{"id":28414,"date":"2017-06-08T13:45:51","date_gmt":"2017-06-08T11:45:51","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=28414"},"modified":"2017-06-08T13:45:51","modified_gmt":"2017-06-08T11:45:51","slug":"lide-zasadili-slunecnice-a-podporili-tak-nemocne","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=28414","title":{"rendered":"Lid\u00e9 zasadili slune\u010dnice, a podpo\u0159ili tak nemocn\u00e9"},"content":{"rendered":"

V \u00fater\u00fd lid\u00e9 po cel\u00e9 republice vyrazili se sazenicemi slune\u010dnic do ulic, aby je zasadili ve sv\u00e9m m\u011bst\u011b, a dali tak najevo soun\u00e1le\u017eitost s pacienty s roztrou\u0161enou skler\u00f3zou (RS). Ka\u017ed\u00fd rok p\u0159ibude v \u010cesk\u00e9 republice a\u017e 1 000 nov\u011b nemocn\u00fdch. Kvalita p\u00e9\u010de o pacienty s RS v\u0161ak mnohde zaost\u00e1v\u00e1 a pomoci se nedost\u00e1v\u00e1 v\u0161em. Na probl\u00e9m upozornil osv\u011btov\u00fd projekt Rozsvi\u0165me \u010ceskou republiku, kter\u00fd vyzval \u010deskou populaci, aby jej spole\u010dn\u00fdmi silami pomohla \u0159e\u0161it.<\/strong>
\n
\n\u201eLid\u00e9, kte\u0159\u00ed nestihli na happening p\u0159ij\u00edt a cht\u011bj\u00ed projekt podpo\u0159it, mohou st\u00e1le p\u0159isp\u011bt libovolnou \u010d\u00e1stkou na transparentn\u00ed \u00fa\u010det projektu Rozsvi\u0165me \u010ceskou republiku 8888 999 000\/2010 Fio banka, a. s. Poslat mohou tak\u00e9 d\u00e1rcovskou SMS ve tvaru DMS IMPULS 30 na \u010d\u00edslo 87 777. Cena DMS je 30 K\u010d, Nada\u010dn\u00ed fond (NF) IMPULS obdr\u017e\u00ed 29 K\u010d. Pen\u00edze, kter\u00e9 vybereme, okam\u017eit\u011b rozd\u011bl\u00edme organizac\u00edm, kter\u00e9 se o pacienty staraj\u00ed a pom\u00e1haj\u00ed jim \u017e\u00edt plnohodnotn\u00fd \u017eivot RS navzdory,\u201c \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z NF IMPULS, kter\u00fd je s podporou Unie Roska inici\u00e1torem akce. Ve\u0159ejnost se do projektu m\u016f\u017ee zapojit tak\u00e9 tak, \u017ee si doma zasad\u00ed slune\u010dnici a fotografii bude sd\u00edlet s hastagem #rozsvitmecr na facebook.com\/nfimpuls\/ a na sv\u00fdch soci\u00e1ln\u00edch s\u00edt\u00edch.<\/p>\n

Nemocn\u00e9 s RS podporuje NF IMPULS ji\u017e 17 let a jeho pr\u00e1ce za\u010d\u00edn\u00e1 tam, kde kon\u010d\u00ed mo\u017enosti ve\u0159ejn\u00e9ho poji\u0161t\u011bn\u00ed. \u201eRozhodli jsme se, \u017ee je pot\u0159eba s rostouc\u00edm po\u010dtem pacient\u016f roz\u0161\u00ed\u0159it tak\u00e9 hranice pomoci, kter\u00e9 se nemocn\u00fdm dost\u00e1v\u00e1. Proto se zrodil celorepublikov\u00fd projekt Rozsvi\u0165me \u010ceskou republiku, jeho\u017e prvn\u00ed ro\u010dn\u00edk podpo\u0159ilo stovky lid\u00ed. V\u011b\u0159\u00edme, \u017ee do budoucna jich je\u0161t\u011b p\u0159ibude, slune\u010dnice pokvetou na ka\u017ed\u00e9m rohu a pacienti dostanou p\u00e9\u010di, jakou pot\u0159ebuj\u00ed,\u201c up\u0159es\u0148uje Kate\u0159ina B\u00e9mov\u00e1 z NF IMPULS. Projekt symbolizuje slune\u010dnice, proto\u017ee ka\u017ed\u00e9 r\u00e1no ot\u00e1\u010d\u00ed hlavu za sluncem vst\u0159\u00edc nov\u00e9 nad\u011bji, stejn\u011b jako pacienti s touto v\u00e1\u017enou diagn\u00f3zou.<\/p>\n

