{"id":30285,"date":"2018-03-20T14:08:28","date_gmt":"2018-03-20T13:08:28","guid":{"rendered":"http:\/\/www.invarena.cz\/?p=30285"},"modified":"2018-03-20T14:10:23","modified_gmt":"2018-03-20T13:10:23","slug":"pravidelny-pohyb-je-jednim-z-klicovych-faktoru-lecby-detskych-revmatickych-onemocneni","status":"publish","type":"post","link":"https:\/\/www.invarena.cz\/?p=30285","title":{"rendered":"Pravideln\u00fd pohyb je jedn\u00edm z kl\u00ed\u010dov\u00fdch faktor\u016f l\u00e9\u010dby d\u011btsk\u00fdch revmatick\u00fdch onemocn\u011bn\u00ed"},"content":{"rendered":"

Juveniln\u00ed idiopatick\u00e1 artritida (JIA) je nej\u010dast\u011bj\u0161\u00edm d\u011btsk\u00fdm revmatick\u00fdm onemocn\u011bn\u00edm. I kdy\u017e p\u0159esn\u00e1 data pro \u010ceskou republiku nejsou k dispozici, p\u0159edpokl\u00e1dan\u00fd po\u010det d\u011bt\u00ed do 18 let trp\u00edc\u00edch JIA se u n\u00e1s pohybuje kolem dvou tis\u00edc.<\/strong>
\n
\nilustra\u010dn\u00ed foto: <\/p>\n

JIA v r\u016fzn\u00e9 m\u00ed\u0159e zasahuje klouby cel\u00e9ho t\u011bla a v\u00edce ne\u017e polovinu pacient\u016f aktivn\u00ed nemoc \u010di jej\u00ed n\u00e1sledky prov\u00e1zej\u00ed a\u017e do dosp\u011blosti. JIA zm\u011bn\u00ed \u017eivot nejen pacientovi, ale i jeho rodinn\u00fdm p\u0159\u00edslu\u0161n\u00edk\u016fm, kte\u0159\u00ed jsou \u010dasto nuceni p\u0159izp\u016fsobit nemocn\u00e9mu d\u00edt\u011bti sv\u016fj ka\u017edodenn\u00ed re\u017eim. Pomocnou ruku pacient\u016fm a jejich rodin\u00e1m pod\u00e1v\u00e1 skupina Kloub\u00edci, spadaj\u00edc\u00ed pod pacientskou organizaci Revma Liga \u010cesk\u00e1 republika. Kloub\u00edci po\u0159\u00e1daj\u00ed mimo jin\u00e9 v\u00edkendov\u00e9 l\u00e1ze\u0148sk\u00e9 pobyty, na kter\u00fdch si pacienti a jejich rodi\u010de osvoj\u00ed rehabilita\u010dn\u00ed techniky. Pravideln\u00e9 cvi\u010den\u00ed je toti\u017e z\u00e1sadn\u00ed pro zlep\u0161en\u00ed stavu pacient\u016f. Jeden takov\u00fd v\u00edkendov\u00fd pobyt se konal ve dnech 16. \u2012 18. 3. 2018 v L\u00e9\u010debn\u011b Dr. L. Filipa v Pod\u011bbradech.
\nJuveniln\u00ed idiopatick\u00e1 artritida je velmi agresivn\u00ed onemocn\u011bn\u00ed, u n\u011bj\u017e doch\u00e1z\u00ed k po\u0161kozen\u00ed kloub\u016f. Z\u00e1rove\u0148 m\u016f\u017ee m\u00edt v\u00e1\u017en\u00fd dopad na r\u016fst a v\u00fdvoj kost\u00ed. Je\u0161t\u011b p\u0159ed ned\u00e1vnou dobou se d\u011bti s juveniln\u00ed artritidou \u010dasto ocitaly na voz\u00ed\u010dku. D\u00edky nov\u00fdm l\u00e9\u010debn\u00fdm postup\u016fm se v\u0161ak st\u00e1le \u010dast\u011bji da\u0159\u00ed dos\u00e1hnout pln\u00e9 remise, tedy neaktivn\u00ed f\u00e1ze onemocn\u011bn\u00ed, bez artritidy i mimokloubn\u00edch projev\u016f. \u00dasp\u011bch l\u00e9\u010dby velmi z\u00e1vis\u00ed na jej\u00edm v\u010dasn\u00e9m nasazen\u00ed a adekv\u00e1tnosti. Optim\u00e1ln\u00ed doba zah\u00e1jen\u00ed l\u00e9\u010dby je do t\u0159\u00ed m\u011bs\u00edc\u016f od po\u010d\u00e1tku p\u0159\u00edznak\u016f. Nen\u00ed v\u0161ak bohu\u017eel v\u00fdjimkou, \u017ee pacienti jsou vy\u0161et\u0159eni odborn\u00fdm l\u00e9ka\u0159em a\u017e po uplynut\u00ed t\u00e9to doby. Vedle farmakoterapie se p\u0159i l\u00e9\u010db\u011b JIA klade d\u016fraz i rehabilitaci. \u201eL\u00e9\u010dba d\u011bt\u00ed trp\u00edc\u00edch JIA se za posledn\u00edch t\u0159icet let neuv\u011b\u0159iteln\u011b posunula, rodi\u010de si ale \u010dasto neuv\u011bdomuj\u00ed, \u017ee rehabilitace je nejv\u011bt\u0161\u00ed prevenc\u00ed obt\u00ed\u017e\u00ed,\u201c uv\u00e1d\u00ed prim\u00e1\u0159ka L\u00e9\u010debny Dr. L. Filipa MUDr. Libu\u0161e N\u011bmcov\u00e1.
\nPr\u00e1v\u011b rehabilitace je jednou z hlavn\u00edch n\u00e1pln\u00ed l\u00e1ze\u0148sk\u00fdch pobyt\u016f pro d\u011bti s JIA. B\u011bhem v\u00edkendu se jim v\u011bnuj\u00ed specialist\u00e9, cvi\u010d\u00ed s nimi a u\u010d\u00ed je, jak rehabilitovat doma. \u201ePoctiv\u00e9 pravideln\u00e9 cvi\u010den\u00ed nejenom u terapeuta, ale p\u0159edev\u0161\u00edm v dom\u00e1c\u00edm prost\u0159ed\u00ed sn\u00ed\u017e\u00ed bolest, \u00fanavu, zlep\u0161\u00ed s\u00edlu, funk\u010dnost a rozsah pohybu i celkovou kvalitu \u017eivota.\u201c \u0159\u00edk\u00e1 Edita M\u00fcllerov\u00e1, p\u0159edsedkyn\u011b organizace Revma Liga \u010cesk\u00e1 republika, a dod\u00e1v\u00e1: \u201ePo celou dobu jsou s d\u011btmi rodi\u010de, kter\u00fdm pobyty umo\u017e\u0148uj\u00ed sezn\u00e1men\u00ed se s jin\u00fdmi rodinami, spole\u010dnou diskusi, sd\u00edlen\u00ed p\u0159\u00edb\u011bh\u016f, probl\u00e9m\u016f \u010di obav a p\u0159ed\u00e1v\u00e1n\u00ed zku\u0161enost\u00ed.\u201c
\nL\u00e1ze\u0148sk\u00e9 pobyty p\u016fsob\u00ed p\u0159\u00edzniv\u011b i na psychiku d\u00edt\u011bte. \u201eMat\u011bjovi velmi pom\u00e1h\u00e1, kdy\u017e kolem sebe v l\u00e1zn\u00edch vid\u00ed d\u011bti, kter\u00e9 se pot\u00fdkaj\u00ed se stejn\u00fdm probl\u00e9mem jako on. \u010casto \u0159e\u0161\u00edme ot\u00e1zku, pro\u010d zrovna on,\u201c uv\u00e1d\u00ed Kate\u0159ina Bisov\u00e1, maminka chlapce s juveniln\u00ed idiopatickou artritidou. V pr\u016fb\u011bhu cel\u00e9 l\u00e9\u010dby a ani po n\u00ed by d\u00edt\u011b nem\u011blo b\u00fdt vy\u010dle\u0148ov\u00e1no z b\u011b\u017en\u00fdch aktivit a m\u011bly by na n\u011bj b\u00fdt v r\u00e1mci mo\u017enost\u00ed kladeny obdobn\u00e9 n\u00e1roky jako na jeho vrstevn\u00edky. Nakolik to nemoc umo\u017en\u00ed, m\u011blo by tak\u00e9 pravideln\u011b doch\u00e1zet do \u0161koly. \u201eN\u011bkter\u00e9 d\u011bti maj\u00ed individu\u00e1ln\u00ed pl\u00e1n, ten ale n\u00e1\u0161 syn na\u0161t\u011bst\u00ed nem\u00e1. V\u0161e je na domluv\u011b s u\u010diteli. Podle na\u0161ich zku\u0161enost\u00ed je o mnoho lep\u0161\u00ed, aby d\u00edt\u011b fungovalo dle sv\u00fdch limit\u016f, ne\u017e ho nadobro vy\u0159adit z aktivit, jako je nap\u0159\u00edklad sport,\u201c dod\u00e1v\u00e1 Kate\u0159ina Bisov\u00e1.<\/p>\n

