{"id":27543,"date":"2017-03-15T12:15:49","date_gmt":"2017-03-15T11:15:49","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=27543"},"modified":"2017-03-15T12:15:49","modified_gmt":"2017-03-15T11:15:49","slug":"mlada-zena-z-litvinova-porada-sbirku-kremu-pro-nemocne-deti","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=27543","title":{"rendered":"Mlad\u00e1 \u017eena z Litv\u00ednova po\u0159\u00e1d\u00e1 sb\u00edrku kr\u00e9m\u016f pro nemocn\u00e9 d\u011bti"},"content":{"rendered":"<p><strong>Jako jedin\u00e1 v \u010cesku trp\u00ed vz\u00e1cnou chorobou, kter\u00e1 se st\u00e1le zhor\u0161uje. P\u0159esto v \u017eivot\u011b nic nevzd\u00e1v\u00e1 a sna\u017e\u00ed se pom\u00e1hat nemocn\u00fdm d\u011btem.<\/strong><!--more--><\/p>\n<p>Litv\u00ednov \u2013 Maru\u0161ka \u017dampachov\u00e1 z Litv\u00ednova u\u017e od narozen\u00ed trp\u00ed vz\u00e1cnou a z\u00e1va\u017enou formou ko\u017en\u00ed choroby ichty\u00f3zy. S t\u00edmto typem je v \u010cesk\u00e9 republice jedin\u00e1, o nikom dal\u0161\u00edm nejsou zpr\u00e1vy. Nemoc je typick\u00e1 suchou a \u0161upinatou poko\u017ekou, kter\u00e1 vytv\u00e1\u0159\u00ed tlust\u00e9 vrstvy i strupy. Doprov\u00e1zej\u00ed ji tak\u00e9 poruchy termoregulace. Nemoc je nel\u00e9\u010diteln\u00e1, Maru\u0161ka je ve sv\u00fdch t\u0159iadvaceti letech v pln\u00e9m invalidn\u00edm d\u016fchodu. Ichty\u00f3za j\u00ed zas\u00e1hla 80 % povrchu t\u011bla, ka\u017ed\u00fdm rokem se nemoc zhor\u0161uje.<\/p>\n<p>NE\u010cEKAN\u00dd \u00daSP\u011aCH<\/p>\n<p>Ona p\u0159esto nic nevzd\u00e1v\u00e1. \u017dije aktivn\u00edm \u017eivotem, v\u011bnuje se sportu, zdrav\u00e9mu \u017eivotn\u00edmu stylu i sv\u00e9mu \u0161estilet\u00e9mu synovi. Te\u010f se nav\u00edc rozhodla pom\u00e1hat d\u011btem, kter\u00e9 postihla stejn\u00e1 choroba. Na soci\u00e1ln\u00ed s\u00edti Facebook zve\u0159ejnila na konci \u00fanora video o sv\u00e9 b\u0159eznov\u00e9 sb\u00edrce v\u00fdrobk\u016f z obchodn\u00edho \u0159et\u011bzce Lidl a po\u017e\u00e1dala lidi ze sv\u00e9ho okol\u00ed, aby se p\u0159ipojili. Video ji\u017e shl\u00e9dlo v\u00edce ne\u017e 41 tis\u00edc lid\u00ed, v\u00fdrobk\u016f ur\u010den\u00fdch pro patn\u00e1ct mal\u00fdch nemocn\u00fdch z \u010cech i ze Slovenska neust\u00e1le p\u0159ib\u00fdv\u00e1.<\/p>\n<p>Lid\u00e9 kupuj\u00ed des\u00edtky t\u011blov\u00fdch kr\u00e9m\u016f, kr\u00e9m\u016f na ruce, kr\u00e9m\u016f na nohy a tekut\u00fdch m\u00fddel na ruce zna\u010dky Cien, kter\u00e9 jsou dostupn\u00e9 pr\u00e1v\u011b v Lidlu. &#8222;P\u016fvodn\u00edm c\u00edlem bylo nasb\u00edrat sto v\u00fdrobk\u016f. Realita ale mnohon\u00e1sobn\u011b p\u0159ekonala moje o\u010dek\u00e1v\u00e1n\u00ed. Odezva lid\u00ed je obrovsk\u00e1, oz\u00fdvaj\u00ed se st\u00e1le nov\u00ed z\u00e1jemci, kte\u0159\u00ed cht\u011bj\u00ed