{"id":30137,"date":"2018-02-08T19:01:26","date_gmt":"2018-02-08T18:01:26","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=30137"},"modified":"2018-02-08T23:03:52","modified_gmt":"2018-02-08T22:03:52","slug":"vyfotte-sve-dite-a-zjistite-zda-ma-nitrocni-nador","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=30137","title":{"rendered":"Vyfo\u0165te sv\u00e9 d\u00edt\u011b a zjist\u00edte, zda m\u00e1 nitroo\u010dn\u00ed n\u00e1dor"},"content":{"rendered":"

St\u00e1le je\u0161t\u011b jsou d\u011bti, kter\u00e9 p\u0159ijdou o zrak kv\u016fli nitroo\u010dn\u00edmu n\u00e1doru. P\u0159itom rodi\u010de mohou snadno zjistit, zda by d\u00edt\u011b mohlo m\u00edt nitroo\u010dn\u00ed n\u00e1dor a zaj\u00edt s n\u00edm v\u010das k l\u00e9ka\u0159i. Zachyt\u00ed-li se n\u00e1dor dostate\u010dn\u011b brzy, zrak m\u016f\u017ee b\u00fdt d\u00edt\u011bti zachr\u00e1n\u011bn. Porad\u00edme jak na to. <\/strong><\/p>\n

Retinoblastom je nej\u010dast\u011bj\u0161\u00edm nitroo\u010dn\u00edm n\u00e1dorem d\u011btsk\u00e9ho v\u011bku.<\/p>\n

\n

V \u010cR j\u00edm ka\u017edoro\u010dn\u011b onemocn\u00ed\u00a0pr\u016fm\u011brn\u011b 6 a\u017e 8 d\u011bt\u00ed. U n\u011bkter\u00fdch z nich je t\u0159eba odstranit cel\u00e9 oko nebo o\u010di, proto\u017ee n\u00e1dory jsou u\u017e p\u0159\u00edli\u0161 velk\u00e9.<\/p>\n

Nej\u010dast\u011bji se vyskytuje u d\u011bt\u00ed ve v\u011bku od \u0161esti m\u011bs\u00edc\u016f do t\u0159\u00ed let, tedy u d\u011bt\u00ed, kter\u00e9 samy nemohou rodi\u010d\u016fm sd\u011blit, \u017ee \u0161patn\u011b vid\u00ed a zrak se st\u00e1le zhor\u0161uje.<\/p>\n

Diagn\u00f3zu retinoblastomu stanovuje oftalmolog. Rodi\u010de v\u0161ak sami mohou u d\u00edt\u011bte zjistit varovn\u00e9 p\u0159\u00edznaky, kter\u00e9 by je m\u011bly v\u00e9st k n\u00e1v\u0161t\u011bv\u011b o\u010dn\u00edho l\u00e9ka\u0159e.<\/p>\n

Nej\u010dast\u011bj\u0161\u00edm p\u0159\u00edznakem retinoblastomu je b\u011blav\u00fd reflex v zornici<\/strong>, kter\u00fd je v\u011bt\u0161inou viditeln\u00fd na fotografii po\u0159\u00edzen\u00e9 s bleskem. Fotografie o\u010d\u00ed s t\u011bmito b\u011blav\u00fdmi odlesky jsou na www.retinoblastom.estranky.cz<\/strong>.<\/p>\n

\"\"
\nTento kr\u00e1sn\u00fd chlape\u010dek m\u00e1 retinoblastomem posti\u017een\u00e9 prav\u00e9 oko – vid\u00edme na n\u011bm b\u011blav\u00fd reflex.<\/em><\/p>\n

Dal\u0161\u00edm \u010dast\u00fdm projevem je \u0161ilh\u00e1n\u00ed<\/strong>, p\u0159edev\u0161\u00edm pokud n\u00e1dor postihuje st\u0159ed s\u00edtnice.<\/p>\n

Dal\u0161\u00edmi p\u0159\u00edznaky m\u016f\u017ee b\u00fdt z\u00e1n\u011bt tk\u00e1n\u00ed kolem oka, rozd\u00edln\u00e1 barva\u00a0duhovek <\/strong>na obou o\u010d\u00edch a zv\u00fd\u0161en\u00fd nitroo\u010dn\u00ed tlak.<\/p>\n

