{"id":28474,"date":"2017-06-16T12:44:30","date_gmt":"2017-06-16T10:44:30","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=28474"},"modified":"2017-06-16T12:44:30","modified_gmt":"2017-06-16T10:44:30","slug":"pacientske-organizace-zadaji-zlepseni-podminek-pro-zeny-s-metastatickou-rakovinou-prsu","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=28474","title":{"rendered":"Pacientsk\u00e9 organizace \u017e\u00e1daj\u00ed zlep\u0161en\u00ed podm\u00ednek pro \u017eeny s metastatickou rakovinou prsu"},"content":{"rendered":"<p><strong>Zaji\u0161t\u011bn\u00ed dostupn\u00e9 modern\u00ed l\u00e9\u010dby, zdravotn\u00edch pom\u016fcek a n\u00e1vazn\u00e9 zdravotn\u00ed p\u00e9\u010de nebo pot\u0159eba zlep\u0161en\u00ed syst\u00e9mu soci\u00e1ln\u00edch d\u00e1vek pro pacientky s diagn\u00f3zou metastatick\u00e9ho st\u00e1dia rakoviny prsu. Celkem sedm po\u017eadavk\u016f je obsahem memoranda, kter\u00e9 koncem kv\u011btna podepsaly organizace sdru\u017een\u00e9 pod z\u00e1\u0161titou Aliance \u017een s rakovinou prsu. Spole\u010dn\u011b cht\u011bj\u00ed jednat se z\u00e1stupci st\u00e1tn\u00ed spr\u00e1vy, politick\u00e9 sc\u00e9ny, zdravotn\u00edch poji\u0161\u0165oven i se z\u00e1stupci odborn\u00e9 l\u00e9ka\u0159sk\u00e9 spole\u010dnosti a upozornit je na aktu\u00e1ln\u00ed probl\u00e9my \u017een s nevyl\u00e9\u010ditelnou nemoc\u00ed.<\/strong><br \/>\n<!--more--><br \/>\nStatistiky ukazuj\u00ed, \u017ee p\u0159ibli\u017en\u011b 30 procent\u016fm \u017een, kter\u00e9 se l\u00e9\u010dily s rakovinou prsu, se nemoc vr\u00e1t\u00ed, bohu\u017eel u\u017e ve \u010dtvrt\u00e9m, tedy metastatick\u00e9m st\u00e1diu. Podle odhad\u016f N\u00e1rodn\u00edho onkologick\u00e9ho registru v roce 2017 \u017eije v \u010cesk\u00e9 republice kolem 3 370 \u017een s t\u00edmto onemocn\u011bn\u00edm. D\u00edky nov\u00fdm mo\u017enostem l\u00e9\u010dby se l\u00e9ka\u0159\u016fm da\u0159\u00ed v\u00fdrazn\u011b prodlu\u017eovat p\u0159e\u017eit\u00ed pacientek, a to p\u0159i velmi dobr\u00e9 kvalit\u011b \u017eivota.<\/p>\n<p>\u201eMemorandum je apelem na v\u0161echny partnery v oblasti zdravotn\u00ed a soci\u00e1ln\u00ed politiky, kte\u0159\u00ed mohou rozhodovat o budoucnosti t\u011bchto \u017een, aby poznali a pochopili jejich pot\u0159eby a podpo\u0159ili je v r\u00e1mci sv\u00e9ho rozhodov\u00e1n\u00ed,\u201c vysv\u011btluje \u0159editelka Aliance \u017een s rakovinou prsu Eva Knappov\u00e1.<\/p>\n<p>Z\u00e1rove\u0148 zd\u016fraz\u0148uje, \u017ee pacientsk\u00e9 organizace by se m\u011bly st\u00e1t pr\u00e1voplatn\u00fdmi partnery v dal\u0161\u00edm jedn\u00e1n\u00ed o pot\u0159eb\u00e1ch t\u011bchto \u017een. \u201eRealita je takov\u00e1, \u017ee pacientsk\u00e9 organizace st\u00e1le nejsou partne\u0159i ministerstva, poji\u0161\u0165oven ani dal\u0161\u00edch \u00fa\u0159ad\u016f. Nem\u016f\u017eeme tak p\u0159ipom\u00ednkovat ani zasahovat do legislativn\u00edch a spr\u00e1vn\u00edch jedn\u00e1n\u00ed, kter\u00e9 se metastatick\u00fdch \u017een p\u0159\u00edmo dot\u00fdkaj\u00ed. Proto jako jeden z bod\u016f memoranda po\u017eadujeme pos\u00edlen\u00ed role organizac\u00ed jako partner\u016f k zastupov\u00e1n\u00ed a h\u00e1jen\u00ed pr\u00e1v pacient\u016f,\u201c popisuje Knappov\u00e1.