\u017dENA D\u00c1V\u00c1 NAD\u011aJI D\u011aTEM, JIM\u017d SUDI\u010cKY NENAD\u011aLILY DLOUH\u00dd \u017dIVOT
\nTeprve se narodila. Jen\u017ee trp\u00ed vadami, kv\u016fli kter\u00fdm maj\u00ed p\u0159ed sebou jen p\u00e1r let \u017eivota. Osud je k nim a k jejich rodi\u010d\u016fm krut\u00fd. Ameri\u010danka Cori Salchertov\u00e1 (51) se sna\u017e\u00ed jejich tr\u00e1pen\u00ed alespo\u0148 trochu zm\u00edrnit.<\/p>\n
Dvoulet\u00fd Charlie le\u017e\u00ed v post\u00fdlce.
\nKolem krku mu vedou modr\u00e9 trubice, v pokoj\u00ed\u010dku je sly\u0161et zvuk bzu\u010d\u00edc\u00edho ventil\u00e1toru. D\u00fdch\u00e1 za pomoci p\u0159\u00edstroj\u016f. Narodil se s po\u0161kozen\u00edm mozku a mnoho \u010dasu mu nezb\u00fdv\u00e1. Odpo\u010d\u00edv\u00e1 v dom\u011b Cori Salchertov\u00e9 ve m\u011bst\u011b Sheboygan ve Wisconsinu, nikoli u sv\u00fdch rodi\u010d\u016f.
\nTi toti\u017e \u010dasto po nemilosrdn\u00e9m verdiktu l\u00e9ka\u0159\u016f utrp\u00ed \u0161ok a nedok\u00e1\u017eou se o d\u00edt\u011b, kter\u00e9 se narod\u00ed s n\u011bjakou t\u011b\u017ekou vadou, v posledn\u00edch dnech jeho \u017eivota starat. Neunesou pohled na to, jak jejich d\u00edt\u011b um\u00edr\u00e1…
\nCori Salchertov\u00e1, je\u017e je mimochodem matkou osmi d\u011bt\u00ed, je b\u00fdval\u00e1 zdravotn\u00ed sestra z prenat\u00e1ln\u00edho odd\u011blen\u00ed a podobn\u00fdm p\u0159\u00edb\u011bh\u016fm byla v\u017edy bl\u00edzko.
\nPro\u017e\u00edvala bolest takto posti\u017een\u00fdch rodin a p\u0159em\u00fd\u0161lela, co v\u00edce by mohla je\u0161t\u011b ud\u011blat. P\u0159ed \u010dasem se rozhodla, \u017ee ve sv\u00e9m dom\u011b vytvo\u0159\u00ed za\u0159\u00edzen\u00ed na zp\u016fsob hospicu.
\n– NEP\u0158\u00cdZE\u0147 OSUDU NEOVLIVN\u00cdM, ALE MUS\u00cdM POMOCT!<\/p>\n
Cori m\u00e1 pro rodi\u010dovsk\u00e9 „odlo\u017een\u00ed“ nevyl\u00e9\u010diteln\u00fdch d\u011bt\u00ed pochopen\u00ed i d\u00edky zku\u0161enosti z vlastn\u00ed rodiny. Kdy\u017e byla mal\u00e1, jej\u00ed mlad\u0161\u00ed sest\u0159i\u010dka Arnie prod\u011blala meningitidu. Nemoc u n\u00ed zp\u016fsobila z\u00e1n\u011bt mozku a velk\u00e9 po\u0161kozen\u00ed nervov\u00e9 soustavy. Rodi\u010de n\u00e1ro\u010dnou p\u00e9\u010di o Arnie nezvl\u00e1dali, a tak ji um\u00edstili do d\u011btsk\u00e9ho pe\u010dovatelsk\u00e9ho domu. Odtud ale d\u00edvenka v 11 letech utekla a utonula v nedalek\u00e9m rybn\u00edku.
\n„Od t\u00e9 doby jsem se tr\u00e1pila ot\u00e1zkou, kde byl B\u016fh, kdy\u017e ho moje sestra nejv\u00edce pot\u0159ebovala?“ uvedla Cori v rozhovoru pro server Today.com. „U\u017e\u00edrala jsem se bolest\u00ed a po\u0159\u00e1d jen p\u0159em\u00fd\u0161lela. Pak jsem se dostala do f\u00e1ze, kdy m\u011b cosi utvrdilo, \u017ee prosp\u011b\u0161n\u011bj\u0161\u00ed bude, kdy\u017e pom\u016f\u017eu lidem v nouzi. I proto jsem se stala zdravotn\u00ed sestrou.“
\nCoby zdravotnice se za\u010dala setk\u00e1vat s mnoha smutn\u00fdmi p\u0159\u00edb\u011bhy. Nejprve pracovala v hospicov\u00e9 p\u00e9\u010di, pozd\u011bji se dostala na novorozeneck\u00e9 odd\u011blen\u00ed. A\u017e zde si naplno uv\u011bdomila, \u017ee um\u00edr\u00e1n\u00ed se zdaleka net\u00fdk\u00e1 jen lid\u00ed ve vysok\u00e9m v\u011bku. Za\u010dala se anga\u017eovat v organizaci s n\u00e1zvem Hope after Loss (Nad\u011bje po ztr\u00e1t\u011b). Tou dobou ale za\u010dala sama z\u00e1pasit s v\u00e1\u017en\u00fdmi zdravotn\u00edmi probl\u00e9my \u2013 prod\u011blala n\u011bkolik autoimunitn\u00edch onemocn\u011bn\u00ed, kter\u00e1 ji na dlouho upoutala na l\u016f\u017eko.
