Centrum pro diagnostiku a l\u00e9\u010dbu demyeliniza\u010dn\u00edch onemocn\u011bn\u00ed, kter\u00e9 je sou\u010d\u00e1st\u00ed Neurologick\u00e9 kliniky Fakultn\u00ed nemocnice Ostrava (FNO), \u00fazce spolupracuje s nest\u00e1tn\u00ed neziskovou organizac\u00ed Roska Ostrava. Ta se zam\u011b\u0159uje na zkvalit\u0148ov\u00e1n\u00ed \u017eivota lid\u00ed s diagnostikovanou roztrou\u0161enou skler\u00f3zou mozkom\u00ed\u0161n\u00ed. Pevn\u00fdm poj\u00edtkem mezi ob\u011bma subjekty je u\u017e dlouh\u00e1 l\u00e9ta b\u00fdval\u00e1 p\u0159ednostka Neurologick\u00e9 kliniky Olga Zapletalov\u00e1, kter\u00e1 s Roskou spolupracuje a je z\u00e1rove\u0148 jej\u00edm garantem.<\/p>\n
– Jak jste se v\u016fbec dostala do tak \u00fazk\u00e9ho spojen\u00ed s pacienty s roztrou\u0161enou skler\u00f3zou?<\/p>\n
Jsem neurolog, kter\u00e9ho za\u010dala zaj\u00edmat neuroimunologie. A v\u0161e docela p\u0159irozen\u011b sm\u011b\u0159ovalo a\u017e ke vzniku na\u0161eho centra, v n\u011bm\u017e jsme prvn\u00edho pacienta za\u010dali l\u00e9\u010dit v roce 1996. O \u0161est let pozd\u011bji schv\u00e1lilo na\u0161i \u010dinnost ministerstvo zdravotnictv\u00ed, a od t\u00e9 doby tady m\u00e1me Centrum pro diagnostiku a l\u00e9\u010dbu demyeliniza\u010dn\u00edch onemocn\u011bn\u00ed FNO.<\/p>\n
– St\u00e1la jste v \u010dele kliniky i centra, pomysln\u00e9 \u017eezlo jste pak postupn\u011b p\u0159edala koleg\u016fm. Uvolnilo v\u00e1m to ruce k intenzivn\u011bj\u0161\u00ed spolupr\u00e1ci s Roskou?<\/p>\n
To se tak ned\u00e1 \u0159\u00edct. J\u00e1 i moji kolegov\u00e9 jsme s Roska\u0159i pracovali odjak\u017eiva a v\u017edy intenzivn\u011b p\u0159edn\u00e1\u0161\u00edme, \u00fa\u010dastn\u00edme se i spole\u010densk\u00e9ho \u017eivota Rosky. A zapojuj\u00ed se i nov\u00ed, mlad\u00ed l\u00e9ka\u0159i, nav\u00edc m\u00e1me podporu nemocnice, co\u017e je pro n\u00e1s podstatn\u00e9. Pokud jde o pacienty, jejich z\u00e1jmy zastupujeme spolu s vedouc\u00edm centra Pavlem Hrad\u00edlkem ve v\u00fdboru Sekce klinick\u00e9 neuroimunologie a likvorologie \u010cesk\u00e9 neurologick\u00e9 spole\u010dnosti. S t\u00edm souvis\u00ed i na\u0161e \u00fazk\u00e1 spolupr\u00e1ce s Roskou Ostrava. Abychom mohli n\u011bkter\u00e9 n\u00e1vrhy l\u00e9pe prosadit, pot\u0159ebujeme jej\u00ed podporu. Proto je pro n\u00e1s i pro \u010dleny Rosky d\u016fle\u017eit\u00e9, aby \u0161lo o silnou organizaci, kter\u00e1 z\u00e1jmy pacient\u016f za\u0161ti\u0165uje a um\u00ed je i prosadit. \u010c\u00edm v\u00edce aktivn\u00edch \u010dlen\u016f v Rosce bude, t\u00edm siln\u011bj\u0161\u00ed bude jej\u00ed hlas.<\/p>\n
– V \u010dem spo\u010d\u00edv\u00e1 va\u0161e role?<\/p>\n