L\u00e9\u010dba retinoblastomu<\/strong><\/p>\n

Retinoblastomy d\u011bl\u00edme podle velikosti od nejmen\u0161\u00edho A do nejv\u011bt\u0161\u00edho E. V\u011bt\u0161ina pacient\u016f p\u0159ich\u00e1z\u00ed s n\u00e1dorem o velikosti C a D, to znamen\u00e1 s takov\u00fdm, kter\u00fd je u\u017e vid\u011bt na fotografii, nebo d\u00edt\u011b \u0161ilh\u00e1.<\/p>\n

L\u00e9ka\u0159i jsou schopni dos\u00e1hnout u velikosti C \u00fasp\u011bchu vyl\u00e9\u010den\u00ed bez nutnosti odstran\u011bn\u00ed oka a dokonce i u velikosti D jsou schopni dos\u00e1hnout vyl\u00e9\u010den\u00ed, a to v 90 % p\u0159\u00edpad\u016f.<\/p>\n

T\u011bchto v\u00fdsledk\u016f dosahuj\u00ed p\u0159edev\u0161\u00edm d\u00edky metod\u011b intraarteri\u00e1ln\u00ed chemoterapie, kdy zavedou katetr z oblasti t\u0159\u00edsla a\u017e do o\u010dn\u00ed tepny a jeho prost\u0159ednictv\u00edm p\u0159ivedou p\u0159\u00edmo k n\u00e1doru koncentrovan\u00e9 cytostatikum.<\/p>\n

Motolsk\u00e1 klinika d\u011btsk\u00e9 onkologie a hematologie <\/strong>za\u010dala prov\u00e1d\u011bt tuto intraarteri\u00e1ln\u00ed chemoterapii u vhodn\u00fdch pacient\u016f p\u0159ed v\u00edce ne\u017e rokem.<\/p>\n

Retinoblastom roste ze sv\u011btlo\u010divn\u00e9 vrstvy oka sm\u011brem pod s\u00edtnici a do sklivcov\u00e9ho prostoru.<\/p>\n

Jak n\u00e1dor postupuje, pronik\u00e1 i do optick\u00e9ho nervu. To zvy\u0161uje riziko metast\u00e1z – n\u00e1dorov\u00fdch lo\u017eisek v mozku.<\/p>\n

Samy hledaly informace t\u011b\u017eko, proto je te\u010f rozd\u00e1vaj\u00ed jin\u00fdm<\/strong><\/h3>\n

Kdy\u017e ob\u011b maminky poprv\u00e9 jely na o\u010dn\u00ed kliniku do pra\u017esk\u00e9ho Motola, m\u011bly svoje hol\u010di\u010dky je\u0161t\u011b \u00fapln\u011b malink\u00e9. Am\u00e9lka Krahulcov\u00e1 se spokojen\u011b nesla v \u0161\u00e1tku p\u0159ipevn\u011bn\u00e9m na t\u011ble maminky Lucie a Zuzka Holomojov\u00e1 si u\u017e\u00edvala svoje prvn\u00ed l\u00e9to na sv\u011bt\u011b.<\/p>\n

\u201eByl to nep\u0159edstaviteln\u00fd stres. Najednou se ocitnete s d\u00edt\u011btem, kter\u00e9 bylo je\u0161t\u011b v\u010dera zdrav\u00e9, v nemocnici a nev\u00edte, co bude d\u00e1l,\u201c vypr\u00e1v\u00ed Zuz\u010dina maminka Mirka Holomojov\u00e1. \u201eNejhor\u0161\u00ed ze v\u0161eho jsou asi ty chv\u00edle, ne\u017e se dozv\u00edte diagn\u00f3zu. Byli jsme s man\u017eelem zav\u0159eni v pokoji, chodili sem a tam a se sev\u0159en\u00fdmi p\u011bstmi jsme se po\u0159\u00e1d p\u0159esv\u011bd\u010dovali, \u017ee to bude dobr\u00e9. Nebylo \u2013 Zuzce na\u0161li o\u010dn\u00ed n\u00e1dor, retinoblastom. Ud\u011blali nezbytn\u00e1 vy\u0161et\u0159en\u00ed, vzali j\u00ed vzorky a pak jsme \u010dekali na to, zda je jen v tom oku, v hlav\u011b nebo v cel\u00e9m t\u011ble. To \u010dek\u00e1n\u00ed bylo nejhor\u0161\u00ed. Kdy\u017e jsme se pak po v\u00edkendu dozv\u011bd\u011bli, \u017ee je n\u00e1dor jen v oku, vlastn\u011b se n\u00e1m ulevilo.\u201c<\/p>\n

