{"id":26558,"date":"2016-10-12T16:01:06","date_gmt":"2016-10-12T14:01:06","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=26558"},"modified":"2016-10-12T16:01:06","modified_gmt":"2016-10-12T14:01:06","slug":"beh-za-novym-usmevem-dolni-ujezd-bezi-pro-klarku","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=26558","title":{"rendered":"B\u011bh za nov\u00fdm \u00fasm\u011bvem: Doln\u00ed \u00dajezd b\u011b\u017e\u00ed pro Kl\u00e1rku"},"content":{"rendered":"

Drobn\u00e1 hol\u010di\u010dka sed\u00ed na aut\u00ed\u010dku, ob\u010das se \u0161ibalsky usm\u011bje\u2026 Jsou j\u00ed dva roky, vypad\u00e1 \u0161\u0165astn\u011b, ale jej\u00ed start do \u017eivota nebyl p\u0159\u00edli\u0161 jednoduch\u00fd. Je to ov\u0161em velk\u00e1 bojovnice a stejn\u011b tak jej\u00ed maminka JANA REJMANOV\u00c1. Kl\u00e1rka se narodila s roz\u0161t\u011bpem rtu, patra a \u010delisti a se syndromem, kter\u00fd zpomaluje jej\u00ed v\u00fdvoj.<\/strong><\/p>\n

Doln\u00ed \u00dajezd \u2013 „\u017divot s roz\u0161t\u011bpov\u00fdm d\u00edt\u011btem je \u00fapln\u011b norm\u00e1ln\u00ed,“ \u0159\u00edk\u00e1 maminka Jana. Nyn\u00ed pom\u00e1h\u00e1 rodi\u010d\u016fm podobn\u011b nemocn\u00fdch d\u011bt\u00ed a po\u0159\u00e1d\u00e1 i B\u011bh za nov\u00fdm \u00fasm\u011bvem. Pro roz\u0161t\u011bpov\u00e9 d\u011bti se b\u011b\u017e\u00ed v Doln\u00edm \u00dajezdu v sobotu 15. \u0159\u00edjna v 10 hodin.<\/p>\n

B\u011bh v Doln\u00edm \u00dajezdu: sobota 15. \u0159\u00edjna \u2013 registrace v 9.30 hodin, start v 10 hodin, are\u00e1l dobrovoln\u00fdch hasi\u010d\u016f za koupali\u0161t\u011bm<\/p>\n

– Jak jste se dostala k organizaci Za nov\u00fdm \u00fasm\u011bvem, s n\u00ed\u017e b\u011bh po\u0159\u00e1d\u00e1te?<\/p>\n

Dostali jsme se k nim d\u00edky na\u0161\u00ed nejmlad\u0161\u00ed dce\u0159i Kl\u00e1rce, kter\u00e1 se narodila s celkov\u00fdm roz\u0161t\u011bpem rtu, patra a \u010delisti. Pr\u00e1v\u011b tato organizace se touto problematikou zab\u00fdv\u00e1.<\/p>\n

– Uspo\u0159\u00e1dat b\u011bh i v Doln\u00edm \u00dajezdu byla va\u0161e iniciativa?<\/p>\n

P\u0159\u00edmo moje ne. Ka\u017ed\u00fd rok jezd\u00edme na setk\u00e1n\u00ed rodin, kter\u00e9 maj\u00ed roz\u0161t\u011bpov\u00e9 d\u011bti, a tam se n\u00e1pad zrodil.<\/p>\n

– B\u011bh se kon\u00e1 na n\u011bkolika m\u00edstech v \u010cesk\u00e9 republice, ale \u00dajezd je nejmen\u0161\u00ed zapojenou obc\u00ed.<\/p>\n

Sice je podzim, ale ta my\u0161lenka uspo\u0159\u00e1dat b\u011bh m\u011b hrozn\u011b nadchla. P\u0159em\u00fd\u0161lela jsem, jestli to v\u016fbec ud\u011blat tady, je\u0161t\u011b jsem toti\u017e uva\u017eovala o Litomy\u0161li. Ale pak jsem si \u0159ekla, pro\u010d bychom to nezkusili i tady. Hrozn\u011b mile mne p\u0159ekvapilo, jak se o to lid\u00e9 za\u010dali zaj\u00edmat a hl\u00e1s\u00ed se. Vytvo\u0159ila jsem ud\u00e1lost na Facebooku a do dvou dn\u016f se n\u00e1m p\u0159ihl\u00e1silo v\u00edce lid\u00ed ne\u017e v n\u011bkter\u00fdch velk\u00fdch m\u011bstech.<\/p>\n

– Je datum 15. \u0159\u00edjen n\u011bjak specifick\u00e9?<\/p>\n

Nen\u00ed, je to n\u00e1hodn\u011b vybran\u00e9. \u0158\u00edjen vyhl\u00e1silo na\u0161e sdru\u017een\u00ed jako m\u011bs\u00edc obecn\u00e9ho pov\u011bdom\u00ed o roz\u0161t\u011bpov\u00e9 problematice.<\/p>\n

