{"id":28320,"date":"2017-05-26T07:32:28","date_gmt":"2017-05-26T05:32:28","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=28320"},"modified":"2017-05-26T07:32:28","modified_gmt":"2017-05-26T05:32:28","slug":"deti-pomahaji-detem-aneb-kouzlo-pomoci-handicapovanym","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=28320","title":{"rendered":"D\u011aTI POM\u00c1HAJ\u00cd D\u011aTEM ANEB KOUZLO POMOCI HANDICAPOVAN\u00ddM"},"content":{"rendered":"<p><strong>Zdrav\u00ed a handicapovan\u00ed \u010dlenov\u00e9 sdru\u017een\u00ed \u010cern\u00ed kon\u011b se vydaj\u00ed na turn\u00e9 \u201eTour4change\u201c \u010ceskou republikou s c\u00edlem zbo\u0159it zdi stoj\u00edc\u00ed mezi handicapovan\u00fdmi a v\u011bt\u0161inovou spole\u010dnost\u00ed. B\u011bhem sv\u00e9ho putov\u00e1n\u00ed nav\u0161t\u00edv\u00ed 5 m\u011bst, kde d\u011bti ze z\u00e1kladn\u00edch \u0161kol z\u00e1bavnou formou sezn\u00e1m\u00ed s problematikou handicapu a zam\u011b\u0159\u00ed se rovn\u011b\u017e na prevenci.<\/strong> <!--more--><\/p>\n<p>&nbsp;<\/p>\n<p>Nav\u00edc se d\u011bti mohou aktivn\u011b zapojit i do pomoci d\u00edky aktivit\u011b \u201eD\u011bti d\u011btem\u201c. Na\u0161lap\u00e1n\u00edm ur\u010dit\u00e9ho po\u010dtu kilometr\u016f bude v ka\u017ed\u00e9m m\u011bst\u011b jednomu d\u00edt\u011bti s handicapem p\u0159ed\u00e1n speci\u00e1ln\u011b upraven\u00fd handbike (ru\u010dn\u00ed kolo). Tv\u00e1\u0159\u00ed leto\u0161n\u00ed tour se stala Marianka Van\u011b\u010dkov\u00e1, hol\u010di\u010dka trp\u00edc\u00ed spin\u00e1ln\u00ed svalovou atrofi\u00ed typu 2.<\/p>\n<p>Edukativn\u00ed turn\u00e9 \u201eTour4change\u201c, kter\u00e9 po\u0159\u00e1d\u00e1 sdru\u017een\u00ed \u010cern\u00ed kon\u011b, odstartuje v pond\u011bl\u00ed 29. kv\u011btna v parku Ladronka v Praze. Jeho zdrav\u00ed i handicapovan\u00ed \u010dlenov\u00e9 nav\u0161t\u00edv\u00ed 5 m\u011bst po \u010cesk\u00e9 republice, kde maj\u00ed pro \u017e\u00e1ky z\u00e1kladn\u00edch \u0161kol p\u0159ipraven\u00fd z\u00e1bavn\u011b-eduka\u010dn\u00ed program. D\u011bti si vyzkou\u0161\u00ed j\u00edzdu na trena\u017e\u00e9ru handbiku a invalidn\u00edm voz\u00edku, ch\u016fzi se slepeckou hol\u00ed nebo ch\u016fzi zru\u010dnosti ve speci\u00e1ln\u00edch br\u00fdl\u00edch simuluj\u00edc\u00edch naru\u0161en\u00ed centra rovnov\u00e1hy. C\u00edlem turn\u00e9 je zm\u011bna vn\u00edm\u00e1n\u00ed handicapu ve\u0159ejnost\u00ed, kter\u00e9ho lze dos\u00e1hnout vz\u00e1jemnou interakc\u00ed mezi t\u011bmito dv\u011bma sv\u011bty.<\/p>\n<p>\u201eD\u011bti poznaj\u00ed problematiku handicapu, vyzkou\u0161\u00ed si, jak\u00e9 je to b\u00fdt v roli handicapovan\u00e9ho, ale i dobrovoln\u00e9ho asistenta. Handicapovan\u00ed si na druhou stranu uv\u011bdom\u00ed, \u017ee za n\u011bkter\u00e1 nedorozum\u011bn\u00ed si \u010dastokr\u00e1t mohou sami sv\u00fdm p\u0159\u00edstupem. T\u00edmto vz\u00e1jemn\u00fdm pochopen\u00edm chceme zbo\u0159it zdi stoj\u00edc\u00ed mezi handicapovan\u00fdmi a v\u011bt\u0161inovou spole\u010dnost\u00ed, kter\u00e9 mohou objevovat a\u0165 u\u017e v podob\u011b n\u011bjak\u00e9ho strachu, p\u0159edsudk\u016f nebo dokonce m\u00fdt\u016f, uv\u00e1d\u00ed Tom\u00e1\u0161 Pouch, p\u0159edseda z. s. \u010cern\u00ed kon\u011b.