Lucie si celou cestu k o\u010dn\u00edmu l\u00e9ka\u0159i \u0159\u00edkala, \u017ee Am\u00e9lku ur\u010dit\u011b tr\u00e1p\u00ed zbyte\u010dn\u011b, \u017ee je jen hysterick\u00e1 matka, v\u0161e bude v po\u0159\u00e1dku a za hodinku budou doma. Dom\u016f se vr\u00e1tily z Motola a\u017e za \u0161est dn\u016f po s\u00e9rii v\u0161ech vy\u0161et\u0159en\u00ed a prvn\u00edm cyklu chemoterapie. Tenkr\u00e1t je\u0161t\u011b netu\u0161ily, jak dlouh\u00e1 cesta k uzdraven\u00ed to bude.<\/p>\n

V\u0161echno to za\u010dalo na dovolen\u00e9 na Lipn\u011b. Zuzka se tam batolila v chod\u00edtku pod sv\u011btlem z\u00e1\u0159ivky a kamar\u00e1dka se Mirky Holomojov\u00e9 najednou nahlas zeptala: \u201eCo to m\u00e1 v tom oku?\u201c A pak u\u017e p\u0159ed Zuzkou st\u00e1la fronta lid\u00ed a v\u0161ichni se d\u00edvali, jestli uvid\u00ed to sam\u00e9.<\/p>\n

Nikdo z nich samoz\u0159ejm\u011b tehdy netu\u0161il, \u017ee se d\u00edvaj\u00ed na efekt, za kter\u00fd je odpov\u011bdn\u00fd n\u00e1dor. \u201eOko posti\u017een\u00e9 retinoblastomem vypad\u00e1 v \u0161eru s roz\u0161\u00ed\u0159enou zorni\u010dkou pod ur\u010dit\u00fdm \u00fahlem dopadaj\u00edc\u00edho sv\u011btla jako ko\u010di\u010d\u00ed oko v noci,\u201c sna\u017e\u00ed se to popsat Lucie Krahulcov\u00e1, kter\u00e1 jej u sv\u00e9 hol\u010di\u010dky poprv\u00e9 spat\u0159ila sama. Hned zam\u00ed\u0159ila k pediatri\u010dce. Ta p\u0159i b\u011b\u017en\u00e9m vy\u0161et\u0159en\u00ed nic nezjistila, ale poradila j\u00ed, aby v p\u0159\u00edpad\u011b, \u017ee to uvid\u00ed znovu, \u0161la rovnou na o\u010dn\u00ed.<\/p>\n

\u201eRetinoblastom je dob\u0159e vid\u011bt tak\u00e9 na fotografi\u00edch po\u0159\u00edzen\u00fdch s bleskem. Netu\u0161ila jsem, \u017ee ten podivn\u00fd b\u011blav\u00fd odlesk, kter\u00fd jsem u\u017e p\u0159edt\u00edm na n\u011bkter\u00fdch sn\u00edmc\u00edch zaznamenala, je n\u00e1dor,\u201c dod\u00e1v\u00e1 Mirka.<\/p>\n

Kdy\u017e n\u011bco takov\u00e9ho objev\u00edte na jedn\u00e9 fotce, nic se ned\u011bje, ale kdy\u017e je to t\u0159eba na dvan\u00e1cti, m\u016f\u017ee u\u017e b\u00fdt n\u011bco \u0161patn\u011b. \u201eJen\u017ee my jsme o tom nikdy p\u0159edt\u00edm nesly\u0161ely,\u201c komentuj\u00ed maminky.<\/p>\n