– Trasy m\u00e1te t\u0159i a mysl\u00edte i na rodiny s d\u011btmi.<\/p>\n

Trasy maj\u00ed jeden, t\u0159i a deset kilometr\u016f. Prvn\u00ed dv\u011b daj\u00ed v pohod\u011b i rodiny s ko\u010d\u00e1rky. Desetikilometrov\u00e1 trasa je pro velk\u00e9 nad\u0161ence, co si cht\u011bj\u00ed prot\u00e1hnout t\u011blo a opravdu si zab\u011bhat.<\/p>\n

– Co je c\u00edlem b\u011bhu?<\/p>\n

My\u0161lenkou je osv\u011bta roz\u0161t\u011bpov\u00e9 problematiky u d\u011bt\u00ed. Chceme se dostat v\u00edce do pov\u011bdom\u00ed lid\u00ed. Ten, kdo se v budoucnu dostane do podobn\u00e9 situace jako my, aby se m\u011bl na koho obr\u00e1tit a neztr\u00e1cel hlavu, \u017ee je v\u0161echno \u0161patn\u011b.<\/p>\n

– Jste ve sdru\u017een\u00ed aktivn\u00ed a pom\u00e1h\u00e1te rodi\u010d\u016fm roz\u0161t\u011bpov\u00fdch d\u011bt\u00ed?<\/p>\n

Stala jsem se \u010dlenkou, vydali jsme speci\u00e1ln\u00ed bro\u017eurku o p\u00e9\u010di o d\u00edt\u011b s roz\u0161t\u011bpem. Tam je na m\u011b kontakt pro rodi\u010de z okol\u00ed, kte\u0159\u00ed by se ocitli ve stejn\u00e9 situaci. Jsem ochotn\u00e1 jim poskytnout informace, \u0159\u00edci, co to v\u0161echno obn\u00e1\u0161\u00ed.<\/p>\n

– Zaj\u00edmala jste se o toto onemocn\u011bn\u00ed je\u0161t\u011b p\u0159ed narozen\u00edm Kl\u00e1rky?<\/p>\n

My jsme ani nev\u011bd\u011bli, \u017ee budeme m\u00edt d\u00edt\u011b s roz\u0161t\u011bpem. D\u00e1 se \u0159\u00edci, \u017ee jsme do toho sko\u010dili tak n\u011bjak po hlav\u011b. A i k organizaci jsem se dostala n\u00e1hodou. Jedna maminka mi \u0159\u00edkala, \u017ee potkala tat\u00ednka s roz\u0161t\u011bpov\u00fdm d\u00edt\u011btem, setkali jsme se s nimi a on zm\u00ednil i toto sdru\u017een\u00ed. V \u010cech\u00e1ch jsou dv\u011b roz\u0161t\u011bpov\u00e1 centra, a to Praha a Brno.<\/p>\n

– Jedn\u00e1 se o \u010dastou vadu, s n\u00ed\u017e se d\u011bti rod\u00ed?<\/p>\n

Pr\u016fm\u011brn\u011b se s roz\u0161t\u011bpem narod\u00ed asi 160 d\u011bt\u00ed ro\u010dn\u011b. Je to hodn\u011b, ale je\u0161t\u011b po\u0159\u00e1d p\u0159eva\u017euj\u00ed situace, \u017ee kdy\u017e to rodi\u010de zjist\u00ed u\u017e v t\u011bhotenstv\u00ed, tak pades\u00e1t procent rodi\u010d\u016f vol\u00ed um\u011bl\u00e9 p\u0159eru\u0161en\u00ed. Jenom kv\u016fli roz\u0161t\u011bpu. Chceme uk\u00e1zat, \u017ee l\u00e9\u010dba je efektivn\u00ed a nen\u00ed d\u016fvod jen kv\u016fli roz\u0161t\u011bpu j\u00edt na p\u0159eru\u0161en\u00ed.<\/p>\n

– Pr\u00e1v\u011b, jestli to nen\u00ed \u0161koda ukon\u010dit kv\u016fli tomu t\u011bhotenstv\u00ed. Vid\u011bla jsem hodn\u011b fotografi\u00ed d\u011bt\u00ed p\u0159ed a po operaci a nen\u00ed to na nich moc vid\u011bt. Nakonec ani na va\u0161\u00ed Kl\u00e1rce to nen\u00ed zn\u00e1t.<\/p>\n

A nav\u00edc \u010cesk\u00e1 republika se je\u0161t\u011b py\u0161n\u00ed t\u00edm, \u017ee je na sv\u011btov\u00e9 \u0161pi\u010dce v l\u00e9\u010db\u011b. Prvn\u00ed operace rtu se tady prov\u00e1d\u00ed do \u010dtrn\u00e1cti dn\u00ed po narozen\u00ed. V tu dobu m\u00e1 k\u016f\u017ee novorozence je\u0161t\u011b schopnost prenat\u00e1ln\u00edho \u017eivota, tak\u017ee se jizvy l\u00e9pe hoj\u00ed, vst\u0159eb\u00e1vaj\u00ed a kolikr\u00e1t to nen\u00ed ani vid\u011bt.<\/p>\n

