P\u0159es 1 400 lid\u00ed zav\u00edtalo v r\u00e1mci T\u00fddne idiopatick\u00e9 plicn\u00ed fibr\u00f3zy (IPF) do ordinac\u00ed plicn\u00edch l\u00e9ka\u0159\u016f ve 14 kraj\u00edch a nechalo se prohl\u00e9dnout. Ve 4 p\u0159\u00edpadech na\u0161li pneumologov\u00e9 IPF, u des\u00edtek dal\u0161\u00edch p\u0159i\u0161li na jin\u00e9 plicn\u00ed nemoci. L\u00e9ka\u0159i nyn\u00ed zve\u0159ejnili v\u00fdsledky lo\u0148sk\u00e9 akce a tvrd\u00ed: letos ji zopakujeme! V\u010dasn\u00fd z\u00e1chyt jim toti\u017e umo\u017en\u00ed nasadit l\u00e9\u010dbu, kter\u00e1 smrtelnou nemoc zbrzd\u00ed. IPF, na n\u00ed\u017e v tuzemsku ro\u010dn\u011b zem\u0159ou des\u00edtky pacient\u016f, p\u0159ipom\u00ednaj\u00ed pneumologov\u00e9 v r\u00e1mci Dne vz\u00e1cn\u00fdch onemocn\u011bn\u00ed. Ten letos p\u0159ipad\u00e1 na 28. \u00fanora. <\/p>\n
\u201eT\u00fdden IPF, p\u0159i kter\u00e9 jsme lidem nab\u00eddli mo\u017enost nechat se vy\u0161et\u0159it bez doporu\u010den\u00ed, zdarma v 45 ambulanc\u00edch ve v\u0161ech kraj\u00edch \u010cR, p\u0159inesl ovoce. U pacient\u016f, kde se podez\u0159en\u00ed na IPF potvrdilo, jsme nasadili l\u00e9\u010dbu, kter\u00e1 nemoc zpomal\u00ed a zachov\u00e1 kvalitu \u017eivota. V des\u00edtk\u00e1ch p\u0159\u00edpad\u016f jsme odhalili chronickou obstruk\u010dn\u00ed plicn\u00ed nemoc, astma, chronickou bronchitidu a srde\u010dn\u00ed choroby. Zachytili a nab\u00eddli jsme l\u00e9\u010dbu lidem, kte\u0159\u00ed by jinak vy\u0161et\u0159en\u00ed odkl\u00e1dali. Proto chceme letos na podzim akci zopakovat v je\u0161t\u011b v\u011bt\u0161\u00edm m\u011b\u0159\u00edtku,\u201c dopl\u0148uje MUDr. Ivana \u010ciern\u00e1 Peterov\u00e1, p\u0159edsedkyn\u011b ambulantn\u00edch pneumolog\u016f. Nejv\u00edce lid\u00ed p\u0159i\u0161lo do ordinac\u00ed otev\u0159en\u00fdch v Praze (409) a Moravskoslezsk\u00e9m kraji (162). \u201eP\u0159i m\u011b\u0159en\u00ed jsme vy\u0161et\u0159ili celkem 21 \u017een a 20 mu\u017e\u016f. Z toho bylo 17 n\u00e1lez\u016f. Celkem 6 pacient\u016f jsme poslali na podrobn\u011bj\u0161\u00ed vy\u0161et\u0159en\u00ed k \u00fapln\u00e9mu vyvr\u00e1cen\u00ed IPF,\u201c komentovala MUDr. Jana Koci\u00e1nov\u00e1, kter\u00e1 se do akce na Ostravsku zapojila. <\/p>\n
\u201e\u010ce\u0161t\u00ed pacienti sice chod\u00ed do nemocnice a na pohotovost s ka\u017edou vir\u00f3zou, ale paradoxn\u011b podce\u0148uj\u00ed p\u0159\u00edznaky chronick\u00fdch nemoc\u00ed a ignoruj\u00ed je,\u201c \u0159\u00edk\u00e1 prof. MUDr. Martina Va\u0161\u00e1kov\u00e1, PhD., p\u0159ednostka Pneumologick\u00e9 kliniky 1. l\u00e9ka\u0159sk\u00e9 fakulty UK a Thomayerovy nemocnice v Praze a p\u0159edsedkyn\u011b Sekce pro interstici\u00e1ln\u00ed plicn\u00ed procesy (SIPP) \u010cesk\u00e9 pneumologick\u00e9 a ftizeologick\u00e9 spole\u010dnosti. \u201eV p\u0159\u00edpad\u011b IPF je rychlost diagn\u00f3zy naprosto z\u00e1sadn\u00ed, v pozd\u011bj\u0161\u00edch st\u00e1di\u00edch nemoci u\u017e pacientovi neum\u00edme pomoci,\u201c dopl\u0148uje prof. Va\u0161\u00e1kov\u00e1. <\/p>\n
Jak je d\u016fle\u017eit\u00e9 zachytit nemoc v ran\u00e9m st\u00e1diu, dokazuje i p\u0159\u00edpad Franti\u0161ka Poura (72) z P\u00edsku, kter\u00e9mu l\u00e9ka\u0159i IPF diagnostikovali p\u0159ed 4 roky. Nemoc jej ale tr\u00e1p\u00ed mnohem d\u00e9le. Jeho plicn\u00ed l\u00e9ka\u0159ka nerozeznala IPF v po\u010d\u00e1tku a t\u00e9m\u011b\u0159 3 roky p\u0159edepisovala panu Franti\u0161kovi kortikoidy v inhal\u00e1torech. Tato l\u00e9\u010dba panu Franti\u0161kovi nemohla pomoci. K jin\u00e9mu plicn\u00edmu l\u00e9ka\u0159i \u2013 do Strakonic – se dostal a\u017e po dlouh\u00fdch letech tr\u00e1pen\u00ed. Ten jej okam\u017eit\u011b odeslal do pra\u017esk\u00e9 Thomayerovy nemocnice, kde se pan Franti\u0161ek po pat\u0159i\u010dn\u00fdch vy\u0161et\u0159en\u00edch dozv\u011bd\u011bl