{"id":28433,"date":"2017-06-08T15:06:49","date_gmt":"2017-06-08T13:06:49","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=28433"},"modified":"2017-06-08T15:06:49","modified_gmt":"2017-06-08T13:06:49","slug":"mahulena-mojzisova-pece-o-nemocne-a-umirajici-deti-je-stale-malo-dostupna","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=28433","title":{"rendered":"Mahulena Moj\u017e\u00ed\u0161ov\u00e1: P\u00e9\u010de o nemocn\u00e9 a um\u00edraj\u00edc\u00ed d\u011bti je st\u00e1le m\u00e1lo dostupn\u00e1"},"content":{"rendered":"

V\u00e1\u017en\u00e9 onemocn\u011bn\u00ed d\u00edt\u011bte \u010di jeho smrt jsou velmi t\u011b\u017ek\u00fdmi t\u00e9maty. D\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de je nezbytn\u00fdm pomocn\u00edkem a pr\u016fvodcem v t\u00e9to n\u00e1ro\u010dn\u00e9 \u017eivotn\u00ed situaci a nab\u00edz\u00ed zaji\u0161t\u011bn\u00ed nejvy\u0161\u0161\u00ed mo\u017en\u00e9 kvality \u017eivota pro d\u011bti s \u017eivot omezuj\u00edc\u00edm a ohro\u017euj\u00edc\u00edm onemocn\u011bn\u00edm a jejich rodiny. Dostupnost t\u011bchto slu\u017eeb reviduje dokument „Stav d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de v \u010cR v roce 2017“ Pracovn\u00ed skupiny d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de \u010cesk\u00e9 spole\u010dnosti paliativn\u00ed medic\u00edny.<\/strong> <\/p>\n

Z dokumentu vyp\u00fdv\u00e1, \u017ee d\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de je ur\u010dena rodin\u00e1m, jejich\u017e d\u00edt\u011bti bylo diagnostikov\u00e1no \u017eivot ohro\u017euj\u00edc\u00ed nebo \u017eivot limituj\u00edc\u00ed onemocn\u011bn\u00ed. Pro tyto rodiny p\u0159edstavuje pomoc, jak tuto t\u011b\u017ekou \u017eivotn\u00ed etapu zvl\u00e1dnout co nejl\u00e9pe a nejd\u016fstojn\u011bji.<\/p>\n

V p\u0159\u00edpad\u011b \u010cesk\u00e9 republiky se odhadem jedn\u00e1 o n\u011bkolik tis\u00edc nevyl\u00e9\u010diteln\u011b nemocn\u00fdch d\u011bt\u00ed ro\u010dn\u011b. Pomoc um\u00edraj\u00edc\u00edm d\u011btem a jejich rodin\u00e1m v dom\u00e1c\u00edm prost\u0159ed\u00ed v tento okam\u017eik nab\u00edz\u00ed pouze \u010dty\u0159i organizace a p\u00e9\u010de nen\u00ed systematicky hrazen\u00e1 ze zdravotn\u00edho poji\u0161t\u011bn\u00ed. Tento neut\u011b\u0161en\u00fd stav za\u010dala m\u011bnit Pracovn\u00ed skupina d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de \u010cesk\u00e9 spole\u010dnosti pro paliativn\u00ed medic\u00ednu \u010cLS JEP, kter\u00e1 byla zalo\u017eena koncem roku 2015.<\/p>\n

V\u011bt\u0161ina \u017eivot limituj\u00edc\u00edch onemocn\u011bn\u00ed m\u00e1 jasnou progn\u00f3zu. Ned\u00e1vaj\u00ed nad\u011bji na uzdraven\u00ed, ale vy\u017eaduj\u00ed nesm\u00edrn\u011b n\u00e1ro\u010dnou p\u00e9\u010di. V d\u011btsk\u00e9m v\u011bku se nej\u010dast\u011bji jedn\u00e1 o velmi \u0161irok\u00e9 spektrum nen\u00e1dorov\u00fdch diagn\u00f3z, nap\u0159. d\u011bdi\u010dn\u00e9 poruchy metabolismu, vrozen\u00e1 neurodegenerativn\u00ed onemocn\u011bn\u00ed, nervosvalov\u00e1 onemocn\u011bn\u00ed, z\u00e1va\u017en\u00e1 posti\u017een\u00ed mozku vznikl\u00e1 nap\u0159. v obdob\u00ed kolem porodu \u010di po z\u00e1va\u017en\u00e9m \u00farazu. Pacienti s onkologickou diagn\u00f3zou tvo\u0159\u00ed zhruba 20 % d\u011bt\u00ed vy\u017eaduj\u00edc\u00edch paliativn\u00ed p\u00e9\u010di.<\/p>\n

