u010dteme je k \u00fa\u010dastn\u00edk\u016fm,\u201c doplnila fyzioterapeutka Lucie Such\u00e1. P\u0159i tomto netradi\u010dn\u00edm maratonu nen\u00ed c\u00edlem podat vrcholov\u00fd v\u00fdkon, ale motivovat nejen pacienty k tomu, aby se nau\u010dili pravideln\u011b h\u00fdbat. \u201eNav\u00edc n\u00e1m MaRS pom\u016f\u017ee vybrat pen\u00edze na aktivity, kter\u00e9 zdravotn\u00ed poji\u0161\u0165ovny nehrad\u00ed. V minul\u00e9m roce, kdy se zapojilo t\u00e9m\u011b\u0159 tis\u00edc lid\u00ed z 12 m\u011bst, se poda\u0159ilo vybrat p\u0159es 116 tis\u00edc korun,\u201c dodala Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS. Na maratonu organiz\u00e1to\u0159i pok\u0159t\u00ed knihu \u201eHled\u00e1 se 16 tis\u00edc\u201c, s p\u0159\u00edb\u011bhy pacient\u016f s RS, kter\u00e1 bude k dost\u00e1n\u00ed ve v\u0161ech regionech.<\/p>\n

Leto\u0161n\u00ed novinkou je d\u016fraz na zdrav\u00fd \u017eivotn\u00ed styl. Ve vybran\u00fdch m\u011bstech bude p\u0159\u00edtomen nutri\u010dn\u00ed specialista, kter\u00fd lidem s RS porad\u00ed, jak se spr\u00e1vn\u011b stravovat. \u201eLid\u00e9 s roztrou\u0161enou skler\u00f3zou by m\u011bli j\u00edst potraviny bohat\u00e9 na vitamin D, ten do t\u011bla dost\u00e1vaj\u00ed tak\u00e9 ze slune\u010dn\u00edho z\u00e1\u0159en\u00ed. Prosp\u00edv\u00e1 j\u00edm klasick\u00e1 pestr\u00e1 strava, s vy\u0161\u0161\u00edm pod\u00edlem ovoce, zeleniny, vl\u00e1kniny, o\u0159ech\u016f, sem\u00ednek, kysan\u00fdch ml\u00e9\u010dn\u00fdch v\u00fdrobk\u016f a kvalitn\u00edho \u010derven\u00e9ho a b\u00edl\u00e9ho masa,\u201c vysv\u011btlila prof. Eva Havrdov\u00e1, vedouc\u00ed MS Centra Neurologick\u00e9 kliniky 1. LF UK a VFN v Praze.<\/p>\n

Autorem my\u0161lenky cvi\u010debn\u00edho maratonu MaRS je veterin\u00e1\u0159 Roman Kvapil. \u201eP\u0159ed 5 lety jsem \u0161lapal na rotopedu a p\u0159ehr\u00e1val si ned\u00e1vn\u00e9 v\u00edt\u011bzstv\u00ed \u017eokeje V\u00e1ni ve Velk\u00e9 pardubick\u00e9. Hlavou mi blesklo, \u017ee bychom s pacienty mohli tak\u00e9 uspo\u0159\u00e1dat \u201ez\u00e1vod\u201c. A tak vznikl maraton,\u201c vzpom\u00edn\u00e1 Roman Kvapil, kter\u00fd s diagn\u00f3zou roztrou\u0161en\u00e9 skler\u00f3zy \u017eije u\u017e 14 let.<\/p>\n

MaRS ve\u0159ejnosti ukazuje, \u017ee pro pacienty s RS je naprosto z\u00e1sadn\u00ed v\u010dasn\u00e9 zah\u00e1jen\u00ed l\u00e9\u010dby. Data z celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou a dal\u0161\u00edch zahrani\u010dn\u00edch registr\u016f jasn\u011b dokazuj\u00ed, \u017ee modern\u00ed, biologick\u00e9 l\u00e9ky um\u00ed nemoc u velk\u00e9 \u010d\u00e1sti pacient\u016f stabilizovat, odd\u00e1lit invaliditu a v\u00fdrazn\u011b prodlou\u017eit obdob\u00ed pr\u00e1ceschopnosti. \u201eV\u010dasn\u00e9 zaveden\u00ed biologick\u00e9 l\u00e9\u010dby spolu s intenzivn\u00ed<\/p>\n

rehabilitac\u00ed a pravideln\u00fdm pohybem pacient\u016fm s roztrou\u0161enou skler\u00f3zou z\u00e1sadn\u011b odd\u00e1l\u00ed vzplanut\u00ed nemoci,\u201c \u0159ekla profesorka Havrdov\u00e1.<\/p>\n

O roztrou\u0161en\u00e9 skler\u00f3ze<\/p>\n

Roztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. V sou\u010dasn\u00e9 dob\u011b v tuzemsku podstupuje biologickou l\u00e9\u010dbu p\u0159ibli\u017en\u011b 9 000 nemocn\u00fdch s RS.<\/p>\n

Na cel\u00e9m sv\u011bt\u011b RS trp\u00ed 2,5 mili\u00f3n\u016f nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 17 tis\u00edc. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus, kou\u0159en\u00ed a nedostatek vitaminu D. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz.<\/p>\n

O Nada\u010dn\u00edm fondu IMPULS<\/p>\n

Nada\u010dn\u00ed fond IMPULS vznikl roku 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz.<\/p>\n","protected":false},"excerpt":{"rendered":"

Letos se ke cvi\u010den\u00ed, p\u0159i n\u011bm\u017e si m\u011bsta z\u00a0cel\u00e9 republiky p\u0159ed\u00e1vaj\u00ed po 24 hodin nep\u0159etr\u017eit\u011b pomysln\u00fd \u0161tafetov\u00fd kol\u00edk, p\u0159ipojuje 23 m\u011bst, z\u00a0toho 3 ze zahrani\u010d\u00ed. […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":20316,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-24779","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24779","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=24779"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24779\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/20316"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=24779"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=24779"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=24779"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}