P\u0159ekon\u00e1vat sv\u00e9 limity na \u010dty\u0159iadvacetihodinov\u00fd maraton letos p\u0159ijdou lid\u00e9 z 26 m\u011bst z cel\u00e9 republiky i zahrani\u010d\u00ed. Ten startuje u\u017e v p\u00e1tek. Do sportovn\u00edho se ji\u017e po\u0161est\u00e9 p\u0159evle\u010dou lid\u00e9 s roztrou\u0161enou skler\u00f3zou (RS), jejich p\u0159\u00edbuzn\u00ed, p\u0159\u00e1tel\u00e9, ale i l\u00e9ka\u0159i, terapeuti, zdravotn\u00ed sestry a zn\u00e1m\u00e9 osobnosti, aby cvi\u010den\u00edm podpo\u0159ili nemocn\u00e9. Dodr\u017eov\u00e1n\u00ed l\u00e9\u010debn\u00e9ho re\u017eimu a zdrav\u00e9ho \u017eivotn\u00edho stylu dnes pacient\u016fm umo\u017e\u0148uje \u017e\u00edt kvalitn\u011b navzdory jejich diagn\u00f3ze. Do akce se m\u00e1 zapojit a\u017e 3000 \u00fa\u010dastn\u00edk\u016f.
\n
\n\u201eNa MaRSu je kr\u00e1sn\u00e9 to, \u017ee se na p\u00e1r hodin m\u016f\u017ee st\u00e1t \u201esportovcem\u201c \u00fapln\u011b ka\u017ed\u00fd. Tady toti\u017e nen\u00ed podstatn\u00e9 pod\u00e1vat v\u00fdkony, ale z\u00fa\u010dastnit se, a to t\u0159eba i s handicapem. Odm\u011bnou v\u0161em, kte\u0159\u00ed p\u0159ijdou, je pocit, \u017ee jste n\u011bkomu pomohl v z\u00e1pase s nemoc\u00ed, kter\u00e1 je b\u011bhem na dlouhou tra\u0165 podobn\u011b jako maraton,\u201c \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd je hlavn\u00edm po\u0159adatelem akce. Ka\u017edoro\u010dn\u00edm c\u00edlem MaRSu je vyvracet m\u00fdty spojen\u00e9 s nemoc\u00ed a upozornit na to, \u017ee je pohyb pro lidi s RS prosp\u011b\u0161n\u00fd. \u201eZ dobrovoln\u00e9ho vstupn\u00e9ho, kter\u00e9 na MaRSu vybereme, hrad\u00edme pacient\u016fm aktivity nebo zdravotn\u00ed pom\u016fcky, na kter\u00e9 poji\u0161\u0165ovny nep\u0159isp\u00edvaj\u00ed,\u201c vysv\u011btluje B\u00e9mov\u00e1. Minul\u00fd rok se ve 23 m\u011bstech vybralo 268 445 korun.
\nRo\u010dn\u00edk 2017 vypukne v p\u00e1tek 3. b\u0159ezna v Praze, kde se cvi\u010d\u00ed nep\u0159etr\u017eit\u011b 24 hodin. Postupn\u011b se k n\u00ed p\u0159id\u00e1 dal\u0161\u00edch 25 m\u011bst, kter\u00e1 se budou a\u017e do soboty 4. b\u0159ezna postupn\u011b prom\u011b\u0148ovat v \u201emetropole\u201c sportu. V zahrani\u010d\u00ed se p\u0159ipoj\u00ed lid\u00e9 ze Slovenska, \u0160v\u00fdcarska, Polska, Turecka a Francie. \u201e\u00da\u010dastn\u00edci maratonu si mohou vyb\u00edrat z mnoha sportovn\u00edch aktivit. Mezi ty nejobl\u00edben\u011bj\u0161\u00ed pat\u0159\u00ed kruhov\u00fd tr\u00e9nink, pilates, j\u00f3ga, tai-chi nebo plav\u00e1n\u00ed. Procvi\u010dit si budou moci nejen t\u011blo, ale i mysl p\u0159i stoln\u00edch hr\u00e1ch na podporu pam\u011bti a nejr\u016fzn\u011bj\u0161\u00edch kv\u00edzech,\u201c doplnila fyzioterapeutka Kl\u00e1ra Novotn\u00e1.
