Video s jeho \u017eivotn\u00edm p\u0159\u00edb\u011bhem sest\u0159i\u017een\u00fdm do dvou minut na internetu zhl\u00e9dlo 19 mili\u00f3n\u016f lid\u00ed. Kan\u00e1l AJ+ zavalily desetitis\u00edce reakc\u00ed a koment\u00e1\u0159\u016f nab\u00edzej\u00edc\u00edch pomoc a vyjad\u0159uj\u00edc\u00edch solidaritu.
\nMuhammadovi je sedm a trp\u00ed vz\u00e1cnou nemoc\u00ed, kv\u016fli n\u00ed\u017e vypad\u00e1 jako sta\u0159ec.<\/p>\n
PROGERIE je velmi vz\u00e1cn\u00e1 nemoc, kter\u00e1, laicky \u0159e\u010deno, zp\u016fsobuje p\u0159ed\u010dasn\u00e9 st\u00e1rnut\u00ed. V\u011bt\u0161ina pacient\u016f se nedo\u017eije v\u00edce ne\u017e 14 let. Jde o genetickou poruchu, je\u017e postihuje jednoho \u010dlov\u011bka z 20 mili\u00f3n\u016f. Ve videu, kter\u00e9 vzbudilo takov\u00fd ohlas, je Muhammadovi p\u0159isouzena pr\u00e1v\u011b tato genetick\u00e1 porucha.
\nU kurdsk\u00e9ho chlapce se symptomy p\u0159ed\u010dasn\u00e9ho st\u00e1rnut\u00ed za\u010daly projevovat ji\u017e v jeho sedmi m\u011bs\u00edc\u00edch.<\/p>\n
\u0160EST AND\u011aL\u016e PRO MUHAMMADA<\/p>\n
Kdy\u017e Muhammad na videu \u0159\u00edk\u00e1, \u017ee by cht\u011bl b\u00fdt stejn\u011b hezk\u00fd jako ostatn\u00ed d\u011bti, \u010dlov\u011bku je do pl\u00e1\u010de.
\n„Dlouho se mi nestalo, aby m\u011b n\u011bjak\u00e9 video na netu takhle sebralo.
\nNeust\u00e1le se mi v hlav\u011b p\u0159ehr\u00e1vala sc\u00e9na, jak \u0159\u00edk\u00e1, \u017ee by cht\u011bl hlavn\u011b chodit do \u0161koly \u2013 a st\u00e1t se doktorem. Nedalo mi to a za\u010dala jsem hledat mo\u017enosti, jak mu pomoci,“ \u0159\u00edk\u00e1 Radka B\u011blohradov\u00e1, mlad\u00e1 \u017eena z Prahy, je\u017e se pracuje pro softwarov\u00fd startup. Podobn\u011b video zap\u016fsobilo i na Raku\u0161ana Olivera Nattera. „Prost\u011b jsem mu cht\u011bl pomoci. P\u0159es jednoho p\u0159\u00edtele Muham madovy rodiny jsem se s nimi spojil, prob\u011bhly videochaty.
\nMuham mada jsem si zamiloval od prvn\u00ed minuty,“ \u0159\u00edk\u00e1 Natter. V r\u00e1mci \u0161esti\u010dlenn\u00e9 mezin\u00e1rodn\u00ed skupiny se oba sna\u017e\u00ed pro Muhammada zajistit l\u00e9ka\u0159skou p\u00e9\u010di v Evrop\u011b. V Turecku, kde rodina nyn\u00ed \u017eije a kam ze S\u00fdrie ode\u0161la, \u017e\u00e1dn\u00e1 takov\u00e1 p\u00e9\u010de nen\u00ed. Dobrovoln\u00edk\u016fm z Rakouska, It\u00e1lie, USA, ze \u0160v\u00fdcarska a z \u010ceska se poda\u0159ilo spojit se \u0161pi\u010dkov\u00fdmi l\u00e9ka\u0159i, kte\u0159\u00ed se v\u00fdzkumem takto ojedin\u011bl\u00fdch genetick\u00fdch poruch zab\u00fdvaj\u00ed.<\/p>\n
VZ\u00c1CN\u00c9 NE\u0160T\u011aST\u00cd<\/p>\n
„V pr\u016fb\u011bhu ledna se n\u00e1m za\u010dali oz\u00fdvat l\u00e9ka\u0159i, \u017ee Muhammadovy p\u0159\u00edznaky se nepodobaj\u00ed progerii, ale nemoci cutis laxa,“ pokra\u010duje B\u011blohradov\u00e1. Jedn\u00e1 se o dal\u0161\u00ed velice vz\u00e1cn\u00e9 genetick\u00e9 posti\u017een\u00ed pojivov\u00fdch tk\u00e1n\u00ed. K\u016f\u017ee vis\u00ed ve voln\u00fdch z\u00e1hybech a p\u0159edpokl\u00e1d\u00e1 se, \u017ee mus\u00ed b\u00fdt spojena s nedostate\u010dnou tvorbou elastick\u00fdch vl\u00e1ken.
