{"id":29132,"date":"2017-09-22T15:55:36","date_gmt":"2017-09-22T13:55:36","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=29132"},"modified":"2017-09-22T15:55:36","modified_gmt":"2017-09-22T13:55:36","slug":"lide-s-epilepsii-vzkazuji-nasi-nemoci-se-nebojte","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=29132","title":{"rendered":"Lid\u00e9 s epilepsi\u00ed vzkazuj\u00ed \u2013 na\u0161\u00ed nemoci se nebojte!"},"content":{"rendered":"<p><strong>Epilepsie \u2013 d\u011bsiv\u00e1 choroba? Nebo nemoc, se kterou lze bez probl\u00e9m\u016f \u017e\u00edt? Rozhodn\u011b to druh\u00e9, shoduj\u00ed se l\u00e9ka\u0159i a dal\u0161\u00ed specialist\u00e9.<\/strong><br \/>\n<!--more--><br \/>\nChronickou epilepsii m\u00e1 v \u010cesk\u00e9 republice v aktivn\u00ed f\u00e1zi p\u0159ibli\u017en\u011b 80 000 lid\u00ed. Nejm\u00e9n\u011b dal\u0161\u00edch 160 000 osob se n\u011bkdy pro epilepsii v pr\u016fb\u011bhu \u017eivota l\u00e9\u010dilo nebo st\u00e1le l\u00e9\u010d\u00ed, ale jsou v\u00edce ne\u017e 5 let v remisi. Na m\u00fdty spojen\u00e9 s epilepsi\u00ed cht\u011bj\u00ed odborn\u00edci upozornit v r\u00e1mci N\u00e1rodn\u00edho dne epilepsie, kter\u00fd p\u0159ipad\u00e1 na 30. z\u00e1\u0159\u00ed. <\/p>\n<p>\u201eI v dne\u0161n\u00ed dob\u011b se lid\u00e9 setk\u00e1vaj\u00ed se stigmatizac\u00ed, strachem okol\u00ed z jejich nemoci a jistou formou diskriminace, p\u0159edev\u0161\u00edm v pr\u00e1ci,\u201c \u0159\u00edk\u00e1 l\u00e9ka\u0159ka Centra pro epilepsie FN Motol MUDr. Jana Z\u00e1rubov\u00e1, kter\u00e1 je z\u00e1rove\u0148 p\u0159edsedkyn\u00ed spolku EpiStop. \u201eNemoc je st\u00e1le op\u0159edena m\u00fdty, kter\u00e9 se neda\u0159\u00ed odstranit. Pacienti s epilepsi\u00ed b\u00fdvaj\u00ed \u010dasto pracovn\u011b znev\u00fdhodn\u011bni, zam\u011bstnavatel\u00e9 se jejich nemoci boj\u00ed. D\u011bti s epilepsi\u00ed m\u00edvaj\u00ed probl\u00e9m z\u00fa\u010dastnit se aktivit jako jsou r\u016fzn\u00e9 t\u00e1bory, v\u00fdlety. Nemoc n\u011bkdy taj\u00ed samotn\u00ed pacienti, ob\u00e1vaj\u00ed se odm\u00edtnut\u00ed.\u201d Tuto zku\u0161enost potvrzuje i zastupitel pra\u017esk\u00e9 m\u011bstsk\u00e9 \u010d\u00e1sti a re\u017eis\u00e9r dabingu Ivan Hole\u010dek (37). \u201eEpilepsie se mi poprv\u00e9 objevila v 16 letech, a p\u0159esto\u017ee mi l\u00e9ka\u0159i hned nasadili antiepileptika, z\u00e1chvaty se pozd\u011bji opakovaly. Kdy\u017e jsem, u\u017e na vysok\u00e9 \u0161kole, dostal z\u00e1chvat p\u0159\u00edmo na ulici, c\u00edtil jsem stud a zbyte\u010dnou pot\u0159ebu se za nemoc omlouvat,\u201d \u0159\u00edk\u00e1 Ivan Hole\u010dek. D\u00edky kvalitn\u00ed l\u00e9ka\u0159sk\u00e9 p\u00e9\u010di u\u017e 13 let neprod\u011blal jedin\u00fd z\u00e1chvat. Jak se stav\u00ed k nemoci n\u011bkte\u0159\u00ed zam\u011bstnavatel\u00e9, si vyzkou\u0161el v praxi. \u201eP\u0159esto\u017ee jsem byl OSV\u010c, cht\u011bl jsem zjistit, jak zam\u011bstnavatel\u00e9 na epilepsii