{"id":28375,"date":"2017-06-05T16:25:50","date_gmt":"2017-06-05T14:25:50","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=28375"},"modified":"2017-06-05T16:25:50","modified_gmt":"2017-06-05T14:25:50","slug":"slunecnice-zaplavi-ceskou-republiku-startuje-1-rocnik-projektu-rozsvitme-ktery-podpori-pacienty-s-roztrousenou-sklerozou","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=28375","title":{"rendered":"Slune\u010dnice zaplav\u00ed \u010ceskou republiku. Startuje 1. ro\u010dn\u00edk projektu \u201eRozsvi\u0165me\u201c, kter\u00fd podpo\u0159\u00ed pacienty s roztrou\u0161enou skler\u00f3zou"},"content":{"rendered":"

U\u017e z\u00edtra vyraz\u00ed lid\u00e9 po cel\u00e9 republice se sazenicemi slune\u010dnic do ulic, aby je zasadili ve sv\u00e9m m\u011bst\u011b, a dali tak najevo soun\u00e1le\u017eitost s pacienty s roztrou\u0161enou skler\u00f3zou (RS). Touto nemoc\u00ed trp\u00ed v \u010cR p\u0159es 17 tis\u00edc lid\u00ed. Ka\u017ed\u00fd rok p\u0159ibude a\u017e 1 000 nov\u011b nemocn\u00fdch. Kvalita p\u00e9\u010de o pacienty s RS v\u0161ak mnohde zaost\u00e1v\u00e1. Osv\u011btov\u00fd projekt Rozsvi\u0165me \u010ceskou republiku proto vyz\u00fdv\u00e1 \u010deskou populaci, aby se spojila a zasadila o zlep\u0161en\u00ed mo\u017enost\u00ed komplexn\u00ed l\u00e9\u010dby o tyto nemocn\u00e9.<\/strong>
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\n\u201eLidi, kte\u0159\u00ed cht\u011bj\u00ed projekt podpo\u0159it, zveme, aby p\u0159i\u0161li na vytipovan\u00e1 m\u00edsta, jejich\u017e seznam najdou na www.nfimpuls.cz<\/a> a zasadili svoji vlastn\u00ed slune\u010dnici. Pacienty mohou podpo\u0159it tak\u00e9 p\u0159\u00edsp\u011bvkem na transparentn\u00ed \u00fa\u010det projektu Rozsvi\u0165me \u010ceskou republiku 8888 999 000\/2010 Fio banka a.s. D\u00e1rcovskou SMS ve tvaru DMS IMPULS 30 mohou lid\u00e9 pos\u00edlat na \u010d\u00edslo 87 777. Cena DMS je 30 K\u010d, Nada\u010dn\u00ed fond (NF) IMPULS obdr\u017e\u00ed 29 K\u010d. Pen\u00edze, kter\u00e9 vybereme, okam\u017eit\u011b rozd\u011bl\u00edme organizac\u00edm, kter\u00e9 se o pacienty staraj\u00ed a pom\u00e1haj\u00ed jim \u017e\u00edt plnohodnotn\u00fd \u017eivot RS navzdory,\u201c \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z NF IMPULS, kter\u00fd je s podporou Unie Roska inici\u00e1torem akce.<\/p>\n

Nemocn\u00e9 s RS podporuje NF IMPULS ji\u017e 17 let, a jeho pr\u00e1ce za\u010d\u00edn\u00e1 tam, kde kon\u010d\u00ed mo\u017enosti ve\u0159ejn\u00e9ho poji\u0161t\u011bn\u00ed.<\/p>\n

\u201eRozhodli jsme se, \u017ee je pot\u0159eba s rostouc\u00edm po\u010dtem pacient\u016f roz\u0161\u00ed\u0159it tak\u00e9 hranice pomoci, kter\u00e9 se nemocn\u00fdm dost\u00e1v\u00e1. Proto se zrodil celorepublikov\u00fd projekt Rozsvi\u0165me \u010ceskou republiku, kter\u00fd je v\u00fdzvou pro v\u0161echny lidi a firmy, aby pom\u00e1hali spolu s n\u00e1mi zlep\u0161it podm\u00ednky p\u00e9\u010de a t\u00edm i kvalitu \u017eivota pacient\u016f s RS,\u201c up\u0159es\u0148uje Kate\u0159ina B\u00e9mov\u00e1 z NF IMPULS. Projekt symbolizuje slune\u010dnice, proto\u017ee ka\u017ed\u00e9 r\u00e1no ot\u00e1\u010d\u00ed hlavu za sluncem vst\u0159\u00edc nov\u00e9 nad\u011bji stejn\u011b, jako pacienti s touto v\u00e1\u017enou diagn\u00f3zou.<\/p>\n

