{"id":25188,"date":"2016-04-11T07:49:50","date_gmt":"2016-04-11T05:49:50","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=25188"},"modified":"2016-04-11T07:49:50","modified_gmt":"2016-04-11T05:49:50","slug":"pacientum-s-parkinsonem-chybeji-sluzby-i-specializovana-zarizeni","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=25188","title":{"rendered":"Pacient\u016fm s Parkinsonem chyb\u011bj\u00ed slu\u017eby i specializovan\u00e1 za\u0159\u00edzen\u00ed"},"content":{"rendered":"

Pacienti s Parkinsonovou nemoc\u00ed v \u010cesku nar\u00e1\u017eej\u00ed na nedostatek slu\u017eeb a neznalost specifik onemocn\u011bn\u00ed u posudkov\u00fdch l\u00e9ka\u0159\u016f, kte\u0159\u00ed rozhoduj\u00ed o p\u0159\u00edsp\u011bvku na p\u00e9\u010di a n\u00e1roku na invalidn\u00ed d\u016fchod \u010di pr\u016fkaz ZTP. \u0158ekla to p\u0159i p\u0159\u00edle\u017eitosti pond\u011bln\u00edho Sv\u011btov\u00e9ho dne Parkinsonovy nemoci Romana Sk\u00e1la-Rosenbaum z pacientsk\u00e9 organizace Parkinson-Help. <\/strong><\/p>\n

Probl\u00e9m vid\u00ed i v nedostatku specializovan\u00fdch za\u0159\u00edzen\u00ed, kde by pacienti vy\u017eaduj\u00edc\u00ed celodenn\u00ed p\u00e9\u010di mohli b\u00fdt.<\/p>\n

V \u010cesku \u017eije zhruba 20.000 lid\u00ed s Parkinsonovou nemoc\u00ed, p\u0159i n\u00ed\u017e v mozku odum\u00edraj\u00ed bu\u0148ky tvo\u0159\u00edc\u00ed dopamin, kter\u00fd zaji\u0161\u0165uje p\u0159enos nervov\u00fdch sign\u00e1l\u016f. Typick\u00fd pro pacienty je klidov\u00fd t\u0159as. S rozvojem nemoci se objevuj\u00ed z\u00e1va\u017en\u00e9 pot\u00ed\u017ee s ch\u016fz\u00ed i prov\u00e1d\u011bn\u00edm ka\u017edodenn\u00edch jednoduch\u00fdch \u00fakon\u016f.<\/p>\n

Parkinsonovu nemoc, kterou trp\u011bli nap\u0159\u00edklad pape\u017e Jan Pavel II, mal\u00ed\u0159 Salvador Dal\u00ed \u010di boxer Muhammad Ali, nelze zastavit ani vyl\u00e9\u010dit. Lze jen na \u010das ovlivnit p\u0159\u00edznaky. „V praxi to znamen\u00e1, \u017ee m\u016f\u017eeme d\u00edky l\u00e9k\u016fm po ur\u010dit\u00fd \u010das fungovat a b\u00fdt sob\u011bsta\u010dn\u00ed. N\u011bkdo zvl\u00e1dne i pracovat. Jak se v\u0161ak nemoc vyv\u00edj\u00ed a postupuje, neodvratn\u011b se zdravotn\u00ed stav zhor\u0161uje,“ uvedla Sk\u00e1la-Rosenbaum.<\/p>\n

Logiku nemoci podle n\u00ed ale syst\u00e9m l\u00e9ka\u0159sk\u00e9 posudkov\u00e9 slu\u017eby nezohled\u0148uje. Nemocn\u00e9 zve i po letech od zji\u0161t\u011bn\u00ed diagn\u00f3zy na p\u0159ezkoum\u00e1n\u00ed zdravotn\u00edho stavu. Posudkov\u00fd l\u00e9ka\u0159 hodnot\u00ed pacienta na z\u00e1klad\u011b moment\u00e1ln\u00edho dojmu p\u0159ed komis\u00ed \u010di toho, \u017ee pacient absolvoval nejmodern\u011bj\u0161\u00ed l\u00e9\u010dbu hlubokou mozkovou stimulac\u00ed, kter\u00e1 stav v\u00fdrazn\u011b zlep\u0161\u00ed.<\/p>\n

Podle profesora Roberta Jecha z neurologick\u00e9 kliniky 1. l\u00e9ka\u0159sk\u00e9 fakulty UK a V\u0161eobecn\u00e9 fakultn\u00ed nemocnice ale nem\u016f\u017ee b\u00fdt modern\u00ed l\u00e9\u010dba automaticky spojena s odejmut\u00edm invalidity. „Pr\u00e1ceschopnost pacienta by se m\u011bla posuzovat bez ohledu na to, jak\u00fdm zp\u016fsobem je l\u00e9\u010den. Po nasazen\u00ed l\u00e9\u010dby se sice stav zlep\u0161\u00ed, ale je to do\u010dasn\u00e9, d\u0159\u00edv nebo pozd\u011bji se objev\u00ed komplikace, kter\u00e9 l\u00e9\u010dba u\u017e nedok\u00e1\u017ee ovlivnit,“ upozornil.<\/p>\n

Typick\u00e9 pro Parkinsonovu nemoc jsou stavy „vypnut\u00ed a zapnut\u00ed“. P\u0159ed komis\u00ed m\u016f\u017ee b\u00fdt pacient pln\u011b pohybliv\u00fd a p\u00e1r minut na to m\u016f\u017ee „vypnout“ do t\u00e9 m\u00edry, \u017ee nen\u00ed schopn\u00fd chodit \u010di se srozumiteln\u011b domluvit.<\/p>\n

Parkinsonovou chorobou onemocn\u00ed lid\u00e9 zpravidla mezi 50. a 60. rokem \u017eivota. Ka\u017ed\u00fd des\u00e1t\u00fd nemocn\u00fd usly\u0161\u00ed tuto diagn\u00f3zu u\u017e p\u0159ed 40. rokem, pr\u00e1v\u011b u t\u011bchto mlad\u0161\u00edch pacient\u016f je potvrzena souvislost s mutacemi gen\u016f. Ka\u017ed\u00fd rok diagnostikuj\u00ed l\u00e9ka\u0159i v \u010cesku 1000 a\u017e 1500 nov\u00fdch pacient\u016f, v roce 2030 by tak mohlo v \u010cesku \u017e\u00edt a\u017e 40.000 lid\u00ed s Parkinsonovou chorobou.<\/p>\n","protected":false},"excerpt":{"rendered":"

Pacienti s Parkinsonovou nemoc\u00ed v \u010cesku nar\u00e1\u017eej\u00ed na nedostatek slu\u017eeb a neznalost specifik onemocn\u011bn\u00ed u posudkov\u00fdch l\u00e9ka\u0159\u016f, kte\u0159\u00ed rozhoduj\u00ed o p\u0159\u00edsp\u011bvku na p\u00e9\u010di a n\u00e1roku […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":3721,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-25188","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-politika"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/25188","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=25188"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/25188\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/3721"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=25188"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=25188"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=25188"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}