hled\u00ed. P\u0159ihl\u00e1sil jsem se na pracovn\u00ed pozici a \u00fasp\u011b\u0161n\u011b proch\u00e1zel v\u0161emi koly a\u017e do toho posledn\u00edho. Z\u00e1v\u011brem jsem letmo zm\u00ednil, \u017ee m\u00e1m epilepsii. N\u00e1sledn\u011b p\u0159i\u0161lo odm\u00edtnut\u00ed,\u201d vzpom\u00edn\u00e1 re\u017eis\u00e9r. Podle MUDr. Z\u00e1rubov\u00e9 laick\u00e1 ve\u0159ejnost lidi s t\u00edmto onemocn\u011bn\u00edm pasivn\u011b odm\u00edt\u00e1. \u201ePacienti tak bohu\u017eel c\u00edt\u00ed, \u017ee se nevyplat\u00ed nemoc p\u0159iznat,\u201d uv\u00e1d\u00ed MUDr. Z\u00e1rubov\u00e1. <\/p>\n<p>V sou\u010dasn\u00e9 dob\u011b l\u00e9ka\u0159i p\u0159i spr\u00e1vn\u00e9 a v\u010dasn\u00e9 diagnostice a farmakologick\u00e9 l\u00e9\u010db\u011b dostanou nemoc pod kontrolu a\u017e u 70 % pacient\u016f. Tito lid\u00e9 nemaj\u00ed z\u00e1chvaty. U t\u0159etiny lid\u00ed ale farmakologick\u00e1 l\u00e9\u010dba ne\u00fa\u010dinkuje. \u010c\u00e1sti z nich lze podle l\u00e9ka\u0159\u016f pomoci operac\u00ed, stimulac\u00ed bloudiv\u00e9ho nervu nebo hlubokou mozkovou stimulac\u00ed. \u201eAbychom mohli epilepsii \u00fa\u010dinn\u011b l\u00e9\u010dit, mus\u00edme zn\u00e1t jej\u00ed p\u0159esnou p\u0159\u00ed\u010dinu u konkr\u00e9tn\u00edho pacienta. Epileptologie je v \u010cR na vysok\u00e9 \u00farovni, a to d\u00edky diferencovan\u00e9 p\u00e9\u010di. Jednodu\u0161\u0161\u00ed p\u0159\u00edpady z\u016fst\u00e1vaj\u00ed v p\u00e9\u010di neurolog\u016f. Pokud z\u00e1chvaty neustanou do 1 roku od vzniku onemocn\u011bn\u00ed, jsou odesl\u00e1ni epileptolog\u016fm. Jestli\u017ee z\u00e1chvaty neust\u00e1vaj\u00ed do 2 let, maj\u00ed b\u00fdt lid\u00e9 s epilepsi\u00ed odesl\u00e1ni do Center vysoce specializovan\u00e9 p\u00e9\u010de pro farmakorezistentn\u00ed epilepsie. Zde se multidisciplin\u00e1rn\u00ed t\u00fdm sna\u017e\u00ed odhalit p\u0159\u00ed\u010dinu, kandid\u00e1ty pro opera\u010dn\u00ed a stimula\u010dn\u00ed l\u00e9\u010dbu a naj\u00edt optim\u00e1ln\u00ed postup, kter\u00fd z\u00e1chvaty odstran\u00ed nebo zm\u00edrn\u00ed a z\u00e1rove\u0148 pacient\u016fm dovol\u00ed \u017e\u00edt mezi z\u00e1chvaty kvalitn\u00ed \u017eivot,\u201c \u0159\u00edk\u00e1 MUDr. Z\u00e1rubov\u00e1. Status takov\u00e9ho centra je nyn\u00ed Ministerstvem zdravotnictv\u00ed \u010cR p\u0159izn\u00e1n Neurologick\u00e9 klinice ve FN Motol a FN U svat\u00e9 Anny v Brn\u011b a Neurologick\u00e9mu odd\u011blen\u00ed v Nemocnici Na Homolce. <\/p>\n<p>V \u010dem podle l\u00e9ka\u0159ky p\u00e9\u010de o lidi s epilepsi\u00ed v \u010cR st\u00e1le pokulh\u00e1v\u00e1 je p\u00e9\u010de soci\u00e1ln\u00ed, psychologick\u00e1, \u010di ergoterapeutick\u00e1 (jej\u00edm c\u00edlem je umo\u017enit lidem si zachovat maxim\u00e1ln\u00ed sob\u011bsta\u010dnost v b\u011b\u017en\u00fdch denn\u00edch \u010dinnostech). Tento nedostatek se sna\u017e\u00ed zm\u00edrnit soci\u00e1ln\u00ed pracovnice a ergoterapeutka EpiStop. Dal\u0161\u00edm probl\u00e9mem