HRU\u0160OVANY NAD JEVI\u0160OVKOU \u2013 S\u00e1\u0159e Kali\u0161ov\u00e9 (11) d\u00e1vali l\u00e9ka\u0159i maxim\u00e1ln\u011b p\u00e1r m\u011bs\u00edc\u016f \u017eivota. D\u00edky p\u00e9\u010di sv\u00e9 rodiny u\u017e ale d\u00edvka oslavila jeden\u00e1ct\u00e9 narozeniny. A sn\u00ed o n\u00e1v\u0161t\u011bv\u011b Disneylandu.<\/p>\n
S\u00e1ra trp\u00ed nejt\u011b\u017e\u0161\u00ed formou spin\u00e1ln\u00ed svalov\u00e9 atrofie. Nem\u016f\u017ee se h\u00fdbat a od dev\u00edti m\u011bs\u00edc\u016f za ni d\u00fdch\u00e1 p\u0159\u00edstroj. S\u00e1ra nem\u00e1 polykac\u00ed reflex, proto dost\u00e1v\u00e1 rozmixovanou stravu sondou zavedenou p\u0159\u00edmo do \u017ealudku. Neobe\u0161la by se ani bez pulzn\u00edho oxymetru, kter\u00fd monitoruje z\u00e1sobov\u00e1n\u00ed kysl\u00edkem, ods\u00e1va\u010dky slin, ambuvaku pro resuscitaci a dal\u0161\u00edch p\u0159\u00edstroj\u016f. D\u00edvenka, kter\u00e9 l\u00e9ka\u0159i prorokovali, \u017ee bude jen bezmocn\u011b le\u017eet, je ale zv\u00eddav\u00e1 a komunikativn\u00ed. „Domlouv\u00e1me se melodiemi, proto\u017ee nedok\u00e1\u017ee artikulovat. Vyd\u00e1v\u00e1 jen slab\u00e9 zvuky. Kdy\u017e n\u011bco chce, tak mi to jakoby zazp\u00edv\u00e1. U\u017e um\u00ed zabroukat i ruskou Ka\u0165u\u0161u. A nasm\u011bje se, kdy\u017e v televizi d\u00e1vaj\u00ed seri\u00e1l Ohniv\u00fd ku\u0159e,“ \u0159\u00edk\u00e1 jej\u00ed m\u00e1ma Alena Kali\u0161ov\u00e1 (35).<\/p>\n
—<\/p>\n
Genetick\u00fd zabij\u00e1k jm\u00e9nem SMA<\/p>\n
P\u0159i onemocn\u011bn\u00ed SMA posti\u017een\u00e9mu ub\u00fdvaj\u00ed svaly. P\u0159i nejhor\u0161\u00ed form\u011b, kterou trp\u00ed i S\u00e1ra, se obt\u00ed\u017ee projev\u00ed u\u017e v kojeneck\u00e9m v\u011bku. 95 % d\u011bt\u00ed um\u00edr\u00e1 do 18 m\u011bs\u00edc\u016f v\u011bku. Intelekt neb\u00fdv\u00e1 nijak posti\u017een. L\u00e9\u010dba zat\u00edm neexistuje.<\/p>\n
Maminka \u017eije jen pro dceru<\/p>\n
Z\u00e1kon ukl\u00e1d\u00e1, \u017ee i S\u00e1ra mus\u00ed \u00bbchodit\u00ab do \u0161koly, te\u010f za\u010d\u00edn\u00e1 p\u00e1tou t\u0159\u00eddu. U\u010ditelka za n\u00ed doch\u00e1z\u00ed jednou t\u00fddn\u011b na dv\u011b hodiny. Mamince Alen\u011b pom\u00e1h\u00e1 s p\u00e9\u010d\u00ed o dceru tat\u00ednek Radek (40), kter\u00fd ale mus\u00ed rodinu i zabezpe\u010dit, tak\u017ee v\u011bt\u0161ina p\u00e9\u010de o S\u00e1ru z\u016fst\u00e1v\u00e1 na n\u00ed. „Cel\u00fdch t\u011bch 11 let jsem se od n\u00ed prakticky nehnula, mus\u00ed b\u00fdt neust\u00e1le pod dohledem. Nem\u00e1me ani pe\u010dovatelku, bylo by to finan\u010dn\u011b n\u00e1ro\u010dn\u00e9. I jej\u00ed star\u0161\u00ed sestra Nat\u00e1lka by se pro ni rozdala. Sv\u016fj \u017eivot nem\u00e1m, \u017eiji ten S\u00e1rin\u010din,“ tvrd\u00ed Alena Kali\u0161ov\u00e1. Mimo domov se S\u00e1ra kv\u016fli p\u0159\u00edstroj\u016fm dostane jen v\u00fdjime\u010dn\u011b. A\u017e ned\u00e1vno se j\u00ed splnilo velk\u00e9 p\u0159\u00e1n\u00ed a v Praze nav\u0161t\u00edvila muzik\u00e1l Ledov\u00e9 kr\u00e1lovstv\u00ed. Jej\u00edm snem je n\u00e1v\u0161t\u011bva Disneylandu. „Mus\u00edme ale po\u010d\u00edtat s nejhor\u0161\u00edm, proto se sna\u017e\u00edme u\u017e\u00edt si spole\u010dn\u011b ka\u017edou minutu,“ \u0159\u00edk\u00e1 maminka.<\/p>\n
Aha!<\/p>\n","protected":false},"excerpt":{"rendered":"
HRU\u0160OVANY NAD JEVI\u0160OVKOU \u2013 S\u00e1\u0159e Kali\u0161ov\u00e9 (11) d\u00e1vali l\u00e9ka\u0159i maxim\u00e1ln\u011b p\u00e1r m\u011bs\u00edc\u016f \u017eivota. D\u00edky p\u00e9\u010di sv\u00e9 rodiny u\u017e ale d\u00edvka oslavila jeden\u00e1ct\u00e9 narozeniny. A sn\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-26284","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/26284","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=26284"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/26284\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=26284"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=26284"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=26284"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}