V \u010cesk\u00e9 republice je dom\u00e1c\u00ed paliativn\u00ed p\u00e9\u010de pro v\u011bt\u0161inu d\u011bt\u00ed dostupn\u00e1 pouze omezen\u011b. Zlep\u0161en\u00ed situace nejen v t\u00e9to oblasti, ale v poskytov\u00e1n\u00ed paliativn\u00ed p\u00e9\u010de obecn\u011b za\u010dala prosazovat Pracovn\u00ed skupina d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de. „V minul\u00e9m roce do\u0161lo k n\u011bkolika d\u016fle\u017eit\u00fdm moment\u016fm z hlediska rozvoje d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de v \u010cesk\u00e9 republice. Na\u0161e pracovn\u00ed skupina provedla prvn\u00ed anal\u00fdzu situace d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de v \u010cR, zorganizovala setk\u00e1n\u00ed poskytovatel\u016f dom\u00e1c\u00ed d\u011btsk\u00e9 palaitivn\u00ed p\u00e9\u010de v Jihlav\u011b a uspo\u0159\u00e1dala Druhou konferenci d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de,“ \u0159\u00edk\u00e1 p\u0159edsedkyn\u011b Pracovn\u00ed skupiny MUDr. Mahulena Moj\u017e\u00ed\u0161ov\u00e1.<\/p>\n

Dom\u00e1c\u00ed paliativn\u00ed p\u00e9\u010di pro d\u011bti nab\u00edz\u00ed v \u010cR pouze \u010dty\u0159i organizace Krom\u011b t\u0159\u00ed organizac\u00ed v Praze (Cesta dom\u016f), Brn\u011b (mobiln\u00ed paliativn\u00ed t\u00fdm MUDr. Petra Lokaje ), v Ostrav\u011b (Mobiln\u00ed hospic Ondr\u00e1\u0161ek), za\u010dal minul\u00fd rok fungovat i dom\u00e1c\u00ed hospic Nejste sami v Olomouci.<\/p>\n

„Jsem velmi r\u00e1da, \u017ee byl zalo\u017een nov\u00fd dom\u00e1c\u00ed hospic, kter\u00fd disponuje samostatn\u00fdm pediatrick\u00fdm t\u00fdmem a od sv\u00e9ho vzniku poskytuje p\u00e9\u010di i d\u011btsk\u00fdm pacient\u016fm. Podpora nov\u00fdch poskytovatel\u016f dom\u00e1c\u00ed d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de i p\u0159\u00edpadn\u00fdch z\u00e1jemc\u016f o tuto t\u00e9matiku je jedn\u00edm z \u00fakol\u016f na\u0161\u00ed Pracovn\u00ed skupiny. Pro pot\u0159eby rozvoje pot\u0159ebn\u00e9 spolupr\u00e1ce mezi v\u0161emi subjekty jsme uspo\u0159\u00e1dali druh\u00fd ro\u010dn\u00edk „Jarn\u00edho setk\u00e1n\u00ed v Jihlav\u011b“, kter\u00fd prob\u011bhl dne 25.5.2017. Mysl\u00edm, \u017ee to bylo setk\u00e1n\u00ed \u00fasp\u011b\u0161n\u00e9 a inspirativn\u00ed, dal\u0161\u00ed krok ke zlep\u0161en\u00ed komunikace mezi sou\u010dasn\u00fdmi a potenci\u00e1ln\u00edmi poskytovateli dom\u00e1c\u00ed paliativn\u00ed p\u00e9\u010de pro d\u011btsk\u00e9 pacienty,“ \u0159\u00edk\u00e1 Mahulena Moj\u017e\u00ed\u0161ov\u00e1.<\/p>\n