<\/p>\n<p>Z\u00e1stupci organizac\u00ed v memorandu \u017e\u00e1daj\u00ed mimo jin\u00e9 zaji\u0161t\u011bn\u00ed pln\u00e9 dostupnosti modern\u00ed l\u00e9\u010dby pro metastatick\u00e9 pacientky, stejn\u011b jako budouc\u00ed financov\u00e1n\u00ed t\u00e9to l\u00e9\u010dby, a to na z\u00e1klad\u011b evropsk\u00fdch a \u010desk\u00fdch odborn\u00fdch doporu\u010den\u00ed.<\/p>\n<p>Prim\u00e1\u0159ka MUDr. Katar\u00edna Petr\u00e1kov\u00e1, Ph.D., z Masarykova onkologick\u00e9ho \u00fastavu v Brn\u011b k tomu dod\u00e1v\u00e1: \u201eP\u0159ibli\u017en\u011b posledn\u00ed dva roky sledujeme v \u010cesk\u00e9 republice zpomalen\u00ed dostupnosti nov\u00e9 c\u00edlen\u00e9 l\u00e9\u010dby s prokazatelnou \u00fa\u010dinnost\u00ed. N\u011bkter\u00e9 c\u00edlen\u00e9 l\u00e9ky, kter\u00e9 v\u00fdznamn\u011b prodlu\u017euj\u00ed p\u0159e\u017eit\u00ed pacientek za dobr\u00e9 kvality \u017eivota a kter\u00e9 m\u011bly do\u010dasnou \u00fahradu, ji letos ztratily. T\u00fdk\u00e1 se to hlavn\u011b l\u00e9k\u016f pro l\u00e9\u010dbu pacientek s metastatick\u00fdm karcinomem prsu. Jde p\u0159itom o l\u00e9ky, kter\u00e9 jsou dostupn\u00e9 ve dvaadvaceti vysp\u011bl\u00fdch st\u00e1tech Evropy,\u201c dopl\u0148uje prim\u00e1\u0159ka Petr\u00e1kov\u00e1.<\/p>\n<p>Z\u00e1sadn\u00edm bodem memoranda je tak\u00e9 po\u017eadavek nastaven\u00ed syst\u00e9mu soci\u00e1ln\u00edho zabezpe\u010den\u00ed a podpory pro metastatick\u00e9 pacientky. Organizace po\u017eaduj\u00ed, aby byly \u017e\u00e1dosti o invalidn\u00ed d\u016fchody posuzov\u00e1ny operativn\u011b podle zdravotn\u00edho stavu pacienta. \u201ePosuzov\u00e1n\u00ed invalidity je z hlediska pacientek s metastatick\u00fdm onemocn\u011bn\u00edm problematick\u00e9. Pacientk\u00e1m, kter\u00e9 dos\u00e1hnou \u00fastupu rakoviny, je rychle sni\u017eov\u00e1n nebo odebr\u00e1n invalidn\u00ed d\u016fchod. Tyto \u017eeny jsou tak nuceny vr\u00e1tit se do pln\u00e9ho provozu, p\u0159itom jejich v\u00fdkonnost je velmi omezena a nen\u00ed \u017e\u00e1dn\u00fd prostor pro \u0161et\u0159\u00edc\u00ed re\u017eim jako prevence proti n\u00e1vratu nemoci,\u201c \u0159\u00edk\u00e1 statut\u00e1rn\u00ed z\u00e1stupce a soci\u00e1ln\u00ed pracovnice organizace Amelie Mgr. \u0160\u00e1rka Slav\u00edkov\u00e1. \u201eDal\u0161\u00edm probl\u00e9mem jsou nap\u0159\u00edklad omezen\u00e9 vych\u00e1zky pro pacientky s rakovinou v pracovn\u00ed neschopnosti. To je jeden z p\u0159\u00edklad\u016f ne\u0161\u0165astn\u00e9ho nastaven\u00ed syst\u00e9mu, kter\u00e9 je pot\u0159eba zm\u011bnit,\u201c dod\u00e1v\u00e1 Slav\u00edkov\u00e1.