A proto jsou dnes ob\u011b k dispozici rodin\u00e1m, jejich\u017e d\u011bti retinoblastomem onemocn\u00ed. Ony samy toti\u017e m\u011bly k diskus\u00edm jen l\u00e9ka\u0159e, kte\u0159\u00ed se samoz\u0159ejm\u011b sna\u017e\u00ed maxim\u00e1ln\u011b pomoci, ale chyb\u00ed jim ta osobn\u00ed zku\u0161enost, ta nejistota prost\u0159\u00eddan\u00e1 nad\u011bj\u00ed. Zalo\u017eily skupinu rodi\u010d\u016f na Facebooku a webov\u00e9 str\u00e1nky Retinoblastom www.retinoblastom.estranky.cz<\/strong>.<\/p>\n

Zde si ka\u017ed\u00fd m\u016f\u017ee p\u0159e\u010d\u00edst \u010dl\u00e1nky i to, jak\u00e1 \u010dekaj\u00ed d\u011bti vy\u0161et\u0159en\u00ed. K dispozici jsou informace o tom, jak retinoblastom vypad\u00e1 v\u010detn\u011b fotografi\u00ed d\u011bt\u00ed.<\/p>\n

Kdy\u017e onemocn\u011bla Zuzka a Am\u00e9lka, nic takov\u00e9ho nebylo. Rodi\u010de hledali na internetu, hlavn\u011b v zahrani\u010d\u00ed, a to s \u010d\u00edm se setk\u00e1vali, byla ta nejhor\u0161\u00ed no\u010dn\u00ed m\u016fra. \u010cetli o d\u011btech po chirurgick\u00e9m odstran\u011bn\u00ed oka s v\u00ed\u010dky p\u0159i\u0161it\u00fdmi k sob\u011b, d\u011bsiv\u00e9 p\u0159\u00edb\u011bhy rozvinut\u00fdch n\u00e1dor\u016f, kter\u00e9 ji\u017e vytla\u010dovaly bulby ven z hlavy.<\/p>\n

\u201eNic takov\u00e9ho ale v zemi, jako je \u010cesk\u00e1 republika nehroz\u00ed,\u201c uji\u0161\u0165uj\u00ed ob\u011b maminky a tak\u00e9 to v\u0161em, kte\u0159\u00ed se na n\u011b obr\u00e1t\u00ed, vysv\u011btluj\u00ed. \u201eNa retinoblastom d\u011bti t\u00e9m\u011b\u0159 neum\u00edraj\u00ed, to je velmi pozitivn\u00ed, i kdy\u017e to tak zpo\u010d\u00e1tku \u017e\u00e1dn\u00fd rodi\u010d asi nevn\u00edm\u00e1. Vyl\u00e9\u010den\u00fdch d\u011bt\u00ed je v\u00edce ne\u017e 95 procent, ale za ka\u017ed\u00fdm \u010d\u00edslem z t\u00e9to statistiky je p\u0159\u00edb\u011bh rodiny s mal\u00fdm d\u00edt\u011btem. Za t\u011bch osm let jsme potkaly mnoho rodi\u010d\u016f. Zn\u00e1me i p\u0159\u00edb\u011bhy t\u011bch, kde d\u00edt\u011b p\u0159i\u0161lo zcela o zrak, a bohu\u017eel i jeden s t\u00edm nejhor\u0161\u00edm koncem, kdy mal\u00fd chlapec sv\u016fj boj s agresivn\u00edm n\u00e1dorem prohr\u00e1l. Nejd\u016fle\u017eit\u011bj\u0161\u00ed je v\u010dasn\u00e1 diagn\u00f3za. Pokud m\u00e1te pocit, \u017ee jste v krati\u010dk\u00e9m okam\u017eiku pohl\u00e9dli d\u00edt\u011bti dovnit\u0159 oka, ur\u010dit\u011b je n\u011bco \u0161patn\u011b,\u201c \u0159\u00edk\u00e1 Lucie Krahulcov\u00e1.<\/p>\n

