V\u00edte, co to je Hidradenitis suppurativa (HS)? Pokud ne, pak nejste sami. Toto m\u00e1lo zn\u00e1m\u00e9 chronick\u00e9 autoimunitn\u00ed onemocn\u011bn\u00ed k\u016f\u017ee, projevuj\u00edc\u00ed se nep\u0159\u00edjemn\u00fdm a bolestiv\u00fdm z\u00e1n\u011btem v oblasti pa\u017e\u00ed, t\u0159\u00edsel nebo pod prsy, toti\u017e neznaj\u00ed ani mnoz\u00ed l\u00e9ka\u0159i, a tak \u010dasto pacienty l\u00e9\u010d\u00ed \u0161patn\u011b a na n\u011bco \u00fapln\u011b jin\u00e9ho. <\/p>\n
„Odhaduje se, \u017ee celosv\u011btov\u011b trp\u00ed touto chorobou minim\u00e1ln\u011b jedno procento dosp\u011bl\u00e9 populace a v \u010cesku tomu bude zhruba tak\u00e9 tak. P\u0159esn\u00fd v\u00fdskyt nen\u00ed zn\u00e1m, proto\u017ee mnoho pacient\u016f se styd\u00ed o p\u0159\u00edznac\u00edch nemoci mluvit a zdr\u00e1h\u00e1 se vyhledat odbornou pomoc,“ \u0159\u00edk\u00e1 doc. MUDr. Monika Arenbergerov\u00e1 z dermatovenerologick\u00e9 kliniky pra\u017esk\u00e9 Fakultn\u00ed nemocnice Kr\u00e1lovsk\u00e9 Vinohrady.
\nKdy\u017e u\u017e l\u00e9ka\u0159e vyhledaj\u00ed, nav\u0161t\u00edv\u00ed v pr\u016fm\u011bru p\u011bt r\u016fzn\u00fdch l\u00e9ka\u0159\u016f t\u0159\u00ed specializac\u00ed, ne\u017e jim je onemocn\u011bn\u00ed spr\u00e1vn\u011b diagnostikov\u00e1no. „Cesta od prvn\u00edch p\u0159\u00edznak\u016f ke spr\u00e1vn\u00e9 diagn\u00f3ze tak trv\u00e1 v pr\u016fm\u011bru osm let,“ posteskne si odbornice. <\/p>\n
Ni\u017e\u0161\u00ed kvalita \u017eivota <\/p>\n
Pokud v\u0161ak nen\u00ed hidradenitida v\u010das rozpozn\u00e1na zku\u0161en\u00fdm dermatologem a nen\u00ed zah\u00e1jena odpov\u00eddaj\u00edc\u00ed l\u00e9\u010dba, pot\u00ed\u017ee se mohou vracet s nar\u016fstaj\u00edc\u00ed intenzitou a pacient trp\u00ed jak po zdravotn\u00ed, tak po psychick\u00e9 str\u00e1nce.
\n„Projevy zp\u016fsoben\u00e9 hidradenitidou jsou nep\u0159\u00edjemn\u00e9 a bolestiv\u00e9. \u010casto v\u00fdznamn\u011b sni\u017euj\u00ed kvalitu \u017eivota pacient\u016f, nebo\u0165 maj\u00ed dopad na jejich b\u011b\u017en\u00e9 denn\u00ed \u010dinnosti, pracovn\u00ed schopnost a uplatn\u011bn\u00ed, fyzick\u00e9 aktivity i psychick\u00fd stav,“ uv\u00e1d\u00ed doc. Arenbergerov\u00e1. „U tohoto onemocn\u011bn\u00ed je velice d\u016fle\u017eit\u00e9 neot\u00e1let s n\u00e1v\u0161t\u011bvou zku\u0161en\u00e9ho dermatologa, kter\u00fd je schopen je spr\u00e1vn\u011b diagnostikovat a dok\u00e1\u017ee zvolit vhodnou formu l\u00e9\u010dby.“ V n\u011bkter\u00fdch p\u0159\u00edpadech se toti\u017e onemocn\u011bn\u00ed m\u016f\u017ee rychle zhor\u0161ovat, a pokud nen\u00ed spr\u00e1vn\u011b l\u00e9\u010deno, pot\u00ed\u017ee se mohou vracet s nar\u016fstaj\u00edc\u00ed intenzitou a v\u00e9st a\u017e k t\u011b\u017ek\u00fdm form\u00e1m a trval\u00e9mu po\u0161kozen\u00ed nejen k\u016f\u017ee, ale i hlub\u0161\u00edch struktur v posti\u017een\u00fdch m\u00edstech. <\/p>\n
Co je hidradenitida <\/p>\n
Hidradenitida, latinsky Hidradenitis suppurativa, je charakteristick\u00e1 vznikem z\u00e1n\u011btliv\u00fdch lo\u017eisek v t\u011blesn\u00fdch parti\u00edch, kde doch\u00e1z\u00ed ke zv\u00fd\u0161en\u00e9mu t\u0159en\u00ed. Mezi zasa\u017een\u00e9 oblasti pat\u0159\u00ed p\u0159edev\u0161\u00edm podpa\u017en\u00ed jamky, t\u0159\u00edsla, u \u017een oblast pod prsy, vnit\u0159n\u00ed strana stehen a h\u00fd\u017ed\u011b.
