{"id":24820,"date":"2016-03-07T14:34:20","date_gmt":"2016-03-07T13:34:20","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=24820"},"modified":"2016-03-07T14:34:20","modified_gmt":"2016-03-07T13:34:20","slug":"motivaci-je-mi-videt-deti-stastne","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=24820","title":{"rendered":"Motivac\u00ed je mi vid\u011bt d\u011bti \u0161\u0165astn\u00e9"},"content":{"rendered":"

Sama v\u00ed, jak\u00e9 to je, kdy\u017e rodinu zas\u00e1hne z\u00e1ke\u0159n\u00e1 nemoc a jak d\u016fle\u017eit\u00e1 je v t\u00e9 chv\u00edli podpora. Posledn\u00ed dva roky proto pom\u00e1h\u00e1 ostatn\u00edm. Fond \u0160\u0165astn\u00e9 hv\u011bzdy vede sama. Nemocn\u00e9 d\u011bti u\u017e za tu dobu Alena Skovajsov\u00e1 podpo\u0159ila milionem korun.<\/strong> <\/p>\n

– Minul\u00fd t\u00fdden jste oslavili druh\u00fd rok. Co v\u0161echno se v\u00e1m za tu dobu poda\u0159ilo uskute\u010dnit?<\/p>\n

Poda\u0159ilo se n\u00e1m podpo\u0159it v\u00e1\u017en\u011b nemocn\u00e9 d\u011bti t\u00e9m\u011b\u0159 milionem korun formou materi\u00e1ln\u00ed pomoci. Zaplatili jsme invalidn\u00ed voz\u00ed\u010dek pro Verunku, \u010disti\u010dku vzduchu a speci\u00e1ln\u00ed inhal\u00e1tor pro Nikolku, operaci ulzibat pro Mark\u00e9tu a mnoho dal\u0161\u00edch. Hrad\u00edme rehabilita\u010dn\u00ed pobyty, ozdravn\u00e9 pobyty. Nakupujeme \u010disti\u010dky vzduchu pro nemocn\u00e9 d\u011bti, pleny, hygienick\u00e9 pot\u0159eby. Nap\u0159\u00edklad u cystick\u00e9 fibr\u00f3zy maj\u00ed rodiny velk\u00e9 n\u00e1klady na hygienu, proto\u017ee d\u00edt\u011b se nesm\u00ed nakazit \u017e\u00e1dnou respira\u010dn\u00ed nemoc\u00ed. Pot\u0159ebuj\u00ed Savo, \u010distic\u00ed prost\u0159edky, kapesn\u00edky, aby udr\u017eeli dom\u00e1cnost co nej\u010dist\u0161\u00ed.<\/p>\n

– Jste nada\u010dn\u00ed fond z Jihlavy. Zam\u011b\u0159ujete se hlavn\u011b na Vyso\u010dinu, ale pom\u00e1h\u00e1te i jinde. Kde?<\/p>\n

Oslovuj\u00ed n\u00e1s lid\u00e9 z cel\u00e9 republiky. Pos\u00edlaj\u00ed n\u00e1m sv\u00e9 p\u0159\u00edb\u011bhy, \u017e\u00e1daj\u00ed o pomoc a za\u0159azen\u00ed do programu Na\u0161e hv\u011bzdi\u010dky. Po\u0161leme jim formul\u00e1\u0159, kde bl\u00ed\u017ee specifikuj\u00ed sv\u00e9 pot\u0159eby. Na z\u00e1klad\u011b toho spr\u00e1vn\u00ed rada rozhodne, zda p\u016fjdou do programu, nebo ne. Samoz\u0159ejm\u011b si p\u0159\u00edb\u011bhy ov\u011b\u0159ujeme. Podporujeme d\u011bti v Brn\u011b, Praze, v Nov\u00e9m Ji\u010d\u00edn\u011b, Ostrav\u011b, v Pardubic\u00edch, zkr\u00e1tka po cel\u00e9 republice.<\/p>\n

– Kabelkov\u00fd veletrh se kon\u00e1 pon\u011bkolik\u00e1t\u00e9. Jak vznikla my\u0161lenka zam\u011b\u0159it se pr\u00e1v\u011b na kabelky?<\/p>\n

N\u00e1pad se zrodil v Ostravsk\u00e9m den\u00edku. Prvn\u00ed ro\u010dn\u00edk jsme d\u011blali s nimi. Dal\u0161\u00ed akci jsme podnikli s Jihlavsk\u00fdm den\u00edkem. Veletrh se konal i v Brn\u011b a te\u010f v Praze. Den\u00edk n\u00e1s podporuje u\u017e od za\u010d\u00e1tku. Je to skv\u011bl\u00e9.<\/p>\n

– Za dva roky existence jste stihli uspo\u0159\u00e1dat spoustu akc\u00ed a podpo\u0159it \u0159adu d\u011bt\u00ed. Jak to v\u0161echno zvl\u00e1d\u00e1te?<\/p>\n