\n– HOL\u010cI\u010cKA BEZE JM\u00c9NA I BEZ NAD\u011aJE<\/p>\n
Kdy\u017e nabrala s\u00edlu, obr\u00e1tili se na ni pracovn\u00edci porodnice, zda by se nemohla postarat o dvout\u00fddenn\u00ed d\u00edvenku se \u0161patnou progn\u00f3zou. Narodila se bez lev\u00e9 hemisf\u00e9ry mozku a l\u00e9ka\u0159i potvrdili, \u017ee nem\u00e1 \u0161anci na z\u00e1chranu. „Bylo mi \u0159e\u010deno, \u017ee je ve vegetativn\u00edm stavu,“ popsala Salchertov\u00e1. „Nevid\u011bla ani nesly\u0161ela a pouze reagovala na bolestiv\u00e9 podn\u011bty. Nechala jsem ji p\u0159ev\u00e9zt k sob\u011b dom\u016f a pojmenovala ji Emmalynn.
\nBylo to kr\u00e1sn\u00e9 d\u00edt\u011b a j\u00e1 c\u00edtila, \u017ee j\u00ed i zbyl\u00fdch p\u00e1r dn\u016f \u017eivota m\u016f\u017eu proz\u00e1\u0159it, \u017ee nebude sama. Jinak by zem\u0159ela v nemocnici, zabalen\u00e1 do deky v poloze na boku, proto\u017ee byla trvale napojena na p\u0159\u00edstroj. A hlavn\u011b, byla by opu\u0161t\u011bn\u00e1.“ Emmalynn \u017eila v\u00edce ne\u017e 50 dn\u016f. Man\u017eel a d\u011bti pan\u00ed Salchertov\u00e9 j\u00ed poskytly rodinu, st\u0159\u00eddav\u011b o ni pe\u010dovali. I kdy\u017e je t\u011b\u017ek\u00e9 soudit, nakolik nemocn\u00e9 miminko vn\u00edmalo sv\u011bt, dali j\u00ed, co mohli.
\n„M\u00e1 dev\u00edtilet\u00e1 dcera ji \u010dasto r\u00e1da chovala, brala ji s sebou a hladila. Pak jsme vyc\u00edtili, \u017ee se bl\u00ed\u017e\u00ed jej\u00ed konec. Sl\u00e1bnul j\u00ed dech, celkov\u011b byla slab\u0161\u00ed ne\u017e d\u0159\u00edv.
\nV\u0161ichni ji hladili, dr\u017eeli za ru\u010di\u010dku a zp\u00edvali. Kdy\u017e se s n\u00ed man\u017eel a m\u00e9 dcery rozlou\u010dili, se slzami v o\u010d\u00edch \u0161li do sv\u00fdch pokoj\u016f a j\u00e1 s Emmalynn z\u016fstala u\u017e jen sama. V \u017eupanu jsem ji tiskla na hrudi a c\u00edtila, jak odch\u00e1z\u00ed. A kdy\u017e to kr\u00e1sn\u00e9 stvo\u0159en\u00ed nav\u017edy opustilo tento sv\u011bt, moc to bolelo. Ale j\u00e1 v\u011bd\u011bla, \u017ee do posledn\u00ed chv\u00edle sly\u0161ela m\u016fj tep. Netrp\u011bla a rozhodn\u011b nebyla sama.“
\nV ten okam\u017eik si Cori naplno uv\u011bdomila smysl sv\u00e9ho po\u010d\u00edn\u00e1n\u00ed. V \u0159\u00edjnu 2014 se ujala \u010dty\u0159m\u011bs\u00ed\u010dn\u00edho chlape\u010dka, v \u00favodu zm\u00edn\u011bn\u00e9ho Charlieho. Kv\u016fli po\u0161kozen\u00ed mozku mu l\u00e9ka\u0159i d\u00e1vali \u0161ance tak dva roky \u017eivota. Ty zat\u00edm p\u0159e\u010dkal, co\u017e dokl\u00e1d\u00e1 video, kter\u00e9 Cori v lednu um\u00edstila na Facebooku a na kter\u00e9m s d\u00edt\u011btem v n\u00e1ru\u010di p\u0159eje Nov\u00fd rok. P\u0159ed V\u00e1nocemi Charlie zesl\u00e1bl, proto\u017ee prod\u011blal virov\u00e9 onemocn\u011bn\u00ed. L\u00e1ska, kterou mu ob\u011btav\u00e1 \u017eena dop\u0159\u00e1v\u00e1, mu ale bezpochyby dod\u00e1v\u00e1 s\u00edlu… *<\/p>\n