\nHS postihuje \u010dast\u011bji \u017eeny ne\u017e mu\u017ee, ale rozvinout se m\u016f\u017ee v ka\u017ed\u00e9m v\u011bku. Nej\u010dast\u011bji se objevuje po 20. roce \u017eivota, kles\u00e1 po 50. a\u017e 55. roce \u017eivota.
\nLehk\u00e1 forma m\u00e1 podobu bulek, hrbolk\u016f nebo n\u011bkolika cyst, zat\u00edmco pacienti s t\u011b\u017e\u0161\u00edmi formami trp\u00ed opakovan\u00fdmi v\u00fdskyty absces\u016f a p\u00ed\u0161t\u011bl\u00ed, z nich\u017e m\u016f\u017ee vyt\u00e9kat nep\u0159\u00edjemn\u011b zap\u00e1chaj\u00edc\u00ed hnisav\u00e1 tekutina. <\/p>\n
Nemoc, kter\u00e1 izoluje <\/p>\n
Nej\u010dast\u011bji si pacienti st\u011b\u017euj\u00ed na intenzivn\u00ed bolest, kter\u00e1 sni\u017euje pohyblivost, ovliv\u0148uje partnersk\u00fd a sexu\u00e1ln\u00ed \u017eivot a zhor\u0161uje zdravotn\u00ed stav pacienta. Nen\u00ed to v\u0161ak jen o bolesti fyzick\u00e9. „Ko\u017en\u00ed nemoci maj\u00ed na \u017eivot pacienta i v\u00fdznamn\u00fd psychosoci\u00e1ln\u00ed dopad,“ vysv\u011btluje psycholo\u017eka doktorka Marta Bou\u010dkov\u00e1. „Typick\u00e9 jsou pocity m\u00e9n\u011bcennosti, \u00fazkost, frustrace, depresivn\u00ed stavy a zv\u00fd\u0161en\u00e9 sebepozorov\u00e1n\u00ed, co\u017e vede k izolaci. V\u00fdjime\u010dn\u00e9 nejsou ani sebevra\u017eedn\u00e9 \u00favahy,“ pokra\u010duje Bou\u010dkov\u00e1 a dod\u00e1v\u00e1, \u017ee ka\u017ed\u00fd p\u00e1t\u00fd pacient s touto chorobou je vystaven depresivn\u00edm symptom\u016fm. <\/p>\n
Mo\u017enosti l\u00e9\u010dby <\/p>\n
L\u00e9\u010debn\u00fd postup je v\u017edy individu\u00e1ln\u00ed a z\u00e1visl\u00fd na stadiu onemocn\u011bn\u00ed. V po\u010d\u00e1te\u010dn\u00ed f\u00e1zi se zpravidla uplat\u0148uje lok\u00e1ln\u00ed terapie pomoc\u00ed kr\u00e9m\u016f a mast\u00ed, pot\u00e9 nastupuje l\u00e9\u010dba antibiotiky. U pokro\u010dilej\u0161\u00edch forem se nasazuj\u00ed retinoidy, antiandrogeny a kr\u00e1tkodob\u011b tak\u00e9 kortikoidy.
\n„Pro pacienty se st\u0159edn\u011b t\u011b\u017ekou a\u017e t\u011b\u017ekou formou hidradenitidy, kte\u0159\u00ed nedostate\u010dn\u011b reagovali na konven\u010dn\u00ed antibiotickou syst\u00e9movou l\u00e9\u010dbu, je od leto\u0161n\u00edho roku dostupn\u00e1 tak\u00e9 biologick\u00e1 l\u00e9\u010dba. Ta je v sou\u010dasn\u00e9 dob\u011b jedinou ofici\u00e1ln\u011b schv\u00e1lenou l\u00e9\u010dbou, kter\u00e1 p\u0159in\u00e1\u0161\u00ed pacient\u016fm i l\u00e9ka\u0159\u016fm nad\u011bji v l\u00e9\u010db\u011b tohoto onemocn\u011bn\u00ed. V pokro\u010dil\u00fdch stadi\u00edch m\u016f\u017ee p\u0159ipadat v \u00favahu i chirurgick\u00e9 odstran\u011bn\u00ed posti\u017een\u00fdch oblast\u00ed k\u016f\u017ee, a\u010dkoli tento z\u00e1krok nem\u00e1 vliv na dynamiku pr\u016fb\u011bhu onemocn\u011bn\u00ed,“ vysv\u011btluje doc. Arenbergerov\u00e1. <\/p>\n","protected":false},"excerpt":{"rendered":"
V\u00edte, co to je Hidradenitis suppurativa (HS)? Pokud ne, pak nejste sami. Toto m\u00e1lo zn\u00e1m\u00e9 chronick\u00e9 autoimunitn\u00ed onemocn\u011bn\u00ed k\u016f\u017ee, projevuj\u00edc\u00ed se nep\u0159\u00edjemn\u00fdm a bolestiv\u00fdm z\u00e1n\u011btem […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-25932","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/25932","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=25932"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/25932\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=25932"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=25932"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=25932"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}