<\/p>\n<p><strong>Za na\u0161lapan\u00e9 kilometry handbike pro handicapovan\u00e9 d\u011bti<\/strong><\/p>\n<p>V pr\u016fb\u011bhu tour se budou moci p\u0159\u00edtomn\u00e9 d\u011bti samy zapojit do pomoci handicapovan\u00fdm. V r\u00e1mci aktivity s n\u00e1zvem \u201eD\u011bti d\u011btem\u201c. Ta podporuje celosv\u011btov\u011b ojedin\u011bl\u00fd projekt \u010cern\u00fdch kon\u00ed \u201eV\u00edtr ve vlasech\u201c, jen\u017e handicapovan\u00fdm d\u011btem zdarma za podpory sponzor\u016f p\u0159in\u00e1\u0161\u00ed speci\u00e1ln\u00ed kola, kter\u00e1 doposud nikdo nevyr\u00e1b\u00ed.<\/p>\n<p>\u201eZdrav\u00e9 d\u011bti budou na speci\u00e1ln\u00edch trena\u017e\u00e9rech sout\u011b\u017eit, podle vlastn\u00edch mo\u017enost\u00ed naj\u00ed\u017ed\u011bt kilometry a za ka\u017ed\u00fd takto najet\u00fd kilometr n\u00e1m na\u0161i sponzo\u0159i p\u0159isp\u011bj\u00ed pen\u011bzi na d\u011btsk\u00fd handbike. V ka\u017ed\u00e9m nav\u0161t\u00edven\u00e9m m\u011bst\u011b pl\u00e1nujeme p\u0159edat alespo\u0148 jedno speci\u00e1ln\u00ed kolo na ru\u010dn\u00ed pohon. Chceme, aby p\u0159\u00edtomn\u00e9 d\u011bti poznaly kouzlo pomoci a tento z\u00e1\u017eitek si v sob\u011b nesly cel\u00fdm dal\u0161\u00edm \u017eivotem,\u201c \u0159\u00edk\u00e1 Tom\u00e1\u0161 Pouch.<\/p>\n<p>Slavnostn\u00ed ukon\u010den\u00ed aktivity D\u011bti d\u011btem se odehraje v sobotu 3. \u010dervna na n\u00e1m\u011bst\u00ed M\u00edru ve Zl\u00edn\u011b, kde bude vyhl\u00e1\u0161eno, kolik kilometr\u016f (pen\u011bz) se najelo a symbolicky dojde k p\u0159ed\u00e1n\u00ed speci\u00e1ln\u00edch kol d\u011btem. Mimo\u0159\u00e1dn\u00e1 pozornost je v\u011bnov\u00e1na pr\u00e1v\u011b Zl\u00ednu, kde mimo zast\u00e1vku tour bude rovn\u011b\u017e od p\u00e1tku 26. 5. do soboty 3. 6. st\u00e1l\u00e1 expozice \u010cern\u00fdch kon\u00ed v r\u00e1mci Mezin\u00e1rodn\u00edho festivalu film\u016f pro d\u011bti a ml\u00e1de\u017e. Samoz\u0159ejm\u011b ani tady nebude chyb\u011bt trena\u017e\u00e9r.<\/p>\n<p>Jedin\u011b pozn\u00e1n\u00ed a vz\u00e1jemn\u00e9 pochopen\u00ed obou sv\u011bt\u016f m\u016f\u017ee v\u00e9st ke spolupr\u00e1ci a pomoci. Zdrav\u00e9 d\u011bti si snad l\u00e9pe uv\u011bdom\u00ed, \u017ee nen\u00ed dobr\u00e9 hazardovat zbyte\u010dn\u011b s t\u00edm nejcenn\u011bj\u0161\u00edm, co maj\u00ed a handicapovan\u00ed se mohou v\u00edc zapojit do \u017eivota a her sv\u00fdch vrstevn\u00edk\u016f.