Happeningy startuj\u00ed v Praze, Ostrav\u011b, Jihlav\u011b, \u010cesk\u00fdch Bud\u011bjovic\u00edch a Teplic\u00edch 6. \u010dervna 2017 v 10 hod. Pacienti s RS, jejich l\u00e9ka\u0159i, sestry, p\u0159edstavitel\u00e9 m\u011bsta, m\u00edstn\u00ed firmy, NF IMPULS, Unie Roska a podporovatel\u00e9 p\u0159ijdou osadit ve\u0159ejn\u00e9 pozemky rozkvetl\u00fdmi slune\u010dnicemi na znamen\u00ed podpory lid\u00ed s RS.<\/p>\n

V Praze se akce kon\u00e1 v Kate\u0159insk\u00e9 zahrad\u011b, vchod proti rohu ulic Ke Karlovu a Na Boji\u0161ti, k z\u00e1honu ve\u0159ejnost zavedou sm\u011brovky. V Ostrav\u011b v Sanatori\u00edch Klimkovice, H\u00fdlov 24. V Bud\u011bjovic\u00edch se bude s\u00e1zet na ulici Lidick\u00e1 (mezi St\u00e1tn\u00ed v\u011bdeckou knihovnu a KD Gerbera). V Jihlav\u011b je z\u00e1hon na ulici Hradebn\u00ed. V Teplic\u00edch se akce kon\u00e1 v parku Milady Hor\u00e1kov\u00e9 v bl\u00edzkosti vlakov\u00e9ho n\u00e1dra\u017e\u00ed (N\u00e1dra\u017en\u00ed n\u00e1m\u011bst\u00ed, z\u00e1hon u ka\u0161ny).<\/p>\n

Z\u00e1\u0161titu projektu poskytl vicepremi\u00e9r Pavel B\u011blobr\u00e1dek, kter\u00fd s\u00e1m nemoc\u00ed trp\u00ed. \u201eNa akc\u00edch r\u00e1di p\u0159iv\u00edt\u00e1me v\u0161echny, kdo cht\u011bj\u00ed nemocn\u00fdm s RS pomoci v boji s touto nemoc\u00ed,\u201c dod\u00e1v\u00e1 B\u00e9mov\u00e1.<\/p>\n

\u201eRS je nej\u010dast\u011bj\u0161\u00ed neurologick\u00e9 onemocn\u011bn\u00ed mlad\u00fdch lid\u00ed vedouc\u00ed k trval\u00e9 invalidit\u011b z neurologick\u00e9 p\u0159\u00ed\u010diny. Neexistuje prevence, p\u0159\u00edchodu nemoci se tak nelze ubr\u00e1nit. V sou\u010dasnosti nem\u00e1me k dispozici l\u00e9k, kter\u00fd by RS vyl\u00e9\u010dil. Nemoc postihuje p\u0159edev\u0161\u00edm mlad\u00e9 lidi v produktivn\u00edm v\u011bku a nevyh\u00fdb\u00e1 se ani d\u011btem. V populaci se roz\u0161i\u0159uje natolik, \u017ee pokud by \u010dlov\u011bk cht\u011bl, ur\u010dit\u011b by ve sv\u00e9m okol\u00ed na\u0161el n\u011bkoho, kdo RS trp\u00ed,\u201c uv\u00e1d\u00ed prof. MUDr. Eva Kubala Havrdov\u00e1, CSc., vedouc\u00ed Centra pro demyeliniza\u010dn\u00ed onemocn\u011bn\u00ed Neurologick\u00e9 kliniky 1. LF UK a VFN v Praze.<\/p>\n

Ti, kdo na akci nemohou p\u0159ij\u00edt, mohou nemocn\u00e9 s RS podpo\u0159it tak\u00e9 t\u00edm, \u017ee si doma zasad\u00ed slune\u010dnici a fotografii budou sd\u00edlet s hastagem #rozsvitmecr na facebook.com\/nfimpuls\/ a na sv\u00fdch soci\u00e1ln\u00edch s\u00edt\u00edch.<\/p>\n

O Nada\u010dn\u00edm fondu IMPULS<\/p>\n

Nada\u010dn\u00ed fond IMPULS vznikl roku 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s RS (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz<\/a>.<\/p>\n

O roztrou\u0161en\u00e9 skler\u00f3ze<\/p>\n

RS je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto je l\u00e9\u010dba i prevence t\u011b\u017ek\u00e1. Na cel\u00e9m sv\u011bt\u011b trp\u00ed RS 2,5 mili\u00f3n\u016f nemocn\u00fdch, v \u010cesk\u00e9 republice se odhaduje po\u010det pacient\u016f na 17 tis\u00edc. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus (Epstein-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D.<\/p>\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

U\u017e z\u00edtra vyraz\u00ed lid\u00e9 po cel\u00e9 republice se sazenicemi slune\u010dnic do ulic, aby je zasadili ve sv\u00e9m m\u011bst\u011b, a dali tak najevo soun\u00e1le\u017eitost s pacienty […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":2052,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,9],"tags":[],"class_list":["post-28375","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=28375"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28375\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/2052"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=28375"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=28375"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=28375"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}