pomoci. V polovin\u011b b\u0159ezna u\u017e m\u00e1m u sebe 220 v\u00fdrobk\u016f,&#8220; \u0159ekla dojat\u011b Maru\u0161ka, kter\u00e1 douf\u00e1, \u017ee do konce m\u011bs\u00edce se lidem poda\u0159\u00ed p\u0159ekonat hranici 500 v\u00fdrobk\u016f. Ty pro ni sb\u00edr\u00e1 t\u0159eba i litv\u00ednovsk\u00e1 b\u011b\u017eeck\u00e1 skupina Rozb\u011bhej Litv\u00ednov, sb\u011brn\u00e9 m\u00edsto je tak\u00e9 v Most\u011b.<\/p>\n<p>&#8222;Nepom\u00e1haj\u00ed ale jen lid\u00e9 z Mostecka. D\u00edky pan\u00ed \u017danetce z Teplic, kter\u00e1 sb\u00edrala ve sv\u00e9m okol\u00ed a v pr\u00e1ci, se ke sb\u00edrce p\u0159id\u00e1 dal\u0161\u00edch 185 v\u00fdrobk\u016f,&#8220; dodala Maru\u0161ka. I z osobn\u00edch zpr\u00e1v, kter\u00e9 j\u00ed neust\u00e1le p\u0159ich\u00e1z\u00ed na Facebook, tu\u0161\u00ed, \u017ee kone\u010dn\u00e9 \u010d\u00edslo bude mnohem vy\u0161\u0161\u00ed.<\/p>\n<p>Sb\u00edrka potrv\u00e1 do 31. b\u0159ezna, b\u011bhem prvn\u00edch dvou dubnov\u00fdch dn\u016f pak bude Maru\u0161ka sb\u00edrku odv\u00e1\u017eet do P\u0159\u00edbrami. Tam s\u00eddl\u00ed zakladatelka spolku Ichty\u00f3za Hanka Kadlecov\u00e1. Spolek Ichty\u00f3za se ji\u017e dlouhodob\u011b zam\u011b\u0159uje na organizovanou pomoc d\u011btem s t\u011b\u017ek\u00fdmi formami ichty\u00f3zy t\u00edm, \u017ee jim rozes\u00edl\u00e1 bal\u00ed\u010dky s r\u016fzn\u00fdmi v\u00fdrobky na k\u016f\u017ei. Obvykle d\u011btem dod\u00e1v\u00e1 velikono\u010dn\u00ed bal\u00ed\u010dek, bal\u00ed\u010dek ke dni d\u011bt\u00ed a v\u00e1no\u010dn\u00ed bal\u00ed\u010dek. &#8222;D\u011bti se mus\u00ed mazat ka\u017ed\u00fd den, nejedn\u00e1 se p\u0159itom jen o jedno namaz\u00e1n\u00ed, ale o pr\u016fb\u011b\u017en\u00e9 zvl\u00e1\u010d\u0148ov\u00e1n\u00ed k\u016f\u017ee. M\u011bs\u00ed\u010dn\u011b spot\u0159ebuj\u00ed a\u017e kolem osmi kilogram\u016f kr\u00e9m\u016f. V\u00fddaje jen za kr\u00e9my se v tomto p\u0159\u00edpad\u011b vy\u0161plhaj\u00ed na \u010d\u00e1stku 15-20 tis\u00edc korun. Pro mnoh\u00e9 rodiny je tato \u010d\u00e1stka t\u00e9m\u011b\u0159 likvida\u010dn\u00ed,&#8220; vysv\u011btlila Maru\u0161ka.<\/p>\n<p>Nemocn\u00ed s ichty\u00f3zou mus\u00ed pou\u017e\u00edvat dra\u017e\u0161\u00ed kr\u00e9my od velk\u00fdch spole\u010dnost\u00ed na hlavn\u00ed maz\u00e1n\u00ed, na domaz\u00e1v\u00e1n\u00ed v pr\u016fb\u011bhu dne sta\u010d\u00ed levn\u011bj\u0161\u00ed, ale nez\u00e1vadn\u00e9 v\u00fdrobky jako jsou nap\u0159\u00edklad ty z Lidlu.<\/p>\n<p>JEDNOU SB\u00cdRKOU TO NEKON\u010c\u00cd<\/p>\n<p>Jeliko\u017e se Maru\u0161ka stala d\u00edky t\u00e9to akci tak\u00e9 ambasadorkou spolku Ichty\u00f3za pro \u00dasteck\u00fd kraj, pl\u00e1nuje pom\u00e1hat d\u00e1l.