\nLeto\u0161n\u00ed MaRS p\u0159ekvap\u00ed hned n\u011bkolika novinkami. Ambasadorkou akce se stala \u00fasp\u011b\u0161n\u00e1 \u010desk\u00e1 golfistka \u0160ideri V\u00e1\u0148ov\u00e1. \u201eJe to pro m\u011b obrovsk\u00e1 \u010dest, b\u00fdt sou\u010d\u00e1st\u00ed tohoto nev\u00eddan\u00e9ho projektu, kde nejv\u00edc ze v\u0161eho obdivuji nekone\u010dnou hou\u017eevnatost po\u0159adatel\u016f a podporu, kterou si pacienti vz\u00e1jemn\u011b poskytuj\u00ed,\u201c \u0159\u00edk\u00e1 \u0160ideri V\u00e1\u0148ov\u00e1. N\u00e1zev maratonu je tak\u00e9 nov\u011b chr\u00e1n\u011bn ochrannou zn\u00e1mkou a stal se tak nezam\u011bniteln\u00fdm. Poprv\u00e9 se do akce krom\u011b \u0159ady celebrit a sportovc\u016f zapoj\u00ed tak\u00e9 i ti nejmen\u0161\u00ed, a to d\u011bti ze Z\u0160 v Kou\u0159imi, kter\u00e9 nemocn\u00e9 podpo\u0159\u00ed no\u010dn\u00edm orienta\u010dn\u00edm b\u011bhem. Maraton vyvrchol\u00ed koncertem Maranatha Gospel Choir.
\nV tomto roce se MaRS soust\u0159ed\u00ed na psychickou str\u00e1nku nemoci. Ve vybran\u00fdch m\u011bstech bude k dispozici psychoterapeut, kter\u00fd lidem s RS p\u0159edstav\u00ed mo\u017enosti kognitivn\u00edho tr\u00e9ninku a relaxace. \u201ePoruchy n\u00e1lad jsou u lid\u00ed s RS \u010dast\u011bj\u0161\u00ed ne\u017e u zdrav\u00e9 populace. Jednak vypl\u00fdvaj\u00ed ze samotn\u00e9 podstaty nemoci, ale tak\u00e9 mohou b\u00fdt reakc\u00ed na nemoc samotnou. Deprese postihuj\u00ed a\u017e 50 % pacient\u016f s RS. K psychick\u00e9 pohod\u011b nemocn\u00fdch m\u016f\u017ee mimo jin\u00e9 p\u0159isp\u00edvat pr\u00e1v\u011b pohyb,\u201c vysv\u011btlila doc. MUDr. Dana Hor\u00e1kov\u00e1, Ph.D., z RS Centra p\u0159i neurologick\u00e9 klinice 1. LF UK a VFN, Praha. Sv\u00e9 rady k problematice zdrav\u00e9ho \u017eivotn\u00edho stylu p\u0159i RS bude ji\u017e tradi\u010dn\u011b poskytovat fyzioterapeut. \u201eImobiln\u00ed lid\u00e9 si s n\u00e1mi jako ka\u017ed\u00fd rok mohou zacvi\u010dit z domova, sta\u010d\u00ed poslat fotku a p\u0159i\u010dteme je k \u00fa\u010dastn\u00edk\u016fm,\u201c dod\u00e1v\u00e1 B\u00e9mov\u00e1.