Um\u00edraj\u00edc\u00ed dvoj\u010de dojalo soci\u00e1ln\u00ed s\u00edt\u011b Loni po\u010d\u00e1tkem z\u00e1\u0159\u00ed sv\u011bt oblet\u011bla fotografie novorozen\u00fdch dvoj\u010dat, z nich\u017e jednomu l\u00e9ka\u0159i zjistili vz\u00e1cn\u00e9 smrteln\u00e9 onemocn\u011bn\u00ed, tzv. kongenit\u00e1ln\u00ed br\u00e1ni\u010dn\u00ed k\u00fdlu. Chlape\u010dkovi se voln\u011b p\u0159esouvaly org\u00e1ny z b\u0159\u00ed\u0161ka do hrudn\u00edku a l\u00e9ka\u0159i mu ned\u00e1vali \u017e\u00e1dn\u00e9 nad\u011bje. V tomto p\u0159\u00edpad\u011b byli rodi\u010de u um\u00edraj\u00edc\u00edho d\u00edt\u011bte a\u017e do konce. Pot\u00e9 zve\u0159ejnili dojemnou fotografi i, kdy druh\u00fd novorozenec um\u00edraj\u00edc\u00edho br\u00e1\u0161ku na moment jakoby obejmul pot\u00e9, co ho maminka p\u0159ilo\u017eila k dvoj\u010deti. Na Facebooku vznikla str\u00e1nka speci\u00e1ln\u011b v\u011bnovan\u00e1 t\u011bmto dv\u011bma novorozen\u00fdm chlapc\u016fm.<\/p>\n
KDO DNES POM\u00c1H\u00c1?<\/p>\n
– Nejv\u00edce perinat\u00e1ln\u00edch hospicov\u00fdch program\u016f je v USA, a to kolem 160. Vznikaj\u00ed \u010dasto z iniciativy jedn\u00e9 osoby nebo jedn\u00e9 rodiny, kter\u00e1 ztr\u00e1tu d\u00edt\u011bte pro\u017eila. Nejde p\u0159itom o konkr\u00e9tn\u00ed odd\u011blen\u00ed \u010di budovu, ale pouze o program p\u00e9\u010de, kter\u00fd je poskytov\u00e1n v hospici, porodnici, d\u011btsk\u00e9 nemocnici nebo v dom\u00e1c\u00edm prost\u0159ed\u00ed.<\/p>\n
– Jen V USA ro\u010dn\u011b zem\u0159e kolem 26 000 d\u011bt\u00ed v perinat\u00e1ln\u00edm obdob\u00ed (obdob\u00ed od 22. t\u00fddne t\u011bhotenstv\u00ed do 7. dnu po porodu).<\/p>\n
– I jinde ve sv\u011bt\u011b u\u017e s\u00edl\u00ed tlak na z\u0159\u00edzen\u00ed tzv. perinat\u00e1ln\u00ed hospicov\u00e9 p\u00e9\u010de. V Evrop\u011b existuje 14 program\u016f na \u00fazem\u00ed dev\u00edti st\u00e1t\u016f. V Anglii jsou programy t\u0159i, v Irsku tak\u00e9 t\u0159i, dva programy maj\u00ed Norsko a Polsko.<\/p>\n
– V \u010cesk\u00e9 republice v sou\u010dasn\u00e9 dob\u011b nen\u00ed \u017e\u00e1dn\u00e9 speci\u00e1ln\u00ed zdravotnick\u00e9 za\u0159\u00edzen\u00ed, kter\u00e9 by se v\u011bnovalo perinat\u00e1ln\u00ed hospicov\u00e9 p\u00e9\u010di. N\u011bkter\u00fdm d\u011btem, zejm\u00e9na p\u0159ed\u010dasn\u011b narozen\u00fdm, je ale poskytov\u00e1na tzv. paliativn\u00ed p\u00e9\u010de. Ta v p\u0159\u00edpad\u011b pot\u0159eby zajist\u00ed ti\u0161en\u00ed bolesti a l\u00e9\u010dbu nep\u0159\u00edjemn\u00fdch symptom\u016f onemocn\u011bn\u00ed. Nej\u010dast\u011bji pom\u00e1haj\u00ed neonatologick\u00e9 sestry, ale zapojeni jsou i gynekologov\u00e9, porodn\u00edci, porodn\u00ed asistentky, genetici, neonatologov\u00e9, pediat\u0159i a psychologov\u00e9.<\/p>\n
(Zdroj: informa\u010dn\u00ed port\u00e1l https:\/\/perinatalnihospic.cz)<\/p>\n
DAVID KALC\u016e
\nKv\u011bty<\/p>\n","protected":false},"excerpt":{"rendered":"
\u017dENA D\u00c1V\u00c1 NAD\u011aJI D\u011aTEM, JIM\u017d SUDI\u010cKY NENAD\u011aLILY DLOUH\u00dd \u017dIVOT<\/p>\n<\/div>","protected":false},"author":1,"featured_media":14128,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-27022","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27022","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27022"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27022\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14128"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27022"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27022"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27022"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}