Prastar\u00e1 moudrost prav\u00ed, \u017ee l\u00e9ka\u0159 nem\u00e1 l\u00e9\u010dit chorobu, ale \u010dlov\u011bka s ur\u010ditou chorobou. S touto my\u0161lenkou jsem se ztoto\u017enila a v\u017edy takto k l\u00e9\u010db\u011b pacient\u016f p\u0159istupovala. Pacienta je t\u0159eba vn\u00edmat komplexn\u011b, ze v\u0161ech \u00fahl\u016f pohledu. S t\u00edm souvis\u00ed i moje spolupr\u00e1ce s Roskou, kter\u00e1 m\u00e1 podobu odborn\u00e9 podpory i pomoci se v\u0161\u00edm ostatn\u00edm. Sna\u017e\u00edm se tak\u00e9 se \u010dleny Rosky tr\u00e1vit voln\u00fd \u010das, prob\u00edr\u00e1m s nimi jejich situaci. Podobn\u011b v\u0161ak k pacient\u016fm p\u0159istupuj\u00ed v\u0161ichni l\u00e9ka\u0159i z centra. Nejen\u017ee je l\u00e9\u010d\u00ed, ale sd\u00edlej\u00ed s nimi i jejich ka\u017edodenn\u00ed radosti a starosti a sna\u017e\u00ed se pom\u00e1hat a zapojovat nejr\u016fzn\u011bj\u0161\u00edmi zp\u016fsoby. Proto\u017ee se s na\u0161imi pacienty nepotk\u00e1v\u00e1me jen v ordinac\u00edch, ale tak\u00e9 na neform\u00e1ln\u00edch akc\u00edch, m\u00e1me s nimi nadstandardn\u00ed vztah, jemu\u017e nechyb\u00ed lidskost. A d\u00edky tomu n\u00e1s l\u00e9pe akceptuj\u00ed, v\u00edce n\u00e1m d\u016fv\u011b\u0159uj\u00ed a ochotn\u011bji spolupracuj\u00ed p\u0159i l\u00e9\u010db\u011b.<\/p>\n
– N\u011bkte\u0159\u00ed pacienti v\u0161ak argumentuj\u00ed t\u00edm, \u017ee se necht\u011bj\u00ed setk\u00e1vat s lidmi, kte\u0159\u00ed jsou v pokro\u010dilej\u0161\u00ed f\u00e1zi onemocn\u011bn\u00ed, uzav\u00edraj\u00ed se do sebe\u2026<\/p>\n
Ano. \u010casto jde bohu\u017eel o mlad\u00e9 lidi, kter\u00e9 ovliv\u0148uje, \u017ee n\u00e1hle stoj\u00ed p\u0159ed z\u00e1sadn\u00edm \u017eivotn\u00edm mezn\u00edkem. Jejich \u017eivot se n\u00e1hle d\u011bl\u00ed na \u010das p\u0159ed nemoc\u00ed a s nemoc\u00ed. Pokud jde o d\u011bti, mus\u00edme nejprve p\u0159esv\u011bd\u010dit jejich rodi\u010de, \u017ee nejde o trag\u00e9dii a \u017ee toto onemocn\u011bn\u00ed lze l\u00e9\u010dit. Ale a\u0165 jde o d\u00edt\u011b nebo dosp\u011bl\u00e9ho, nejd\u016fle\u017eit\u011bj\u0161\u00ed je, aby se pacient se svoj\u00ed diagn\u00f3zou sm\u00ed\u0159il. Aby ji bral v\u00e1\u017en\u011b. Mus\u00ed se nau\u010dit ji akceptovat. Nem\u011bl by se p\u0159ep\u00ednat a j\u00edt na hranici sv\u00fdch fyzick\u00fdch mo\u017enost\u00ed, co\u017e v\u0161ak neznamen\u00e1, \u017ee by m\u011bl opustit to, \u010demu se v\u011bnoval doposud. Jen mus\u00ed ubrat a postupovat podle l\u00e9\u010debn\u00fdch sch\u00e9mat. N\u011bkdy je ale pot\u0159eba, aby pacient v\u00edce pracoval s psychologem, proto\u017ee po\u010d\u00e1te\u010dn\u00ed f\u00e1ze l\u00e9\u010dby b\u00fdv\u00e1 opravdu velmi n\u00e1ro\u010dn\u00e1 pro n\u011bj, pro jeho rodinu i pro samotn\u00e9ho l\u00e9ka\u0159e.<\/p>\n
– Nepot\u0159ebuje n\u011bkdy psychologa i l\u00e9ka\u0159, na kter\u00e9ho se to v\u0161echno val\u00ed?<\/p>\n
N\u011bkdy je to opravdu t\u011b\u017ek\u00e9 a vy\u010derp\u00e1vaj\u00edc\u00ed. A i l\u00e9ka\u0159 je jen \u010dlov\u011bk\u2026<\/p>\n
