{"id":30249,"date":"2018-03-09T10:31:29","date_gmt":"2018-03-09T09:31:29","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=30249"},"modified":"2018-03-09T10:31:29","modified_gmt":"2018-03-09T09:31:29","slug":"maraton-s-roztrousenou-sklerozou-letos-opet-pokoril-rekord","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=30249","title":{"rendered":"Maraton s roztrou\u0161enou skler\u00f3zou letos op\u011bt poko\u0159il rekord"},"content":{"rendered":"

Celkem 356 226 korun vybrali organiz\u00e1to\u0159i cvi\u010debn\u00edho Maratonu s roztrou\u0161enou skler\u00f3zou (MaRS). Ten se letos konal u\u017e posedm\u00e9. Zacvi\u010dit si a podpo\u0159it pacienty s roztrou\u0161enou skler\u00f3zou (RS) p\u0159i\u0161lo v\u00edce ne\u017e 3 300 lid\u00ed z 33 m\u011bst. Pomysln\u00fd \u0161tafetov\u00fd kol\u00edk si p\u0159ed\u00e1vali cel\u00fdch 24 hodin v kuse.<\/strong><\/p>\n


\n\u201eJsme nad\u0161en\u00ed, \u017ee z\u00e1jem o maraton ka\u017ed\u00fd rok stoup\u00e1. \u00da\u010dastn\u00ed se v\u00edce lid\u00ed, p\u0159ipojuj\u00ed se dal\u0161\u00ed m\u011bsta v tuzemsku i zahrani\u010d\u00ed, v n\u011bkter\u00fdch m\u011bstech se dokonce cvi\u010d\u00ed na v\u00edce m\u00edstech. T\u00edm se jen napl\u0148uje p\u016fvodn\u00ed my\u0161lenka akce, \u017ee nikdo nen\u00ed na nemoc s\u00e1m a bojujeme v\u0161ichni spole\u010dn\u011b jako jeden t\u00fdm,\u201c \u0159\u00edk\u00e1 Kate\u0159ina B\u00e9mov\u00e1 z Nada\u010dn\u00edho fondu IMPULS, kter\u00fd MaRS organizuje. \u201eV\u011b\u0159\u00edme, \u017ee jsme motivovali dal\u0161\u00ed pacienty, a nejenom je, k pravideln\u00e9mu pohybu a douf\u00e1me, \u017ee jim nad\u0161en\u00ed vydr\u017e\u00ed,\u201c dopl\u0148uje. Pen\u00edze z dobrovoln\u00e9ho vstupn\u00e9ho a dar\u016f poputuj\u00ed i tentokr\u00e1t na speci\u00e1ln\u00ed fyzioterapii a n\u00e1kup rehabilita\u010dn\u00edch pom\u016fcek pro pacienty s RS, kter\u00e9 zdravotn\u00ed poji\u0161\u0165ovny nehrad\u00ed.<\/p>\n

Maraton MaRS je mezin\u00e1rodn\u00ed dobro\u010dinn\u00e1 sportovn\u00ed akce, p\u0159i n\u00ed\u017e se lid\u00e9 pod dohledem zku\u0161en\u00fdch terapeut\u016f st\u0159\u00eddaj\u00ed v kruhov\u00e9m tr\u00e9ninku nebo skupinov\u00fdch cvi\u010den\u00edch, kter\u00e1 jsou vhodn\u00e1 pro pacienty s RS. Hlavn\u00edm c\u00edlem MaRSu je motivovat nemocn\u00e9 k pravideln\u00e9mu pohybu, jen\u017e je velmi d\u016fle\u017eitou sou\u010d\u00e1st\u00ed l\u00e9\u010debn\u00e9ho re\u017eimu. \u201eZ\u00e1kladem terapie RS je komplexn\u00ed p\u0159\u00edstup \u2013 \u010dasn\u00e9 zaveden\u00ed biologick\u00e9 l\u00e9\u010dby spolu se zdrav\u00fdm \u017eivotn\u00edm stylem, intenzivn\u00ed rehabilitac\u00ed a pravideln\u00fdm pohybem pacient\u016fm s roztrou\u0161enou skler\u00f3zou z\u00e1sadn\u011b odd\u00e1l\u00ed vzplanut\u00ed nemoci,\u201c vysv\u011btluje doc. MUDr. Dana Hor\u00e1kov\u00e1, Ph.D. z MS Centra p\u0159i Neurologick\u00e9 klinice 1. LF UK a VFN Praha.<\/p>\n