M\u00e1m to \u0161t\u011bst\u00ed, \u017ee m\u011b cel\u00e1 rodina podporuje. D\u00edky tomu m\u016f\u017ee nada\u010dn\u00ed fond fungovat tak, jak funguje. V\u011bnuji se pr\u00e1ci pro \u0160\u0165astnou hv\u011bzdu na pln\u00fd \u00favazek a ostatn\u00ed \u010dlenov\u00e9 rodiny mi pom\u00e1haj\u00ed. Nem\u00e1me ani jednoho zam\u011bstnance. V\u0161ichni n\u00e1m pom\u00e1haj\u00ed na b\u00e1zi dobrovolnictv\u00ed. P\u0159i v\u011bt\u0161\u00edch akc\u00edch pom\u00e1haj\u00ed i kamar\u00e1di a zn\u00e1m\u00ed. Osudy lid\u00ed jim nejsou lhostejn\u00e9.<\/p>\n

– Pom\u00e1haj\u00ed lid\u00e9 hodn\u011b? Setk\u00e1v\u00e1te se se solidaritou?<\/p>\n

V za\u010d\u00e1tc\u00edch to bylo pro fond t\u011b\u017ek\u00e9. B\u011bhem dvou let fungov\u00e1n\u00ed jsme si z\u00edskali d\u016fv\u011bru jak d\u00e1rc\u016f, tak rodin. Pom\u00e1hat m\u00e1 smysl. Nesm\u00edrn\u011b si v\u00e1\u017e\u00edme pomoci partner\u016f, d\u00e1rc\u016f, dobrovoln\u00edk\u016f. Bez nich bychom nedok\u00e1zali pom\u00e1hat v takov\u00e9m rozsahu. T\u00fdk\u00e1 se to i um\u011blc\u016f, kte\u0159\u00ed pro n\u00e1s vystupuj\u00ed bez n\u00e1roku na honor\u00e1\u0159.<\/p>\n

– Nada\u010dn\u00ed fond jste zalo\u017eila, proto\u017ee jste se sama setkala se z\u00e1ke\u0159nou nemoc\u00ed…<\/p>\n

Syn se od jeden\u00e1cti let l\u00e9\u010dil na onkologii, dnes je zdr\u00e1v.<\/p>\n

– Co v\u00e1s d\u00e1l motivuje v pr\u00e1ci pro fond?<\/p>\n

P\u0159edev\u0161\u00edm pomoc rodin\u00e1m. Kdy\u017e se ocitnou v t\u011b\u017ek\u00e9 \u017eivotn\u00ed situaci s v\u00e1\u017en\u011b nemocn\u00fdm d\u00edt\u011btem v\u011bt\u0161inou nev\u011bd\u00ed, na co maj\u00ed n\u00e1rok, co maj\u00ed d\u011blat. V\u011bt\u0161inou jeden z rodi\u010d\u016f z\u016fstane s d\u00edt\u011btem doma a pot\u0159ebuj\u00ed finan\u010dn\u00ed a materi\u00e1ln\u00ed pomoc. N\u00e1\u0161 st\u00e1t by m\u011bl pomoci, ale v tomto ohledu moc nefunguje. P\u0159ev\u00e1\u017en\u00e1 \u010d\u00e1st l\u00e9\u010debn\u00fdch program\u016f nen\u00ed zcela hrazena poji\u0161\u0165ovnou. Nejv\u011bt\u0161\u00ed motivac\u00ed je, kdy\u017e vid\u00edte d\u00edt\u011b za\u0159azen\u00e9 do programu na\u0161eho fondu spokojen\u00e9 a usm\u011bvav\u00e9.<\/p>\n

– Jak\u00e9 dal\u0161\u00ed akce chyst\u00e1te?<\/p>\n

Moment\u00e1ln\u011b p\u0159ipravujeme na 17. dubna benefi\u010dn\u00ed akci v Plzni. Odehraje se tam hokejov\u00e9 utk\u00e1n\u00ed \u0160\u0165astn\u00e9 hv\u011bzdy versus Hv\u011bzdn\u00fd t\u00fdm. Zahr\u00e1t si p\u0159ijedou nap\u0159\u00edklad Martin Straka, Roman \u0160ebrle, Jan Platil, Martin M\u00e1lek, Bed\u0159ich \u0160\u010derban, Dan Dobi\u00e1\u0161 nebo Marek Ztracen\u00fd a Viktor Uj\u010d\u00edk. Hokejov\u00fd svaz n\u00e1m v\u011bnoval dres Tom\u00e1\u0161e Plekance z olympi\u00e1dy ze So\u010di, kter\u00fd se bude dra\u017eit. Vstupenky v\u011bnujeme i d\u011btem z d\u011btsk\u00fdch domov\u016f. V\u00fdt\u011b\u017eek bude rozd\u011blen mezi na\u0161e hv\u011bzdi\u010dky a d\u011btskou onkologii v Plzni. Na t\u00e9to akci n\u00e1s rovn\u011b\u017e podpo\u0159\u00ed Diamond Race, se kter\u00fdm jsme letos nav\u00e1zali nov\u011b spolupr\u00e1ci.<\/p>\n

Pra\u017esk\u00fd den\u00edk
\nhttp:\/\/www.prazsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Sama v\u00ed, jak\u00e9 to je, kdy\u017e rodinu zas\u00e1hne z\u00e1ke\u0159n\u00e1 nemoc a jak d\u016fle\u017eit\u00e1 je v t\u00e9 chv\u00edli podpora. Posledn\u00ed dva roky proto pom\u00e1h\u00e1 ostatn\u00edm. Fond […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-24820","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24820","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=24820"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/24820\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=24820"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=24820"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=24820"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}