\nCvi\u010debn\u00ed maraton MaRS se ka\u017ed\u00fdm rokem rozr\u016fst\u00e1. A to zejm\u00e9na d\u00edky aktivn\u00edm pacient\u016fm, kte\u0159\u00ed se rozhodli pom\u00e1hat lidem se stejnou diagn\u00f3zou. Naj\u00edt v sob\u011b dostatek energie a chuti do aktivn\u00edho \u017eivota je pro pacienty s RS obzvl\u00e1\u0161\u0165 t\u011b\u017ek\u00e9 zejm\u00e9na p\u0159i ka\u017ed\u00e9m vzplanut\u00ed nemoci. \u201eTomu lze p\u0159edch\u00e1zet kombinac\u00ed zdrav\u00e9ho \u017eivotn\u00edho stylu, pravideln\u00e9ho pohybu, a p\u0159edev\u0161\u00edm v\u010das nasazen\u00e9 modern\u00ed biologick\u00e9 l\u00e9\u010dby,\u201c dod\u00e1v\u00e1 doc. Hor\u00e1kov\u00e1. Alarmuj\u00edc\u00edmi p\u0159\u00edznaky RS jsou zejm\u00e9na poruchy hybnosti, koordinace pohybu, citlivosti a zraku. \u201ePokud u sebe \u010dlov\u011bk poci\u0165uje n\u011bkter\u00fd z t\u011bchto projev\u016f nemoci, je vhodn\u00e9 vyhledat pomoc neurologa. Ten by m\u011bl zal\u00e9\u010dit ataku a v p\u0159\u00edpad\u011b potvrzen\u00ed diagn\u00f3zy odeslat pacienta do specializovan\u00e9ho RS centra, kde l\u00e9ka\u0159 rozhodne o nasazen\u00ed dlouhodob\u00e9 l\u00e9\u010dby,\u201c dod\u00e1v\u00e1 doc. Hor\u00e1kov\u00e1.
\nMaRSu se letos krom\u011b Prahy \u00fa\u010dastn\u00ed tak\u00e9 Brno, Olomouc, \u010cesk\u00e9 Bud\u011bjovice, Hradec Kr\u00e1lov\u00e9, Jihlava, Karlovy Vary, Kou\u0159im, Kyjov, Liberec, Most, Nov\u00fd Bor, Ostrava\/Klimkovice, Plze\u0148, Pod\u011bbrady, Teplice, Uhersk\u00e9 Hradi\u0161t\u011b, \u00dast\u00ed nad Orlic\u00ed\/Letohrad, Velk\u00e9 Losiny, \u017d\u010f\u00e1r nad S\u00e1zavou, \u017dire\u010d u Dvora Kr\u00e1lov\u00e9 n. L. Ze zahrani\u010d\u00ed budou cvi\u010dit t\u00fdmy ze Slovenska, \u0160v\u00fdcarska, Turecka, Francie a Polska.<\/p>\n
Ve\u0161ker\u00e9 informace o Maratonu s roztrou\u0161enou skler\u00f3zou MaRS najdete na nov\u00e9m webu http:\/\/www.maratonmars.cz\/.<\/p>\n
O roztrou\u0161en\u00e9 skler\u00f3ze
\nRoztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. V sou\u010dasn\u00e9 dob\u011b v tuzemsku podstupuje biologickou l\u00e9\u010dbu p\u0159ibli\u017en\u011b 9 000 nemocn\u00fdch s RS.
\nNa cel\u00e9m sv\u011bt\u011b RS trp\u00ed 2,5 mili\u00f3nu nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 17 tis\u00edc. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus, kou\u0159en\u00ed a nedostatek vitaminu D. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz.<\/p>\n
O Nada\u010dn\u00edm fondu IMPULS
\nNada\u010dn\u00ed fond IMPULS vznikl roku 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz .<\/p>\n
Cynthia Mitevov\u00e1,
\nTiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"
P\u0159ekon\u00e1vat sv\u00e9 limity na \u010dty\u0159iadvacetihodinov\u00fd maraton letos p\u0159ijdou lid\u00e9 z 26 m\u011bst z cel\u00e9 republiky i zahrani\u010d\u00ed. Ten startuje u\u017e v p\u00e1tek. Do sportovn\u00edho se […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":22832,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-27401","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27401","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27401"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27401\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/22832"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27401"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27401"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27401"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}