{"id":26320,"date":"2016-09-07T10:11:49","date_gmt":"2016-09-07T08:11:49","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=26320"},"modified":"2016-09-07T10:11:49","modified_gmt":"2016-09-07T08:11:49","slug":"drsnaci-na-nablyskanych-masinach-absolvovali-4-vyjizdku-pro-matyska","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=26320","title":{"rendered":"Drs\u0148\u00e1ci na nabl\u00fdskan\u00fdch ma\u0161in\u00e1ch absolvovali 4. vyj\u00ed\u017e\u010fku pro Mat\u00fdska"},"content":{"rendered":"

Charitativn\u00ed akce motork\u00e1\u0159\u016f z Drou\u017ekovic p\u0159inesla na Konto Mat\u00fdsek tu\u010dn\u00fd obnos<\/strong> <\/p>\n

Drou\u017ekovice \u2013 Po \u010dtvrt\u00e9 za sebou se do mal\u00e9 obce na Chomutovsku sjeli v sobotu motork\u00e1\u0159i z bl\u00edzk\u00e9ho i vzd\u00e1len\u00e9ho okol\u00ed. Hlavn\u00edm c\u00edlem srazu motork\u00e1\u0159\u016f s image drs\u0148\u00e1k\u016f a rebel\u016f v\u0161ak nebyla z\u00e1bava spojen\u00e1 se siln\u00fdmi \u0159e\u010dmi, big beatem a jinde nev\u00eddan\u00fdm sout\u011b\u017een\u00edm.<\/p>\n

V\u0161ichni do Drou\u017ekovic p\u0159ijeli pomoc nemocn\u00e9mu Mat\u00fdskovi, kter\u00fd trp\u00ed z\u00e1ke\u0159nou svalovou dystrofi\u00ed.<\/p>\n

„Ne\u0159eknu v\u00e1m to \u00fapln\u011b p\u0159esn\u011b, ale bylo tu 212 motorek. Ne ka\u017ed\u00fd p\u0159ijel s\u00e1m, tak\u017ee je\u0161t\u011b spolujezdci. To je hodn\u011b hojn\u00e1 \u00fa\u010dast,“ sd\u011blil Chomutovsk\u00e9mu den\u00edku za m\u00edstn\u00ed motork\u00e1\u0159e alias Blbouny Marek Medv\u00eddek Gaier, kter\u00fd 4. Vyj\u00ed\u017e\u010fku pro Mat\u00fdska zorganizoval. Sjeli se sem z r\u016fzn\u00fdch m\u00edst \u010cesk\u00e9 republiky. „Dorazili kamar\u00e1di z Plzn\u011b, Karlov\u00fdch Var\u016f, \u00dast\u00ed nad Labem a dal\u0161\u00edch m\u00edst,“ liboval si Gaier.<\/p>\n

Jen na dobrovoln\u00e9m vstupn\u00e9m se poda\u0159ilo vybrat p\u0159es 56 000 korun. Akce uk\u00e1zala, \u017ee pod drsnou slupkou \u00fa\u010dastn\u00edk\u016f bije nejedno u\u0161lechtil\u00e9 srdce.<\/p>\n

Akce byla ur\u010dena jak vyznava\u010d\u016fm jednostop\u00fdch stroj\u016f, tak \u0161irok\u00e9 ve\u0159ejnosti. V\u0161ichni si tu spole\u010dn\u011b u\u017e\u00edvali hudby, o kterou se staraly kapely Covers for Lovers, Soul Keeper, Marry B, Black Eve, Normal, Vl\u00e1\u010fa \u0160afr\u00e1nek a Modr\u00fd Kohout \u010di Blues Jim. T\u0159e\u0161ni\u010dkou na dortu vyda\u0159en\u00e9 akce pak bylo vystoupen\u00ed Jirky \u017d\u00e1ka a jeho Zak’s teamu.<\/p>\n