Podstatou dom\u00e1c\u00ed hospicov\u00e9 p\u00e9\u010de je trval\u00fd pobyt d\u00edt\u011bte doma v p\u00e9\u010di rodi\u010d\u016f s mo\u017enost\u00ed pravideln\u00fdch n\u00e1v\u0161t\u011bv l\u00e9ka\u0159e, zdravotn\u00edch sester, soci\u00e1ln\u00edch pracovn\u00edk\u016f a psycholog\u016f, kte\u0159\u00ed jsou tak\u00e9 24 hodin denn\u011b dostupn\u00ed pro telefonickou asistenci a p\u0159\u00edpadn\u00fd akutn\u00ed v\u00fdjezd, je-li to t\u0159eba. Krom\u011b odborn\u00e9 p\u00e9\u010de zaji\u0161\u0165uj\u00ed tyto organizace tak\u00e9 zap\u016fj\u010den\u00ed pot\u0159ebn\u00fdch a finan\u010dn\u011b velmi n\u00e1kladn\u00fdch zdravotnick\u00fdch pom\u016fcek, jako jsou nap\u0159\u00edklad polohovateln\u00e1 l\u016f\u017eka \u010di koncentr\u00e1tory kysl\u00edku.<\/p>\n

Dlouhodob\u011b opom\u00edjen\u00e1 oblast Paliativn\u00ed p\u00e9\u010de pro d\u011bti v \u010cR bohu\u017eel pat\u0159\u00ed mezi t\u00e9mata, kter\u00e1 jsou sp\u00ed\u0161e na okraji z\u00e1jmu v\u011bt\u0161\u00ed \u010d\u00e1sti odborn\u00e9 ve\u0159ejnosti. Dokl\u00e1d\u00e1 to i fakt, \u017ee v\u016fbec prvn\u00ed odborn\u00e1 konference na t\u00e9ma d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de u n\u00e1s prob\u011bhla a\u017e v roce 2014. Mimo jin\u00e9 i z tohoto d\u016fvodu zorganizovala Pracovn\u00ed skupina d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de \u010cesk\u00e9 spole\u010dnosti pro paliativn\u00ed medic\u00ednu \u010cLS JEP v lo\u0148sk\u00e9m roce dv\u011b odborn\u00e9 konference v Jihlav\u011b a v Praze. Jednotliv\u00ed \u010dlenov\u00e9 Pracovn\u00ed skupiny se aktivn\u011b pod\u00edleli na \u0159ad\u011b odborn\u00fdch akc\u00ed, kde tuto tematiku prezentovali.<\/p>\n

C\u00edlem t\u011bchto aktivit je seznamovat \u00fa\u010dastn\u00edky s aktu\u00e1ln\u00ed situac\u00ed d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de a diskutovat o mo\u017enostech efektivn\u00ed spolupr\u00e1ce odborn\u00edk\u016f na v\u0161ech \u00farovn\u00edch p\u00e9\u010de o takto nemocn\u00e9 d\u011bti a jejich rodiny. Jarn\u00ed setk\u00e1n\u00ed na Vyso\u010din\u011b Sd\u00edlen\u00ed dobr\u00e9 praxe, setk\u00e1n\u00ed jednotliv\u00fdch poskytovatel\u016f, navazov\u00e1n\u00ed kontakt\u016f v oblasti dom\u00e1c\u00ed d\u011btsk\u00e9 palaitivn\u00ed p\u00e9\u010de m\u011blo za c\u00edl pr\u00e1v\u011b prob\u011bhl\u00e9 „Jarn\u00ed setk\u00e1n\u00ed na Vyso\u010din\u011b“, kter\u00e9ho se z\u00fa\u010dastnili z\u00e1jemci o toto t\u00e9ma. Spolupr\u00e1ce nap\u0159\u00ed\u010d v\u0161emi \u00farovn\u011bmi soci\u00e1ln\u00ed i zdravotn\u00ed p\u00e9\u010de toti\u017e m\u016f\u017ee zajistit tolik pot\u0159ebnou maxim\u00e1ln\u00ed mo\u017enou kvalitu \u017eivota d\u011bt\u00ed a jejich rodin. A to setk\u00e1n\u00ed na Vyso\u010din\u011b jist\u011b splnilo.<\/p>\n