<\/p>\n<p>V dal\u0161\u00edch bodech \u017e\u00e1daj\u00ed organizace tak\u00e9 zaji\u0161t\u011bn\u00ed dostupnosti zdravotn\u00edch pom\u016fcek a propojen\u00ed n\u00e1vazn\u00fdch zdravotn\u00edch a soci\u00e1ln\u00edch slu\u017eeb v pr\u016fb\u011bhu dlouhodob\u00e9 l\u00e9\u010dby metastatick\u00fdch pacientek, v\u010detn\u011b p\u00e9\u010de paliativn\u00ed. Z\u00e1rove\u0148 \u017e\u00e1daj\u00ed tak\u00e9 \u010ceskou onkologickou spole\u010dnost, aby pomohla pacientk\u00e1m \u0159e\u0161it n\u00e1vaznost zdravotn\u00ed p\u00e9\u010de mezi jednotliv\u00fdmi onkologick\u00fdmi pracovi\u0161ti nebo o zpracov\u00e1n\u00ed a zve\u0159ejn\u011bn\u00ed metodiky a postupu, kter\u00fd by ve prosp\u011bch pacientek sjednotil praxi pro pacientkou vy\u017e\u00e1dan\u00e9 posouzen\u00ed zdravotn\u00edho stavu a l\u00e9\u010dby dal\u0161\u00edm l\u00e9ka\u0159em, tzv. \u201esecond opinion\u201c.<\/p>\n<p>O Alianci \u017een s rakovinou prsu<\/p>\n<p>Aliance \u017een s rakovinou prsu, o. p. s., zalo\u017een\u00e1 v roce 2002, zast\u0159e\u0161uje 49 pacientsk\u00fdch organizac\u00ed z cel\u00e9 \u010cesk\u00e9 republiky. C\u00edle Aliance jsou vytvo\u0159it informa\u010dn\u00ed a eduka\u010dn\u00ed centrum pro ve\u0159ejnost, onkologicky nemocn\u00e9 a jejich organizace, poskytovat metodickou pomoc organizac\u00edm onkologicky nemocn\u00fdch a koordinovat projekty a kampan\u011b ve prosp\u011bch prevence a l\u00e9\u010dby n\u00e1dorov\u00e9ho onemocn\u011bn\u00ed prsu. Aliance \u017een tak\u00e9 sjednocuje snahy pacientsk\u00fdch organizac\u00ed i jednotlivc\u016f o prosazov\u00e1n\u00ed pr\u00e1v a rovn\u00fdch podm\u00ednek k l\u00e9\u010den\u00ed a rekonvalescenci \u017een s n\u00e1dorov\u00fdm onemocn\u011bn\u00edm prsu.<\/p>\n<p>Jana B\u011bhalov\u00e1<br \/>\nTiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Zaji\u0161t\u011bn\u00ed dostupn\u00e9 modern\u00ed l\u00e9\u010dby, zdravotn\u00edch pom\u016fcek a n\u00e1vazn\u00e9 zdravotn\u00ed p\u00e9\u010de nebo pot\u0159eba zlep\u0161en\u00ed syst\u00e9mu soci\u00e1ln\u00edch d\u00e1vek pro pacientky s diagn\u00f3zou metastatick\u00e9ho st\u00e1dia rakoviny prsu. Celkem <a class=\"mh-excerpt-more\" href=\"https:\/\/www.invarena.cz\/?p=28474\" title=\"Pacientsk\u00e9 organizace \u017e\u00e1daj\u00ed zlep\u0161en\u00ed podm\u00ednek pro \u017eeny s metastatickou rakovinou prsu\">[&#8230;]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":28475,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11,9],"tags":[],"class_list":["post-28474","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28474","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=28474"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/28474\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/28475"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=28474"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=28474"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=28474"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}