P\u0159isp\u011bt na konto pro Mat\u00fdska bylo mo\u017en\u00e9 nejen zaplacen\u00edm dobrovoln\u00e9ho vstupu, ale i dal\u0161\u00ed formou. „P\u0159ipravili jsme dra\u017ebu kytary kterou v\u011bnoval jeden z muzikant\u016f a tak\u00e9 jsme na p\u00f3diu p\u0159eb\u00edrali ob\u00e1lky od individu\u00e1ln\u00edch d\u00e1rc\u016f,“ doplnil Gaier.<\/p>\n

Celkovou sumu v\u0161ak organiz\u00e1to\u0159i je\u0161t\u011b nestihli spo\u010d\u00edtat.<\/p>\n

N\u00e1v\u0161t\u011bvn\u00edci si na m\u00edst\u011b mohli kupovat r\u016fzn\u00e9 p\u0159edm\u011bty a t\u00edm tak\u00e9 na konto p\u0159isp\u011bt. Motork\u00e1\u0159i hodlaj\u00ed v obdobn\u00fdch akc\u00edch pokra\u010dovat. Tentokr\u00e1t \u0161el ve\u0161ker\u00fd v\u00fdt\u011b\u017eek Mat\u00fdskovi, ale p\u0159\u00ed\u0161t\u011b cht\u011bj\u00ed motork\u00e1\u0159i pen\u00edze v\u011bnovat i dal\u0161\u00edm takto posti\u017een\u00fdm d\u011btem.<\/p>\n

Na Konto Mat\u00fdsek m\u016f\u017ee p\u0159isp\u011bt kdykoliv ka\u017ed\u00fd. Sledovat jak se s pen\u011bzi hospoda\u0159\u00ed mohou d\u00e1rci na internetu. Konto Mat\u00fdsek vytvo\u0159en\u00e9 jeho rodi\u010di je: 255103335\/ 0300.<\/p>\n

Sb\u00edrka pro d\u011bti posti\u017een\u00e9 svalovou dystrofii-Duchenne Mas je: 0807194379\/0800.<\/p>\n

Onemocn\u011bn\u00ed svalovou dystrofi\u00ed<\/p>\n

Svalov\u00e1 dystrofie je vrozen\u00e9 onemocn\u011bn\u00ed zp\u016fsoben\u00e9 mutac\u00ed genu k\u00f3duj\u00edc\u00edho protein dystrofin. Nemoc je bohu\u017eel smrteln\u00e1, zat\u00edm nel\u00e9\u010diteln\u00e1. Charakteristick\u00e1 je pro DMD stup\u0148uj\u00edc\u00ed se svalov\u00e1 ochablost, kter\u00e1 nejd\u0159\u00edve postihuje nohy a p\u00e1nevn\u00ed svalstvo,pozd\u011bji se roz\u0161i\u0159uje na horn\u00ed kon\u010detiny, krk a d\u00fdchac\u00ed svaly. Prvn\u00ed p\u0159\u00edznaky se projevuj\u00ed ji\u017e ve v\u011bku t\u0159\u00ed let. Mezi sedm\u00fdm a\u017e dvan\u00e1ct\u00fdm rokem jsou chlapci upout\u00e1ni na invalidn\u00ed voz\u00edk. D\u00e9lka do\u017eit\u00ed chlapc\u016f se pohybuje kolem dvaceti let. L\u00e9\u010dba doposud neexistuje, lze pouze zpomalit progresi, p\u0159\u00edpadn\u011b odd\u00e1lit n\u00e1stup nemoci rehabilitacemi, mas\u00e1\u017eemi a potravinov\u00fdmi dopl\u0148ky.<\/p>\n

JAROSLAV PR\u016e\u0160A
\nChomutovsk\u00fd den\u00edk
\nhttp:\/\/www.chomutovsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Charitativn\u00ed akce motork\u00e1\u0159\u016f z Drou\u017ekovic p\u0159inesla na Konto Mat\u00fdsek tu\u010dn\u00fd obnos<\/p>\n<\/div>","protected":false},"author":1,"featured_media":259,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-26320","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/26320","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=26320"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/26320\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/259"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=26320"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=26320"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=26320"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}