{"id":30214,"date":"2018-02-27T22:03:52","date_gmt":"2018-02-27T21:03:52","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=30214"},"modified":"2018-02-27T22:03:52","modified_gmt":"2018-02-27T21:03:52","slug":"startuje-sedmy-maraton-s-roztrousenou-sklerozou","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=30214","title":{"rendered":"Startuje sedm\u00fd Maraton s roztrou\u0161enou skler\u00f3zou"},"content":{"rendered":"

Celkem 33 m\u011bst z cel\u00e9 republiky a zahrani\u010d\u00ed se letos zapoj\u00ed do tradi\u010dn\u00edho 24hodinov\u00e9ho cvi\u010debn\u00edho maratonu, kter\u00fd startuje u\u017e za \u010dty\u0159i dny.<\/strong>
\n
\nLid\u00e9 s roztrou\u0161enou skler\u00f3zou (RS), jejich bl\u00edzc\u00ed, l\u00e9ka\u0159i, terapeuti, zdravotn\u00ed sestry \u010di zn\u00e1m\u00e9 osobnosti si nazuj\u00ed tenisky, oble\u010dou sportovn\u00ed od\u011bv a vyraz\u00ed do t\u011blocvi\u010dny, aby podpo\u0159ili Maraton s roztrou\u0161enou skler\u00f3zou (MaRS). V lo\u0148sk\u00e9m roce cvi\u010dilo t\u00e9m\u011b\u0159 3 300 nad\u0161enc\u016f, letos cht\u011bj\u00ed organiz\u00e1to\u0159i tento rekord poko\u0159it.<\/p>\n

Sportovn\u011b dobro\u010dinn\u00fd maraton MaRS upozor\u0148uje na \u00falohu pohybu v l\u00e9\u010db\u011b pacient\u016f s RS. \u201e\u017divot s nemoc\u00ed je b\u011bhem na dlouhou tra\u0165, stejn\u011b jako maraton. Zapojit se do n\u011bj m\u016f\u017ee ka\u017ed\u00fd, kdo r\u00e1d podpo\u0159\u00ed dobrou v\u011bc,\u201c \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd je hlavn\u00edm organiz\u00e1torem akce. \u201eZ dobrovoln\u00e9ho vstupn\u00e9ho, kter\u00e9 na MaRSu vybereme, p\u0159isp\u00edv\u00e1me pacient\u016fm na fyzioterapii nebo pom\u016fcky, kter\u00e9 poji\u0161\u0165ovny nehrad\u00ed,\u201c dopl\u0148uje B\u00e9mov\u00e1. Minul\u00fd rok se poda\u0159ilo organiz\u00e1tor\u016fm vybrat 260 967 korun.
\nPraha, kde se cvi\u010d\u00ed 24 hodin nep\u0159etr\u017eit\u011b, za\u010d\u00edn\u00e1 s maratonem v p\u00e1tek 2. b\u0159ezna v 17 hodin v centru FitnessAction na Praze 4. Postupn\u011b se k n\u00ed budou p\u0159ipojovat dal\u0161\u00ed \u010desk\u00e1 i zahrani\u010dn\u00ed m\u011bsta. V duchu my\u0161lenky soun\u00e1le\u017eitosti a vz\u00e1jemn\u00e9 podpory se cvi\u010d\u00edc\u00ed v Praze propojuj\u00ed s jednotliv\u00fdmi m\u011bsty telemostem a v\u017edy se s ostatn\u00edmi \u00fa\u010dastn\u00edky kr\u00e1tce pozdrav\u00ed a povzbud\u00ed.<\/p>\n