\u201eKdy\u017e Zuzce aplikovali do oka z\u00e1\u0159i\u010d, a nev\u011bd\u011blo se, jestli zabere, nebo se bude muset o\u010di\u010dko d\u00e1t pry\u010d, sed\u011bla jsem na chodb\u011b o\u010dn\u00edho odd\u011blen\u00ed a bre\u010dela jsem. P\u0159i\u0161la ke mn\u011b pan\u00ed, co tu ukl\u00edz\u00ed a \u0159ekla mi: ‚Pan\u00ed Holomojov\u00e1, co to \u0159e\u0161\u00edte? V\u017edy\u0165 tady ty d\u011bti zn\u00e1te a v\u00edte, \u017ee i kdy\u017e o to o\u010di\u010dko p\u0159ijdou, drand\u00ed tu za dva dny po chodb\u00e1ch na motorce a sm\u011bj\u00ed se. Jsou \u017eiv\u00ed, a tedy jsou v po\u0159\u00e1dku‘.<\/p>\n

M\u011bla pravdu. Zn\u00e1m d\u011bti, kter\u00e9 bez o\u010di\u010dka drand\u00ed po chodb\u00e1ch Motola na motorce, zn\u00e1m Ka\u010dku, kter\u00e1 letos bez oka jede Jizerskou pades\u00e1tku, Dominika, kter\u00fd zvl\u00e1d\u00e1 t\u00fary po Tatr\u00e1ch, nebo Vikinku, kter\u00e1 boduje v ly\u017ea\u0159sk\u00fdch z\u00e1vodech\u2026\u201c<\/p>\n

Mir\u010dina Zuzka se po t\u0159ech letech a peripeti\u00edch, kdy to vypadalo l\u00e9pe a zase h\u016f\u0159e vyl\u00e9\u010dila. Dnes m\u00e1 ob\u011b o\u010di, i kdy\u017e na to jedno, kter\u00e9 bylo posti\u017een\u00e9 n\u00e1dorem, nevid\u00ed. Am\u00e9lka Lucky se l\u00e9\u010dila tak\u00e9 t\u0159i roky. M\u011bla n\u00e1dory v obou o\u010d\u00edch a p\u0159es v\u0161echnu snahu nakonec o jedno p\u0159i\u0161la. Kdyby nebyla tak upov\u00eddan\u00e1 a sama se svou prot\u00e9zkou nechlubila, nepoznali byste to.<\/p>\n

\u201eJsme r\u00e1dy, \u017ee m\u016f\u017eeme nyn\u00ed mamink\u00e1m nov\u011b diagnostikovan\u00fdch d\u011bt\u00ed p\u0159ed\u00e1vat i kontakty na nadace a nada\u010dn\u00ed fondy, kter\u00e9 rodiny s nemocn\u00fdmi d\u011btmi podporuj\u00ed. Nejen finan\u010dn\u011b a materi\u00e1ln\u011b, ale tak\u00e9 psychicky. V\u011bdom\u00ed, \u017ee v tom \u010dlov\u011bk nen\u00ed s\u00e1m, \u017ee to zaj\u00edm\u00e1 n\u011bkoho dal\u0161\u00edho, kdo nav\u00edc dok\u00e1\u017ee nab\u00eddnout pomocnou ruku, je velmi d\u016fle\u017eit\u00e9. A to nejen b\u011bhem l\u00e9\u010dby, ale i po jej\u00edm ukon\u010den\u00ed, kdy d\u011bti \u010dek\u00e1 n\u00e1vrat do b\u011b\u017en\u00e9ho \u017eivota,\u201c uzav\u00edr\u00e1 Lucie Krahulcov\u00e1.<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

St\u00e1le je\u0161t\u011b jsou d\u011bti, kter\u00e9 p\u0159ijdou o zrak kv\u016fli nitroo\u010dn\u00edmu n\u00e1doru. P\u0159itom rodi\u010de mohou snadno zjistit, zda by d\u00edt\u011b mohlo m\u00edt nitroo\u010dn\u00ed n\u00e1dor a zaj\u00edt […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":30138,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-30137","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30137","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=30137"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30137\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/30138"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=30137"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=30137"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=30137"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}