<\/p>\n<p>Bude pokra\u010dovat v tvorb\u011b vide\u00ed, v pl\u00e1nu m\u00e1 nap\u0159\u00edklad d\u011bkovn\u00e9 video se statistikou, kolik v\u00fdrobk\u016f se vybralo a s uveden\u00edm v\u0161ech d\u00e1rc\u016f. Lid\u00e9 tak\u00e9 uvid\u00ed p\u0159ed\u00e1v\u00e1n\u00ed v\u00fdrobk\u016f p\u0159\u00edmo v P\u0159\u00edbrami a prost\u0159ednictv\u00edm fotek i p\u0159ed\u00e1n\u00ed samotn\u00fdm d\u011btem. &#8222;Jarn\u00ed sb\u00edrka sice skon\u010d\u00ed z\u00e1v\u011brem b\u0159ezna, pomoc ale uv\u00edt\u00e1me ur\u010dit\u011b i d\u00e1le. Kdokoli by r\u00e1d p\u0159isp\u011bl \u2013 a to t\u0159eba i jedn\u00edm kr\u00e9mem, m\u016f\u017ee se obr\u00e1tit na m\u011b. Pl\u00e1nujeme o sob\u011b d\u00e1vat v\u011bd\u011bt v\u00edckr\u00e1t v roce, budeme informovat o na\u0161ich dal\u0161\u00edch akc\u00edch. R\u00e1da bych tak\u00e9 pokra\u010dovala v osv\u011bt\u011b, proto\u017ee je hrozn\u011b d\u016fle\u017eit\u00e9, aby o n\u00e1s lid\u00e9 v\u011bd\u011bli a nem\u011bli z n\u00e1s strach&#8220; popsala Maru\u0161ka sv\u00e9 dal\u0161\u00ed pl\u00e1ny.<\/p>\n<p>Chcete-li p\u0159isp\u011bt, m\u016f\u017eete se obr\u00e1tit na Maru\u0161ku \u017dampachovou na jej\u00edm facebookov\u00e9m profilu (Maru\u0161ka \u017dampachov\u00e1) nebo na e-mailu: Ma. Zampachova@seznam.cz<\/p>\n<p>&#8212;<\/p>\n<p>Co je ichty\u00f3za &#8211; Ichty\u00f3za je genetick\u00e9 ko\u017en\u00ed onemocn\u011bn\u00ed, kter\u00e9 se vyskytuje v\u00fdjime\u010dn\u011b a\u017e vz\u00e1cn\u011b. Tato ko\u017en\u00ed choroba je nel\u00e9\u010diteln\u00e1, ale nen\u00ed naka\u017eliv\u00e1. Postihuje p\u0159ev\u00e1\u017en\u011b k\u016f\u017ei, o\u010di a u\u0161i a projevuje se neust\u00e1l\u00fdm nar\u016fst\u00e1n\u00edm vrstev k\u016f\u017ee, p\u0159eh\u0159\u00e1t\u00edm poko\u017eky, omezen\u00edm pohybu, infekc\u00ed, poruchou sluchu a sv\u011bd\u011bn\u00edm.<\/p>\n<p>ALENA HERZ\u00c1NOV\u00c1<br \/>\nChomutovsk\u00fd den\u00edk<br \/>\n<a href=\"http:\/\/www.chomutovsky.denik.cz\/\">http:\/\/www.chomutovsky.denik.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Jako jedin\u00e1 v \u010cesku trp\u00ed vz\u00e1cnou chorobou, kter\u00e1 se st\u00e1le zhor\u0161uje. P\u0159esto v \u017eivot\u011b nic nevzd\u00e1v\u00e1 a sna\u017e\u00ed se pom\u00e1hat nemocn\u00fdm d\u011btem.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":17871,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-27543","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27543","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=27543"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/27543\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/17871"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=27543"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=27543"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=27543"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}