\u201ePl\u00e1nujeme kruhov\u00fd tr\u00e9nink, pilates, Tai Chi a j\u00f3gu. Nebude chyb\u011bt ani cvi\u010den\u00ed p\u0159izp\u016fsoben\u00e9 osob\u00e1m s v\u011bt\u0161\u00edm omezen\u00edm pohybu a relaxa\u010dn\u00ed cvi\u010den\u00ed. Z\u00e1jemci si mohou vyzkou\u0161et i v\u00fdrobu mandal a tr\u00e9nink pam\u011bti prost\u0159ednictv\u00edm stoln\u00edch her a specializovan\u00e9ho PC programu,\u201c vysv\u011btluje fyzioterapeutka Kl\u00e1ra Novotn\u00e1. C\u00edlem maratonu nen\u00ed podat vrcholn\u00fd v\u00fdkon, ale motivovat pacienty, aby se pravideln\u011b h\u00fdbali. \u201eChceme pacient\u016fm s RS uk\u00e1zat r\u016fzn\u00e9 typy doporu\u010den\u00fdch cvi\u010debn\u00edch aktivit. Na pravideln\u00fd pohyb toti\u017e lid\u00e9 s RS \u010dasto zapom\u00ednaj\u00ed nebo jej kv\u016fli pracovn\u00edmu vyt\u00ed\u017een\u00ed nest\u00edhaj\u00ed,\u201c upozor\u0148uje Kl\u00e1ra Novotn\u00e1 a dod\u00e1v\u00e1: \u201eCvi\u010den\u00ed je p\u0159itom z\u00e1kladn\u00edm kamenem \u00fasp\u011b\u0161n\u00e9ho l\u00e9\u010debn\u00e9ho re\u017eimu. Proto jsem vypracovala motiva\u010dn\u00ed Desatero, jak za\u010d\u00edt cvi\u010dit, ve kter\u00e9 pacient\u016fm vysv\u011btluji, pro\u010d je pohyb d\u016fle\u017eit\u00fd a jak\u00e9 cvi\u010den\u00ed zvolit.\u201c
\nP\u0159\u00edkladem aktivn\u00edho pacienta s RS je zakladatel MaRSu, veterin\u00e1\u0159 Roman Kvapil, kter\u00fd s nemoc\u00ed \u017eije u\u017e 16 let. \u201eK t\u00e9to akci m\u011b p\u0159ed lety inspiroval \u017eokej V\u00e1\u0148a, kter\u00fd ve sv\u00fdch letech dok\u00e1\u017ee neuv\u011b\u0159iteln\u00e9 v\u011bci. Ale ani jemu by se neda\u0159ilo bez pravideln\u00e9ho tr\u00e9ninku. A to je tak\u00e9 hlavn\u00edm c\u00edlem maratonu \u2013 uk\u00e1zat lidem s RS, \u017ee i oni mohou d\u00edky l\u00e9k\u016fm a pravideln\u00e9mu cvi\u010den\u00ed nad nemoc\u00ed v\u00edt\u011bzit,\u201c \u0159\u00edk\u00e1 Roman Kvapil a sv\u00fdmi slovy potvrzuje motto leto\u0161n\u00edho ro\u010dn\u00edku: \u201eV\u00edt\u011bzem Maratonu s roztrou\u0161enou skler\u00f3zou je ka\u017ed\u00fd, kdo vezme \u017eivot do vlastn\u00edch rukou.\u201c<\/p>\n

MaRS ve\u0159ejnosti ukazuje, \u017ee pokud se lid\u00e9 s diagn\u00f3zou RS za\u010dnou v\u010das a spr\u00e1vn\u011b l\u00e9\u010dit, udr\u017e\u00ed se d\u00e9le aktivn\u00ed. Z posledn\u00edch dat z celost\u00e1tn\u00edho Registru pacient\u016f s roztrou\u0161enou skler\u00f3zou \u2013 ReMuS, kter\u00fd Nada\u010dn\u00ed fond IMPULS spravuje, jasn\u011b vypl\u00fdv\u00e1, \u017ee v\u00edce ne\u017e 60 % pacient\u016f dlouhodob\u011b l\u00e9\u010den\u00fdch pomoc\u00ed biologick\u00e9 l\u00e9\u010dby, m\u016f\u017ee st\u00e1le pracovat. \u201eZ\u00e1kladem terapie RS je komplexn\u00ed p\u0159\u00edstup \u2013 \u010dasn\u00e9 zaveden\u00ed biologick\u00e9 l\u00e9\u010dby spolu se zdrav\u00fdm \u017eivotn\u00edm stylem, intenzivn\u00ed rehabilitac\u00ed a pravideln\u00fdm pohybem pacient\u016fm s roztrou\u0161enou skler\u00f3zou z\u00e1sadn\u011b odd\u00e1l\u00ed vzplanut\u00ed nemoci. Z\u016fst\u00e1vaj\u00ed tak d\u00e9le pr\u00e1ceschopn\u00ed a \u017eij\u00ed kvalitn\u00ed \u017eivot,\u201c vysv\u011btluje doc. MUDr. Dana Hor\u00e1kov\u00e1, Ph.D. z MS Centra p\u0159i Neurologick\u00e9 klinice 1. LF UK a VFN Praha.<\/p>\n