Do leto\u0161n\u00edho maratonu se zapojilo 33 m\u011bst z cel\u00e9 republiky i zahrani\u010d\u00ed. Lid\u00e9 cvi\u010dili v Brn\u011b, \u010cesk\u00fdch Bud\u011bjovic\u00edch, Hradci Kr\u00e1lov\u00e9, Jihlav\u011b, Karlov\u00fdch Varech, Krom\u011b\u0159\u00ed\u017ei, Liberci, Most\u011b, Nov\u00e9m Boru, Olomouci, Ostrav\u011b\/Klimkovic\u00edch, Plumlov\u011b, Plzni, Pod\u011bbradech, Praze, Teplic\u00edch, Uhersk\u00e9m Hradi\u0161ti, \u00dast\u00ed nad Orlic\u00ed\/Letohrad\u011b, Vala\u0161sk\u00e9m Mezi\u0159\u00ed\u010d\u00ed, Velk\u00fdch Losin\u00e1ch, \u017d\u010f\u00e1ru nad S\u00e1zavou, \u017dir\u010di u Dvora Kr\u00e1lov\u00e9 nad Labem. V zahrani\u010d\u00ed se p\u0159ipojila m\u011bsta ze Slovenska, Polska, \u0160v\u00fdcarska, Francie, Finska a Turecka. <\/p>\n

Lo\u0148sk\u00e9ho ro\u010dn\u00edku se z\u00fa\u010dastnilo 3 244 nad\u0161enc\u016f a v\u00fdt\u011b\u017eek \u010dinil 260 967 K\u010d.<\/p>\n

O roztrou\u0161en\u00e9 skler\u00f3ze
\nRoztrou\u0161en\u00e1 skler\u00f3za je chronick\u00e9 z\u00e1n\u011btliv\u00e9 onemocn\u011bn\u00ed centr\u00e1ln\u00edho nervov\u00e9ho syst\u00e9mu, jeho\u017e p\u0159\u00ed\u010dina nen\u00ed doposud zn\u00e1ma. Alarmuj\u00edc\u00edmi p\u0159\u00edznaky RS jsou zejm\u00e9na poruchy hybnosti, koordinace pohybu, citlivosti a zraku. Toto onemocn\u011bn\u00ed propuk\u00e1 v\u011bt\u0161inou v mlad\u0161\u00edm v\u011bku, \u010dast\u011bji postihuje \u017eeny. Pro RS je typick\u00e9 st\u0159\u00edd\u00e1n\u00ed obdob\u00ed z\u00e1chvat\u016f (atak) a obdob\u00ed zd\u00e1nliv\u00e9ho klidu. Tento proces je nep\u0159edv\u00eddateln\u00fd, a proto i l\u00e9\u010dba \u010di prevence je t\u011b\u017ek\u00e1. V sou\u010dasn\u00e9 dob\u011b v tuzemsku podstupuje biologickou l\u00e9\u010dbu p\u0159ibli\u017en\u011b 11 000 nemocn\u00fdch s RS.
\nNa cel\u00e9m sv\u011bt\u011b RS trp\u00ed 2,5 mili\u00f3nu nemocn\u00fdch, v \u010cesku se odhaduje po\u010det pacient\u016f na 18\u201320 tis\u00edc. Nemoc se vyskytuje hlavn\u011b ve st\u0159edn\u00edch a chladn\u011bj\u0161\u00edch zem\u011bpisn\u00fdch \u0161\u00ed\u0159k\u00e1ch. Rizikov\u00fdmi faktory nemoci jsou krom\u011b genetick\u00e9 dispozice EB virus, kou\u0159en\u00ed a nedostatek vitaminu D. Informace o roztrou\u0161en\u00e9 skler\u00f3ze lze nal\u00e9zt i na port\u00e1le www.rskompas.cz. <\/p>\n

O Nada\u010dn\u00edm fondu IMPULS
\nNada\u010dn\u00ed fond IMPULS (NFI) vznikl v roce 2000. Jeho c\u00edlem je podporovat projekty v oblasti v\u011bdy, v\u00fdzkumu a terapie pacient\u016f s roztrou\u0161enou skler\u00f3zou (RS) mozkom\u00ed\u0161n\u00ed v \u010cR. P\u0159isp\u00edv\u00e1 zejm\u00e9na na fyzioterapii a psychoterapii, kter\u00e9 nejsou hrazeny z ve\u0159ejn\u00e9ho zdravotn\u00edho poji\u0161t\u011bn\u00ed, v\u011bnuje se podpo\u0159e vzd\u011bl\u00e1v\u00e1n\u00ed a osv\u011btov\u00e9 \u010dinnosti. Jako jedin\u00e1 nest\u00e1tn\u00ed neziskov\u00e1 organizace v EU je z\u0159izovatelem celost\u00e1tn\u00edho Registru pacient\u016f s RS (ReMuS), jeho financov\u00e1n\u00ed zaji\u0161\u0165uje z vlastn\u00edch zdroj\u016f. V\u00edce informac\u00ed na www.nfimpuls.cz.<\/p>\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

Celkem 356 226 korun vybrali organiz\u00e1to\u0159i cvi\u010debn\u00edho Maratonu s roztrou\u0161enou skler\u00f3zou (MaRS). Ten se letos konal u\u017e posedm\u00e9. Zacvi\u010dit si a podpo\u0159it pacienty s roztrou\u0161enou […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":20316,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9],"tags":[],"class_list":["post-30249","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zpravy"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30249","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=30249"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30249\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/20316"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=30249"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=30249"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=30249"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}