je tzv. rescue (pohotovostn\u00ed) l\u00e9\u010dba, kterou mohou n\u011bkte\u0159\u00ed lid\u00e9 s epilepsi\u00ed zabr\u00e1nit rozvoji z\u00e1chvatu p\u0159ed t\u00edm, ne\u017e propukne v pln\u00e9 s\u00edle nebo mohou bl\u00edzc\u00ed a pe\u010dovatel\u00e9 zastavit spont\u00e1nn\u011b nekon\u010d\u00edc\u00ed velk\u00fd epileptick\u00fd z\u00e1chvat je\u0161t\u011b p\u0159ed dojezdem Rychl\u00e9 z\u00e1chrann\u00e9 slu\u017eby. \u201eZdravotn\u00ed poji\u0161\u0165ovny propl\u00e1cej\u00ed rescue medikaci ve form\u011b, kdy se zav\u00e1d\u00ed do kone\u010dn\u00edku, co\u017e je pro pacienta na ve\u0159ejnosti ned\u016fstojn\u00e9 a n\u011bkdy i nemo\u017en\u00e9. P\u0159itom zde je l\u00e9k, kter\u00fd se st\u0159\u00edkne do \u00fast \u010di do nosu, pro pou\u017eit\u00ed mnohem jednodu\u0161\u0161\u00ed, ten v\u0161ak zdravotn\u00ed poji\u0161\u0165ovny propl\u00e1c\u00ed v\u00fdjime\u010dn\u011b a po slo\u017eit\u00e9 administrativn\u00ed procedu\u0159e,\u201c dod\u00e1v\u00e1 MUDr. Z\u00e1rubov\u00e1.<\/p>\n<p>Aktivity k N\u00e1rodn\u00edmu dni epilepsie<\/p>\n<p>V z\u00e1\u0159\u00ed, v souvislosti s N\u00e1rodn\u00edm dnem epilepsie, prob\u00edh\u00e1 n\u011bkolik sportovn\u00edch a spole\u010densk\u00fdch aktivit vhodn\u00fdch pro pacienty s epilepsi\u00ed. Prvn\u00ed je b\u011bh pro epilepsii Epi\u00a9Run, kter\u00fd se v leto\u0161n\u00edm roce konal 13. 9. (http:\/\/www.epistop.cz\/archiv\/4-pro-sponzory\/393-epi-c-run-2017). Krom\u011b toho 23. 9. odstartuje 15. ro\u010dn\u00edk \u201eEPPI\u201c vod\u00e1ck\u00e9ho triatlonu ve Vesel\u00ed nad Lu\u017enic\u00ed (www.vodackytriatlon.cz). Z\u00e1vod je upraven\u00fd tak, aby se ho mohli z\u00fa\u010dastnit pacienti s epilepsi\u00ed. Nap\u0159\u00edklad nam\u00edsto plav\u00e1n\u00ed p\u00e1dluj\u00ed na lod\u00edch. Dne 26. 9. se kon\u00e1 koncert \u201eBe happy s epi\u201c na n\u00e1m\u011bst\u00ed Ji\u0159\u00edho z Pod\u011bbrad v Praze. Od \u010dervna do konce z\u00e1\u0159\u00ed, stejn\u011b jako ka\u017ed\u00fd rok, mohou pos\u00edlat d\u011bti a jejich rodi\u010de mal\u016fvky do v\u00fdtvarn\u00e9 sout\u011b\u017ee pro d\u011bti s epilepsi\u00ed \u201eL\u00edb\u00ed se ti, mami?\u201c. (www.libisetimami.cz). Leto\u0161n\u00ed ro\u010dn\u00edk je v po\u0159ad\u00ed p\u00e1t\u00fd. <\/p>\n<p>O EpiStop<\/p>\n<p>Zapsan\u00fd spolek EpiStop vytv\u00e1\u0159\u00ed platformu pro setk\u00e1v\u00e1n\u00ed, spolupr\u00e1ci a aktivn\u00ed \u010dinnost v\u0161ech skupin a osob, kter\u00e9 maj\u00ed vztah k lidem s epilepsi\u00ed (pacient\u016f, z\u00e1stupc\u016f pacientsk\u00fdch organizac\u00ed, zdravotn\u00edk\u016f, odborn\u00fdch spole\u010dnost\u00ed, soci\u00e1ln\u00edch poradc\u016f, \u00fa\u0159edn\u00edk\u016f st\u00e1tn\u00ed spr\u00e1vy, z\u00e1stupc\u016f m\u00e9di\u00ed) s c\u00edlem zlep\u0161it postaven\u00ed t\u011bchto osob ve spole\u010dnosti. Na webu www.epistop.cz je \u0159ada voln\u011b dostupn\u00fdch eduka\u010dn\u00edch