MaRS p\u0159ijdou podpo\u0159it zn\u00e1m\u00e9 osobnosti \u2013 v Praze zah\u00e1j\u00ed cvi\u010den\u00ed hr\u00e1\u010di americk\u00e9ho fotbalu Prague Black Panthers, z\u00fa\u010dastn\u00ed se kickboxer Tom\u00e1\u0161 Karel nebo herec Jan \u010censk\u00fd. Do maratonu se letos zapoj\u00ed 33 m\u011bst z cel\u00e9 republiky i zahrani\u010d\u00ed. Soub\u011b\u017en\u011b budou lid\u00e9 cvi\u010dit v Brn\u011b, \u010cesk\u00fdch Bud\u011bjovic\u00edch, Hradci Kr\u00e1lov\u00e9, Jihlav\u011b, Karlov\u00fdch Varech, Kou\u0159imi, Krom\u011b\u0159\u00ed\u017ei, Liberci, Most\u011b, Nov\u00e9m Boru, Olomouci, Ostrav\u011b\/Klimkovic\u00edch, Plumlov\u011b, Plzni, Pod\u011bbradech, Praze, Teplic\u00edch, Uhersk\u00e9m Hradi\u0161ti, \u00dast\u00ed nad Orlic\u00ed\/Letohrad\u011b, Velk\u00fdch Losin\u00e1ch, \u017d\u010f\u00e1ru nad S\u00e1zavou, \u017dir\u010di u Dvora Kr\u00e1lov\u00e9 nad Labem. V zahrani\u010d\u00ed se p\u0159ipoj\u00ed slovensk\u00e1 Bratislava, Kaln\u00e1 nad Hronom, Ru\u017eomberok, Trnava a Vranov nad Top\u013eou, \u0161v\u00fdcarsk\u00e9 Valens, francouzsk\u00e9 Rennes, tureck\u00fd Izmir a po jednom m\u011bst\u011b z Polska a Finska.
\nV\u00edce informac\u00ed o maratonu MaRS je k dispozici na: www.maratonmars.cz. <\/p>\n

O roztrou\u0161en\u00e9 skler\u00f3ze
\nRoztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Alarmuj\u00edc\u00edmi p\u0159\u00edznaky RS jsou zejm\u00e9na poruchy hybnosti, koordinace pohybu, citlivosti a zraku. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. V sou\u010dasn\u00e9 dob\u011b v tuzemsku podstupuje biologickou l\u00e9\u010dbu p\u0159ibli\u017en\u011b 11 000 nemocn\u00fdch s RS.
\nNa cel\u00e9m sv\u011bt\u011b RS trp\u00ed 2,5 mili\u00f3nu nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 18\u201320 tis\u00edc. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus, kou\u0159en\u00ed a nedostatek vitaminu D. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz. <\/p>\n

O Nada\u010dn\u00edm fondu IMPULS
\nNada\u010dn\u00ed fond IMPULS (NFI) vznikl v roce 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s RS (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz.<\/p>\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

Celkem 33 m\u011bst z cel\u00e9 republiky a zahrani\u010d\u00ed se letos zapoj\u00ed do tradi\u010dn\u00edho 24hodinov\u00e9ho cvi\u010debn\u00edho maratonu, kter\u00fd startuje u\u017e za \u010dty\u0159i dny.<\/p>\n<\/div>","protected":false},"author":1,"featured_media":27490,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-30214","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30214","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=30214"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30214\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/27490"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=30214"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=30214"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=30214"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}