„V roce 2017 pl\u00e1nuje Pracovn\u00ed skupina, uspo\u0159\u00e1d\u00e1n\u00ed v po\u0159ad\u00ed ji\u017e t\u0159et\u00edkonference d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de v \u010cR, kter\u00e1 prob\u011bhne koncem roku v Olomouci, po\u0159\u00e1d\u00e1n\u00ed zahrani\u010dn\u00edch kurz\u016f t\u00fdkaj\u00edc\u00edch se d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de a vyd\u00e1n\u00ed zahrani\u010dn\u00ed u\u010debnice D\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de,“ dod\u00e1v\u00e1 mana\u017eer Pracovn\u00ed skupiny Ji\u0159\u00ed Krej\u010d\u00ed. Na realizaci t\u011bchto a dal\u0161\u00edch konkr\u00e9tn\u00edch opat\u0159en\u00ed se bude i nad\u00e1le aktivn\u011b pod\u00edlet Pracovn\u00ed skupina d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de p\u0159i \u010cesk\u00e9 spole\u010dnosti paliativn\u00ed medic\u00edny, kter\u00e1 z\u00e1rove\u0148 velmi oce\u0148uje vst\u0159\u00edcnost a re\u00e1lnou podporu, kterou toto t\u00e9ma dost\u00e1v\u00e1 od Ministerstva zdravotnictv\u00ed \u010cR a odborn\u00e9 ve\u0159ejnosti.<\/p>\n

„Ministerstvo zdravotnictv\u00ed finan\u010dn\u011b podpo\u0159ilo po\u0159\u00e1d\u00e1n\u00ed konference, z\u00e1rove\u0148 tak\u00e9 vn\u00edm\u00e1me velkou v\u016fli spolupracovat nejenom ze strany ministerstva, ale i od jednotliv\u00fdch odborn\u00fdch spole\u010dnost\u00ed, kter\u00e9 n\u00e1m vyj\u00e1d\u0159ily svoji podporu,“ komentuje spolupr\u00e1ci doktorka Moj\u017e\u00ed\u0161ov\u00e1.<\/p>\n

Progn\u00f3za nemoci d\u00edt\u011bte z\u00e1vis\u00ed na typu onemocn\u011bn\u00ed. M\u016f\u017ee se jednat \u0159\u00e1dov\u011b o dny, ale tak\u00e9 m\u011bs\u00edce \u010di roky. Hlavn\u00edm c\u00edlem paliativn\u00ed p\u00e9\u010de o d\u00edt\u011b je minimalizovat fyzick\u00e9, psychick\u00e9 i soci\u00e1ln\u00ed str\u00e1d\u00e1n\u00ed d\u00edt\u011bte a zajistit odbornou podporu tak\u00e9 pe\u010duj\u00edc\u00edm a \u0161irok\u00e9 rodin\u011b. Pokud jde o zp\u016fsob zaji\u0161t\u011bn\u00ed paliativn\u00ed p\u00e9\u010de, pak je nezbytn\u00e9, aby byla dostupn\u00e1 jak ve zdravotnick\u00fdch za\u0159\u00edzen\u00edch, tak i v dom\u00e1c\u00edm prost\u0159ed\u00ed d\u00edt\u011bte, kdy za rodinou pravideln\u011b doj\u00ed\u017ed\u00ed multidisciplin\u00e1rn\u00ed t\u00fdm odborn\u00edk\u016f, kter\u00fd je k dispozici 24 hodin denn\u011b.<\/p>\n

MUDr. Mahulena Moj\u017e\u00ed\u0161ov\u00e1 je p\u0159edsedkyn\u011b Pracovn\u00ed skupiny d\u011btsk\u00e9 paliativn\u00ed p\u00e9\u010de, prim\u00e1\u0159ka d\u011btsk\u00e9ho odd\u011blen\u00ed Nemocnice Ho\u0159ovice a pediatr Cesty dom\u016f<\/p>\n

Parlamentn\u00ed Listy
\nhttp:\/\/www.parlamentnilisty.cz\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

V\u00e1\u017en\u00e9 onemocn\u011bn\u00ed d\u00edt\u011bte \u010di jeho smrt jsou velmi t\u011b\u017ek\u00fdmi t\u00e9maty. D\u011btsk\u00e1 paliativn\u00ed p\u00e9\u010de je nezbytn\u00fdm pomocn\u00edkem a pr\u016fvodcem v t\u00e9to n\u00e1ro\u010dn\u00e9 \u017eivotn\u00ed situaci a nab\u00edz\u00ed […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":23097,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-28433","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28433","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=28433"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28433\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/23097"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=28433"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=28433"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=28433"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}