Revma Liga \u010cesk\u00e1 republika
\nRevma Liga \u010cesk\u00e1 republika je spole\u010dnost lid\u00ed s revmatismem, jejich rodinn\u00fdch p\u0159\u00edslu\u0161n\u00edk\u016f a p\u0159\u00e1tel. C\u00edlem t\u00e9to spole\u010dnosti je zvy\u0161ov\u00e1n\u00ed pov\u011bdom\u00ed o revmatick\u00fdch chorob\u00e1ch. Jej\u00ed \u010dlenov\u00e9 bojuj\u00ed za plnohodnotn\u00fd a rovnopr\u00e1vn\u00fd \u017eivot zdravotn\u011b posti\u017een\u00fdch a vytv\u00e1\u0159ej\u00ed pro n\u011b region\u00e1ln\u00ed kluby po cel\u00e9 \u010cesk\u00e9 republice. Revma Liga \u010cR spolupracuje s mezin\u00e1rodn\u00edmi organizacemi stejn\u00e9ho zam\u011b\u0159en\u00ed v zahrani\u010d\u00ed a jej\u00ed \u010dinnost podporuj\u00ed l\u00e9ka\u0159i a zdravotn\u00edci.<\/p>\n

Tiskov\u00e1 zpr\u00e1va<\/p>\n","protected":false},"excerpt":{"rendered":"

Juveniln\u00ed idiopatick\u00e1 artritida (JIA) je nej\u010dast\u011bj\u0161\u00edm d\u011btsk\u00fdm revmatick\u00fdm onemocn\u011bn\u00edm. I kdy\u017e p\u0159esn\u00e1 data pro \u010ceskou republiku nejsou k dispozici, p\u0159edpokl\u00e1dan\u00fd po\u010det d\u011bt\u00ed do 18 let […]<\/a><\/p>\n<\/div>","protected":false},"author":1,"featured_media":14944,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-30285","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zdravi"],"_links":{"self":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30285","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=30285"}],"version-history":[{"count":0,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/posts\/30285\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=\/wp\/v2\/media\/14944"}],"wp:attachment":[{"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=30285"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=30285"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.invarena.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=30285"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}