Happeningy prob\u011bhly v Praze, Ostrav\u011b, Jihlav\u011b, \u010cesk\u00fdch Bud\u011bjovic\u00edch a Teplic\u00edch 6. \u010dervna 2017 v 10 hod. Pacienti s RS, jejich l\u00e9ka\u0159i, sestry, p\u0159edstavitel\u00e9 m\u011bsta, m\u00edstn\u00ed firmy, NF IMPULS, Unie Roska a podporovatel\u00e9 p\u0159i\u0161li osadit ve\u0159ejn\u00e9 pozemky rozkvetl\u00fdmi slune\u010dnicemi na znamen\u00ed podpory lid\u00ed s RS. Z\u00e1\u0161titu projektu poskytl vicepremi\u00e9r Pavel B\u011blobr\u00e1dek, kter\u00fd s\u00e1m nemoc\u00ed trp\u00ed.<\/p>\n

\u201eRS je nej\u010dast\u011bj\u0161\u00ed neurologick\u00e9 onemocn\u011bn\u00ed mlad\u00fdch lid\u00ed vedouc\u00ed k trval\u00e9 invalidit\u011b z neurologick\u00e9 p\u0159\u00ed\u010diny. Neexistuje prevence, p\u0159\u00edchodu nemoci se tak nelze ubr\u00e1nit. V sou\u010dasnosti nem\u00e1me k dispozici l\u00e9k, kter\u00fd by RS vyl\u00e9\u010dil. Nemoc postihuje p\u0159edev\u0161\u00edm mlad\u00e9 lidi v produktivn\u00edm v\u011bku a nevyh\u00fdb\u00e1 se ani d\u011btem. V populaci se roz\u0161i\u0159uje natolik, \u017ee pokud by \u010dlov\u011bk cht\u011bl, ur\u010dit\u011b by ve sv\u00e9m okol\u00ed na\u0161el n\u011bkoho, kdo RS trp\u00ed,\u201c uv\u00e1d\u00ed prof. MUDr. Eva Kubala Havrdov\u00e1, CSc., vedouc\u00ed Centra pro demyeliniza\u010dn\u00ed onemocn\u011bn\u00ed Neurologick\u00e9 kliniky 1. LF UK a VFN v Praze.<\/p>\n

O Nada\u010dn\u00edm fondu IMPULS<\/p>\n

Nada\u010dn\u00ed fond IMPULS vznikl v roce 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s RS (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz.<\/p>\n

O roztrou\u0161en\u00e9 skler\u00f3ze<\/p>\n

RS je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto je l\u00e9\u010dba i prevence t\u011b\u017ek\u00e1. Na cel\u00e9m sv\u011bt\u011b trp\u00ed RS 2,5 milion\u016f nemocn\u00fdch, v \u010cesk\u00e9 republice se odhaduje po\u010det pacient\u016f na 17 tis\u00edc. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus (Epstein-Barrov\u00e9 virus), kou\u0159en\u00ed a nedostatek vitaminu D.<\/p>\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

V \u00fater\u00fd lid\u00e9 po cel\u00e9 republice vyrazili se sazenicemi slune\u010dnic do ulic, aby je zasadili ve sv\u00e9m m\u011bst\u011b, a dali tak najevo soun\u00e1le\u017eitost s pacienty […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":28428,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7,9],"tags":[],"class_list":["post-28414","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-spolecnost","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28414","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=28414"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28414\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/28428"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=28414"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=28414"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=28414"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}