Nikdy nechodila ani nemluvila a nikdy ani nebude. Zdravotn\u00ed stav Julinky (15) se den ode dne zhor\u0161uje. Podle smutn\u00e9 progn\u00f3zy l\u00e9ka\u0159\u016f na V\u00e1noce u\u017e nem\u011bla b\u00fdt mezi \u017eiv\u00fdmi, p\u0159esto sv\u00e1tky pro\u017eila se svoj\u00ed rodinou. Ka\u017ed\u00fd den ale m\u016f\u017ee b\u00fdt pro usm\u011bvavou hol\u010di\u010dku posledn\u00edm.<\/p>\n
Julinka se narodila bez svalstva a s po\u0161kozen\u00fdm mozkem. D\u00fdch\u00e1 jenom d\u00edky p\u0159\u00edstroji, napojen\u00e9mu p\u0159\u00edmo do krku. Nem\u016f\u017ee ani j\u00edst, potravu p\u0159ij\u00edm\u00e1 skrz hadi\u010dku. Rodina mus\u00ed neust\u00e1le zvlh\u010dovat vzduch, aby se d\u00edvka neudusila.<\/p>\n
State\u010dn\u00e1 m\u00e1ma<\/p>\n
„Milujeme ji. Je skv\u011bl\u00e9, \u017ee m\u00e1me dcerku doma, jen nev\u00edme, na jak dlouho… Jej\u00ed diagn\u00f3za je ne\u00faprosn\u00e1. Na V\u00e1noce tu u\u017e podle l\u00e9ka\u0159\u016f b\u00fdt nem\u011bla,“ se slzami v o\u010d\u00edch \u0159\u00edk\u00e1 maminka hol\u010di\u010dky Jana Rosypkov\u00e1 (48) z Hav\u00ed\u0159ova. Julinku je pot\u0159eba hl\u00eddat 24 hodin denn\u011b. „Je v posledn\u00edm stadiu nemoci. M\u00e1 centr\u00e1ln\u00ed hypotonii, od narozen\u00ed po\u0161kozenou hemisf\u00e9ru v mozku. Pl\u00edci m\u00e1 funk\u010dn\u00ed jednu, m\u00e1 epilepsii… Ale kdy\u017e se usm\u011bje, na v\u0161echno zapom\u00edn\u00e1me,“ dodala.<\/p>\n
Pot\u0159ebuj\u00ed pen\u00edze<\/p>\n
I l\u00e9ka\u0159i potvrzuj\u00ed, \u017ee pokud se Julinka usm\u00edv\u00e1, je na sv\u011bt\u011b r\u00e1da a netrp\u00ed z\u00e1va\u017enou bolest\u00ed. Rodin\u011b se ale nyn\u00ed nedost\u00e1vaj\u00ed pen\u00edze. „Nikdy jsme nikoho o nic neprosili. Ale Julinku nem\u016f\u017eeme vz\u00edt ven, neud\u00fdchala by to. Proto sh\u00e1n\u00edme zvlh\u010dova\u010d vzduchu, na koup\u00e1n\u00ed do vany pot\u0159ebuje leh\u00e1tko. Stoj\u00ed 20 tis\u00edc, poji\u0161\u0165ovna hrad\u00ed p\u011bt tis\u00edc,“ uvedla maminka.<\/p>\n
Ply\u0161\u00e1ci a poh\u00e1dky U\u010ditelka chod\u00ed Julince \u010d\u00edst poh\u00e1dky jednou t\u00fddn\u011b. Julinka trp\u011bliv\u011b poslouch\u00e1 a tak jako jin\u00e9 d\u011bti se raduje z ka\u017ed\u00e9ho vyslechnut\u00e9ho p\u0159\u00edb\u011bhu. V ruce p\u0159itom dr\u017e\u00ed Julinka obl\u00edben\u00e9ho ply\u0161\u00e1ka.<\/p>\n
Kdo pom\u016f\u017ee? L\u00e9\u010dba t\u011b\u017ece zdravotn\u011b posti\u017een\u00e9 Julinky je n\u00e1ro\u010dn\u00e1 nejen psychicky, t\u00e9\u017e finan\u010dn\u011b. Zdravotn\u00ed poji\u0161\u0165ovna nepropl\u00e1c\u00ed ve\u0161ker\u00e9 pom\u016fcky a l\u00e9ky, kter\u00e9 pot\u0159ebuje. Pokud chcete pomoci, pi\u0161te na aha@aha.cz.<\/p>\n
Aha!<\/p>\n","protected":false},"excerpt":{"rendered":"
Nikdy nechodila ani nemluvila a nikdy ani nebude. Zdravotn\u00ed stav Julinky (15) se den ode dne zhor\u0161uje. Podle smutn\u00e9 progn\u00f3zy l\u00e9ka\u0159\u016f na V\u00e1noce u\u017e nem\u011bla […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14569,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-27002","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27002","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27002"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27002\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14569"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27002"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27002"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27002"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}