Porucha vid\u011bn\u00ed, \u0159e\u010di, brn\u011bn\u00ed, nejist\u00e1 ch\u016fze, ztr\u00e1ta citlivosti rukou \u010di nohou, \u00fanava, du\u0161evn\u00ed nevyrovnanost. Jakmile rodi\u010de uvid\u00ed tyto p\u0159\u00edznaky u sv\u00e9ho potomka, m\u011bli by s n\u00edm vyrazit k neurologovi \u2013 m\u016f\u017ee se jednat o prvn\u00ed ataku roztrou\u0161en\u00e9 skler\u00f3zy (RS). L\u00e9ka\u0159i odhaduj\u00ed, \u017ee v \u010cesk\u00e9 republice nyn\u00ed \u017eije 50 d\u011bt\u00ed s RS. V\u010dasn\u00e1 diagn\u00f3za z\u00e1sadn\u011b zlep\u0161uje jejich nad\u011bje na plnohodnotn\u00fd \u017eivot.
\n
\nD\u011btsk\u00e9 pacienty s RS v \u010cesku mapuje Registr pacient\u016f s roztrou\u0161enou skler\u00f3zou (ReMuS) a upozor\u0148uje na ni v r\u00e1mci Sv\u011btov\u00e9ho dne RS, kter\u00fd letos p\u0159ipad\u00e1 na 25. kv\u011btna.
\n\u201eNa roztrou\u0161enou skler\u00f3zu \u010dasto pediat\u0159i ani rodi\u010de v prvn\u00ed chv\u00edli nemysl\u00ed. Pediat\u0159i n\u011bkdy obt\u00ed\u017e\u00edm p\u0159i\u0159ad\u00ed jinou diagn\u00f3zu, nap\u0159\u00edklad v\u00fdvojov\u00e9 vady nebo je zam\u011bn\u00ed za jin\u00e9 neurologick\u00e9 onemocn\u011bn\u00ed. Je t\u0159eba br\u00e1t RS v potaz a poslat d\u00edt\u011b na neurologii v\u010das. Rychl\u00e1 a spr\u00e1vn\u00e1 diagnostika p\u0159\u00edmo ur\u010duje progn\u00f3zu RS u d\u011bt\u00ed, a l\u00e9\u010dba je mnohem levn\u011bj\u0161\u00ed v porovn\u00e1n\u00ed s pozd\u011bj\u0161\u00edmi n\u00e1klady na l\u00e9\u010dbu komplikac\u00ed,\u201c \u0159\u00edk\u00e1 zn\u00e1m\u00fd neurolog, docent Radom\u00edr Tal\u00e1b. U d\u011bt\u00ed l\u00e9ka\u0159i rozli\u0161uj\u00ed formu infantiln\u00ed (do 11 let) a juveniln\u00ed (do 18 let). \u201eU juveniln\u00ed, tak\u00e9 adolescentn\u00ed formy RS p\u0159ijde velmi \u010dasto druh\u00e1 ataka do 12 m\u011bs\u00edc\u016f od prvn\u00ed, proto je t\u0159eba rychle nasadit l\u00e9\u010dbu. RS v d\u011btsk\u00e9m v\u011bku zas\u00e1hne nejenom mal\u00e9ho pacienta, ale celou rodinu, je naprosto kl\u00ed\u010dov\u00e9, aby rodina d\u00edt\u011b \u201epodr\u017eela\u201c a p\u0159izp\u016fsobila chod dom\u00e1cnosti,\u201c dopl\u0148uje docent Tal\u00e1b. RS ohro\u017euje v\u00edce \u017eenskou \u010d\u00e1st populace, podle celosv\u011btov\u00fdch statistik je riziko onemocn\u011bn\u00ed d\u011bv\u010d\u00e1tek po \u0161est\u00e9m roce 1,5\u20132x vy\u0161\u0161\u00ed ne\u017e u chlapc\u016f a dosp\u00edvaj\u00edc\u00edch mu\u017e\u016f. \u201eJak ukazuj\u00ed \u00fadaje z ReMuSu, v dosp\u011blosti je rozlo\u017een\u00ed podobn\u00e9. V RS centrech se nyn\u00ed l\u00e9\u010d\u00ed 72 % \u017een a 28 % mu\u017e\u016f,\u201c upozor\u0148uje Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd registr provozuje.
\nUk\u00e1zkov\u00fdm p\u0159\u00edkladem v\u010dasn\u00e9ho z\u00e1chytu je p\u0159\u00edpad Evy, kter\u00e1 se n\u011bkolik dn\u00ed p\u0159ed sv\u00fdmi 14. narozeninami probudila s t\u00edm, \u017ee na jedno oko po\u0159\u00e1dn\u011b nevid\u00ed. S maminkou se pokusily mlhu rozehnat kapkami a masti\u010dkou, ale nepomohlo nic. \u201eVolala jsem na polikliniku na o\u010dn\u00ed, ale tam n\u00e1s objednali a\u017e za 5 m\u011bs\u00edc\u016f. Eva \u0161la tedy norm\u00e1ln\u011b do \u0161koly, ale j\u00e1 najednou dostala strach, vyzvedla ji a jely jsme do \u00fasteck\u00e9 nemocnice. Tam jsme str\u00e1vily 5 hodin komplexn\u00edm o\u010dn\u00edm vy\u0161et\u0159en\u00edm,\u201c \u0159\u00edk\u00e1 maminka Petra. Oftalmologick\u00e9 vy\u0161et\u0159en\u00ed nic neprok\u00e1zalo, a tak je l\u00e9ka\u0159i poslali hned na neurologii, kde Eva hospitalizovali. R\u00e1no \u0161la na magnetickou rezonanci a odpoledne na punkci \u2013 do 24 hodin byla diagn\u00f3za jasn\u00e1 \u2013 roztrou\u0161en\u00e1 skler\u00f3za. Eva z\u016fstala v nemocnici t\u00fdden na kapa\u010dk\u00e1ch s kortikoidy. Po za\u017eehn\u00e1n\u00ed ataky p\u0159e\u0161la do specializovan\u00e9ho centra pro l\u00e9\u010dbu RS v Teplic\u00edch. \u201ePan\u00ed doktorka n\u00e1m jako nejvhodn\u011bj\u0161\u00ed l\u00e9\u010dbu doporu\u010dila biologickou. Eva si za\u010dala pravideln\u011b p\u00edchat injekce s l\u00e9ky, a od t\u00e9 doby nem\u00e1 \u017e\u00e1dn\u00e9 probl\u00e9my, zvl\u00e1dla i t\u00fddenn\u00ed jazykov\u00fd kurz v Anglii. Nav\u00e1zali jsme norm\u00e1ln\u011b na n\u00e1\u0161 p\u0159ede\u0161l\u00fd \u017eivot. Eva sportuje, tancuje, nyn\u00ed se dostala na gymn\u00e1zium a chce b\u00fdt l\u00e9ka\u0159kou. Cestujeme, jezd\u00edme k mo\u0159i, na kole, na hory,\u201c \u0159\u00edk\u00e1 Petra.