<\/p>\n<p>\u201eVz\u00e1jemn\u00e9 obohacen\u00ed obou sv\u011bt\u016f je to, co by si m\u011bly d\u011bti ze setk\u00e1n\u00ed odn\u00e9st. Pocit, \u017ee n\u011bkomu ud\u011blaly radost, p\u0159edaly sv\u00e9 zku\u0161enosti, pomohly. To je velk\u00fd impuls do budoucna,\u201c dod\u00e1v\u00e1 MUDr. Franti\u0161ek Schneiberg, soci\u00e1ln\u00ed pediatr z V\u0161eobecn\u00e9 fakultn\u00ed nemocnice v Praze.<\/p>\n<p>\u201eV\u00edt\u00e1m jakoukoli mo\u017enost pomoci, vz\u00e1jemn\u00e9 konfrontace sv\u011bta zdrav\u00fdch a handicapovan\u00fdch, proto jsem r\u00e1d, \u017ee mohu u\u017e po n\u011bkolik\u00e1t\u00e9 podpo\u0159it z\u00e1slu\u017enou a smysluplnou aktivitu sdru\u017een\u00ed \u010cern\u00ed kon\u011b,\u201c dopl\u0148uje Ing. Radek Lacko, radn\u00ed hl. m. Prahy pro oblast zdravotnictv\u00ed a bydlen\u00ed.<\/p>\n<p>V pr\u016fb\u011bhu tour nebude chyb\u011bt ani bohat\u00fd kulturn\u00ed a sportovn\u00ed program. Moder\u00e1tor turn\u00e9 Bo\u0159ek Slez\u00e1\u010dek zazp\u00edv\u00e1 se svou kolegyn\u00ed Genny, vystoup\u00ed i mistr kola Josef Dressler. Tancem okouzl\u00ed div\u00e1ky Daniela Pecinov\u00e1, mistryn\u011b sv\u011bta v para pole dance, a s vlastn\u00edm vystoupen\u00edm se p\u0159ipoj\u00ed i Marie a Mariana Van\u011b\u010dkovy. Marianka, tv\u00e1\u0159 leto\u0161n\u00ed tour, toti\u017e p\u0159es sv\u00e9 v\u00e1\u017en\u00e9 onemocn\u011bn\u00ed, spin\u00e1ln\u00ed svalovou atrofii 2. typu, neztratila l\u00e1sku k tanci a state\u010dn\u011b dokazuje, \u017ee s nep\u0159\u00edzn\u00ed osudu je t\u0159eba bojovat a nevzd\u00e1vat se.<\/p>\n<p><strong>Tv\u00e1\u0159 leto\u0161n\u00ed Tour4change:<\/strong> State\u010dn\u00e1 bojovnice Marianka Van\u011b\u010dkov\u00e1 se narodila 7. listopadu 2005 jako naprosto zdrav\u00e1 hol\u010di\u010dka. U\u017e jako malink\u00e1, stejn\u011b jako jej\u00ed maminka tane\u010dnice, m\u011bla r\u00e1da tanec. Maminka Marie vzpom\u00edn\u00e1, jak tan\u010dila u\u017e u n\u00ed v b\u0159\u00ed\u0161ku. Jen\u017ee\u2026 V roce dostala o\u0161klivou ch\u0159ipku, skon\u010dila v nemocnici a u\u017e se nikdy nepostavila. Maminka se tenkr\u00e1t od l\u00e9ka\u0159\u016f dozv\u011bd\u011bla hrozivou diagn\u00f3zu: onemocn\u011bn\u00ed SMA typu 2, spin\u00e1ln\u00ed svalov\u00e1 atrofie. Tato genetick\u00e1 choroba se projevuje progres\u00edvn\u00edm \u00fabytkem svalov\u00e9 hmoty. Hol\u010di\u010dka z\u016fstane na voz\u00edku u\u017e cel\u00fd \u017eivot. Nav\u00edc choroba s sebou nese \u0159adu vedlej\u0161\u00edch p\u0159\u00edznak\u016f, nap\u0159\u00edklad slabost, \u00fanavu, poruchy d\u00fdch\u00e1n\u00ed, polyk\u00e1n\u00ed, \u010dinnosti st\u0159ev a dal\u0161\u00edch \u017eivotn\u011b d\u016fle\u017eit\u00fdch funkc\u00ed. Sama Marianka byla je\u0161t\u011b p\u0159\u00edli\u0161 mal\u00e1, aby pochopila z\u00e1va\u017enost sv\u00e9ho stavu, ale mamince se zhroutil sv\u011bt\u2026 Na\u0161t\u011bst\u00ed je velk\u00e1 bojovnice a nevzdala to. I kdy\u017e je samo\u017eivitelka a