text\u016f, z\u00e1sady spr\u00e1vn\u00e9 prvn\u00ed pomoci a informace pro lidi s epilepsi\u00ed i jejich bl\u00edzk\u00e9. <\/p>\n<p>O epilepsii<\/p>\n<p>Epilepsie je neurologick\u00e9 onemocn\u011bn\u00ed, charakterizovan\u00e9 opakovan\u00fdm v\u00fdskytem neprovokovan\u00fdch epileptick\u00fdch z\u00e1chvat\u016f. Pat\u0159\u00ed mezi nej\u010dast\u011bj\u0161\u00ed mozkov\u00e1 onemocn\u011bn\u00ed a u d\u011bt\u00ed je nej\u010dast\u011bj\u0161\u00ed chronickou chorobou mozku v\u016fbec. Ke stanoven\u00ed diagn\u00f3zy epilepsie zpravidla doch\u00e1z\u00ed p\u0159i v\u00fdskytu dvou a v\u00edce epileptick\u00fdch z\u00e1chvat\u016f, v\u00fdjime\u010dn\u011b ji\u017e po jednom takov\u00e9m z\u00e1chvatu. Typ\u016f epilepsie je nyn\u00ed ji\u017e ur\u010deno v\u00edce ne\u017e 40. Hlavn\u00edm projevem jsou epileptick\u00e9 z\u00e1chvaty, kter\u00e9 mohou m\u00edt r\u016fznou podobu. Mohou se projevovat nap\u0159. pouh\u00fdm zahled\u011bn\u00edm, brn\u011bn\u00edm, v\u00fdpadkem pam\u011bti nebo pak zn\u00e1m\u00fdmi k\u0159e\u010demi kon\u010detin se ztr\u00e1tou v\u011bdom\u00ed. Vyskytuj\u00ed se jak v pr\u016fb\u011bhu dne, tak v noci b\u011bhem sp\u00e1nku.  P\u0159esto\u017ee se epilepsie m\u016f\u017ee objevit v kter\u00e9mkoliv v\u011bku, jsou \u017eivotn\u00ed obdob\u00ed, ve kter\u00fdch je nov\u00fd v\u00fdskyt epileptick\u00fdch z\u00e1chvat\u016f \u010dast\u011bj\u0161\u00ed ne\u017e v jin\u00fdch \u2013 hlavn\u00edmi vrcholy jsou prvn\u00ed rok \u017eivota a obdob\u00ed st\u00e1\u0159\u00ed.  P\u0159\u00ed\u010diny vzniku nemoci se s \u010dasem m\u011bn\u00ed, d\u0159\u00edve mezi nimi dominoval komplikovan\u00fd porod, \u010di infek\u010dn\u00ed onemocn\u011bn\u00ed, nyn\u00ed nab\u00fdvaj\u00ed na s\u00edle \u00farazy z adrenalinov\u00fdch sport\u016f, \u010di nehod. Ve sv\u011bt\u011b trp\u00ed epilepsi\u00ed v\u00edce ne\u017e 40 mili\u00f3n\u016f lid\u00ed, v Evrop\u011b p\u0159es 6 mili\u00f3n\u016f lid\u00ed, z toho p\u0159ibli\u017en\u011b 2 mili\u00f3ny d\u011bt\u00ed.<\/p>\n<p>Mark\u00e9ta Pudilov\u00e1<br \/>\nTiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"<div class=\"mh-excerpt\"><p>Epilepsie \u2013 d\u011bsiv\u00e1 choroba? Nebo nemoc, se kterou lze bez probl\u00e9m\u016f \u017e\u00edt? Rozhodn\u011b to druh\u00e9, shoduj\u00ed se l\u00e9ka\u0159i a dal\u0161\u00ed specialist\u00e9.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":21853,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-29132","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/29132","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=29132"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/29132\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/21853"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=29132"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=29132"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=29132"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}