\nD\u011btem se v\u011bnuje ReMuS, kter\u00fd d\u00edky Nada\u010dn\u00edmu fondu IMPULS funguje u\u017e 3 roky, a shroma\u017e\u010fuje nejnov\u011bj\u0161\u00ed data o nemoci a jej\u00ed l\u00e9\u010db\u011b. Registr u n\u00e1s v sou\u010dasnosti eviduje 32 d\u011bt\u00ed a mladistv\u00fdch \u2013 8 z nich je mlad\u0161\u00edch 15 let. Nejmlad\u0161\u00edmu pacientovi l\u00e9ka\u0159i diagnostikovali nemoc u\u017e ve 3,5 letech. \u201eP\u0159\u00ed\u010diny, pro\u010d u d\u011bt\u00ed RS vznik\u00e1, se v\u00fdrazn\u011b neli\u0161\u00ed od dosp\u011bl\u00fdch. Roli zde hraje i pasivn\u00ed kou\u0159en\u00ed. V\u00fdzkumy prok\u00e1zaly, \u017ee v rodin\u00e1ch s pasivn\u00edm kou\u0159en\u00edm je dvakr\u00e1t vy\u0161\u0161\u00ed v\u00fdskyt d\u011bt\u00ed s RS ne\u017e tam, kde se nekou\u0159\u00ed,\u201c doplnil docent Tal\u00e1b. Podle profesorky Evy Havrdov\u00e9, vedouc\u00ed nejv\u011bt\u0161\u00edho \u010desk\u00e9ho RS centra p\u0159i V\u0161eobecn\u00e9 fakultn\u00ed nemocnici v Praze, jsou v\u00fdjime\u010dn\u00e9, agresivn\u011bj\u0161\u00ed formy d\u011btsk\u00e9 RS \u010d\u00e1ste\u010dn\u011b l\u00e9\u010deny l\u00e9ky pro dosp\u011bl\u00e9. \u201ePoji\u0161\u0165ovny l\u00e9ky v\u011bt\u0161inou bez probl\u00e9m\u016f hrad\u00ed,\u201c doplnila profesorka Havrdov\u00e1.
\nJak uvedla odborn\u00e1 garantka ReMuSu, docentka Dana Hor\u00e1kov\u00e1, registr p\u0159in\u00e1\u0161\u00ed cenn\u00e1 data o nemoci a \u00fa\u010dinnosti l\u00e9\u010dby. Ta by se m\u011bla st\u00e1t podkladem pro jedn\u00e1n\u00ed o \u00fahrad\u00e1ch a zp\u0159\u00edstupn\u011bn\u00ed modern\u00ed l\u00e9\u010dby pacient\u016fm, kte\u0159\u00ed mohou z dan\u00e9 l\u00e9\u010dby nejv\u00edce profitovat. \u201eMedic\u00edna jde m\u00edlov\u00fdmi kroky kup\u0159edu. M\u00e1me na v\u00fdb\u011br mezi \u0159adou kvalitn\u00edch l\u00e9k\u016f, ale ne v\u0161echny se k pacient\u016fm dostanou. Toto \u0159e\u0161\u00ed i \u0159ada jin\u00fdch medic\u00ednsk\u00fdch obor\u016f \u2013 mo\u017enosti l\u00e9\u010dby versus jej\u00ed ceny. Na\u0161i pacienti jsou mlad\u00ed, za svoji nemoc nemohou, neexistuje prevence, pr\u016fb\u011bh nemoci sami neovlivn\u00ed. V\u010dasn\u00e1 vhodn\u00e1 l\u00e9\u010dba jim zachr\u00e1n\u00ed 20\u201330 let aktivn\u00edho \u017eivota,\u201c shoduj\u00ed se ob\u011b l\u00e9ka\u0159ky, profesorka Havrdov\u00e1 a docentka Hor\u00e1kov\u00e1.<\/p>\n
Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"
Porucha vid\u011bn\u00ed, \u0159e\u010di, brn\u011bn\u00ed, nejist\u00e1 ch\u016fze, ztr\u00e1ta citlivosti rukou \u010di nohou, \u00fanava, du\u0161evn\u00ed nevyrovnanost. Jakmile rodi\u010de uvid\u00ed tyto p\u0159\u00edznaky u sv\u00e9ho potomka, m\u011bli by s […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":2220,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-25603","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/25603","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=25603"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/25603\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/2220"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=25603"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=25603"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=25603"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}