– Jak\u00fd je \u017eivot s d\u00edt\u011btem, kter\u00e9 m\u00e1 roz\u0161t\u011bp?<\/p>\n

\u00dapln\u011b norm\u00e1ln\u00ed, je to jen o n\u011bkolik \u00fakon\u016f nav\u00edc ne\u017e u zdrav\u00e9ho d\u00edt\u011bte. Po narozen\u00ed je pot\u0159eba jizvu o\u0161et\u0159ovat, nasazovat speci\u00e1ln\u00ed hadi\u010dky\u2026 Nen\u00ed to ale z\u00e1le\u017eitost na dlouho.<\/p>\n

– Jak p\u0159ijali Kl\u00e1rku star\u0161\u00ed sourozenci?<\/p>\n

Mysl\u00edm, \u017ee t\u00edm, \u017ee my jsme to nev\u011bd\u011bli, tak to bylo hodn\u011b t\u011b\u017ek\u00e9. Tu\u0161ili, \u017ee je n\u011bco \u0161patn\u011b s Kl\u00e1rkou. Mysl\u00edm ale, \u017ee nyn\u00ed u\u017e si jej\u00ed vadu ani neuv\u011bdomuj\u00ed.<\/p>\n

– Zm\u011bnil se v\u00e1m hodn\u011b \u017eivot s Kl\u00e1rkou?<\/p>\n

V\u00e1\u017e\u00edme si mali\u010dkost\u00ed, kter\u00fdch bychom si d\u0159\u00edve nev\u0161imli, kter\u00e9 jsme jen p\u0159ech\u00e1zeli.<\/p>\n

– Co v\u00e1m jej\u00ed onemocn\u011bn\u00ed dalo?<\/p>\n

Pohybujeme se trochu mezi jin\u00fdmi lidmi. A sna\u017e\u00edme se dr\u017eet nad vodou rodi\u010de, kte\u0159\u00ed dojdou do stejn\u00e9 situace.<\/p>\n

– Pro Kl\u00e1rku se nyn\u00ed nav\u00edc sb\u00edraj\u00ed v\u00ed\u010dka. Pro\u010d a kam mohou lid\u00e9 v\u00ed\u010dka nosit?<\/p>\n

N\u011bkdy se toti\u017e stane, \u017ee roz\u0161t\u011bp je sou\u010d\u00e1st\u00ed n\u011bjak\u00e9ho syndromu. Stejn\u011b jako u na\u0161\u00ed Kl\u00e1rky. Narodila se toti\u017e se syndromem, kter\u00fd hodn\u011b zpomaluje jej\u00ed v\u00fdvoj. Nedok\u00e1\u017ee v\u0161echno, co um\u00ed jej\u00ed vrstevn\u00edci. Aby jej\u00ed posti\u017een\u00ed bylo zn\u00e1t co nejm\u00e9n\u011b, tak se sna\u017e\u00edme jezdit na r\u016fzn\u00e9 rehabilitace, na hippoterapii a ono to i finan\u010dn\u011b n\u011bco stoj\u00ed. Taky m\u00e1 speci\u00e1ln\u00ed v\u00fd\u017eivu, aby m\u011bla dostatek energie. Proto sb\u00edr\u00e1me v\u00ed\u010dka a sh\u00e1n\u00edme pen\u00edze. V\u00ed\u010dka se sb\u00edraj\u00ed hlavn\u011b v Doln\u00edm \u00dajezdu ve \u0161kole a ve \u0161kolce, v DPS a na dal\u0161\u00edch m\u00edstech. A mimo Doln\u00ed \u00dajezd n\u00e1m pom\u00e1haj\u00ed v Poli\u010dce na Z\u0160 Na Luk\u00e1ch, v Cerekvici nad Lou\u010dnou na z\u00e1kladn\u00ed \u0161kole a u hasi\u010d\u016f v Bu\u010din\u011b. Sb\u00edrka zat\u00edm potrv\u00e1 do konce \u010dervna p\u0159\u00ed\u0161t\u00edho roku.<\/p>\n

IVETA N\u00c1DVORN\u00cdKOV\u00c1
\nOrlick\u00fd den\u00edk
\nhttp:\/\/orlicky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Drobn\u00e1 hol\u010di\u010dka sed\u00ed na aut\u00ed\u010dku, ob\u010das se \u0161ibalsky usm\u011bje\u2026 Jsou j\u00ed dva roky, vypad\u00e1 \u0161\u0165astn\u011b, ale jej\u00ed start do \u017eivota nebyl p\u0159\u00edli\u0161 jednoduch\u00fd. Je to […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":22010,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-26558","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/26558","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=26558"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/26558\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/22010"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=26558"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=26558"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=26558"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}