– Kde berete s\u00edlu na to, abyste byla schopna pacient\u016fm v\u011bnovat i sv\u016fj voln\u00fd \u010das? Je o v\u00e1s v\u0161eobecn\u011b zn\u00e1mo, \u017ee d\u011bl\u00e1te spoustu aktivit nad r\u00e1mec sv\u00fdch pracovn\u00edch povinnost\u00ed.<\/p>\n
Na to se m\u011b ptaj\u00ed d\u011bti, man\u017eel i p\u0159\u00e1tel\u00e9. Co na to odpov\u011bd\u011bt? M\u00e1m prost\u011b na\u0161e nemocn\u00e9 r\u00e1da.<\/p>\n
– O to hor\u0161\u00ed ale mus\u00ed b\u00fdt, kdy\u017e se stav n\u011bkter\u00e9ho z nich nevyv\u00edj\u00ed tak, jak byste cht\u011bla.<\/p>\n
Ano, tr\u00e1p\u00ed m\u011b to, ale mus\u00edm naj\u00edt n\u011bjakou pozitivn\u00ed alternativu. Jsou situace, kdy je nutn\u00e9 pacienty p\u0159ipravit na to, \u017ee do\u0161li do stavu, kdy u\u017e l\u00e9\u010dba nem\u00e1 kam pokra\u010dovat. Ale i v tu chv\u00edli lze naj\u00edt n\u011bco pozitivn\u00edho, nap\u0159\u00edklad \u017ee v tuto dobu se stav pacient\u016f m\u016f\u017ee stabilizovat. Nebo se n\u011bkte\u0159\u00ed br\u00e1n\u00ed pou\u017e\u00edv\u00e1n\u00ed invalidn\u00edho voz\u00edku. Kdy\u017e je p\u0159esv\u011bd\u010d\u00edm, b\u00fdvaj\u00ed jejich reakce kladn\u00e9. Tak\u017ee n\u011bkdy i zhor\u0161en\u00ed zdravotn\u00edho stavu p\u0159inese ur\u010ditou \u00falevu a osvobozen\u00ed od studu a z\u00e1bran. Ale je velice d\u016fle\u017eit\u00e9, z jak\u00e9ho \u00fahlu pohledu se \u010dlov\u011bk na svou situaci d\u00edv\u00e1. Zda je optimista, a t\u00edm p\u00e1dem schopn\u00fd i na relativn\u011b \u0161patn\u00e9 situaci naj\u00edt n\u011bco dobr\u00e9ho.<\/p>\n
– Vy sama hled\u00e1te sp\u00ed\u0161e ty lep\u0161\u00ed str\u00e1nky \u017eivota?<\/p>\n
Mus\u00edm. \u010clov\u011bk mus\u00ed v\u011b\u0159it nejen medic\u00edn\u011b, ale i s\u00edle lidsk\u00e9 psychiky a v\u016fle.<\/p>\n
Pavel Karban
\nPr\u00e1vo<\/p>\n","protected":false},"excerpt":{"rendered":"
Centrum pro diagnostiku a l\u00e9\u010dbu demyeliniza\u010dn\u00edch onemocn\u011bn\u00ed, kter\u00e9 je sou\u010d\u00e1st\u00ed Neurologick\u00e9 kliniky Fakultn\u00ed nemocnice Ostrava (FNO), \u00fazce spolupracuje s nest\u00e1tn\u00ed neziskovou organizac\u00ed Roska Ostrava. Ta […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":1457,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-27328","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27328","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27328"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27328\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/1457"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27328"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27328"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27328"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}