star\u00e1 se o Marianku a jej\u00edho star\u0161\u00edho bratra sama, sna\u017e\u00ed se dce\u0159i umo\u017enit \u017eivot pln\u00fd z\u00e1\u017eitk\u016f. Finan\u010dn\u00ed prost\u0159edky nesta\u010d\u00ed ani na osobn\u00edho asistenta, nato\u017e na dal\u0161\u00ed pot\u0159ebn\u00e9 pom\u016fcky a vybaven\u00ed dom\u00e1cnosti. Vzhledem ke zhor\u0161uj\u00edc\u00ed se skoli\u00f3ze p\u00e1te\u0159e mus\u00ed Marianka podstoupit operaci, kter\u00e1 by m\u011bla ulevit od siln\u00fdch bolest\u00ed zad. Znamen\u00e1 ov\u0161em i zv\u00fd\u0161en\u00e9 n\u00e1klady pro rodinu. Nejen samotn\u00fd v\u00fdkon, ale bude t\u0159eba nov\u00fd elektrick\u00fd voz\u00edk, auto s plo\u0161inou, zvedac\u00ed za\u0159\u00edzen\u00ed do bytu, kompenza\u010dn\u00ed pom\u016fcky, osobn\u00ed asistent. Mariana str\u00e1v\u00ed dva a\u017e t\u0159i m\u011bs\u00edce doma na l\u016f\u017eku, pak bude n\u00e1sledovat dlouhodob\u00e1 rehabilitace, mo\u017en\u00e1 i l\u00e9\u010debn\u00fd pobyt v l\u00e1zn\u00edch.<\/p>\n<p>Marianka pot\u0159ebuje pravideln\u00e1 rehabilita\u010dn\u00ed cvi\u010den\u00ed a plav\u00e1n\u00ed, potravinov\u00e9 dopl\u0148ky, medikamenty, \u0161koln\u00ed pom\u016fcky, kter\u00e9 by j\u00ed usnadnily \u00fa\u010dast p\u0159i v\u00fduce. V\u0161echny tyto aktivity a pom\u016fcky jsou hrazeny poji\u0161\u0165ovnami jen z\u010d\u00e1sti nebo v\u016fbec. Proto v\u0161echny finance, kter\u00e9 se pro rodinu poda\u0159\u00ed z\u00edskat, budou vyu\u017eity pr\u00e1v\u011b na n\u011b. Mlad\u00e1 d\u00e1ma, kterou bav\u00ed fotografov\u00e1n\u00ed a youtubering, sama pom\u00e1h\u00e1 nemocn\u00fdm. S maminkou organizuje benefi\u010dn\u00ed show, \u00fa\u010dastn\u00ed se akc\u00ed, rad\u00ed ostatn\u00edm. Proto si pomoc rozhodn\u011b zaslou\u017e\u00ed! V\u00edce informac\u00ed z\u00edsk\u00e1te na www.mariankavaneckova.cz.<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Zdrav\u00ed a handicapovan\u00ed \u010dlenov\u00e9 sdru\u017een\u00ed \u010cern\u00ed kon\u011b se vydaj\u00ed na turn\u00e9 \u201eTour4change\u201c \u010ceskou republikou s c\u00edlem zbo\u0159it zdi stoj\u00edc\u00ed mezi handicapovan\u00fdmi a v\u011bt\u0161inovou spole\u010dnost\u00ed. B\u011bhem <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=28320\" title=\"D\u011aTI POM\u00c1HAJ\u00cd D\u011aTEM ANEB KOUZLO POMOCI HANDICAPOVAN\u00ddM\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-28320","post","type-post","status-publish","format-standard","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28320","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=28320"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28320\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=28320"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=28320"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=28320"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}