\nNa sv\u011bt\u011b trp\u00ed touto chorobou jen necel\u00fdch 400 lid\u00ed. Na rozd\u00edl od progerie ale pacienti s cutis laxou mohou pro\u017e\u00edt plnohodnotn\u00fd a dlouh\u00fd \u017eivot, pokud se jim dostane n\u00e1le\u017eit\u00e9 p\u00e9\u010de. „To dodalo na\u0161emu sna\u017een\u00ed nov\u00fd rozm\u011br. M\u00edsto toho, uleh\u010dit mu posledn\u00edch sedm let \u017eivota, najednou nov\u00e1 diagn\u00f3za p\u0159edstavuje \u0161anci na dlouh\u00fd \u017eivot i na \u0161kolu,“ \u0159\u00edk\u00e1 B\u011blohradov\u00e1.
\nMuhammadova rodina poch\u00e1z\u00ed ze syrsk\u00e9ho K\u00e1mi\u0161l\u00ed, z regionu, jen\u017e je posti\u017een dlouholetou v\u00e1lkou v S\u00fdrii. Nemocnice jsou tu ve \u0161patn\u00e9m stavu a dok\u00e1\u017eou poskytnout jen z\u00e1kladn\u00ed p\u00e9\u010di. Muhammad se d\u00edky akci na jeho podporu m\u011bn\u00ed t\u00e9m\u011b\u0159 p\u0159ed o\u010dima. „Z uzav\u0159en\u00e9ho jedince, kter\u00fd skoro nevych\u00e1zel na ulici, se pomalu st\u00e1v\u00e1 sebev\u011bdom\u00fd chlapec. Spousta lid\u00ed mu d\u00e1v\u00e1 najevo, \u017ee mu dr\u017e\u00ed palce, pos\u00edlaj\u00ed mu bal\u00ed\u010dky s hra\u010dkami, vzkazy p\u0159es Facebook,“ \u0159\u00edk\u00e1 Radka B\u011blohradov\u00e1.
\nSpole\u010dn\u011b s kolegy do iniciativy vt\u00e1hli p\u011bt l\u00e9ka\u0159\u016f z USA, Belgie, N\u011bmecka a Rakouska. Jsou ochotni pomoci s diagn\u00f3zou a l\u00e9\u010dbou jen za minim\u00e1ln\u00ed n\u00e1klady, vz\u00e1cn\u00e1 nemoc je pro n\u011b v\u00fdzvou.
\nVzorky se budou pos\u00edlat do Belgie na rozbor, ne\u017e bude mo\u017en\u00e9 chlapce p\u0159ev\u00e9zt p\u0159\u00edmo na kliniku.
\n\u017divot ve velkom\u011bst\u011b je ale pro uprchl\u00edky ze S\u00fdrie n\u00e1kladn\u00fd, proto se aktivist\u00e9 rozhodli zalo\u017eit \u00fa\u010det p\u0159es www.youcaring.com\/mohammedazad737428, kam mohou lid\u00e9 p\u0159isp\u011bt Muhammadov\u011b rodin\u011b na v\u00fddaje spojen\u00e9 s jeho l\u00e9\u010dbou. Na Facebooku zalo\u017eil Oliver Natter skupinu Help Mohammed and his family, kde jsou k dispozici fotografie a kde se d\u00e1 i p\u0159\u00edmo komunikovat s rodinou i samotn\u00fdm chlapcem. „V sou\u010dasnosti prob\u00edh\u00e1 \u0159\u00edzen\u00ed, kdy se rozhodne, zda rodinu podpo\u0159\u00ed \u00da\u0159ad vysok\u00e9ho komisa\u0159e Spojen\u00fdch n\u00e1rod\u016f pro uprchl\u00edky (UNHCR). Jakmile se dostanou na seznam lid\u00ed, kte\u0159\u00ed pot\u0159ebuj\u00ed azyl, bude hned jednodu\u0161\u0161\u00ed dostat chlapce do Evropy k odborn\u00edk\u016fm,“ uzav\u00edr\u00e1 Natter.<\/p>\n
LENKA KLICPEROV\u00c1
\nReflex<\/p>\n","protected":false},"excerpt":{"rendered":"
Video s jeho \u017eivotn\u00edm p\u0159\u00edb\u011bhem sest\u0159i\u017een\u00fdm do dvou minut na internetu zhl\u00e9dlo 19 mili\u00f3n\u016f lid\u00ed. Kan\u00e1l AJ+ zavalily desetitis\u00edce reakc\u00ed a koment\u00e1\u0159\u016f nab\u00edzej\u00edc\u00edch pomoc a […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-27222","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27222","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27222"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27222\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27222"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27222"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27222"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}