spr\u00e1vnou diagn\u00f3zu. \u201eV\u016fbec jsem netu\u0161il, co nemoc obn\u00e1\u0161\u00ed, tak jsem hledal informace na internetu a pro\u017e\u00edval nelehk\u00e9 chv\u00edle, kdy\u017e jsem \u010detl, jakou m\u00e1 nemoc progn\u00f3zu,\u201c popisuje pan Franti\u0161ek. L\u00e9ka\u0159ka z Thomayerovy nemocnice nab\u00eddla pacientovi \u00fa\u010dast v klinick\u00e9 studii, a Franti\u0161ek za\u010dal u\u017e\u00edvat nejmodern\u011bj\u0161\u00ed l\u00e9ky, kter\u00e9 IPF zpomalily. Nemoc v\u0161ak kv\u016fli prvotn\u00ed \u0161patn\u00e9 diagn\u00f3ze pokro\u010dila. \u201eV tomto po\u010das\u00ed se pohybuji jenom po byt\u011b, sebemen\u0161\u00ed n\u00e1maha m\u011b zbav\u00ed dechu a mus\u00edm se j\u00edt na chv\u00edli nad\u00fdchat z kysl\u00edkov\u00e9ho p\u0159\u00edstroje. T\u011b\u0161\u00edm se na jaro, kdy mohu vyrazit na krat\u0161\u00ed proch\u00e1zky,\u201c \u0159\u00edk\u00e1 Franti\u0161ek Pour, o kter\u00e9ho se star\u00e1 man\u017eelka. <\/p>\n
Pro nemoc IPF je charakteristick\u00fd zvuk, p\u0159ipom\u00ednaj\u00edc\u00ed odep\u00edn\u00e1n\u00ed such\u00e9ho zipu \u2013 krepitus. Ten lze sly\u0161et p\u0159i poslechu d\u00fdch\u00e1n\u00ed fonendoskopem. Lid\u00e9, kte\u0159\u00ed nemoc\u00ed trp\u00ed, \u010dasto m\u00edvaj\u00ed tak\u00e9 tzv. pali\u010dkovit\u00e9 prsty s nehty tvaru hodinov\u00e9ho skl\u00ed\u010dka. V tuzemsku nyn\u00ed funguje 17 Center diagnostiky a l\u00e9\u010dby <\/p>\n
interstici\u00e1ln\u00edch plicn\u00edch proces\u016f, na n\u011b\u017e se mohou pacienti a l\u00e9ka\u0159i obr\u00e1tit. Jejich seznam, v\u010detn\u011b kontakt\u016f, je uveden na: www.plicnifibroza.cz v z\u00e1lo\u017ece O idiopatick\u00e9 plicn\u00ed fibr\u00f3ze. <\/p>\n
O Idiopatick\u00e9 plicn\u00ed fibr\u00f3ze <\/p>\n
Idiopatick\u00e1 plicn\u00ed fibr\u00f3za po\u0161kozuje plicn\u00ed skl\u00edpky, jizv\u00ed je \u2013 bere plochu k d\u00fdch\u00e1n\u00ed, pl\u00edce tuhnou a \u010dlov\u011bk se nem\u016f\u017ee nadechnout. Postup nemoci zpomaluje l\u00e9\u010dba, kter\u00e1 je v tuzemsku pouh\u00fdch 5 let. Pacienti se k n\u00ed v\u0161ak \u010dasto nedostanou, proto\u017ee se nemoc odhal\u00ed pozd\u011b. Projevy IPF l\u00e9ka\u0159i \u010dasto zam\u011b\u0148uj\u00ed za chronickou obstruk\u010dn\u00ed plicn\u00ed nemoc, z\u00e1pal plic \u010di srde\u010dn\u00ed selh\u00e1n\u00ed. Nemoc se ohla\u0161uje zprvu nen\u00e1padn\u011b, \u010dlov\u011bk se za\u010dne zad\u00fdch\u00e1vat do schod\u016f, pozd\u011bji i p\u0159i ch\u016fzi \u010di hovoru, v pokro\u010dil\u00e9m st\u00e1diu m\u00e1 pocit nedostatku vzduchu p\u0159i b\u011b\u017en\u00fdch denn\u00edch \u010dinnostech a v z\u00e1v\u011bru v\u011bnuje ve\u0161kerou energii tomu, aby se nadechl. Bez spr\u00e1vn\u00e9 l\u00e9\u010dby p\u0159itom IPF obvykle zab\u00edj\u00ed do 3 let. S l\u00e9\u010dbou ale m\u016f\u017ee pacient vzdorovat roky a zvy\u0161uje se jeho \u0161ance, \u017ee se do\u010dk\u00e1 transplantace plic. <\/p>\n","protected":false},"excerpt":{"rendered":"
P\u0159es 1 400 lid\u00ed zav\u00edtalo v r\u00e1mci T\u00fddne idiopatick\u00e9 plicn\u00ed fibr\u00f3zy (IPF) do ordinac\u00ed plicn\u00edch l\u00e9ka\u0159\u016f ve 14 kraj\u00edch a nechalo se prohl\u00e9dnout. Ve 4 […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":17175,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-27293","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27293","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27293"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27293\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/17175"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27293"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27293"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27293"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}